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PA, CUMBERLAND and PERRY COUNTIES NEWS P. 1 - Family to Family Promo P. 2 - Program schedules and Board roster P. 3 - NAMI Annual convenon and MHFA informaon P. 4 - NAMI Connecons noce; Membership promo and solici- taon for leaders; Sympathies for Monica Sjoberg P. 5 - Response to Robin Williams’ death P. 6 - Treatment for Depression P.7- Arcles about MAWD survival and value of posive thinking P.8—9 Bonus pages for email recipients Aug 18th—Dauphin Cty Support Mtg Aug 21st—Carlisle and New Cumberl and Support Mtgs Aug 24th—NAMI Connecons Mtg Aug 26/27—Mental Health First Aid Sept 3—6—NAMI Naonal Annual Convenon in Wash.DC Sept 4th—West Shore Support Mtg Sept 10th—Family to Family starts Sept 14th—NAMI Connecons Mtg Sept 18th—Carlisle and New Cum berland Support Mtgs AUGUST MEETING NAMI PA of CUMBERLAND and PERRY COUNTIES THURSDAY, AUGUST 21, 2014 at S.T.A.R. 253 Penrose Place, Carlisle, Pa. [See page 4 for direcons] 7:00 —8:30 PM Support Meeng P.O. Box 527 Carlisle, PA 17013 http://www.namipacp.org [email protected] Message line number: 240-8715 NAMI PA C/P will again offer the high- ly acclaimed Family to Family Educa- on program starng Wednesday, September 10th at the Carlisle YWCA at 301 G Street, Carlisle. This educa- on is for family members and those with loved ones who have a serious mental illness. Those who have taken this 12 week course in the past have aested to the value of the course with very powerful and posive tesmonials. The course is FREE, but registraon is required. Call or email Ann at 249- 6318 or [email protected]. The course will give you valuable in- formaon about mental illness, treat- ments, the treatment system, and coping strategies. The members of the class will become supports for each other during the class, in in many instances, thereaſter. Duplicaon and distribuon of this Newsleer is made possible by the MH/IDD Board of Cumberland/Perry Counes Inside this issue: DON’T MISS THE FAMILY TO FAMILY COURSE STARTING SEPTEMBER 10TH NAMI is the largest naonwide, grassroots membership organizaon devoted to improving the lives of those affected, directly and indirectly, by serious mental illness. NAMI is comprised of family members, friends and consumers. Volume XVII, Issue 8 August 2014 Calendar: Contact Us: 1

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Page 1: PA, CUMBERLAND and PERRY COUNTIES NEWS...PA, CUMBERLAND and PERRY COUNTIES NEWS P. 1 - Family to Family Promo P. 2 - Program schedules and oard roster P. 3 - NAMI Annual convention

PA, CUMBERLAND and

PERRY COUNTIES NEWS

P. 1 - Family to Family Promo P. 2 - Program schedules and Board

roster P. 3 - NAMI Annual convention and

MHFA information P. 4 - NAMI Connections notice;

Membership promo and solici-tation for leaders; Sympathies for Monica Sjoberg

P. 5 - Response to Robin Williams’ death

P. 6 - Treatment for Depression P.7- Articles about MAWD survival

and value of positive thinking P.8—9 Bonus pages for email recipients

Aug 18th—Dauphin Cty Support Mtg

Aug 21st—Carlisle and New Cumberl

and Support Mtgs

Aug 24th—NAMI Connections Mtg

Aug 26/27—Mental Health First Aid

Sept 3—6—NAMI National Annual

Convention in Wash.DC

Sept 4th—West Shore Support Mtg

Sept 10th—Family to Family starts

Sept 14th—NAMI Connections Mtg

Sept 18th—Carlisle and New Cum

berland Support Mtgs AUGUST MEETING

NAMI PA of CUMBERLAND and PERRY COUNTIES

THURSDAY, AUGUST 21, 2014 at S.T.A.R.

