patient-generated data

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Presentation to IFTF Health Horizons Conference on patient-generated data and future trends, June 10, 2009, in San Jose, CA

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Patient-generated data

Alexandra CarmichaelIFTF Health Horizons Conference

July 2009

I track myself every day

• Chronic pain symptoms, supplements, mood, sex life

• Genetics research and bioinformatics background

• WebMD and DailyStrength, no patient data sites!

Culture of participation

• Started with 3 conditions, now 300

• 100+ measures tracked: calories to chronic pain

• Medium-term: genomics, streaming biometrics

Data growth 25% per month

What this means for the future of health

• Self-organized clinical trials -lithium trial

• Social Data Network - private individual, open aggregate

• Personalized medicine - which treatment will work for my symptoms?

Find me online

• [email protected]

• curetogether.com/blog

• @accarmichael on Twitter

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