Physical & Health Disabilities

DefinitionCauses

ClassificationsAccommodations

Barriers & Requirements

Group #4

Ashley DeYoung

Tyler Easterday

Kathryn Ebeling

Introduction

This presentation will:Outline the physical and health disability Outline the physical and health disability

chapter of the textbookchapter of the textbookExamine a facility that serves people with Examine a facility that serves people with

physical disabilities physical disabilities The ParalympicsThe Paralympics

Review a movie where one of the main Review a movie where one of the main characters has a physical disabilitycharacters has a physical disabilityThe WaterdanceThe Waterdance

Analyze an interview with a parent whose son has Analyze an interview with a parent whose son has autismautism

Parent of Corey Duchak

Physical & Health Disabilities Definitions

Physical disabilities: conditions conditions related to a physical impairment or deformity of related to a physical impairment or deformity of the skeletal system and associated motor the skeletal system and associated motor function; physical impairments; orthopedic function; physical impairments; orthopedic impairmentsimpairments

Health Disabilities: chronic or acute chronic or acute health problems resulting in limited strength, health problems resulting in limited strength, vitality, or alertness; other health impairmentsvitality, or alertness; other health impairments

Causes of Physical and Health disabilities

Allergies and Infections• HIV/AIDS

Heredity• Hemophilia

Injuries and Accidents• Spinal Cord

Injury

Multiple Factors• Cerebral Palsy

Classifications and Organizations

Neuromotor Impairments◦ EpilepsyEpilepsy◦ Cerebral palsyCerebral palsy◦ Spinal cord disordersSpinal cord disorders◦ Muscular dystrophyMuscular dystrophy◦ PolioPolio◦ Multiple sclerosisMultiple sclerosis

Muscular/Skeletal Conditions◦ Juvenile arthritis Juvenile arthritis ◦ Limb deficienciesLimb deficiencies◦ Skeletal disordersSkeletal disorders

Chronic Illnesses◦ AsthmaAsthma◦ Blood disordersBlood disorders◦ Childhood cancerChildhood cancer◦ Congenital heart Congenital heart

defectsdefects◦ Cystic fibrosisCystic fibrosis◦ DiabetesDiabetes◦ Sickle cell anemiaSickle cell anemia◦ TuberculosisTuberculosis

Infectious Diseases◦ Hepatitis BHepatitis B◦ HIV/AIDSHIV/AIDS◦ STORCH infectionsSTORCH infections

Physical Disabilities Health Disabilities

Accommodations to the Learning Environment for Students with Physical

Disabilities

Modify the physical environment Apply principles of Apply principles of

universal designuniversal design Widen aislesWiden aisles Remove hazardsRemove hazards Change seating Change seating

arrangements arrangements Create accessible Create accessible

workstations workstations Provide storage for AT Provide storage for AT

devicesdevices

Alter student response demands Speak instead of writeSpeak instead of write Use word processing Use word processing

instead of writinginstead of writing Use a classmate to Use a classmate to

take notestake notes

Adapt materials and equipment Allow use of special Allow use of special

writing toolswriting tools Voice-activated Voice-activated

computerscomputers Adapted computer Adapted computer

keyboardskeyboards

Accommodations for Students with Health Disabilities

Modify InstructionModify InstructionAllow more time to complete assignments; Allow more time to complete assignments;

abbreviate assignments; allow for a flexible abbreviate assignments; allow for a flexible schedule for completionschedule for completion

Arrange for extra assistanceArrange for extra assistanceTutors; video lectures; use distance delivery Tutors; video lectures; use distance delivery

systems; set up I-chat or videoconferencing; assign systems; set up I-chat or videoconferencing; assign a peer tutora peer tutor

Adapt MaterialsAdapt MaterialsUse handouts with lectures; assign books with e-Use handouts with lectures; assign books with e-

versions; allow voice optionsversions; allow voice options

Seek support from related servicesSeek support from related servicesSchool nurse as case manager for home-school School nurse as case manager for home-school

collaborationcollaboration

Barriers Include: Individuals Require:

Coping with inaccessible environments, where their impaired mobility hinders their participation in mainstream society

Dealing with bias, rejection, and discrimination

Difficulties living independently

Difficulty finding jobs Social rejection by

people without disabilities

Accessible physical and learning environments

Acceptance and understanding

Goals that foster independence

Accommodations for their individual learning, physical, and health needs

Special teaching, scheduling, counseling, therapies, equipment, and technology

Facility Review:The Paralympics

About the Paralympics

The Paralympics is an international competition for physically disabled athletes.

The Paralympics was founded in 1948 by Sir Ludwig Guttmann.