253 Penrose Place, Carlisle, Pa. [See page 4 for directions]

7:00 —8:30 PM Support Meeting

P.O. Box 527

Carlisle, PA 17013

http://www.namipacp.org

[email protected]

Message line number:

240-8715

NAMI PA C/P will again offer the high-ly acclaimed Family to Family Educa-tion program starting Wednesday, September 10th at the Carlisle YWCA at 301 G Street, Carlisle. This educa-tion is for family members and those with loved ones who have a serious mental illness.

Those who have taken this 12 week course in the past have attested to the value of the course with very powerful and positive testimonials.

The course is FREE, but registration is required. Call or email Ann at 249-6318 or [email protected].

The course will give you valuable in-formation about mental illness, treat-ments, the treatment system, and coping strategies. The members of the class will become supports for each other during the class, in in many instances, thereafter.

Duplication and distribution of this Newsletter is made possible by the MH/IDD Board of Cumberland/Perry Counties

Inside this issue: DON’T MISS THE FAMILY TO FAMILY COURSE

STARTING SEPTEMBER 10TH

NAMI is the largest nationwide, grassroots membership organization devoted to improving the lives of those affected, directly and indirectly, by serious mental illness. NAMI is comprised of family members, friends and consumers.

Volume XVII, Issue 8 August 2014

Calendar:

Contact Us:

1

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NAMI Pa. Cumberland/

Perry Counties

P.O. Box 527

Carlisle, PA 17013

http://www.namipacp.org

[email protected]

Message line number:

240-8715

Officers:

President: Taylor Andrews

243-1645/243-0123

Vice President: Joan

Signore

Treasurer: Stephen

Zwierzyna

Secretary: Kathleen

Zwierzyna

Board of Directors:

Thom Fager 697-2602

Hazel Brown

Jennifer Hacker

Teresa Kerns

Sarah Roley

Publisher:

NAMI Pa. Cumberland/ Perry

Counties

Editor: Taylor P. Andrews

243-0123 or 243-1645

AUG. 2014 Vol. XVII No. 8

What: Support Group Meeting When: Meets 3rd Thursday of each month Location: STAR (253 Penrose Place Carlisle, PA 17013) Time: 7:00 pm up to 9:00 pm there will be an educational pro-

gram once each quarter [every 3 months]. Where there is an education pro-gram it shall run from 7:00 PM until 7:50 PM, and the support meeting shall follow at 8:00 PM.

Aug 21, 2014 7:00 PM Announcements

7:15 up to 8:30 PM—Support Meeting

Sept 18, 2014

7:00 PM Announcements

7:15 up to 8:30 PM—Support Meeting

Oct 16, 2014

7:00 PM Announcements

7:15 up to 8:30 PM—Support Meeting

WEST SHORE SUPPORT GROUP

Meets at 6:30 PM on the 1st Thursday of each month at St. Timothy’s Lutheran

Church, 4200 Carlisle Pike, Camp Hill, PA. There may be an occasional education

program. Call Thom at 697-2602 for information.

Sept 4, 2014 6:30 to 8:00 PM—Support Meeting

support

NEW CUMBERLAND SUPPORT GROUP [from York County F2F Class

Meets at 6:30 on the third Thursday of the month at the New Life Baptist Church,

530 Big Springs Road, New Cumberland, PA. Contact Beverly Riggins at 717-979-

0519 for more information.

Aug. 21, 2014

6:30 to 8:00 PM—Support Meeting

DAUPHIN COUNTY SUPPORT GROUP [Assoc with NAMI PA Dauphin County]

Meets at 7:00 on the 3rd Monday of each month at the Epiphany Lutheran Church

at 1100 Colonial Rd., Harrisburg, PA. Contact Marge Chapman at 574-0055 for more

information.

Aug 18, 2014

6:30 to 8:00 PM—Support Meeting

2

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3

Top-notch researchers and clinicians provide in-

formation and tools to advance and sustain recovery from mental illness.

Be a voice for your community and meet with

your legislators during advocacy visits on Capitol Hill.

Important perspectives on recovery presented by

people living with mental illness and their families.

Strategies and tactics to effectively advocate for

changing the mental health system from the country’s keenest minds and savviest policymakers.

Networking opportunities enable us to learn from

each other about how to improve the lives of all peo-ple living with mental illness.

