pqcnc pfe ls2: authentic patient engagement - making changes that stick
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Authentic Patient Engagement-
Making Changes that Stick
North Carolina
February 20, 2014
Libby Hoy,Patient & Family AdvisorFounder, PFCC Partners
Copyright 2013, Patient & Family Centered CarePartners, Inc. All rights reserved
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Our Story
FearShame
Disrespect
Failure
But it is also a story of.Partnership
RespectCollaboration
Compassion
Empowerment
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My mission
To share our experiences inpartnership and true
collaboration so that together
we can improve healthcare forall of us.
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The Potential
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Patient & Family Centered Care
PartnersPFCC Partnersis committed to building a community of healthcareproviders, administrators, ancillary staff, patients and families comingtogether to define best practices, share resources, connect with peersand access support and tools for integrating PFCC into theirorganizations.
PFCC Partners recognizes that the quality of healthcare outcomes isimproved when the expertise of the healthcare providers is partneredwith the experience of the patients and families. Fromthe bedside tothe boardroom, patient & family centered care is about partnering todesign policies, programs and individual care plans for the bestpossible outcomes.
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PFCCis the umbrella that leads
to organizational improvement
Improves
QualityImproves
Safety
Improves
OutcomesPatient
Experience
Improves
Employee
Engagement
Copyright 2010 PFCC Partners, Inc
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Definition of PFCC
PATIENT & FAMILY CENTERED CARE is carethat is responsive to individual patientpreferences and needs while assuring
patient values guide clinical decisions.
Crossing the Quality Chasm, A New Health System for the 21stCentury, Institute of
Medicine, 2001
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The Call for Engagement
Partnership for Patients
Institute for Healthcare Improvement
Institute of Medicine AHRQ
National Quality Forum
Patient Centered Outcomes Research Institute HRET Survey
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Patient Engagement vs Patient
ExperienceTo differentiate Patient & Experience and PatientEngagement, I think its important to look at the goals ofeach. The goals of Patient Experience are to increasepatient loyalty, increase market share and exceed thePatients expectations. The goals of Patient Engagement
are to get folks invested in their own care by providingopportunities and structures for patients and their familiesto become active participants in healthcare. Therelationship is dynamic and reciprocal in nature, where asthe Patient Experience work is more linear in terms of the
healthcare organization making efforts to provide a positivepatient experience. Although many patient experienceefforts rely on patient input, engagement relies on an ongoing partnering relationship.
-Libby Hoy, December 2013
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PFCC is Reciprocal
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Strategy for Program Design,
Implementation and Evaluation
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What Does Patient Engagement
Look Like?
Calm
ComfortableConfidant
Copyright 2013 PFCC Partners, Inc.
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Setting the Table in the Organization
Purpose
Clear vision of the roleof the PFAC in theorganization
established Vision communicated
to staff, clinical andnon clinical
Identify & relegateappropriate staff and
organizationalresources
Activities
Charter Written
Loop Back established
Staff resources
identified
Staffeducation/awareness
Identify the link tothe strategic plan,PFAC as a strategy for
meeting these goals
Identify the singlepoint of contact forPFAs.
Outcomes
Organized Approach
Communicated VisionBuilds Investment
Avoids anotherproject for staff
Avoid appearingdisorganized to thePFA, likely to loseinterest; appears
Increases tokenism.
