primary care family...
TRANSCRIPT
Prim
ary
Car
e Fa
mily
Ass
essm
ent
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
Fam
ily d
evel
opm
enta
l sta
ge: E
arly
chi
ldbe
arin
g (b
irth
of
first
chi
ld–a
ge 3
0 m
onth
s)
1.In
tegr
ate
new
bab
y in
to fa
mily
2.R
econ
cile
com
petin
g ne
eds
ofva
riou
s fa
mily
mem
bers
3.Pa
rent
al r
ole
deve
lopm
ent
4.A
ccom
mod
ate
to m
arita
l cou
ple
chan
ges
Prob
lem
s in
dai
ly li
fe
5.C
once
rns
abou
t dia
gnos
is
Whe
n yo
u w
ere
expe
ctin
g a
baby
, wha
t did
you
thin
k yo
ur b
aby
mig
htbe
like
?
Are
any
fam
ily m
embe
rs fe
elin
g le
ft ou
t, or
do
they
hav
e un
met
nee
dsri
ght n
ow?
Who
?
Wha
t is
it lik
e fo
r yo
u be
ing
a pa
rent
of a
chi
ld w
ith s
peci
al n
eeds
?(A
sses
s fo
r ch
roni
c so
rrow
.)
How
is y
our
rela
tions
hip
with
you
r pa
rtne
r ri
ght n
ow?
Do
you
need
tota
lk a
bout
how
par
entin
g ha
s af
fect
ed y
our
rela
tions
hip?
Wha
t inf
orm
atio
n an
d sk
ills
do y
ou n
eed
righ
t now
to h
elp
you
care
for
your
chi
ld?
Wha
t are
you
r cu
rren
t per
cept
ions
of t
he s
ever
ity a
ndpr
ogre
ssio
n of
you
r ch
ild’s
con
ditio
n?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
Who
per
form
s th
e sp
ecia
l car
e ta
sks
for
your
chi
ld?
How
do
you
divi
deth
e w
ork?
How
has
the
diag
nosi
s af
fect
ed y
our
fam
ily’s
act
iviti
es o
fda
ily li
ving
? H
ow a
re fa
mily
rou
tines
reo
rgan
ized
to p
rovi
de fo
r yo
urch
ild’s
spe
cial
nee
ds?
Pare
nts
of c
hild
ren
with
dis
abili
ties
and
chro
nic
cond
ition
s of
ten
with
draw
or
beco
me
over
prot
ectiv
e. W
hich
do
you
do?
How
do
you
man
age
the
daily
em
otio
nal d
eman
ds a
nd th
e da
ily c
are
of
your
chi
ld?
Do
you
have
any
cur
rent
wor
ries
abo
ut y
our
child
? H
ow d
o yo
u th
ink
your
chi
ld is
dev
elop
ing?
How
is e
very
one
adap
ting
to th
e fa
ct th
atyo
ur c
hild
isn’
t ach
ievi
ng o
r w
on’t
achi
eve
a ce
rtai
n de
velo
pmen
tal
mile
ston
e? W
hat w
orks
in s
ettin
g lim
its o
r co
ping
with
inap
prop
riat
ebe
havi
or?
Car
egiv
ing
is d
eman
ding
. Are
you
fatig
ued?
Exh
aust
ed o
r re
ally
stre
ssed
? O
n ov
erlo
ad?
Wha
t doe
s yo
ur fa
mily
do
for
fun
righ
t now
?H
ow o
ften?
Do
you
som
etim
es fe
el th
at y
ou a
re “
goin
g cr
azy”
beca
use
you
can
neve
r be
alo
ne?
How
has
hav
ing
a ch
ild w
ith a
disa
bilit
y or
chr
onic
con
ditio
n af
fect
ed y
our
rela
tions
hip
with
yo
ur p
artn
er?
a.A
ctiv
ities
of d
aily
livi
ngb.
Car
egiv
ing
chal
leng
e
c.Ef
fect
on
mot
her
and
fath
erd.
Com
petin
g de
man
ds
6.Pa
rent
ing
conc
erns
Chi
ld d
evel
opm
ent
Dis
cipl
ine
met
hods
7.N
eed
for
resp
iteR
ecre
atio
n an
d le
isur
eC
oupl
e’s
time
alon
e to
geth
er
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
8.C
hild
car
e en
try
9.N
orm
aliz
atio
n
10.
