Tim Ambrose1, Rabia Topan2, Mia Small1, Jeremy MD Nightingale1, Simon M Gabe1

1Lennard-Jones Intestinal Failure Unit, St Mark’s Hospital, London, United Kingdom 2Northwick Park Hospital, London, United Kingdom

Introduction

Method

Survey results

Conclusions

The public demand for flexible access to health information & services is growing, encouraged by internet trends & policies promoting patient involvement. Patients Know Best® (PKB) is an electronic patient centred system providing a secure forum for patients to interact with their healthcare teams.

PKB was introduced to patients during routine clinic visits and verbal consent obtained. We recorded frequency of use, number of conversations held, and additional carers invited. A 10-question survey was distributed to all users to assess satisfaction with PKB.

This survey suggests that our patient cohort find PKB a useful facility to contact us and improve the management of their long-term condition.This is an emerging & effective way for patients to interact with their health care teams. We have not found it has increased our workload.The ability to communicate seamlessly between different healthcare specialists reduces the current difficulties which exist when transferring information between multiple care providers and may be useful for HIFNET.

AimTo assess satisfaction with PKB amongst our cohort of home parenteral nutrition patients.

Electronic personal health records for patients on home parenteral nutrition: A patient satisfaction survey

Demographics of patients using PKB119 patients recruited over 18 months (50 male, 69 female).Median age 48 years (range 17-85).5015 unique conversations held.128 additional healthcare professionals and 29 carers were added by patients.Survey respondents58/119 (48.7%*) responded to the survey with 1 incomplete dataset. 61% female, 54.4% over 50 years of age.

42/57 (73.7%) parenteral nutrition; 13/57 (22.8%) fluids with electrolytes; 2/57 (3.5%) no parenteral support.

*Not all patients access PKB regularly and they only had a short period in which to reply to the survey which may explain the low response rates in an otherwise motivated patient population.

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How satisfied are you with Patients Know Best?

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How likely are you to recommend this product to someone you know?

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the way you manage your condition?

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Has Patients Know Best helped you to contact...?

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How useful do you find each of the Patients Know Best features?

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