palliative care at palliative care support trust- …

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PALLIATIVE CARE : MALAWI By: Mwandida Nkhoma (BScPM, DPM, DNM)

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Page 1: PALLIATIVE CARE AT PALLIATIVE CARE SUPPORT TRUST- …

PALLIATIVE CARE : MALAWI By: Mwandida Nkhoma

(BScPM, DPM, DNM)

Page 2: PALLIATIVE CARE AT PALLIATIVE CARE SUPPORT TRUST- …

BACKGROUND INFORMATION-MALAWI

Is in the central region of Africa.

Has a population of 17million.

Is one of the poorest countries in

Africa ranked 164th out of 177

countries with data (UNDP 2007)

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2015

• Population 17 million

• 11% HIV infection

• 25 thousand cancer cases

• 26 palliative care sites

• 1 oncologists

• Chemotherapy

• No radiotherapy

2003

• Population 12.2 million

• 15% HIV infection

• 3 palliative care sites

• No treatment for cancer

BACKGROUND INFOMATION -MALAWI

Page 4: PALLIATIVE CARE AT PALLIATIVE CARE SUPPORT TRUST- …

BACKGROUND INFORMATION-COMMON

CANCERS 2007-2015 (%)

0.2

0.4

0.5

0.6

1.0

1.3

1.6

1.8

2.6

2.7

2.9

5.7

7.2

12.0

25.4

34.1

- 5.0 10.0 15.0 20.0 25.0 30.0 35.0 40.0

Lung

Kidney

Ovary

Penis

Liver

Bone

Stomach, intestine, anus

Prostate

Eye

Breast

Urinary bladder

Non-Hodgkin Lymphoma

Others

Oesophagus

Cervix

Kaposi sarcoma

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PALLIATIVE CARE SUPPORT TRUST- MALAWI

COMPOSITION

Medical doctors -3

Clinical officers -3

Nurses –7

Social worker -1

Chaplain -1

Play ladies -2

Allied staff -3

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2016

• Service provision

• Training and research

• Advocacy

• Sustainability

2003 • Desire to

scale up services for people living with HIV/AIDS.

• Ward overcrowding

• Poor access to HIV testing

• Need for palliative / HBC care

PALLIATIVE CARE SUPPORT TRUST CONT…

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SERVICE PROVISION

173 patients reached- last quarter

763 visits were made by patients- last quarter

41 home visits done-last quarter

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SERVICE PROVISION

Focus on:

Pain and other symptom

management

Counselling

Family meetings

Picture below shows a nurse on home

visit giving oral liquid morphine

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PATIENT STORY

Mary (not her real name) was a 53 year old woman diagnosed with cancer on the right buttock. The wound was very painful, fungating and producing foul smell. She was socially isolated. Pain was managed by oral liquid morphine, foul smell was managed by twice daily dressing with locally made normal saline and crushed metronidazole. Two days later pain and foul smell were gone, she was able to eat. Her husband and herself were grateful to the team because the most distressing symptoms were gone. She was then able to associate with others.

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RESEARCH AND TRAINING

PCST staff are involved in training

and mentorship.

Fellow health workers

Medical and nursing students

Religious leaders

Social workers

Legal personnel

Community volunteers

Page 11: PALLIATIVE CARE AT PALLIATIVE CARE SUPPORT TRUST- …

ADVOCACY

It is done at local, national and

international levels

Staff present abstracts at different

conferences.

Staff are involved in media

presentations.

PCST get volunteers from outside

Malawi who carry messages back.

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SUCCESSES

Palliative care programme is incorporated in public health system.

Involvement of community health volunteers

The site being used as a clinical placement site for palliative care specialist

students thus diffusion of knowledge and skills.

Positive long term donor relationship

Page 13: PALLIATIVE CARE AT PALLIATIVE CARE SUPPORT TRUST- …

CHALLENGES

Increased work-load : use of ambassador palliative care providers in the

wards.

Donor dependency: towards starting paying palliative care services.

Poor referral systems

Poverty

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CONCLUSION

Palliative care principles are the same but their application differs in developed

and developing countries.

From the multi-professional training, there are some lessons learnt that can be

applicable in our setting in a different way and achieve the same goals using our

limited resources.

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ACKNOWLEDGEMENT

Page 16: PALLIATIVE CARE AT PALLIATIVE CARE SUPPORT TRUST- …

THANK YOU!