Fam
ily s
tren
gths
and
res
ourc
es
Fam
ily d
evel
opm
enta
l sta
ge: F
amily
of
pres
choo
ler
1.M
eet n
eeds
for
hous
ing,
nut
ritio
n,
safe
ty, a
nd h
ealth
of m
embe
rs
2.In
tegr
ate
new
chi
ldre
n w
hile
m
eetin
g co
mpe
ting
need
s of
fa
mily
mem
bers
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
Wha
t are
you
r th
ough
ts a
bout
chi
ld c
are?
How
wou
ld y
ou g
o ab
out
findi
ng c
hild
car
e?
Wha
t is
“nor
mal
” fa
mily
life
for
you
righ
t now
? W
hat i
s th
e ha
rdes
tth
ing
for
the
fam
ily n
ow?
Any
diff
icul
ties
expl
aini
ng d
iagn
osis
tofa
mily
, fri
ends
, or
stra
nger
s? A
ny a
nger
or
emba
rras
smen
t?
Wha
t kee
ps y
ou g
oing
rig
ht n
ow?
Wha
t hel
p is
mos
t app
reci
ated
? W
hat
is th
e be
st th
ing
abou
t you
r fa
mily
rig
ht n
ow?
Wha
t res
ourc
es a
reav
aila
ble
for
fun
and
soci
al s
uppo
rt?
Are
thes
e ad
equa
te fo
r no
w?
How
wel
l are
you
r fa
mily
mem
bers
rig
ht n
ow?
Wha
t saf
ety
issu
es d
oyo
u an
d yo
ur c
hild
ren
face
? D
o yo
u ha
ve e
noug
h be
ds a
nd b
ed-
room
s fo
r yo
ur fa
mily
? W
hat s
nack
s do
you
r ch
ildre
n ea
t?
How
do
you
man
age
the
care
of o
ne m
ore
pers
on in
you
r fa
mily
?W
hat t
hing
s ha
ve c
hang
ed, a
nd h
ow d
o th
e ot
her
child
ren
beha
vew
hen
you
care
for
the
new
bab
y?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
3.So
cial
ize
child
ren
4.Pa
rent
al r
ole
deve
lopm
ent
5.A
ccom
mod
ate
to m
arita
l cou
ple
chan
ges
Prob
lem
s in
dai
ly li
fe
6.A
ctiv
ities
of d
aily
livi
ngC
areg
ivin
g ch
alle
nges
Effe
ct o
n m
othe
r an
d fa
ther
Com
petin
g de
man
ds
7.Pa
rent
ing
conc
erns
Chi
ld d
evel
opm
ent
Dis
cipl
ine
met
hods
Whi
ch “
man
ners
” ar
e yo
u te
achi
ng y
our
pres
choo
ler
righ
t now
?
Do
you
feel
you
rsel
f sta
rtin
g to
“le
t go”
and
let y
our
child
exp
erie
nce
som
e co
nseq
uenc
es?
How
has
the
sexu
al c
urio
sity
of y
our
child
cha
nged
beh
avio
rs b
etw
een
you
and
your
par
tner
? H
ow h
as a
“hi
gh-m
aint
enan
ce”
child
chan
ged
the
time
you
have
with
you
r pa
rtne
r?
How
doe
s th
e di
agno
sis
affe
ct y
our
child
’s d
aily
life
rig
ht n
ow?
How
are
fam
ily r
outin
es r
eorg
aniz
ed to
pro
vide
for
your
chi
ld’s
sp
ecia
l nee
ds?
How
doe
s yo
ur p
resc
hool
er a
ct a
nd r
eact
with
mot
her
and
fath
er?
How
do
you
man
age
all t
he d
eman
ds o
n yo
u ri
ght n
ow?
Do
you
have
any
cur
rent
wor
ries
abo
ut y
our
child
? H
ow d
o yo
u th
ink
your
chi
ld is
dev
elop
ing
righ
t now
? H
ow a
re o
ther
chi
ldre
n re
actin
gto
you
r ch
ild r
ight
now
? W
hat w
orks
in g
aini
ng c
oope
ratio
n in
sto
ppin
g in
appr
opri
ate
beha
vior
?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
8.N
eed
for
resp
iteR
ecre
atio
n an
d le
isur
eC
oupl
e tim
e
9.C
hild
car
e en
try
10.