Full Registration Rates (includes dinner ticket)

Member Non-Member Deadline

$250 $350 After 8/1/14

Consumer $160 $220 After 8/1/14

Day Registration Rates

(does NOT include Dinner Ticket)

Member Non-Member Deadline

Day rate $100 $125 N/A

Consumer $60 $75 N/A

Contact NAMI

3803 N. Fairfax Dr., Suite 100, Arlington, Va 22203 Main: (703) 524-7600, Fax: (703) 524-9094

Member Services: (888) 999-6264

Helpline: (800) 950-6264

Lodging & Travel

Convention Headquarters Hotel:

Washington Marriott Wardman Park Hotel

2660 Woodley Road, N.W., Washington, DC 20008

NAMI has a negotiated rate of $155/night plus tax for sin-

gle or double occupancy.

Webpage at

https://aws.passkey.com/event/10796996/owner/1786/homek

Call: 1-877-212-5752 and be sure to let the reservations

agent know that you're attending the 2014 NAMI National

Convention so you can receive the discounted room rate.

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$35.00 For an individual

Membership includes membership in NAMI [national] and NAMI PA,

and Subscriptions to The Advocate, The Alliance, and NAMI PA C/P

News.

$35.00 For a Family

Same price as an individual. A family consists of two people living at the same address. A family has one vote, and will receive one copy of subscriptions.

$3 - $35.00 For “Open Door” membership

Anybody can opt to join as an open door member. Dues are any amount that can be afforded. This option is available so that membership is not denied due to financial hardship. Open door members are regular members with all the privileges and powers of membership including all subscriptions. $50.00 For Professional Membership A Professional member shows support for the mission and goals of the organization. Upon request, NAMI PA C/P will provide multiple copies of our newsletter for the waiting room of Professional Members.

Make Payment to: NAMI PA C/P

Send Payment to: NAMI PA C/P Box 527, Carlisle, Pa 17013

JOIN NOW TO BECOME PART OF

THE NAMI FAMILY

Memberships submitted now will extend to the end of 2014

“I’ve been there, I understand.”

Connections is meeting at new day and time!! NAMI Connection is a recovery self help sup-port group for people living with mental illness. WHEN: 2nd and 4th Sunday each month at 2:00 PM WHERE: Aurora Cyber Café 104 West Main Street, Downtown Mechanicsburg, PA 17050 (717) 591-9598 (across from Jo Jo's Pizza) WHO: Jen and Chris, NAMI National trained Support Facilitators CONTACT: Any group related questions can be directed to Jennifer at (717)385-8028.

ACTIVISTS AND LEADERS

WANTED

BY NAMI PA C/P

In anticipation of elections in the Fall, and the need to replace retir-

ing members of the NAMI PA C/P Board of Directors, we seek to

identify individuals who are interested in serving on our NAMI PA C/

P Board of Directors either as a Director at large, or as an officer.

If you have questions, do not hesitate to contact any of the current

officers or Directors listed on page 2 to discuss.

If you are interested, please send a note or email expressing your

interest and outlining your experience relevant to the desired posi-

tion to P.O. Box 527, Carlisle, PA 17013, or by email to :

[email protected].

DIRECTIONS TO S.T.A.R.

From I-81:

Take Hanover St. Exit and turn towards town, [Rt. 34 North]:

At the major intersection at Noble Blvd, turn left on Noble

Blvd.

Proceed straight ahead at the first Stop sign at West St.;

Turn right after the gas station on Penrose Pl.;

The Penrose Plaza is immediately on your left;

STAR is the last store front on the right end of the Plaza.

From Downtown Carlisle:

Take Hanover St. out of town [Rt. 34 South].

At the major intersection at Noble Blvd, turn right on Noble

Blvd.

Proceed straight ahead at the first Stop sign at West St.

Turn right after the gas station on your right;

The Penrose Plaza is immediately on your left;

STAR is the last store front on the right end of the Plaza.

4

Our NAMI Family notes with sadness

the death on August 8th of our longtime member, board member, and friend, Monica Sjoberg.

Monica was determined to share with others the lessons she knew as a registered nurse and learned caring for her son

Steve and her husband John.

