Methods & Process:

What does open and accessible research mean?

How can NHS Citizen enable this?

Participatory Action Research

“A collaborative process of research, education and action explicitly

oriented towards social transformation” (Kindon et al 2007)

Conventional timeframe of research Review of previous research

Design questions

Design methods

Do fieldwork

Analyse data

Theorise data

Write up

Finished! Next project.......

Participatory Action Research Kurt Lewin’s cycle of reflection and action research:

Iterative process

With PAR these activities are undertaken collaboratively

by all participants

What are the implications for knowledge?

Participatory Action Research: Ethics

What are the practicalities of carrying out research with citizens?

Typically Ethical issues in research

include: Information

Consent (for adults and children)

Anonymity

Protection, e.g. CRB clearance

“Doing no harm” – limiting distress

Letting respondents know findings

A participatory ethics:Doing no harm? Or doing some good?

A contextual, relational and dynamic ethics, which will vary over time

and between projects as they emerge from debate among all

participants:

Representation Accountability

Social responsiveness Agency

Reflexivity

Small group discussion: Challenges and Opportunities of Participatory ResearchWhat does open and accessible research mean?

What are the practicalities of carrying out research with citizens?

How can NHS Citizen enable this?

What do researchers need from NHS Citizen?