Nor
mal
izat
ion
11.
Fam
ily s
tren
gths
and
res
ourc
es
Fam
ily d
evel
opm
enta
l sta
ge: F
amily
of
scho
ol-a
ge c
hild
ren
1.B
alan
ce p
aren
tal n
eeds
with
ch
ildre
n’s
need
s
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Do
you
som
etim
es fe
el th
at y
ou a
re “
goin
g cr
azy”
bec
ause
you
ca
n ne
ver
be a
lone
? W
hat d
oes
your
fam
ily d
o fo
r fu
n ri
ght n
ow?
How
ofte
n?D
o yo
u ha
ve ti
me
desi
gnat
ed w
eekl
y fo
r ta
lkin
g to
geth
er a
bout
ea
ch o
ther
?
Wha
t arr
ange
men
ts d
o yo
u ha
ve fo
r ch
ild c
are?
How
is it
wor
king
?
Wha
t is
“nor
mal
” fa
mily
life
like
rig
ht n
ow?
Wha
t is
the
hard
est t
hing
righ
t now
?
Wha
t kee
ps y
ou g
oing
thes
e da
ys?
Wha
t hel
p is
mos
t app
reci
ated
now
?D
o yo
u ne
ed m
ore
help
?
Are
ther
e th
ings
you
are
n’t d
oing
at w
ork
or a
t hom
e fo
r yo
urse
lfbe
caus
e of
you
r ch
ildre
n’s
need
s?
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
2.R
econ
cile
con
flict
ing
need
s of
fa
mily
mem
bers
3.Pr
omot
e sc
hool
ach
ieve
men
t an
d fr
iend
rel
atio
nshi
ps o
utsi
de
the
fam
ily
4.Pa
rent
al r
ole
deve
lopm
ent
5.M
aint
ain
coup
le, p
aren
t–ch
ild,
exte
nded
fam
ily r
elat
ions
hips
Prob
lem
s in
dai
ly li
fe
6.C
once
rns
abou
t dia
gnos
isA
ctiv
ities
of d
aily
livi
ngC
areg
ivin
g ch
alle
nges
Effe
ct o
n m
othe
r an
d fa
ther
Com
petin
g de
man
ds
In w
hich
way
s do
you
feel
“ov
erst
retc
hed”
by
fam
ily m
embe
rs’ n
eeds
?H
ow h
as th
e di
agno
sis
affe
cted
the
sibl
ings
?
Is s
choo
l per
form
ance
up
to a
bilit
y an
d gr
ade
leve
l? N
eed
anin
divi
dual
ized
edu
catio
n pr
ogra
m o
r sp
ecia
l acc
omm
odat
ions
? Te
ll m
e ab
out y
our
child
’s fr
iend
s.
Do
you
have
any
wor
ries
that
you
are
ove
rpro
tect
ing
or in
dulg
ing
your
child
bec
ause
of h
is o
r he
r sp
ecia
l nee
ds?
How
are
hol
iday
s ce
lebr
ated
at y
our
hous
e? A
re e
xten
ded
fam
ilym
embe
rs a
s in
volv
ed w
ith y
our
fam
ily a
s yo
u w
ould
like
?
Wha
t inf
orm
atio
n ab
out t
he d
iagn
osis
exi
sts
righ
t now
to h
elp
you
thro
ugh
the
scho
ol-a
ge y
ears
? W
ho p
erfo
rms
the
spec
ial c
are
your
child
nee
ds?
How
do
you
divi
de th
e w
ork?
Wha
t rou
tines
hav
e to
be
prac
ticed
to m
aint
ain
scho
ol h
ours
and
the
othe
r de
man
ds o
f a d
ay?
Wha
t is
it lik
e fo
r yo
u to
hav
e a
scho
ol-a
ge c
hild
with
spe
cial
need
s? H
ow d
o yo
u m
anag
e th
e da
ily e
mot
iona
l dem
ands
and
dai
lyca
re o
f a c
hild
with
dis
abili
ties
and
chro
nic
cond
ition
s?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
7.Pa
rent
ing
conc
erns
Chi
ld d
evel
opm
ent
Dis
cipl
ine
met
hods
8.N
eed
for
resp
iteR
ecre
atio
n an
d le
isur
eC
oupl
e tim
e
9.Sc
hool
exp
erie
nce
10.
