Peer support e-seminar

E-seminar

26th September 2012

Chair: Clare BeardProgramme Lead, NHS Kidney Care

• During the E-Seminar we will mute all delegate’s lines throughout the presentation.

• This is an interactive session, please add your comments, and thoughts into the chat box as we go through the presentation.

• If you would like to ask a question please use the raise hand button (this can be found on the right hand side of the screen below the list of participants). We will un-mute your telephone line if you wish to ask a question.

• Alternatively, during the discussion session type your question into the chat box on the bottom right of the screen

• If you are having any technical problems, send a message to the Host via the chat panel or call Asmaa Khalid at 0207 972 5225

Tips for using WebEx

Agenda

Item(s) Speaker 11.00 Welcome and introductions

CB

11.05. Purpose of meeting CB

11.10 North East update MMcQ

11.15 West Midlands update

CW

11.20 King’s College Hospital update

EW

11.25. National survey of peer support programmes

CB/ EW

11.35 Final report

CB

11.45 The future of this group

ALL

12.00 AOB ALL

Update from North East

September 2012

North East Renal Network

North East Renal Network

Evaluation Strategy: Anticipated outcomesPeer SupportersPeer SupporteesFor familiesStaffThrough:Verbal FeedbackQuestionnairesPatient focus groups Story tellingOne to one interviews

North East Renal Network

Continuous Training

•Waiting list of patients to be trained•Training to be held at unit level•Training to commence Mid November 2012 using resources from Connect

North East Renal Network

Next steps•Continue to market the service• continue to recruit to build capacity•Share learning across other specialities •Continue to attend and be part of the learning network

Peer Support Update

Peer Support E-SeminarWednesday 26th September 2012

Carol Willis

Focus• Launch of peer support programme• Further peer support training sessions• Matching first patients• Hold learning event for phase 2 clinical champions• Complete research project• Finalise end of project report for NHS Kidney Care

1st phase successfully delivered at HEFT

Launch Programme• Series of launch events held across clinical areas

at Heart of England NHS Foundation Trust (HEFT)– Main unit– Satellite units– Clinics

• Marketing materials produced– Pop up poster– Pens, kidney squeezy balls– Business cards and information leaflets

• Royal Wolverhampton to schedule launch

Delivering Training Sessions

• A further 23 patients and carers have been trained (RWH and QEHB)

• Total number of trained peer supporters across the West Midlands is 75– 16 at HEFT– 10 at Royal Wolverhampton Hospitals– 49 at QEHB

Successfully trained 75 peer supporters

Matching Patients

• A total of 4 patients have now been matched since launching the programme at HEFT– Pre-dialysis patients– 2 face to face meetings– Feedback very positive

Good progress made in matching patients

Learning Event

• Opportunity for clinical champions from phase one to share lessons learned with other areas– Informal event – Very positive experience and confirmed motivation

for phase 2

Research Project• Working with West Midlands Central Health

Innovation & Education Cluster (HIEC)• Identified area of focus

– Purpose of study is to explore from a patient and carer perspective their needs, wants and expectations of peer support. It will explore how any barriers to take-up of peer support may be overcome and recommend service improvements where available.

• Six centres participated in the study• Analysis is ongoing

Study complete & dissemination event held

Emerging Themes• In terms of barriers to peer support:

– Term ‘peer support’ can be ambiguous

– Emotional barriers• Don’t want to be viewed as a ‘needy’ person

• Fear of negative professional judgement

• Low in confidence and do not want to appear stupid

• Want to avoid focus on problems

• Importance of choice and control in relation to own peer support

– Practical barriers• Constraints of illness

• Lack of awareness

Emerging Themes• In terms of facilitating uptake of peer support:

– Importance placed on giving something back and sharing experiences

– Making peer support a normal activity• Suitable for all

• Complementary to existing support

• Encouraged by clinicians

– Need to build rapport and trust• More face to face contact

Study on track to publish findings in December

Next Steps• Analyse the study findings and consider practical

recommendations– How term ‘peer support’ used

– Place greater emphasis on exchange and sharing

– Create opportunity for initial rapport to be built

• Incorporate practical recommendations into the roll out

• Steering group meeting set for October• Set up an event for trained peer supporters

King’s Renal Peer Support Update 27/9/12

Eleri WoodSenior Sister Low Clearance & Transplant

Clinics

Two stage local service evaluation conducted:

Stage One:

Analysis of my existing data

Straw poll of staff awareness

Further details from 8-10 staff

Stage Two:

Present findings and recommendations to the supporters and staff and agree action plan.

Implement plan

Disseminate evaluation findings through publications and presentations.

Two minute summary of findings:• 1.5% of patients have received peer support,

recipients more likely to be black and young, and demand has halved since 2009.

• 78% of recipients sought predominantly informational support, the majority of these to facilitate an RRT modality decision.

• Clinicians were generally aware and positive but forgetful and misinformed, very few actually referred.

Peer Support: national survey of peer support

programmesPeer Support e-Seminar

26th September 2012

Eleri Wood and Clare Beard

Results:

A total of 53 responses were received from 37 units; a unit response rate of 71.2%.

How will, or do patients access the service?

(% response, 21 unit respondents with established or planned formal or informal service)

Barriers to setting up formal peer support services. (% response, 37 unit responses)

0.0

10.0

20.0

30.0

40.0

50.0

60.051.4

45.9 43.2

35.1

56.8

18.9

Support wanted

Other

• Written information about volunteer training

• Financial support for champion

• Information on any criteria or guidelines on how to choose peer supporters, what makes a 'good' or effective peer supporter

• Information providing evidence of benefit before committing time and resource

Peer Support: Final report

Peer Support e-Seminar

26th September 2012

Clare Beard

Programme Lead, NHS Kidney Care

Forum: http://www.networks.nhs.uk/nhs-networks/nhs-kidney-care-peer-support-project-leads-forum/network_profile_view

Website: http://www.kidneycare.nhs.uk/

http://www.kidneycare.nhs.uk/our_work_programmes/improving_choice_for_kidney_patients/peer_support/

http://www.kidneycare.nhs.uk/our_work_programmes/improving_choice_for_kidney_patients/peer_support/tools_to_help_you/

Future meetings