nursing and healthcare ethics: making a difference for...
TRANSCRIPT
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Douglas P. Olsen, PhD, RN Nurse Ethicist, National Center for Ethics in Health Care &
Associate Professor, Uniformed Services University
Nursing and healthcare ethics:
Making a difference for patients
January 14, 2012
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Disclaimer
I am responsible for the
contents of this
presentation. The views
expressed should not be
construed as representing
those of the National
Center for Ethics in Health
Care, the Veterans Health
Administration, the US
Department of Defense, or
the US government.
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The aches of others hang by a hair. - Sancho Panza
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“Hell is other people.” From No Exit by Jean-Paul Sartre
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Look at the birds –
they’re free and yet they
build nests . . . . We’re
all looking for freedom
from our obligations to
our fellow man, but that
is precisely what makes
us human beings. . .
Leo Tolstoy and Maxim Gorky, 1900
Tolstoy in an interview with Gorky
In The Portable Twentieth-Century Russian Reader, C. Brown ed. New York: Penguin. pg 33.
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Nurses’ Perceptions of Nursing*
• People don’t understand nursing unless they
or a family member has been sick
• Nursing as a way of life - Nurses have a
strong personal identification with nursing
• The primary value of nursing is a more
holistic approach to patient care
• Nurse participation in decision making varies
considerably by type of unit or work
• Nurses act as patient advocates
*Data from the International
Value of Nursing Study
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Louise Fletcher as
Nurse Mildred Ratched
in One flew over the
cuckoo’s nest
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Harold is a 57 year-old man being treated at home
for severe COPD and diabetes. He is morbidly
obese and is generally uncooperative with his
care. His wife cares for him but is emotionally
unable to challenge his requests for sweets and
cigarettes. He is beginning to develop decubitus
ulcers on his coccyx and his heals. He refuses to
turn or modify his position.
Thanks to the nurses of the Hartford, Connecticut Visiting Nurses Association
Harold wants to be left alone
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Mary wants to go home Mary is a 38 year-old woman brought to the ED by her brother. She
is diagnosed with depression and personality disorder with mixed
borderline and dependant features. She reports being anxious and
depressed for the past week prior after being threatened with
eviction.
Her brother says Mary called and said she was feeling suicidal and
thinking about taking an overdose.
Mary told the ED physician that she had suicidal ideation and took
“several meds” but later told the nurse that she was only upset and
took “one extra lorazepam” to calm down. Since admission
documentation of 15 minute checks all say “calm and co-operative.”
After several hours waiting for an inpatient bed in the crowded
ED, she is angry and wants to go home.
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Objectives
Participants will be able to:
• Identify the influence on clinical practice of the Western
perspective in the application of bioethical principles
• Recognize the role of virtue in ethical practice
• Identify the role of relational skill in achieving better
ethical outcomes in everyday practice situations
• Recognize and counter the negative influence of a
patient behavior on clinical relationships
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Outline • Western perspective and healthcare ethics
• Relational skill as a virtue to achieve better
ethical outcome
– Virtue
– Clinical relationships in achieving ethical
outcome
• Two cases
• Patient responsibility and the clinical relationship
• Ethical use of influence
• Relational ethics in practice
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Aspects of Western perspective:
Atomistic individualism
• Analysis structured by individual rights
– Adversarial relations whenever there is
uncertainty of values
• Emphasis on blame
– Legitimate and illegitimate suffering
• Discomfort with influence as decreasing
autonomy – Informed consent v. Shared decision-making
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What is peculiar to the
modern West among such
higher civilizations is that
its favoured formulation for
this principle of respect has
come to be in terms of
rights. Taylor, C. (1989). Sources of the self. pg. 11
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Aspects of Western perspective
• Psychological distance from decisions
• Assumption that rationality equals
personhood creates near obsession
with competence
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Historical definitions emphasize rationality
“. . . since mind more than anything else is man.”
Aristotle (350 BCE)
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Consequences of Western
perspective in clinical ethics
• Primary concern with limitations
–Focused on preventing abuse
• Dichotomous thinking
• Emotion is negative
• Particularistic relationships not
relevant
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Relational skill as a virtue to achieve
better ethical outcome
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Virtue ethics • A set of concepts with a long history in
Western thought positing that good occurs
through the actions of individuals who enact
particular virtues.
• Contrasts with the dominant tradition which
holds that good is achieved through the
application of the correct set of rules, guides or
principles
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Virtuous action
• Virtue – Intention and action
–Ethical rigor for intention
–Empirical rigor for actions
• Rest Model*
–Perception
–Moral development
– Integrity
–Courage
* Rest. (1986). Moral Development: Advances in research and theory.