Nor
mal
izat
ion
11.
Fam
ily s
tren
gths
and
res
ourc
es
Do
you
have
any
wor
ries
abo
ut y
our
child
rig
ht n
ow?
How
do
you
thin
k yo
ur c
hild
is d
evel
opin
g? W
hat h
obbi
es o
r in
tere
sts
does
you
rsc
hool
-age
chi
ld e
njoy
? H
ow d
o yo
u en
cour
age
this
? W
hat w
orks
toen
cour
age
good
beh
avio
r an
d di
scou
rage
neg
ativ
e be
havi
or?
Do
you
som
etim
es fe
el th
at y
ou a
re “
goin
g cr
azy”
bec
ause
you
can
neve
r be
alo
ne?
Wha
t do
you
do fo
r fu
n w
ith s
choo
l-ag
e ch
ildre
n?W
hat i
s fa
vori
te “
fam
ily fu
n”?
Whe
n w
as th
e la
st ti
me
you
wer
eal
one
as a
cou
ple?
Are
ther
e an
y si
gns
of g
row
ing
apar
t?
How
is y
our
child
doi
ng in
sch
ool?
Wha
t doe
s yo
ur c
hild
do
very
wel
lin
sch
ool?
Nee
d an
y he
lp g
ettin
g sp
ecia
l acc
omm
odat
ions
at s
choo
lbe
caus
e of
his
or
her
diag
nosi
s?
Wha
t is
“nor
mal
” fo
r yo
ur fa
mily
rig
ht n
ow?
How
wou
ld y
ou li
ke to
be
mor
e ty
pica
l?
Wha
t is
the
best
thin
g ab
out y
our
fam
ily r
ight
now
? W
hat h
elp
is m
ost
impo
rtan
t now
? W
hat r
esou
rces
are
ava
ilabl
e fo
r yo
ur fa
mily
? A
reth
ese
adeq
uate
?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Fam
ily d
evel
opm
enta
l sta
ge: F
amily
wit
h te
ens
1.Lo
osen
fam
ily ti
es a
s te
ens
mat
ure
2.M
aint
ain
com
mun
icat
ion
with
teen
3.R
econ
cile
con
flict
ing
need
s of
va
riou
s fa
mily
mem
bers
4.Pa
rent
al r
ole
deve
lopm
ent
5.R
efoc
us o
n ca
reer
and
cou
ple
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
How
inde
pend
ent i
s yo
ur c
hild
now
? H
ow w
ell d
oes
your
teen
car
e fo
rhi
s or
her
spe
cial
nee
ds?
Wha
t do
you
enjo
y ab
out t
eens
toda
y? W
hat a
ctiv
ities
do
you
shar
ew
ith y
our
teen
?
Do
any
fam
ily m
embe
rs fe
el le
ft ou
t or
rese
nt th
at o
ne p
erso
n ge
ts a
llth
e at
tent
ion
in th
e fa
mily
? Is
any
body
ups
et, d
epre
ssed
, or
wor
ried
a lo
t? W
ho is
str
esse
d? H
ow d
o th
ey s
how
it?
Wha
t is
it lik
e be
ing
a pa
rent
of a
teen
with
dis
abili
ties
and
chro
nic
cond
ition
s? (A
sses
s fo
r ch
roni
c so
rrow
.)
Wha
t wou
ld y
ou li
ke to
do
to s
tren
gthe
n yo
ur r
elat
ions
hip
with
you
rpa
rtne
r or
spo
use?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
Prob
lem
s in
dai
ly li
fe
6.A
ctiv
ities
of d
aily
livi
ngC
areg
ivin
g ch
alle
nges
Effe
ct o
n m
othe
r an
d fa
ther
Com
petin
g de
man
ds
7.Pa
rent
ing
conc
erns
Chi
ld d
evel
opm
ent
Dis
cipl
ine
met
hods
8.N
eed
for
resp
iteR
ecre
atio
n an
d le
isur
eC
oupl
e tim
e
9.Sc
hool
exp
erie
nce
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
With
chi
ldre
n ol
der,
are
fam
ily c
hore
s an
d se
lf-ca
re e
venl
y sh
ared
amon
g fa
mily
mem
bers
? H
ow d
oes
the
fact
that
you
r ch
ild is
a te
enaf
fect
how
you
man
age
the
child
’s d
isab
ility
or
chro
nic
cond
ition
?H
ow h
as “
adol
esce
nt b
ehav
ior”
affe
cted
you
r ro
le a
s a
pare
nt o
f ate
en w
ith a
dis
abili
ty o
r ch
roni
c co
nditi
on?
