presentation developed by the: illinois department of human services/division of mental health...
TRANSCRIPT
Presentation Developed by the:
Illinois Department of Human Services/Division of Mental Health
Illinois Mental Health Collaborative for Access and Choice
With help from:
Local COSP in Illinois 1
Learning ObjectivesIn today’s presentation, we will explore the following
areas:
Consumer Operated Services and Programs (COSP) Definition
Different Types of COSP
Vision Behind COSP
Importance of a Shared Understanding of COSP
Five Key Ingredients of COSP2
Learning Objectives (continued)COSP Organizational Tips on Advisory Boards, Hiring Persons
in Recovery and Money Management
Peer Perspectives on COSP
COSP Outcomes
COSP and Other Organizations
Top Ten Benefits of COSP
Where to Find More Information and Technical Assistance
3
Consumer Operated Services and Programs (COSP) DefinitionCOSP are organizations that:
Are peer-run self-help organizations or groups
Are administratively and financially controlled by persons participating in mental health services (consumers)
Are not simply mental health services delivered by consumers, but are independent, peer-run programs.
Generally offer mutual support, community-building and advocacy.
4
What Kinds of COSP Exist?Several models of COSP exist, including but not limited to:
Mutual Support Programs: 1-on-1 or group. Organized, empowering, recovery focused support between persons with mental health challenges where each individual gives and receives support.
Drop-in Centers: Places where persons with mental health challenges may come and go as they please that offers a hopeful environment and voluntary services.
Education and Advocacy Training Programs: Programs which use a set curriculum to teach individuals about mental health, recovery and advocacy.
Multi-Service Agencies: Organizations that provide benefits counseling, recovery support and case management.
Specialized Supportive Services: Organizations that focus on crisis respite, employment and housing.
Warm Lines: Peer support by telephone.
Source: Key Ingredients of Peer Programs Identified by Jean Campbell, Ph.D.
5
The Vision Behind COSP in IllinoisThe Expectation is Recovery! All persons with
mental illnesses can recover and participate fully in a life in the community.
- DHS/DMH Vision Statement
The 2003 President’s New Freedom Commission on Mental Health recommended “the formal integration of peer support programs into the continuum of community mental health services.”
Bona fide COSP are uniquely qualified to communicate hope and support the development of skills that are integral to an individual’s ability to recover. 6
The Importance of a Shared Understanding of COSP
To maintain the integrity of COSP
To prevent calling programs which are not truly consumer run “Consumer Operated”
To establish a link between the unique practices of COSP and their effectiveness. This establishes an evidence base that has:
Implications for endorsement and funding
Influence on the expansion of COSP
Impact on the quality of service that persons with mental health challenges can expect
7
Five Key Ingredients of COSP1) Consumers constitute at least 51% of the board or
group who decide policies and procedures.
2) With limited exceptions, staff and volunteers consist of consumers who are hired by and operate the COSP.
3) Consumers are responsible for making COSP hiring decisions.
4) Consumers control the operating budget.
5) Volunteer opportunities for COSP participants may include board and leadership positions, unpaid jobs, and paid staff positions.
