NDAU/NNAP Collaborators Meeting

Neena Modi

Professor of Neonatal Medicine

Imperial College London

Vice President, Science & Research

Royal College of Paediatrics & Child Health

Newborn care is now visible!

• 2003: Department of Health review;

establishment of Neonatal Networks

• 2006: National Neonatal Audit Programme established

• 2007: National Audit Office report “Caring for Vulnerable

Babies: The reorganisation of neonatal services in England”

• 2007: Neonatal Data Analysis Unit established

• 2008: Neonatal Taskforce

• 2009: Neonatal Toolkit

• 2010: NICE Quality Standards for Neonatal Specialist Care

• 2011: National Neonatal Audit Programme funded to 2014

Newborn care is leading the way

• National organisation of delivery

• National professionally developed dataset

• National electronic data capture at the point of

care, by clinical staff

• National quality standards, first wave

• National audit

The National Neonatal Audit Programme

• Lead by the Royal College of Paediatrics & Child Health

• Commissioned by the Healthcare Quality Improvement

Partnership

• Awarded following a national tendering process

• Managed by a Project Board, chaired by Dr Michael

Watkinson, Consultant Neonatologist, Birmingham

Heartlands Hospital

• Administered by Kim Davis

RCPCH Science & Research Department

What is the Neonatal Data Analysis Unit

• An independent academic unit, launched in 2007, led

by a Steering Board

• An initiative that aims to improve electronic data

quality and develop their use to improve clinical care

and service planning, and for health services and

clinical research

• Builds on the principal that data should be captured

once and should be of high quality

NDAU Steering Board

Jane Abbott Head of Programmes, Bliss

Peter Brocklehurst Professor of Perinatal Epidemiology & Director, National Perinatal Epidemiology Unit

University of Oxford

Kate Costeloe Professor of Paediatrics,

Queen Mary University of London

Elizabeth Draper Professor of Perinatal Epidemiology, University of Leicester, Chair, British Association of

Perinatal Medicine Data Group

Jacquie Kemp London Perinatal Director

Azeem Majeed Professor of Primary Care & Public Health,

Imperial College London

Neena Modi (Chair) Professor of Neonatal Medicine,

Imperial College London

Andrew Wilkinson Professor of Paediatrics, University of Oxford

What the NDAU provides

• Consistency in data management across networks

• Population-based mortality and morbidity surveillance

• Benchmarking

• Case-mix adjusted outcomes

• Complex outputs

• Support for quality improvement programmes

• Support for clinical and health services research

• Development of new audits and initiatives

NDAU: NHS activities

NHS Trusts(Caldicott Guardian and Lead Clinician Approval)

“NNAP”National

Neonatal Audit Programme

Royal College of Paediatrics & Child Health

National Perinatal

Epidemiology Unit

“MBRRACE-UK”

(Mothers & Babies:

Reducing Risk through Audits & Confidential

Enquiries across the UK)

“Matching Michigan”

Reducing line associated

bloodstream infection

“CHILP”Children’s Infection Linkage Project

NDAU TeamEugene Statnikov, Shalini Santhakumaran, Sridevi Nagarajan, Brad Manktelow, Richard Colquhoun

Neonatal Data

National Patient Safety

Agency

Health Protection

Agency

British Association of

Perinatal Medicine

NHS Information

Centre

Development of core

dataset to define levels of neonatal

care

Maternity dataset

development support

NDAU: Research activities

Neonatal Data Analysis Unit

NHS Trusts

Improving data quality

The NDAU teamE Statnikov, S Nagarajan, S

SanthakumaranProf Neena

Modi

National Neonatal Database

Reliability of NHS two-

year outcome

assessmentsHilary Wong, Prof Deborah

Ashby,Dr F Cowan, Dr A Huertas

Facilitating clinical

trials; NEC surveill’nce

Cheryl Battersby, Prof Kate Costeloe

Linkage to NHS

Records Programme

Jo Murray, Prof Azeem

Majeed

Heath Economics

Dimitrios Rothivis,

Prof Stavros Petrou

Parent Involvement

Victoria Foster,

Jane Abbott, Prof Alys

Young

A Preterm Growth

Reference

Prof Tim Cole, Prof

Neena Modi

Caldicott Guardian Approval

National Information Governance Board, Ethics & Confidentiality

Committee Approval

NHS Trust R&D Approval

National Neonatal Database Research Ethics Approval

Project Specific Research Ethics Approval

Acknowledgements

• Contributing Neonatal Units around

the country, staff, parents and patients

• The NNAP and NDAU teams

• Collaborators, supporters and funders