Many benefited from her shared experiences.

We express our deepest sympathy to Monica’s family.

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ROBIN WILLIAMS DIDN’T KILL HIMSELF

By Elad Nehorai PopChassid.com August 12, 2014

Robin Williams was 63. He had as much money as he need-

ed. It seems almost beyond reasoning to believe that he could

have taken his own life.

In fact, a friend of mine who suffers from a terminal illness,

shared a thought on Facebook.

She said that, sad as she felt for Williams, she couldn’t help

but be angry with him. She had a terminal illness, she was

fighting for life every day. Valiantly. And here was a man who

had everything: fame, fortune, adoring fans. And he had, just

like that, given up the gift he had been given.

Oh, my friend, if only you knew, I thought to myself. If only

you understood. If only you could grasp it. It was not him. It

was his illness.

It can be so hard to understand for the mentally healthy. Just

as I cannot possibly comprehend what it means for someone to

have AIDS or cancer, I think it can be truly hard for people to

wrap their minds around the idea the overwhelming, suffo-

cating nature of severe mental illness. That someone could

feel so depressed, so low, that their perception of reality is so

distorted that they feel that lack of life is preferable to life.

It is a sign of our times that we use the words, “Robin Williams

killed himself”, in reputable news outlets. That we mention,

offhand, that he was suffering from depression. That they are

only tangentially connected.

I remember once driving up a parking garage in the middle of

the night in college. I reached the top floor. I faced the cable

barrier that separated my car from the ground, five stories be-

low.

“I could just end it. Right now. It would be over.”

What saved me in that moment was that I had not totally giv-

en into my disease yet. It had not taken me over so deeply that

I couldn’t see the folly of such a thought. But I am aware that

if it was deep enough, strong enough, I might not be here to-

day.

Robin Williams did not kill himself. His disease, whatever it

was, killed him.

And I think it is this issue, this misunderstanding, of mental

illness that affects our society all too deeply.

I do not blame my friend for her thoughts. Her struggle is so

real, and I cannot possibly understand what she is going

through. But I do feel that her thoughts, and the way the larger

world addresses these issues, is an indication that mental health

is still vastly misunderstood in our culture. That it is underval-

ued, that it is not seen as “real”.

We talk about psychology as a “soft” science. The stigma

around going to therapy or taking medications persists. It is time

we stopped thinking about mental health in this way. It is time

we acknowledged that a disease in the brain is just as physical

as a disease in the heart, lungs, or liver. The fact that it is more

complicated, less understood, and only beginning to be studied,

does not mean we can ignore this fact. In truth, it means the

exact opposite: that mental health needs to be treated with

urgency. That our society has to start treating its illnesses as

every bit as deadly and malicious as other ailments. That re-

search into these issues needs to be ramped up.

What scares me the most about the death of Robin Williams is

that it is clear how woefully ill-equipped the world is to fight

mental health. How anyone, truly anyone, can fall to it, even

someone with tons of money for treatment and support from

the world.

Robin Williams, to me and so many others, has always been

this beacon of hope. When I was diagnosed with bipolar, I did

the usual internet search about the illness. I wanted to learn as

much about it as I could. Anyone with a mental illness has prob-

ably run into one of those lists: the “who has your mental illness

list”.

Robin Williams was always listed as one of the famous people

with bipolar, although he was never officially diagnosed with it.

Robin Williams’s name jumped out at me. Here was a man who

appeared to have conquered his struggles. He was success-

ful. He was able to perform all over the world, in beautiful mov-

ies, in one-man shows. For a twenty year old who had just been

released from a mental hospital, who had no idea how he was

going to get on his feet… this was so beautiful. This was hope.

Now, his name will represent both hope and warning to me,

and to all of us who suffer from mental illness. A reminder that

we need to keep pushing to reduce the stigma around treat-

ment. A reminder that we need to demand that mental health

is treated as seriously as other diseases. A reminder that, most

importantly, we need to focus on making ourselves healthier

and healthier.

(Continued on page 6)

5

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WHAT IS THE MOST EFFECTIVE TREATMENT FOR DEPRESSION? From www.HealthyPlace.com Depression Community Written by Julie Fast

Everyone wants to know "what is the best depression

treatment for me?" The answer is below.