Originally was for WWII veterans with spinal cord injuries in England.

Holland joined the Paralympics in 1952 which started the Paralympic Movement.

History

July 29, 1948 of the London games, Dr. Guttmann organized the first competition for athletes in wheelchairs.

There were 16 service men and women involved who competed in archery.

The first official Paralympic games took place in Rome in 1960.

400 athletes from 23 countries participated.

The games took place every 4 years since the first games.

1976 was the year in which the winter Paralympics started.

History Continued…

In 1960 an International Working Group started the study of problems of sport for people with impairments.

This is how the International Sport Organization for the Disabled (ISOD) came to be in 1964.

ISOD started out with 16 countries

In 1976 the athletes included those who are blind or were amputees.

The Paralympics

In 1980, those with cerebral palsy were also affiliated with the ISOD.

The goal was to embrace all impairments

Other disability organizations that were founded during this time were Cerebral Palsy International Sports and Recreation Association and the International Blind Sports Federation

All of the organizations needed to coordinate the Games so the International Co-coordinating Committee Sports for the Disabled in the World (ICC).

ICC had all presidents of the four organizations, the secretaries, and one general member.

The ICC was later joined by the International Committee of Sport for the Deaf and International Sports Federations for Persons with an Intellectual Disability.

The Paralympics Continued…

The International Paralympic Committee was officially founded on September 22, 1989.

It is a non-profit organization in Dusseldorf, Germany.

It was the global governing body of the Paralympic Movement.

The Paralympics are the parallel Games to the Olympics and illustrates how the two movements exist side by side (http://www.paralympic.org/TheIPC/HWA/HistoryoftheMovement).

Sources

http://www.paralympic.org/TheIPC/HWA/HistoryoftheMovement

http://dictionary.reference.com/browse/paralympics?s=t

Movie ReviewThe Waterdance

The WaterdanceDirected by: Neal Jimenez and Michael Steinberg

This semi-autobiography movie is This semi-autobiography movie is about a writer named Joel Garcia about a writer named Joel Garcia who becomes paralyzed in a hiking who becomes paralyzed in a hiking accident in the mountains. He tries accident in the mountains. He tries to recover at a rehab center with the to recover at a rehab center with the use of waterdance therapy, as the use of waterdance therapy, as the title depicts. During this time, he has title depicts. During this time, he has an affair with a married woman an affair with a married woman named Anna, with whom he was named Anna, with whom he was having a relationship with at the having a relationship with at the time of the accident. The lovers time of the accident. The lovers attempt to carry on their affair attempt to carry on their affair during his difficult struggle of during his difficult struggle of recovery. The time the movie takes recovery. The time the movie takes place in is not shown but is assumed place in is not shown but is assumed to be the early 1990to be the early 1990’’s in an s in an undisclosed city. undisclosed city.

Paralysis:

Paralysis is defined as the loss of muscle function in part of the body. Paralysis can be complete or partial and can occur on one or both sides of the body. It can also occur in just one area of the body or widespread. Joel suffers from paraplegia, or paralysis of the legs. Most paralysis is due to strokes or injuries, such as spinal cord injury which was the accident in the movie.

Story:The story shows Joel’s difficult road of recovery after his accident and dealing with his new disability.

He has to wear a full brace now.

•He becomes hopeless of his life and is later convinced that a life of paralysis is not a life worth living.

•He is also worried that his relationship with Anna will end.

•With the help of his new friends and Anna, he realizes he can continue living his life if he works for the recovery at the rehabilitation center. He receives full-time care at the facility where he performs waterdance therapy. The following is a trailer of The Waterdance:

http://www.youtube.com/watch?v=SZL7L26F66Q

Relationships:

•Joel’s main relationships include his lover Anna and the second with his rehab friends Bloss and Raymond.

•It is implied that Joel would not typically choose friends like Bloss or Raymond in other circumstances.

•They bond over their shared struggles with their disabilities, specifically their slow progress.

•Prior to the accident, Anna was ready to leave her husband to be with Joel. After the accident, she starts to second guess the possibility of a future with Joel in his condition.

•She becomes a caregiver for Joel.

Facility, IDEA and 504 acts:

•Joel’s rehabilitation center is shown to be a nice facility that gives him adequate care and takes no preferential treatment.

•Problems: he had repeated trouble with a telephone operator that was putting him on hold for a long amount of time.