How
doe
s th
e fa
mily
man
age
all t
he d
eman
ds o
f you
r fa
mily
mem
bers
now
?
Wha
t pla
ns n
eed
to b
e in
pla
ce fo
r yo
ur c
hild
’s fu
ture
car
e as
an
ado-
lesc
ent a
nd a
dult?
Whi
ch a
dole
scen
t mile
ston
es a
re m
ost i
mpo
rtan
tto
you
? To
you
r ch
ild?
Wha
t wou
ld h
elp
to a
chie
ve th
ese
mile
-st
ones
? W
hat w
orks
with
set
ting
limits
for
your
teen
? H
ow d
oes
your
teen
str
ive
for
“mor
e in
depe
nden
ce”?
Wha
t kin
d of
bre
ak fr
om th
e da
ily g
rind
is r
efre
shin
g fo
r yo
u? H
ow c
anyo
u ta
ke a
bre
ak?
Wha
t doe
s yo
ur fa
mily
do
for
fun
righ
t now
? H
owof
ten?
Do
you
need
mor
e fu
n to
rel
ieve
str
ess?
Par
ents
of t
eens
ofte
nne
ed to
“re
disc
over
” an
d re
conn
ect w
ith th
eir
part
ner
afte
r th
e ye
ars
of p
aren
ting
dem
ands
“w
ear
you
dow
n.”
How
can
you
take
ext
ratim
e to
geth
er n
ow?
Wha
t is
scho
ol li
ke fo
r yo
u an
d yo
ur c
hild
? W
hat p
lans
for
futu
re e
du-
catio
n, tr
aini
ng, a
nd li
fe s
kills
are
nee
ded?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
10.
Nor
mal
izat
ion
11.
Fam
ily s
tren
gths
and
res
ourc
es
Fam
ily d
evel
opm
enta
l sta
ge: L
aunc
hing
tee
ns in
to a
dult
hood
1.Ex
pand
fam
ily c
ircl
e vi
a m
arri
age
and
adul
t rel
atio
nshi
ps
2.R
econ
cile
con
flict
s be
twee
n va
riou
s fa
mily
mem
bers
3.Pa
rent
al r
ole
deve
lopm
ent
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
Wha
t is
a “n
orm
al”
day
like
at y
our
hous
e ri
ght n
ow?
Wha
t is
the
hard
-es
t par
t of h
avin
g a
teen
with
a d
isab
ility
or
chro
nic
cond
ition
inyo
ur fa
mily
? D
oes
your
fam
ily lo
ok ty
pica
l to
othe
rs?
Wha
t is
the
best
thin
g ab
out y
our
fam
ily r
ight
now
? W
hat k
eeps
you
goin
g? W
ho h
as b
een
a su
ppor
t for
you
? W
hat r
esou
rces
do
you
have
or
need
to m
anag
e du
ring
the
teen
yea
rs?
How
doe
s th
e di
agno
sis
affe
ct y
our
teen
’s p
lans
for
adul
t rel
atio
nshi
psan
d ha
ving
chi
ldre
n? H
ow w
ill y
our
fam
ily c
hang
e as
chi
ldre
n le
ave
hom
e an
d st
art l
ives
and
fam
ilies
of t
heir
ow
n?
How
can
you
r te
en s
epar
ate
from
you
r fa
mily
to b
egin
adu
lt lif
e an
dst
ill b
e co
nnec
ted
to y
ou?