Gold Standard for Treating Depression

Depression is considered a physiological illness caused by

imbalanced brain chemicals. As with other physiological

illnesses, medications are usually the first line of treatment.

As clearly shown by a recent government study explained

below, antidepressants are the number one choice for the

successful management of depression for those who can

tolerate antidepressants. This is an important distinction, as

some people find the side-effects intolerable or do not get

total relief from medications. This does not mean that anti-

depressants are the only treatment, or that they cannot or

should not be combined with therapy and other lifestyle

changes, but it does show that people with depression that

does not lessen with time should at least try antidepres-

sants first.

Initial Treatment of Depression May or May Not Work

For some people with de-

pression, an initial treatment

with the correct antidepres-

sant can offer immediate and

often permanent relief from

the illness. For others, initial

treatment with antidepres-

sants is not as successful as the medications may only help

with some of the symptoms, do not work at all, or have sig-

nificant side-effects.

Recent research from a government study called the

Star*D research project suggests that even when a person

does not have an optimum response to his or her initial

treatment, by improving the way medications are pre-

scribed, significant relief is possible. When the recommenda-

tions of this research are implemented and combined with

proven psychotherapy techniques and lifestyle and behavior

changes, significant reduction in symptoms and, in some cas-

es, complete remission (the virtual absence of symptoms are

possible.

Instead of relying solely on medications for depression, by

combining all of your options, you can significantly increase

your chances of managing depression successfully. The fol-

lowing suggestions offer an optimal treatment plan that not

only takes into account the Star*D research, but also uses

complimentary treatments that increase your chances of

managing depression successfully and achieving the quality

of life you desire.

Medications

Psychotherapy

Lifestyle, behavior and thought modifications

Alternative and Complimentary Treatments

Although these therapies can be used individually, a combi-

nation of all four offers you a variety of ways that can give

you much more control over your treatment than you previ-

ously thought possible.

I am now painfully aware that no matter how much balance I

find within myself, that I am still in danger, that I need to be con-

stantly vigilant, and that my struggle could gain strength at any

moment.

Until our society aggressively, strongly addresses mental illness,

until we move it from a side issue to a real issue, until we give it

the same priority as other illnesses… I will still have that fear. I

will still shake my head at what is often a death-by-disease that

we call suicide.

And we will all still need to speak up.

(Continued from page 5)

6

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CHOOSING TO BE POSITIVE By Jerry Malugeon

MEDICAL ASSISTANCE FOR WORKERS WITH DISABILITIES (MAWD) PROGRAM SAVED

Department of Public Welfare (DPW) Secretary Beverly

Mackereth announced today that DPW has shelved the

planned elimination of the Medical Assistance for Workers with

Disabilities (MAWD) program. The program was scheduled to

end effective January 1, 2015.

PMHCA advocated to maintain

MAWD, within our comments

against establishment of Healthy

PA. PMHCA encourages the PA

Department of Public Welfare to

expand Medicaid now.

MAWD provides health coverage

to over 34,000 working Pennsyl-

vanians with disabilities who don't qualify for other categories

of Medical Assistance, usually due to their earnings. It provides

an important incentive for people with disabilities to work and

still keep their Medical Assistance coverage. It allows individu-

als with disabilities to work without fear of losing their critically

important health insurance coverage, including personal assis-

tance services and other supports they need to get and keep a

job and remain in the community.

The Pennsylvania Health Law Project worked closely with nu-

merous disability organizations and individuals on MAWD to

highlight how eliminating this program would have a devas-

tating effect. Their advocacy efforts included drafting and coor-

dinating comments to state and federal officials by many disa-

bility organizations and the Consumer Subcommittee of the

Medical Assistance Advisory Committee, assisting affected indi-

viduals in drafting their own comments, and providing infor-

mation to stakeholders.

PMHCA applauds the decision by Secretary Mackereth and the

Corbett Administration to continue the MAWD program.

MAWD provides vital health coverage and community supports

for working Pennsylvanians with disabilities.

