patricia w. potrzebowski, ph.d. executive director national association for public health statistics...

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Patricia W. Potrzebowski, Ph.D.Executive DirectorNational Association for Public Health Statistics and Information Systems

January 25, 2012

Vital Statistics 1011Types of Vital Events Live BirthsDeathsFetal DeathsInduced Terminations of PregnancyMarriagesDivorces/Annulments Responsibility for Registering Vital Events State (not federal) jurisdiction 50 states + DC + NYC + 5 territories = 57

Jurisdiction where event occurs

NOT residence of decedent or mother

How are vital statistics prepared?Data collected from new parents, hospitals, birthing centers, midwives, physicians, nursing homes, funeral homes, coroners/medical examiners, next-of-kin

Reported to local/state health departments

Records reviewed, edited, processed, registered

Causes of death coded according to international standards (ICD-10)

Data files prepared4Vital Statistics Cooperative Program (VSCP)57 jurisdictions (NAPHSIS members)Collect and report data using U.S. standard certificatesMake state and local level data available

Federal government (NCHS)Compiles dataIssues data files (individual case records, de-identified)Prepares/publishes analytical/statistical reports

5Roles of Vital StatisticsCivil registration system

6Civil Registration SystemServe as the permanent legal record of the fact of birth, death, marriage or divorce

Birth certificateProof of date of birth, age, parentage, birthplace, citizenshipUsed for school entrance, voter registration, drivers license, marriage license, passport, social security benefits

Death certificateProof of date of death, date and place of interment, cause and circumstances of deathUsed to obtain insurance benefits and pensions; transfer of property

7Roles of Vital StatisticsCivil registration system

Public health data system8Public Health Uses of Vital Statistics DataIdentifying public health problems

Identifying patterns in fertility and mortality

Monitoring trends in health and health care

Monitoring risk factors leading to poor outcomes

Planning and evaluating public health programsCritical Public Health Data SourceCertificate revisions allow data items to remain relevant

Complete reportingMandatory (not a sample or survey)

Consistent data among jurisdictionsUntil recently

10Administrative UsesPopulation estimates and projections

Enumeration at birth - SSN

School enrollment estimates

Maintenance of administrative data sets Voter registrationSSA11Roles of Vital StatisticsCivil registration system

Public health data system

National security system

12National Security SystemIntelligence Reform and Terrorism Act of 2004Minimum standardsCertification of birth certificates and use of security paperProof and verification of identity as a condition of issuance of a birth certificateProcessing of birth certificate applications to prevent fraudBirth/death matching to mark birth records of deceased persons To dateRegulations several years overdue No funds appropriated

13Recent Improvements to Vital Statistics Evolving to meet new needs

Electronic Verification of Vital Events (EVVE)State and Territorial Exchange of Vital Events (STEVE)

Electronic birth and death systems

Improve timeliness, efficiency and data qualityWill reduce need for corrections14Roles of Vital StatisticsCivil registration system

Public health data system

National security system

Public health surveillance system

15Public Health Surveillance SystemAllows for monitoring of trends as data are collected

Allows states and the federal government to identify problems in real time

Allows for the collection of additional data items

16Expanded use of data needs to begin at the state levelStates collect data from the source

States have identifiers

States have access to other data sets for linkage

States can incorporate EHR into medical portion of birth records 17Past Effects of UnderfundingElimination ofAbortion reporting systemMarriage and divorce statistics programOccupation and industry coding of death records

Delay in adoption of 2003 certificate revisions

Reduced timeliness of data

Negative impacts on data quality

18Ongoing Effects of UnderfundingScarce resources

What do states do first (or at all)?

Civil registration most critical at the state level and other functions may suffer

19What is our vision?Reengineered data collection systems based on the national model that would allow for:Immediate electronic transfer to state vital records officesImmediate transfer to other health dept. programs Timely transfer of out of state dataTimely sharing of data with federal partners

Collection of timely, complete, accurate data

Linkage with other data sets

Continued evolution from a public health data system to a surveillance system

Use of vital records as an effective tool for protecting national security

20For more informationPlease contact: Trish [email protected] go to www.naphsis.org