privacy, security and data sharing committee march 27, 2006
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Privacy, Security and Data Sharing Committee
March 27, 2006
Background and Mission Formed Dec. 9, 2002
Mission represent public health and health services
research interests in privacy and security issues
address balancing patient privacy, confidentiality, and security with the need for useful data for public health and research
Focus on priorities related to privacy, security and data standardization including implementation of the HIPAA privacy and security rules
Accomplishments Broadened committee focus to include
security and renamed as Privacy, Security and Data Sharing Committee
Completed and posted all local health privacy case studies developed under a HRSA grant
Updated web site information and materials Participate in new and ongoing national
efforts regarding privacy and security Pursuing collaborative opportunities with
ASTHO
Updated Privacy and Security WRC Information and Materials
Updated the URL's and expanded the list of sites for Privacy and Security, and added many states’ HIPAA websites
Distributed solicitation letters for privacy and security materials to post on the Consortium website
Updated the list of committee members and the committee description on the Consortium website
Have a task on the contract to revise the WRC to develop a web portal to provide educational materials on health data privacy issues
Participate in National Efforts on Privacy and Security
Considered how the committee and the Consortium might be involved in the RTI contract for the privacy and security ONC RFP
Wrote and distributed letters to all state governors to
encourage strong public health and other public sector participation
outline some of the major privacy concerns for public health, especially those that differ from the private sector, and
offer the Consortium’s support Participate on the AHIMA Security and
Privacy Task Force under the RTI project to generate draft health information workflow and sharing scenarios
Pursuing Collaborative Opportunities with ASTHO
Had initial discussions on possible collaborations; items proposed include:
submitting articles for ASTHO’s newsletters
partnering on writing and producing documents, such as a white paper on cross state data exchanges due May 6
sending a joint letter of support to the state recipients of the RTI contract
developing a joint national communications effort to communicate with both the public health sector as well as to groups involved in national efforts
soliciting funds for the support of public health representation on the various contract activities
Future Activity Most activities are in the early stages
Further discussions with ASTHO and the Committee will be held to narrow the choices and prioritize activities for the upcoming year
Continue to monitor and look for avenues of involvement and/or participation in the national privacy/security efforts
Additional work to follow up on materials solicitation to enhance privacy and security content on the Consortium website
Development of ideas for security projects
Committee Chairs
Vicki Hohner, MBASenior ConsultantFox Systems, Inc.Email: [email protected]
Dr. Richard UrbanoResearch ProfessorVanderbilt Kennedy CenterEmail: [email protected]
Committee Members Bruce Burns
Texas Health Care Information Council Kathleen Cook
National Association of County and City Health Officials (NACCHO)
Robert DavisNational Association of Health Data Organizations
Wanda Govan-Jenkins, M.S., M.B.A., R.N.CDC/NCHS
Marjorie Greenberg, M.A.CDC/NCHS
Michael C. JonesIllinois Department of Public Health
Michael KassisCalifornia Department of Developmental Services
Hetty Khan, M.S., B.S.N., R.N.CDC/NCHS
Committee Members Sally Klein, RN, MBA
Fox Systems, Inc. Jonathan Lawniczak
AcademyHealth Starla Ledbetter, M.H.S.A., R.H.I.A
California Office of Statewide Health Planning and Development
Denise LoveNational Association of Health Data Organizations
Janet MarchibrodaeHealth Initiative
Dr. Gerald MassonJohns Hopkins University
Beverly Meadows, M.S., R.N.National Institutes of HealthNational Cancer Institute
Anna OrlovaPublic Health Data Standards Consortium
Committee Members Derek Pate
Oklahoma Department of Health Barbara Rudolph, Ph.D.
The LeapFrog Group Anne Ryan, R.N.
National Institutes of HealthNational Cancer Institute
Carol Stocks, R.N., M.H.S.A.Agency for Healthcare Research and Quality (AHRQ)
Walter Suarez, M.D., M.P.H.Midwest Center for HIPAA Education
Jonathan TeagueCalifornia Office of Statewide Health Planning and Development
Jessica Townsend, M.P.H.Health Resources & Services Administration
Socrates TuchOhio Department of Health
Committee Members Dorothy Webman, D.S.W.
Workgroup for the Computerization of Behavioral Health & Human Services Records
Michelle Williamson, B.S., B.S.N., R.N.CDC/NCHS