Source: Key Ingredients of Peer Programs Identified by Jean Campbell, Ph.D. 8
COSP Advisory BoardsGiven the key COSP ingredient that “consumers
constitute at least 51% of the board or group who decide policies and procedures,” COSP Advisory Boards:
Are primarily made up of persons with mental health challenges
Give advice, feedback, and ideas to the organization
Focus on issues relevant to persons served (please see next slide)
9
COSP Advisory Boards (cont’d)Examples of issues relevant to persons served:
Policies that empower persons served
Services that promote recovery
Better communication between persons served and staff
Training of staff in recovery principles and connecting with persons served
Presence, awareness, and social action within the community
The effective use of funds10
COSP Hiring Persons in RecoveryGiven the key COSP ingredient that “staff and volunteers
primarily consist of consumers who are hired by and operate the COSP,” the following points are noted:
Persons in recovery bring unique skills and strengths to the workplace, such as empathy, experience and the ability to communicate hope
Persons in recovery are hired, as anyone else, based on their qualifications
The Certified Recovery Support Specialist (CRSS) credential is one way to ensure qualifications in the areas of:Recovery Support
Advocacy
Professional Responsibility
MentoringSource: Illinois Recovery Services Development Resource Handbook
11
COSP Money ManagementGiven the key COSP ingredient that “consumers
control the operating budget,” the following notes on nonprofit money management are provided:
Nonprofit leaders need to develop basic skills in financial management (cash management and bookkeeping)
Having at least one person on the board with financial experience can help the organization build skills needed to stay financially healthy
COSP must develop a plan for spending and saving money wisely
Source: Basic Guide to Non-Profit Financial Management from the Free Management Library
12
COSP Money Management (cont’d)COSP can benefit from becoming non-profit 501c3 organizations
501c3 organizations are charitable, educational, religious, scientific, or literary in nature.
Being a 501c3 allows COSP to be exempt from paying income tax.
Most 501c3 organizations can also receive donations that may be deductible from the taxable income of the donor.
13
The Peer/Recovery Edge"People are often led to causes and often
become committed to great ideas through persons who personify those ideas. They have to find the embodiment of the idea in flesh and blood in order to commit themselves to it.“
- Martin Luther King, Jr.February 13, 1961
How might this statement be applied to recovery support and peer run services?
14
What are People Saying about COSP? Persons receiving services from COSP:
There’s a strong message of hope and a lot of confidence that each person can
recover. It’s a very open minded group .
They talk about what you can do rather than what you can’t do.
The focus is on each person as a valuable individual who happens to have a mental illness, rather than just focusing on the mental illness itself.
When you hear about recovery from a peer there is greater understanding
because they have been there.
You realize that there are other persons out there who are going through what
you’re going through or who have experienced similar struggles. You see that they have overcome and you can too. 15
What are People Saying about COSP? (cont’d) Individuals working for COSP:
COSP are complimentary to traditional mental health services, not opposing forces. Individuals may choose one or the other, or both.
It is easier for persons to trust a peer. The relationship is mutually beneficial.
Working for a COSP means the world to me. I’m proud to get up every morning and have meaningful work to do.
We have long term goals to expand our mission beyond employment and housing to other ways of helping our community. I am thankful to have the opportunity to impact the world I live in in a positive way.
I went from homelessness to public housing to owning my home. I went from being told I would never work again to volunteering to working in the hospital where I was formerly a patient. Now I work for my own organization. I am living proof that people can triumph over life’s greatest challenges. 16
COSP and TMHS Compared Research distinguishes COSP from Traditional Mental Health
Services (TMHS):
Source: Raising All Boats: Using Fidelity Assessment to Guide Improvements in the Quality & Outcomes of Peer Services
by Jean Campbell, Ph.D.
Category COSP TMHSStructure Consumer administrative and
financial controlProvider administrative and financial control
Environment Accessibility, emotional safety and informality
Policies may get in the way of producing a recovery enhancing environment
Belief System Mutual relationships, self help, empowerment, recovery, acceptance, spirituality
Clinical relationships, therapy, spirituality not usually emphasized
Peer Support Shared experiences and stories, artistic expression, connection to recovery movement, crisis prevention
Minimal self disclosure, peer support is peripheral, tentative relationship with recovery movement, crisis management
Education Self-management, problem solving, mutual education, skills practice, job readiness
Medication management, compliance, skills development, conditional employment support
Advocacy Self advocacy, peer advocacy, outreach
Advocacy on behalf of, maintaining functioning of existing population served 17
Distinguishing COSP from Other Organizations and Programs
Consumer Operated Services and Programs (COSP) are distinct from the following:
Consumer Run Businesses: Businesses, from floral shops to publishing houses, which are owned and run by persons in recovery which are not primarily characterized by mental health mutual support, advocacy and recovery education.
