opentrials || ben meghreblian || future health
TRANSCRIPT
An open, linked database of information about the world's clinical trials
Ben Meghreblian, Community Manager
Clinical trials - a quick overview (1/2)● Testing treatments● Pharmaceutical, psychological, medical devices● Industry and academia
● Results used to make healthcare decisions○ Regulators, policy makers, doctors, and healthcare professionals
BUT...
opentrials.net
Clinical trials - a quick overview (2/2)● Messy information architecture/knowledge management
● Not all trials published -> biased view of literature● Results misreported in academic journals● Results reported differently in different places● Journal articles less complete than other sources (CSRs)● Other documents contain important info
● No one place where info/data is located + poor cultural norms re: sharing/transparency
SO...
opentrials.net
OpenTrials overview
opentrials.net
How are we building it?● 3 ways
○ Scraping registries○ Donations of structured data○ Crowdsourced document contributions
opentrials.net
335,032 deduplicated trials
ClinicalTrials.gov 223,317EU CTR 28,685WHO ICTRP 320,430
Who will use it?● Researchers
○ range of trials on a drug/disease area
● Doctors○ critical appraisals of research papers
● Patients○ enroll or check for results
● Data journalists○ interesting data driven stories
● Developers○ build applications on top of the OpenTrials API
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Get involved!● Looking for:
○ Data partners■ structured data (PhD, publication bias/systematic reviews), mapping terms
○ Funding partners■ prioritise drug/disease area, funding, in-kind resources
○ Community partners■ patient groups, trial sponsors, orgs that use/generate/contribute data
○ Individual partners■ data sources, data sets, data cleaning
○ Users■ user testing, early platform/data access, feature requests
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OpenTrials team● Dr Ben Goldacre (Principal Investigator)● Emma Beer (Senior Project Manager)● Paul Walsh (Head of Technical Product)● Vitor Baptista (OpenTrials Technical Lead)● Evgeny Karev (Senior Developer)● Ben Meghreblian (Community Manager)
opentrials.net
Thank youEmail: [email protected]
Twitter: @opentrials
Hack Day (8th Oct, Berlin): opentrials.net/hackday
Beta launch (10th Oct, Berlin): opentrials.net/launch
Academic paper: opentrials.net/paper
Contribute: opentrials.net/contribute
opentrials.net