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Relational approach
- Affliative
Rights-based approach
- Adversarial
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• Extraordinary sacrifice
• Supererogatory
• Positive use of power
• What can be done
• Focus on responsibility
• Focus on limitation
• What must be done
• Limitation on power
• Duty
• Legal obligation
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Comparison between Universal-Principle
and Context-Oriented Ethical Theories
Universal-Principle Context-Oriented
Concept of fairness Equality Equity
Relevance of context Context extraneous Context is a primary
consideration
Relevance of principles Primary consideration Little help in specific cases
Cognitive style Abstract Concrete
Ideal point of view Distance
Nagel’s View from No Where From the individual
Tradition Extraneous Important
Method Infer relevant principles
from context and then apply
abstractly
Immersion in narrative
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Patient
Nurse
Nurse
Nurse
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Ethics “outcomes” • Rights honored
• Dignity accorded
• Goals of treatment met
• Experience of concern
• Patient’s personal goals furthered
• Patient’s personal growth enhanced
• Family supported
• Intrusiveness of treatment minimized
• Degree of “GOOD” achieved
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Recall our Two Cases
1. Harold: An obese home care
patient with a decubitus ulcer on
the coccyx refuses to be turned.
2. Mary: An angry psychiatric patient
threatens to leave the hospital early.
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Harold
Rights only
• Assess patient’s
decision-making
capacity
– If capacity
• Disclose information
needed for informed
consent
• Accept refusal
– If without capacity
• Turn despite patient’s
protests
Relational
• Explore why the patient
resists turning
• Look for way to turn the
patient, accommodating
the objections
• Or, follow a harm-
reduction model to plan
the best care acceptable
to the patient without
turning.
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MARY Rights only
• Assessed for danger
– If yes – forcibly treated
– If no – released whatever the
need for treatment
• Assess competence
– If yes – proceed in relation to
danger
– If no – Seek legal judgment of
incompetence permanently
removing right to make health
care decisions
Relational • Convey willingness to listen
to her problems
• Encourage her to explain
unmet needs
• Shows her how her needs can
be met in the hospital
• If the she decides to leave,
this approach may increase
the possibility that she will
accept an outpatient plan
rather than angrily rejecting
all care
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Commonalities of better outcome
• Knowledge of the patient as a person
• Time
• Skill in relationships, especially listening
• Respect for the patient and ability to convey
that respect
• Patient rights, bioethical principles and
stakeholder claims are peripheral considerations
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Alteration of health
behaviors occurs through
the use of influence in
clinical relations.
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Therapeutic connection is
more difficult when patient
is held responsible for the
problem by the clinician.*
*Olsen. (1997). When the patient causes the problem: The effect of patient
responsibility on the nurse-patient relationship. J Adv Nurs, 26, 515-522.
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Notes on relationship
• Caring concern for the patient is not part of
treatment – it is the reason for treatment.
• Factors affecting the clinical relationship:
– Patient seen as not responsible for problem1
– Patient communication skills2
– Patients express appreciation for nursing care3
– Patient's social skills4
– Degree of similarity in values
1 Morrison, 1990; Olsen, 1997
2 Podrasky & Sexton, 1988
3 Kahn & Steeves,1988
4 Podrasky & Sexton, 1988
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Michel Foucault (1926 - 1984)
Only individual
illnesses exist: not because the
individual reacts
upon his own illness
but because the action
of the illness rightly
unfolds in the form of
individuality.
From: The Birth of the Clinic, (1973), pg. 168-9.
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Jonas criteria for responsibility
1) Causality • The act must cause the consequence
2) Control • The agent must control the act
3) Foresight • Agent must foresee the consequence
Jonas H. (1984) The Imperative of Responsibility: In Search of an Ethics for a Technological Age.
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Smoking – Lung cancer*
• Causality – Smoking causes lung
cancer
• Control – Smoking is a deliberate act
• Foresight – The link between smoking
and lung cancer is well documented and
publicized
*From: Olsen, D. (1997). When the patient causes the problem: The effect of patient
responsibility on the nurse-patient relationship. Journal of Advanced Nursing, 26, 515-522.
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Smokers are
responsible for
getting lung cancer--
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Causality:
Risk factors for lung cancer
• Smoking
• Second hand smoke
• Radon
• Asbestos • Diet
• Family History
– Genetics
• Gender
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Picture from: Hyman, (2001). Drug Abuse and Addiction.
In Scientific American Medicine, Dale, D. Ed.
Control:
Action of nicotine on neural reward system
Ventral Tegmental Area
Nucleus Accumbens
Enkephalen
mu Opiate Receptor
GABAA Receptor
GABA
Dopamine Neuron
Dopamine
Receptor
GABAB
Receptor
Dopamine
Reward
Mu receptor upregulated
by Nicotine
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Cirrhosis - Alcoholism
• Causality – Alcoholism causes cirrhosis
• Control – Dinking is a deliberate act
• Foresight – The link between drinking
and cirrhosis is well documented and
publicized
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Alcoholics are
responsible for
getting Cirrhosis --
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Causality: Even in drinkers, nutrition, and genetics
play a role in determining who get the disorder.