Mental Health Center Peer Support Programs: Programs which may be consumer driven and involve the services of persons in recovery that are owned by mental health centers and are not administratively and financially controlled by consumers.
18
What Outcomes Drive COSP?COSP should produce meaningful, measurable
outcomes, such as helping individuals to:
Connect with their community and build mutual relationships
Find and succeed in competitive employment
Find and keep their own housing
19
What Outcomes Drive COSP? (continued)Self advocate and improve the mental
health system
Find affordable support for their recoveries
Improve satisfaction with services through participation
Have more effective tools to improve their own wellness 20
Top Ten Benefits of COSP1) Strong sense of hope
2) Freedom and support to make independent choices and
learn from mistakes
3) Language is used in an empowering way
4) Belief and encouragement of persons’ ability to recover
and shape their futures
5) Validation of what individuals say and value 21
Top Ten Benefits of COSP (continued)6) Esteem of persons as adults
7) Promotion of self awareness
8) Recognition of strengths
9) Support in recovery from unintended consequences of mental
health treatment
10) Support and understanding during setbacks and challenging
times- Inspired by Working Science: Consumer Operated Service Program
Multi-Site Research Initiative Study Overview by Jean Campbell
22
Questions and Answers
23
Where to Find More InformationKey Ingredients of Peer Programs Identified by Jean
Campbell, Ph.D. www.power2u.org/downloads/COSP-CommonIngredients.pdf
Voices of Transformation: Developing Recovery-Oriented Statewide Consumer Organizations by the National Empowerment Center www.power2u.org/downloads/Voices%20of
%20Transformation.pdf
Working Science: Consumer-Operated Service Program Multi Site Research Initiative Study Overview by Jean Campbell, Ph.D.www.mimh.edu/cstprogramarchive/consumer%20op/
Raising All Boats: Using Fidelity Assessment to Guide Improvements in the Quality & Outcomes of Peer Services by Jean Campbell, Ph.D.
http://shrp.umdnj.edu/programs/psyc/coll/documents/MeasuringFidelity_NJ.pdf www.nasmhpd.org
24
Where to Find More Information (continued)
Consumer Peer-Run Activities and Services Programs by the SAMHSA http://mentalhealth.samhsa.gov/cmhs/CommunitySupport/consumers/default.asp
New Perspectives on Consumer Advisory Councils www.illinoismentalhealthcollaborative.com/consumers/education/012810_Consumer_ Education_New_Perspectives_On_Consumer_Advisory_Councils.pdf
Certified Recovery Support Specialist (CRSS) Credential www.illinoismentalhealthcollaborative.com/consumers/consumer_crss.htm
Illinois Recovery Services Development: Resource Handbook www.illinoismentalhealthcollaborative.com/consumers/consumer_crss.htm
25
Where to Find More Information(continued)
e-FACIT Workbook and Users’ Guide by Jean Campbell, Ph.D. To obtain a free demonstration copy, email: [email protected]
How Do I Create a Nonprofit Organization? by Illinois Legal Aid www.illinoislegalaid.org/index.cfm?
fuseaction=home.dsp_content&contentid=4133
Basic Guide to Non-Profit Financial Management from the Free Management Library http://managementhelp.org/finance/np_fnce/np_fnce.htm
26
Sources of Technical AssistanceNational Mental Health Consumers’ Self-Help Clearinghouse:
www.mhselfhelp.org
Depression and Bipolar Support Alliance (DBSA): www.dbsalliance.org
National Alliance on Mental Illness (NAMI) Star Center: www.consumerstar.org
National Consumer Supporter Technical Assistance Center: www.ncstac.org
National Empowerment Center: www.power2u.org
Jean Campbell: [email protected]
DHS/DMH Regional Recovery Support Specialists: Call the Illinois Warm Line at 1 (866) 359-7953 to request contact information.
27
THANK YOU!
28