•The IDEA and 504 acts do not really apply to Joel as he is older than 21 and no longer in any kind of formal education but the Americans with Disabilities Act does relate. This act protects disabled individuals from discrimination which Joel could have faced in his care facility. Because this movie is in the early 90’s and the act was enacted in 1990, Joel’s story is most likely one of the first patients to be given care under the new guidelines. However, the story is a semi-autobiography and the person that the story is about had his accident around 1984. He may not have been under the new part of the guidelines.

InterviewWith Parent of Corey

Duchak

Background Information:

Corey Duchak is 23 years old

Corey was diagnosed with severe Autism at a very young age

Corey is one of three children and is the only one with a disability

Questions:

What types of challenges does Corey face daily?

Corey is completely non-verbal and has severe autism. Growing up, the hardest challenges included the fact he couldn’t communicate to my husband and I. If he was hungry or sick, he would just look upset or get angry. He had no way to communicate his needs or feelings and would result in frustration. For example, for a few months in his teens we found out Corey was having major indigestion problems and we couldn’t tell for so long because of the lack of communication. As parents of a child with autism, we had to do a lot of detective work to figure out how Corey was really feeling or if he needed something.

What kind of challenges do you face? How do you cope?

My husband and I have infinite love for our children. Corey is one of three and the only one with Autism. Corey was difficult to take care of, and every day brought new challenges. My husband and I have joined Autism parent groups and became very active. My husband, Doug, is the president of Englewood hospital – so we stay very involved in the Autism sector. I felt it was important for me and son that I do everything I can to help those dealing with the same issues my family has been going through. Connecting with other families of children with Autism has affected my life in a great way and I find that was the best way to cope and learn more.

How has Corey’s disability affected your other children?

Corey has one older brother and one older sister. Corey, the youngest of the three, got the most attention- which did affect our daughter. Corey’s older brother, Dean, recently graduated Georgetown and played football there. My daughter, Stacey, has had issues of her own mentally when growing up because she felt a lack of attention. Corey took most of our time, but needed it. Dean and Stacey love Corey and will continue to help look after him and stay connected as they continue to grow older. Dean and Stacey helped out around the house as Corey was growing up. Corey’s disability definitely affected our family bond.

As Corey grew older, did it become more or less difficult to take care of him?

The most difficult time I had taking care of Corey was when he was in his very early teens, around 13 or 14 years old. Corey became unpredictable. There were times where he would become violent, scratching and hitting. He was constantly getting up at night. He was becoming all around more difficult to take care of. For a while we had someone from the state come watch Corey from 11 pm to 6 am every day to make sure he wouldn’t get up and leave the house or put anyone or himself in danger. I was uncomfortable having a stranger in my house every evening, but it was necessary for Corey’s care that we have someone professional come in to watch him when we couldn’t. Corey had never been violent and has since outgrown that. We later had to put him on medications for about a year but weaned him off once his unpredictable behavior was getting better.

What schools did Corey attend? How did you feel about the education he was receiving?

Corey attended the Alpines Learning Group. This school wasn’t meant to teach Corey skills like reading or math, but how to dress, behave, and clean himself. This school taught him daily life skills and manners as well as how to control impulses. Corey always had an issue with being very impulsive. He wanted what he wanted when he wanted it. Corey enjoyed chips, videos, and music and almost always demanded one of the three. We had to use these as motivators for him to do other things or complete other tasks. For example, if he finished his worksheet, then he could listen to some music for an hour. My husband and I loved Alpine Learning Group and got very involved. My husband was on the board and we were very active in fundraising for the school.

Now that Corey is older, what changes are being made in his and your life?

Since Corey is now in his twenties, we had no choice but to put him in a home. Corey will never be able to function on his own and my husband and I are not getting any younger. He now lives in a home in Flemington, New Jersey. The separation is probably the toughest part, as well as knowing he is not getting the same care he would if he were home. I have personally visited the home a number of times and can see the quality of care isn’t always the best. Corey visits home every now and then and he is adjusting to life in the group home. I’m still very much active in Autism groups and plan to stay that way. We recently got a beach house as well because of how much Corey loves the beach. When he visits home in the summers we love taking him there.

Response

After interviewing Corey’s mother, I learned more about how his autism affected himself as well as his family. Since Corey is now older and moved on to a separate group home I hope he grows more as an individual. After speaking with Merri Duchak, I came to realize that everyday she still worries about her son and misses him. All she and her family can hope for is that Corey will continue to get the best care possible and live a long life. This interview enlightened me more on how a family copes with a child with a disability and I greatly appreciate Merri being so honest about her and her child.

Overall, we learned how hard it is to live with having a disability as well as how hard it is to take care of someone

with a disability. We gained a better understanding of physical and health disabilities and have developed an

incredible amount of respect for those who have one.