7

People who have mood disorders are on the receiving end of a

lot of negative energy in their lives. Things like criticism, disa-

greement, discord, faultfinding, judgment and nitpicking are

seldom strangers to someone who has depression or bipolar.

Sometimes the negative feedback comes directly from the per-

son themself. All too often they are their own worst critic, and

this steady stream of negative feedback can make problems

even worse:

It deepens discouragement that may trigger additional stress.

It usually adds to a loved one’s shame, guilt and already low self-esteem.

It makes difficult situations even more difficult.

It can cause a loved one to lose hope, give up and adopt a “what’s the use?” mentality.

It may eventually lead to suicide ideation, or even worse.

Something they don’t often get enough of is understanding

and compassion, and this is so unfortunate. When we as com-

panions, family members or caregivers are able to provide com-

passionate understanding of our loved one’s behavior, however

irrational or inappropriate that behavior may be, we have the

potential of gaining the following:

Greater insight of what our loved one is dealing with and how their illness is interfering with their ability to make healthy choices.

Identifying and prioritizing our loved one’s needs (medical care, therapy, support groups, nutrition, stress reduction, shel-ter, etc.)

Discovering and implementing recovery tools that help mo-tivate our loved one toward achieving managed stability.

Establishing mutually agreed upon realistic goals (“small steps”) and avoiding pressurized unrealistic goals (“huge steps”), and then achieving those goals.

When our loved one uses poor judgment or makes an un-

helpful or unhealthy choice, our choice should be to stay posi-

tive and remember that they may be doing the very best they

can at the moment. Through compassionate understanding we

and our loved one can continue to move in the direction of sta-

bility, regardless of how small the steps we are able to manage

at the time.

Choosing positive directions is vital to recovery. Let’s try to

always choose wisely

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PROMISE AND PATIENCE IN UNDERSTANDING THE BRAIN By Ken Duckworth, M.D., NAMI Medical Director

There is a growing recognition in both the U.S. and Europe

that a fundamental understanding of how the brain works is an

urgent priority. This flows from the awareness that the public

health burden of brain-based conditions is staggering, and that

for the first time we have some truly promising tools to help us

get there. This substantial scientific effort will take patience but

it also holds much promise.

The approaches on either side of the Atlantic are quite differ-

ent. Given how much of what we know from drug discovery is

rooted in good observation and chance, it is hard to predict

what approach will yield the best results.

In the U.S. President Obama announced the BRAIN Initiative,

which will “seek to map the circuits of the brain, measure the

fluctuating patterns of electrical and chemical activity flowing

within those circuits, and understand how their interplay cre-

ates our unique cognitive and behavioral capabilities.”

In Europe the European Union’s Human Brain Project (HBP)

seeks to model the human brain on supercomputers. Recently

some scientists have formally criticized the EU approach, calling

it premature. Regardless, both investments represent nearly

simultaneous multiyear commitments to better understandings

of the neuroscience we need so badly to advance care.

Understanding the brain better does not mean mental condi-

tions are only about genes or biology. An important principle is

that environment impacts genes and gene expression—this

concept is called epigenetics. Environment could mean protec-

tive elements like love and holding or risks like viruses at cer-

tain stages of neurodevelopment or traumatic experiences. It’s

important to think both and not either-or when thinking of psy-

chiatric conditions and the brain and environment.

We have a greet deal to learn but have already come upon

some important findings. We do know that the brain is more

plastic—able to adapt and be shaped—than was first thought.

Imaging the brain (fMRI, PET scans) have helped us move for-

ward in basic functional understanding, but isn’t a clinically use-

ful tool at this time.

On the basic science side, two major recent breakthroughs

stand out. First, the ability to generate stem cells from adult skin

holds great promise. In 2014, scientists have looked at nerve cell

responses taken from stem cells from individuals with bipolar

disorder to learn how they function differently than from people

without bipolar disorder. Another recent basic science break-

through is optogenetics, which is the ability to impact specific

cells through light and modified proteins. These are not yet clini-

cally useful, but will teach us a great deal about the human

brain. That knowledge will lead to better interventions.