Wha
t do
you
have
to “
let g
o of
” an
d w
hat t
hing
s do
you
nee
d to
“h
ang
on to
” as
you
r te
en a
ppro
ache
s ad
ulth
ood?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
4.B
uild
a n
ew li
fe to
geth
er a
s te
ens
leav
e
5.A
ssis
t agi
ng p
aren
ts o
f mar
ried
co
uple
Prob
lem
s in
dai
ly li
fe
6.A
ctiv
ities
of d
aily
livi
ngC
areg
ivin
g ch
alle
nges
Effe
ct o
n m
othe
r an
d fa
ther
Com
petin
g de
man
ds
7.Pa
rent
ing
conc
erns
Chi
ld d
evel
opm
ent
Dis
cipl
ine
met
hods
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
Wha
t kin
d of
life
do
you
imag
ine
for
your
self
as y
our
child
ren
leav
eho
me?
Wha
t do
you
wan
t to
do w
ith th
e re
st o
f you
r lif
e? W
hat
thin
gs h
ave
you
put o
ff do
ing?
How
are
you
r ow
n pa
rent
s m
anag
ing?
Will
you
be
expe
cted
to c
are
for
them
soo
n?
Wha
t cha
nges
in fa
mily
mea
ltim
es, a
ctiv
ities
, rou
tines
, and
cho
res
re-
flect
hav
ing
teen
s le
avin
g ho
me?
Wha
t spe
cial
nee
ds s
till e
xist
for
your
chi
ld b
ecau
se o
f the
dia
gnos
is?
Wha
t doe
s it
mea
n to
you
that
your
teen
is le
avin
g ho
me?
How
is it
diff
eren
t fro
m y
our
part
ner’
s re
-ac
tions
? A
re th
ere
mor
e or
few
er d
eman
ds o
n yo
u no
w th
an w
hen
your
chi
ld w
as y
oung
er?
Wha
t pla
ns, w
orri
es, a
nd h
opes
for
the
futu
re d
o yo
u ha
ve fo
r yo
urte
en le
avin
g ho
me?
Wha
t “le
ftove
r” d
evel
opm
enta
l mile
ston
es h
ave
to b
e ad
dres
sed
so th
at y
our
teen
can
be
as in
depe
nden
t as
poss
ible
?W
hat b
ehav
iora
l lim
its d
o yo
u ne
ed to
set
now
as
your
teen
is le
av-
ing
hom
e?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.
8.N
eed
for
resp
ite c
are
Rec
reat
ion
and
leis
ure
Cou
ple
time
9.Tr
ansi
tion
to w
ork
10.
Nor
mal
izat
ion
11.
Fam
ily s
tren
gths
and
re
sour
ces
Prim
ary
Car
e Fa
mily
Ass
essm
ent
(con
tinue
d)
Ant
icip
ator
y G
uida
nce
for
Fam
ilies
of C
hild
ren
with
Dis
abili
ties
and
Chr
onic
Con
ditio
ns
Chi
ld’s
nam
e Pe
rson
com
plet
ing
form
To
day’
s da
te
Clin
ical
issu
es a
nd c
once
rns
Cur
rent
ly a
pro
blem
?Q
uest
ions
to
ask
Has
the
need
for
resp
ite in
crea
sed
or d
ecre
ased
as
your
teen
has
appr
oach
ed a
dulth
ood?
Wha
t do
you
do fo
r fa
mily
fun
now
? Is
ther
em
ore
or le
ss ti
me
avai
labl
e an
d us
ed fo
r co
uple
tim
e?
Wha
t nee
ds to
hap
pen
so th
at y
our
teen
can
mak
e th
e tr
ansi
tion
to w
ork?
Wha
t is
typi
cal f
or y
our
fam
ily r
ight
now
? H
ow d
oes
this
mat
ch w
ithw
hat y
ou h
ad im
agin
ed ty
pica
l fam
ily li
fe w
ould
be
at y
our
hous
ew
hen
teen
s le
ft ho
me?
Wha
t are
you
r ho
pes
for
the
futu
re?
Wha
t res
ourc
es a
re n
eede
d to
mak
e th
ose
hope
s a
real
ity?
The
Phys
icia
n’s
Gui
de to
Car
ing
for
Chi
ldre
n w
ith D
isab
ilitie
s an
d C
hron
ic C
ondi
tions
,edi
ted
by R
ober
t E. N
icke
l and
Lar
ry W
. Des
ch, c
opyr
ight
© 2
000
Paul
H. B
rook
es P
ublis
hing
Co.