personalisation – what’s it all about? kate fearnley director of personalisation
TRANSCRIPT
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Personalisation – what’s it all about?
Kate FearnleyDirector of Personalisation
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Summary
About personalisation The vision and the reality What Alzheimer Scotland is doing What it means on the Helpline in
practice
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From 2008, dementia will be
regarded as anational priority
supporting people to self manage their
conditions in the community ”
”
Care should be co-ordinated by means of ICPs
Personalisation is driving the shape of all
public services
assessment of need is no
longer about which service a person should be referred to,
but about individualising
the support
“““
“
” ”
”
“
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Choice and control:
• where to live • who to live with (if anyone) • what to do through the day• what support is required and
who/how it should provided
What do people want?
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A story…
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What’s the problem?
Lots of detailed and highly professional assessment ….
Leads to being allocated existing services
Poor fit with people’s lives Lack of creativity and flexibility No thought given to natural
supports
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Growing older population
Growing number of people living with a long term condition
Reducing group of unpaid carers
Finite resources
Over focus on hours of support
Reluctance to take risks
There are challenges ahead
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About personalisation
Puts full choice and control with the person
May or may not mean managing money May or may not mean being an
employer Attorney or guardian with financial &
welfare powers can do on person’s behalf
About getting a life, not a service
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Personalisation is a spectrum
Direct payment, employ personal assistant
Direct payment,
buy services
Individual budget, choose services but no need to manage money
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Vision and reality
Vision: A right Individualised budget available to
anyone, option to hold the money or not
Full flexibility in how it is spent to meet outcomes for person
‘A life not a service’
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Reality: Direct payments/Self-directed
support Limited access Misunderstandings Barriers in social work depts Size of support packages, eligibility
criteria Limited uptake
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Alzheimer Scotland and personalisation
Specialist dementia services important Our home support (individual support)
services offer flexible support Can use direct payments to buy our
specialist services Can top up direct payments if council’s
rate too low Can purchase privately
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Alzheimer Scotland personalisation pilots
East Renfrewshire & Renfrewshire post-diagnostic pilot Supporting people after diagnosis Future care planning
Ayrshire Self-Directed Support pilot SDS for people facing care home
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Personalisation and dementia research project
Evaluate the potential of personalisation for people with dementia
Identify enablers and barriers Learn from England Find out the experience of people using
SDS Case studies Report in Autumn
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The Helpline and personalisation
Encourage thinking outside the box – but without raising expectations too far
Suggest self-directed support/direct payments
Be able to explain them Support people to request them
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What would you do for Jim?
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www.alzscot.org
Alzheimer Scotland
Making sure no-one goes through dementia alone