myra christopher

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Perspectives Fall/Winter 2005 42 M yra Christopher tells a story: the story of a young person who dropped out of college because her family moved to a new city. Her kids got older and suddenly continuing college becomes intriguing again. Soon, the lure of learning becomes powerful. Professors become mentors, then friends. Finally, a once-elusive college degree is accomplished. The graduate is recommended to lead a new organization, in a role perfectly suited to her talents. Just another “college pays dividends” story? Not here. Because the person is Myra Christopher (B.A., ’85), and the organiza- tion is the Center for Practical Bioethics, recognized today as a Kansas City leader and a national voice for finding real-world solutions to complex issues in health care. Involved as executive director since 1985, Christopher also became president and CEO in 1994. The center’s staff of 20 operates from the 29th floor of Town Pavilion tower downtown. In those fledgling years in a small ground- floor office, though, she was just a full-time volunteer and the center was just a bit more than a great idea with a budget of $7,000. A key to the growth is the clarity of the center’s stated mission: “A society in which the dignity and health of all people is advanced through ethical discourse and action.” It’s the center’s obligation, Christopher says, to elevate and monitor conversations about health care decision-making, and to respond to ethical issues that bubble up from today’s medical care possibilities. What are the issues surrounding early stem cell research? How do we keep terminally ill people from suffering spiritual, psychological, financial and social distress? How are patients’ right maintained and communicated when they can no longer speak for themselves? Today, the center’s four focus areas are clinical and organizational ethics (empower- ing health care professionals and advocating for patients’ rights), aging and end of life care, life sciences and research ethics (critical issues in life sciences and medical technology), and disparities in health care, including access to reasonable care by all people. The connecting event for Christopher’s career path was her mother’s death. During her two-year battle with stomach cancer, Christopher’s mother chose not to be terrified by the dying process. She faced her impending death with dignity, even taking up quilting after her terminal diagnosis. “She died her way, a self-directed death,” Christopher says, at home, with a caring physician and “surrounded by friends and family.” That approach brought focus to her passion for people. She says she knew then that she would spend the rest of her life helping families in similar situations. What she didn’t have was an outlet. “I thought my promise was to be in the hospice field. But a friend encouraged me to attend UMKC,” she says. While still a mom in Johnson County, Kan., Christopher began a seven-year odyssey of UMKC coursework. “I’d get the kids off to school and then hang out there,” she says. “UMKC gave me an opportunity to reflect on my experiences. They treated me like a peer.” Classes on death and dying helped fuel her desire for knowledge, but it was through a philosophy class taught by Professor Hans At the Center o f Dignity The death of a loved one shaped Myra Christopher’s future. How she used it to influence national policy is an inspiration for the rest of us. By Michael Johnson Design by Debra Phillips

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Page 1: Myra Christopher

Perspectives Fal l /Winter 200542

Myra Christopher tells a story: the story

of a young person who dropped out

of college because her family moved to a

new city. Her kids got older and suddenly

continuing college becomes intriguing again.

Soon, the lure of learning becomes powerful.

Professors become mentors, then friends.

Finally, a once-elusive college degree is

accomplished. The graduate is recommended

to lead a new organization, in a role perfectly

suited to her talents.

Just another “college pays dividends”

story? Not here. Because the person is Myra

Christopher (B.A., ’85), and the organiza-

tion is the Center for Practical Bioethics,

recognized today as a Kansas City leader

and a national voice for finding real-world

solutions to complex issues in health care.

Involved as executive director since 1985,

Christopher also became president and CEO

in 1994. The center’s staff of 20 operates

from the 29th floor of Town Pavilion

tower downtown.

In those fledgling years in a small ground-

floor office, though, she was just a full-time

volunteer and the center was just a bit more

than a great idea with a budget of $7,000.

A key to the growth is the clarity of

the center’s stated mission: “A society in

which the dignity and health of all people

is advanced through ethical discourse and

action.”

It’s the center’s obligation, Christopher

says, to elevate and monitor conversations

about health care decision-making, and to

respond to ethical issues that bubble up from

today’s medical care possibilities. What are the

issues surrounding early stem cell research?

How do we keep terminally ill people from

suffering spiritual, psychological, financial

and social distress? How are patients’ right

maintained and communicated when they

can no longer speak for themselves?

Today, the center’s four focus areas are

clinical and organizational ethics (empower-

ing health care professionals and advocating

for patients’ rights), aging and end of life care,

life sciences and research ethics (critical issues

in life sciences and medical technology), and

disparities in health care, including access to

reasonable care by all people.

The connecting event for Christopher’s

career path was her mother’s death. During

her two-year battle with stomach cancer,

Christopher’s mother chose not to be

terrified by the dying process. She faced her

impending death with dignity, even taking up

quilting after her terminal diagnosis.

“She died her way, a self-directed death,”

Christopher says, at home, with a caring

physician and “surrounded by friends and

family.”

That approach brought focus to her

passion for people.

She says she knew then that she would

spend the rest of her life helping families in

similar situations. What she didn’t have was

an outlet.