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Picture from: Hyman, (2001). Drug Abuse and Addiction.
In Scientific American Medicine, Dale, D. Ed.
Control: Action of alcohol on neural reward system
Ventral Tegmental Area
Nucleus Accumbens
Enkephalen
mu Opiate Receptor
GABAA Receptor
GABA
Dopamine Neuron
Dopamine
Receptor
GABAB
Receptor
Dopamine
Reward
ETOH potentiates
GABA receptors
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Control: Social context
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Foresight and
social context
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And if the patient whose wounds
you are washing did not meet you
with gratitude, but worried you
with his whims, without valuing or
remarking your charitable services,
began abusing you and rudely
commanding you, and complaining
to the superior authorities of you
(which often happens when people
are in great suffering) – what then?
Would you persevere in your love,
or not?’ Fyodor Dostoevsky in The Brothers Karamazov. pg. 61
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Ethical use of influence
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How much and what types of
influence are ethically justified
with patients who don’t want the
treatment that you believe is in
their best interests?
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Influence is intrinsic to
the meaning of treatment
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Factors bearing on the use of influence*
• Strength and nature of clinical relationship
• The patient’s willingness
• Potential for harm
• Likelihood of the harm
• Degree of benefit
• Intensity of intervention
• Intensity of the method to exert influence
• Patient’s mental state and competence
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Continuum of ways to
influence patients*
• Physical force
• Manipulation of resources
• Manipulation of social forces
• Social pressure
• Advice
*Olsen, D. (2003). Influence and coercion: relational and rights based ethical approaches to
forced psychiatric treatment. Journal of Psychiatric and Mental Health Nursing, 10, 705-711.
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Very likely Not at all likely
Some InfluenceLow impact
influence, e.g. adviceMore coercive
methods
Threshold criteria of forced treatment
Probability of harm
Severe harm Lesser harmMagnitude of harm
Significant benefit Less benefitMagnitude of benefit
Very likely Not at all likelyProbability of benefit
Severely impaired Competent/MaturePatient’s mental state
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Harold • Intrusiveness of intervention
– Low
• Magnitude of Harm
– Potential for serious harm
• Probability of harm
– Very high
• Magnitude of benefit
– High
• Probability of benefit
– Less certain than harm
• Mental state
– Likely competent but stubborn
Mary • Intrusiveness of intervention
– Very high
• Magnitude of Harm
– Uncertain
• Probability of harm
– Uncertain-low
• Magnitude of benefit
– Moderate
• Probability of benefit
– Moderate
• Mental state
– Possibly impaired
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Principles of harm reduction-1*
• People choose harmful behavior, HR seeks
to minimize the degree of harm
• Health behavior “is a complex, multi-
faceted phenomenon” on a continuum
where some behaviors are safer then others
• Quality of life and not compliance are the
criteria of successful intervention
• Non-judgmental, non-coercive provision of
services to assist patient in reducing risk
* Adapted from: Harm Reduction Coalition: Principles of Harm Reduction
<http://www.harmreduction.org/article.php?list=type&type=62>
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Principles of harm reduction-2*
• Patients are the primary agents of reducing
harm, HR seeks to empower patients to meet
perceived needs in real life conditions
• Poverty, class, racism, and social isolation,
affect both people's vulnerability and capacity
for effectively dealing with behavioral change
• The real threat of the behavior must not be
minimized or exaggerated
* Adapted from: Harm Reduction Coalition : Principles of Harm Reduction
<http://www.harmreduction.org/article.php?list=type&type=62>
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Ethics and harm reduction
• Respects patient’s choice
• Action directed toward patient’s well being
• Acts for benefit of others by reducing risk
• Conveys message of caring, concern for
patient’s welfare
• Evidence shows HR works in drug abuse
and AIDS
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• Addiction reduces autonomy
– One of the rationales for tolerating smoking is
to value the patient’s choice
• In some cases can means risk to third
parties
– Smoking with oxygen
– Driving
Arguments against harm reduction -1
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Arguments against harm reduction -2
• Fears that HR encourages negative behavior
• HR sends a mixed message
• HR fails to get patients to stop behavior
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Four lessons from investigating
patient complaints
1 Tell patients what’s going on and what to
expect, even if they aren’t going to like it.
2 Pay attention to the process of care
3 Allow patients to feel ambivalent about
treatment
4 Relationship
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Their usefulness did not depend on making the patient
swallow substances for the most part harmful. . .
but they were useful, necessary, and indispensable
because they satisfied the moral cravings of the
patient and those who loved her and that is why
there are, and always will be, pseudo-healers, wise women, homeopaths, and
allopaths. They satisfied that
eternal human need for hope
of relief, for sympathy,
and that something should
be done, which is felt
by those who are
suffering.
Leo Tolstoy in War and Peace. chp. 9
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