1

Plenary Round Table V: “The ERN integration in healthcare systems”

Spanish approach22nd November 2018

4th Conference on ERNs (Brussels)

Laura Marín Calvo (ERN BoMS , ES representative)Ministry of Health, Consumer Affairs and Social Welfare

Conflict of interest

I have no actual or potential conflict of interest in relation to this presentation

2

SPANISH PARTICIPATION IN ERNs

3

144

5

77 2

83

24

356

86

2

1

276 CSUR50 HOSPITALS63 diseases

CSUR DESIGNATION COMMITEE

ENDORSEMENT

17 ERN42 CSUR16 HOSPITALS

HCP CSUR-Area of scope of ERN

Autonomous Communities Participation in ERNs

CSUR DESIGNATION PROCESS

SPECIFIC LIST OF DISEASES/GROUP

OF DISEASESDESIGNATION

CRITERIAASSESSMENT PROCEDURE

CSUR DESIGNATION

4

OBJ

ECTI

VES

- Equity in access

- Concentrate experience

- Improve care of lowprevalence diseasesand procedures

CSUR RE-ASSESSMENT/CSUR RE-DESIGNATION

MONITORING SYSTEM

5-10 YEARS

CSUR AND ERN INTEGRATION

NHS

CSURs NHS

CSUR/CSURsparticipating

in ERN

5

ERN PARTICIPATION

BENEFIT PATIENTS EQUALLY

ADAPT NATIONAL MODEL

INTEGRATION: DESIGNATION CRITERIA CSUR Activity Multidisciplinary team Human and equipment resources Research activities and training Patient Safety Transition from children’s to adults’

services Monitoring System

6

7

INTEGRATION: CSUR ASSESSMENT Multidisciplinary Team work

Transition from children’s to adults’ services

Patient safety

0

1

2

3IP

HM

SIN

PBCV

PNAVPITU

LVQ

MAR

PUUP

CSUR MONITORING SYSTEM Detect deviations Validate and improve standards, designation

criteria and indicators Annual Report to support the CSUR designation

renewal after 5 years. CSUR forum for discussion: support for future

reference networks at national level Indicators:

Activity measures Outcome measures

8

020406080

100120140

1 2 3 4 5

TOTAL COMPLEX PEDIATRIC NEUROQUIRURGICAL PROCEDURES

Año 2013

Año 2014

Año 2015

Estándar:15Media: 65,8

2013

2014

2015

Standard:15

Average: 65,8

9

INTEGRATION: PATIENT REFERRAL SYSTEM

Fondo de Cohesión Sanitaria

Track patient flows, transfer reasons and waits

Finantial compensation of the care given among Autonomous Communities

Identify potential diseases and procedures to designate CSUR in the NHS

ERN referral – under construction

10

PILOT NATIONAL NETWORK HU La Paz as Coordinator of ERN Transplant-

Child: Experience gained with CPMS as the basis

to develop a national platform.

Phases: Starting point: CSURs for transplantation

in children Future: Rest of CSURs progressively

PILOT NATIONAL NETWORKPAEDIATRIC TRANSPLANTATION

11

KIDNEY: 6 LIVER: 4

LUNG: 2 HEART: 4

HSCT: 4INTESTINE: 4

HOSP. UNIV. LA PAZ (liver, kidney, heart, intestine, HSCT)

CHALLENGES

Financial resources affect to all Cooperation ERN – MSs Complementarity – ERN criteria/

assessment with HCPs requirements at national level

Integration of ERNs within NHSs

12

13

THANK YOU