“I thought my promise was to be in the

hospice field. But a friend encouraged me to

attend UMKC,” she says.

While still a mom in Johnson County,

Kan., Christopher began a seven-year

odyssey of UMKC coursework.

“I’d get the kids off to school and then

hang out there,” she says. “UMKC gave me

an opportunity to reflect on my experiences.

They treated me like a peer.”

Classes on death and dying helped fuel

her desire for knowledge, but it was through

a philosophy class taught by Professor Hans

At the Center of Dignity

The death of a loved one shaped Myra Christopher’s future. How she used it to influence national policy is an inspiration for the rest of us.

By Michael JohnsonDesign by Debra Phillips

Page 2: Myra Christopher

Fall /Winter 2005 Perspectives 43

Uffleman that really connected Christopher’s

passion for human dignity and understanding

with a career possibility.

“Hans was fascinating!” she says. “The

hardest, most challenging teacher ever. Hans

became my mentor.”

The fledgling field Uffleman was interested

in was called bioethics, a movement seeking

to help people understand their health

conditions and options in an era in which

expanding medical technology began to

present extraordinary choices for both

physicians and patients.

Uffleman, Christopher notes, imagined a

place where practitioners in medicine, law,

philosophy and other fields could collaborate

to address the ethical implications faced in

a medical world in which a natural process

– death – became only once choice in the

life equation.

One of the first such cases to hit the

national scene was Missouri’s own Nancy

Beth Cruzan case in 1991, which went all

the way to the U.S. Supreme Court. In 2005,

the Terry Schiavo case and the debate about

stem cell research brought ethical issues for

end-of-life care and research implications to

the forefront of everyday Americans.

And the Center for Practical Bioethics

was already there, with a 20-year reputation

of bringing together those with opposing

viewpoints to address such difficult issues.

Myra Christopher has had her hand on the

rudder all that time.

“We knew very early on Myra was the

person we wanted to convince to come on

and lead the center,” says Mary Beth Blake, a

center co-founder and Chair of the Health

Care Law Group at Polsinelli, Shalton Welte

Suelthaus law firm. “The center would not

be the vital force in our community, state

and nationally without Myra’s energy and

devotion to its purposes.”

Bill Colby, the Kansas City attorney who

argued the Nancy Cruzan case before the

U.S. Supreme Court, says the CPB “is the

gold standard in bioethics.”

He became aware of the center through

the Cruzan case and has been a supporter

since that time. “The center has led the social

dialogue around the hard questions we face

as medical technology advances.”

“She’s been able to attract a wonderful

cadre of people who share the vision and

have been able to take the center to new

levels,” Blake says.

Myra Christopher emphasizes that her

goal, as the center’s name implies, is finding

practical applications for the issues the

center addresses.

“There is such a need for this organiza-

tion,” she says. “We’re a group of

social engineers who are willing to fail …

if we think what we’re doing can make a

difference.”

More information: www.practicalbioethics.com

“As a culture, we have typically lost the interest in and capacity for suffering with others ... Widespread erosion of sympathy produces unnecessary suffering, robbing dying persons of comfort and dignity.”

Life’s End: Technocratic Dying in an Age of Spiritual Yearning

David Moller, Ph.D.Director, Office of Medical Humanities

School of Medicine

David Moller is passionate about teaching soon-to-be doctors just how important a large dose of personal understanding is in the lives of patients.

Moller, who is director of the School of Medicine’s Sirridge Office of Medical Humanities, believes, like Myra Christopher, that death in today’s society has become something to be universally feared, rather than faced as a natural consequence of the human experience.

“Dying has become medicalized, feared,” he says. “Our quality of life is being diminished because of it.”

Moller came to UMKC in 2004, pretty much as a result of working with a colleague at Indiana University who not only was a UMKC Medical School alumnus, but a recipient of the school’s “Take Wing” award.

Of course, that meant the colleague was deeply familiar with the school’s emphasis on bringing more human interaction to medical school education. Through the Medical Humanities program, UMKC’s medical students have mandatory courses in various aspects of teaching this concept, even as a first-year student.

“What I was trying to do at Indiana was happening in Kansas City,” Moller says. “Many schools offer something, but this kind of rigorous requirement is innovative, unique and trendsetting.”

To his students, he's often referred to as “Dr. Death” because of his various courses on death and dying. It’s sort of a compli-ment. By the end of the year, because of the understanding he provides into life and mortality, he hopes they remember him as “Dr. Life.”

Learn more about the Program of Medical Humanities at www.umkc.edu/medicine, or pick up Moller’s book, Life’s End: Technocratic Dying in an Age of Spiritual Yearning.

Humanities: Woven Into

the Med School Life

“The Center puts “practi-

cal bioethics” into action.

Reasoned, real-world

responses to ethically complex

situations and, ultimately,

the greatest peace of mind

possible for those who must

decide. Our model blends

strategies and strengths

from the bioethics, health

decisions and quality improve-

ment programs.”

From “How the Center Works: Raising and Responding to Ethical Issues”

By Michael JohnsonDesign by Debra Phillips