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Characteristics of SuccessfulEngagement Practices
Organization is clear about the vision for engaging patients and families
PFAs are representative of the population served
PFE an accepted STRATEGY for improvement across the board
PFA serve on hospital wide committees,
Leadership pushes the culture shift toward engagement
PFAC agendas are created in partnership
PFAs are seamless in the fabric of the organization, rather then heroes
Every program, policy & design process involves PFAs from the outset
Every staff person in the organization recognizes the value of PFAC & supports its
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Common Pitfalls
Lack of an Owner/ point personTokenism
Support Group Mentality
Community Cheerleading Group
Inconsistency of effortFailure to close the Loop
Lack of diversity (socio economic, disease, experience, racial,
age)
Lack of Follow through on recommendations, not necessarily
implementation, but consideration
Lack of preparation in the organization
Leadership not directly involved
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Budget Items
Print MaterialsOrganizational Education MaterialsPatient & Family Engagement MaterialsPostersMailers
Catering CostsParking ValidationChild CareBackground Check & BadgesGas cardsTransportation Tokens
Staff TimeDevelop print materialsEducating StaffReview applicationsInterviews
Coordination of Orientations
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Sample Charter
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Recruitment of Patient & Family
Advisors
Purpose
Ensure an effectivecomposite of PFAs
who are diverse indemographic,experience anddiagnostics
Reflective of thepopulation served
Experience on yourcampus
Activities
Publicizing the PFACwithin theorganization toinvolve staff
Application
Interview
Utilize the crosssection of staff to
support recruitment
Outcomes
Representative groupwill design solutionsfor all patients &families served
Large candidate pool= avoidingoverwhelming thegroup
Sharing the load tobe representative
Less likely to fall intosupport group mode
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Core Competencies of PFAs
Ability to
embrace a
TeachableSpirit.
Ability to be
theRepresentative
Voice Ability toCollaborate
Constructively
Co ri ht 2013 PFCC Partners, Inc.
Ability to Establish Partnerships
Ability to beSolution
Focused
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Recruiting Plan
1. Structure Established
-Single point of contact
Volunteer services
Customer Service
Grievance Process
2. Process established
-Referral Forms
-Self Referral process
3. Identify Engagement Strategies & Partners
-Provide staff information
-Engage leaders from all areas
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Referral Process
Referral Form components:1. Vision Statement
2. Contact info (with permission)
3. Reason for referring
Process Owner:
1. Distributes Referral Forms
2. Accepts completed referrals
3. Sends the Application
4. Schedules & Coordinates Interviews
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Application & Interviewing
Application:Provides pertinent experiences
Provides a flavor of communication style
States the commitment up front
Identifies areas of experience on campus
Formalizes the process and engagement
Self Selection opportunity
Availability identified
Interview:
Panels to Staff sponsor and current PFACsStaff member alone
Phone interviews, with limitations
In person interviews preferred
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Points of Engagement
Patient & Family Advisory Councils
Quality Initiatives
Safety Initiatives
Committee participation
Family Faculty presentations
Peer support
Document review
Staff interviewsLEAN projects
Program Design
Facilities Design
Advocacy Efforts
Foundation Efforts
Marketing Efforts
Staff Appreciation Efforts
Story Telling
Organizational BoardE-Advisors
Starting points Requires some experience Requires More Experience
and/or additional training
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FAQs
What is the right number of PFAs?No perfect number, though majority +/- 12
Can staff serve in the role of PFAs?
Not recommended, PFAs are in the room with a singularpurpose
How many staff members serve on PFACs
Recommend 30% of total, including leadership no more then50%
Should PFAs go through Volunteer Orientation?
Ultimately, YES
What about confidentiality?
Patients who complete applications are sharing theirexperiences voluntarily. PFAs should sign confidentiality
agreement with the organization.
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Sustainability Practices
Purpose
PFAs will come and go
according to their owntiming, values and need.
Design a Council to fill
the WHAT and it will notrely on the WHO involved
Expansion of theintegration of PFAs into
the organization
Quality & SafetyCommittee
Design projects Workgroups
Legislative Advocacy
Unit Specific Councils
Activities
Continuous recruiting,
Create multiple avenuesfor engagement outsidethe PFAC
Publicize point of contactto the organization,
Shared agenda
Provide time for storytelling
Establish theExpectations
Organizational Structure
Mission Statement
Priority Development
Tied to strategic plan
Outcomes
Avoid wearing down PFALeaders
Provide moreopportunities for
engagement = increasingyour diversity
Fresh ideas
New perspectives
Develop best practicesfor integration of patientfamily integration on
improvement teams
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Sustaining Engagement
One action you can take
tomorrow to sustain your
engagement plan
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Contact
www.pfccpartners.com
5199 E. Pacific Coast Hwy, Suite 306
Long Beach CA 90804
562.961.1100
http://www.pfccpartners.com/http://www.pfccpartners.com/http://www.pfccpartners.com/