One of the challenges I have as NAMI’s Medical Director is cau-

tioning patience even as I am so hopeful that novel scientific

avenues will bear fruit. It is hard to know when and what new

treatments and interventions can come from a more thorough

understanding of the human brain. People want and deserve

better treatments now, as there is a great deal of unmet need in

the areas of brain disorders. Both a commitment to science to

learn more and getting people what we already know works are

essential.

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A GROUNDBREAKING COMMITMENT TO PSYCHIATRIC RESEARCH By Ken Duckworth, M.D., NAMI Medical Director

Today I was fortu-nate to be on a panel to discuss the find-ings of a major piece of work published in Nature and the un-precedented $650 million dollar gift from Ted Stanley to the Broad Institute to further this type of work. The event was a celebration of Mr. Stanley’s game changing vision and commitment to research in the underlying biology of psychiatric illnesses, and a call to ac-tion for more progress in this crucial area. I represented the perspective of NAMI and our urgent need for better treatment options. The event was held at the Broad Institute in the heart of the MIT campus, which has become a hotbed of bioscience innova-tion and research. The Broad institute itself is bright and open, and conveys a sense of possibility. This was once a scruffy neighborhood and it was remarkable to experience the new energy flowing here. The Kendall Square area, at the center of the MIT campus, has been transformed by the influx of scien-tists and industry. This gift will continue to attract the best minds to continue the remarkable research momentum and help fill a critical need when funding from the U.S. government is uncertain.

The study compared the genomes of more than 37,000 peo-ple living with schizophrenia and compared their genes to peo-ple who do not live with the condition. The riddle that is the gene component to schizophrenia has vexed many but now the evidence base is rapidly expanding. Sorting out an enormous number of puzzle pieces and making patterns of them is the work of complex genetic assessment. The study identified 108 key genes (83 of which have not been previously linked to

schizophrenia) in this analysis and the Broad Institute will do a deep dive of each of them. This study is only the first step; one of the lead scientists told me more papers are in press and will be coming out later this year.

I have invited the lead scientists to our national convention in San Francisco in 2015 to share their insights to our community. Steve Hyman, the director of the Stanley Institute for Psychiatric Research at the Broad Institute of MIT and Harvard and former director of the NIMH has emphasized an open source philoso-phy. This means that all the data sets will be shared with re-searchers from across the world. This approach will clearly ad-vance the field faster. This is an advance in scientific culture as well as neuroscience.

In my work as a psychiatrist at the Prevention and Recovery from Early Psychosis (PREP) clinic I say “I don’t know” a great deal. My young patients and their families ask me, what caused these voices? How does the medication work exactly? Will re-ducing my medication after 3 years of no symptoms be a big risk to my recovery? For these and many other questions I offer my best understanding from the imperfect literature, and our theo-retical understandings. For many of these questions we simply don’t have the building blocks we need. We simply need to learn more so better shared decisions can be made. My patients and families deserve better understanding to deal with symp-toms that have so powerfully impacted their lives.

Patience and humility are of course key themes in this kind of basic science research. The researchers are humbled to say that they cannot promise a quick return, yet carry clarity of purpose: cancer was once a scary and seemingly unknowable illness that has very few treatments. Today because of better knowledge of the underlying science, there are new options being developed on a regular basis in the field of oncology. This gift and this cul-ture change and this line of inquiry will hopefully yield similar results in our field.

Ask the Doctor: Teleconference Series NAMI's Ask the Doctor teleconference is a monthly series hosted by NAMI's Medical Director, Dr. Ken Duckworth. Typically, he is joined by another mental health professional or advocate who in turn presents on a topic in his or her area of expertise. Each month, two such calls are hosted; one focuses on adult issues, the other on child and adolescent issues.

To access these calls, dial 1 (888) 858-6021 and enter pass code 309918#. These calls are always held at 11 a.m. E.T. on scheduled dates unless otherwise noted. The Ask the Doctor schedule and previously recorded podcasts can be found below. Upcoming Ask the Doctor Schedule

Calls on adult issues

August 22, 2014: Dr. John Oldham; Borderline Personality Disorder

Calls on child, adolescent and young adult issues August 2014: TBD September 2014: Dr. Stuart Ablon; Think:Kids

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