Privacy, Security and Data Sharing Committee

March 27, 2006

Background and Mission Formed Dec. 9, 2002

Mission represent public health and health services

research interests in privacy and security issues

address balancing patient privacy, confidentiality, and security with the need for useful data for public health and research

Focus on priorities related to privacy, security and data standardization including implementation of the HIPAA privacy and security rules

Accomplishments Broadened committee focus to include

security and renamed as Privacy, Security and Data Sharing Committee

Completed and posted all local health privacy case studies developed under a HRSA grant

Updated web site information and materials Participate in new and ongoing national

efforts regarding privacy and security Pursuing collaborative opportunities with

ASTHO

Updated Privacy and Security WRC Information and Materials

Updated the URL's and expanded the list of sites for Privacy and Security, and added many states’ HIPAA websites

Distributed solicitation letters for privacy and security materials to post on the Consortium website

Updated the list of committee members and the committee description on the Consortium website

Have a task on the contract to revise the WRC to develop a web portal to provide educational materials on health data privacy issues

Participate in National Efforts on Privacy and Security

Considered how the committee and the Consortium might be involved in the RTI contract for the privacy and security ONC RFP

Wrote and distributed letters to all state governors to

encourage strong public health and other public sector participation

outline some of the major privacy concerns for public health, especially those that differ from the private sector, and

offer the Consortium’s support Participate on the AHIMA Security and

Privacy Task Force under the RTI project to generate draft health information workflow and sharing scenarios

Pursuing Collaborative Opportunities with ASTHO

Had initial discussions on possible collaborations; items proposed include:

submitting articles for ASTHO’s newsletters

partnering on writing and producing documents, such as a white paper on cross state data exchanges due May 6

sending a joint letter of support to the state recipients of the RTI contract

developing a joint national communications effort to communicate with both the public health sector as well as to groups involved in national efforts

soliciting funds for the support of public health representation on the various contract activities

Future Activity Most activities are in the early stages

Further discussions with ASTHO and the Committee will be held to narrow the choices and prioritize activities for the upcoming year

Continue to monitor and look for avenues of involvement and/or participation in the national privacy/security efforts

Additional work to follow up on materials solicitation to enhance privacy and security content on the Consortium website

Development of ideas for security projects

Committee Chairs

Vicki Hohner, MBASenior ConsultantFox Systems, Inc.Email: vicki.hohner@foxsys.com

Dr. Richard UrbanoResearch ProfessorVanderbilt Kennedy CenterEmail: RICHARD.URBANO@Vanderbilt.edu

Committee Members Bruce Burns

Texas Health Care Information Council Kathleen Cook

National Association of County and City Health Officials (NACCHO)

Robert DavisNational Association of Health Data Organizations

Wanda Govan-Jenkins, M.S., M.B.A., R.N.CDC/NCHS

Marjorie Greenberg, M.A.CDC/NCHS

Michael C. JonesIllinois Department of Public Health

Michael KassisCalifornia Department of Developmental Services

Hetty Khan, M.S., B.S.N., R.N.CDC/NCHS

Committee Members Sally Klein, RN, MBA

Fox Systems, Inc. Jonathan Lawniczak

AcademyHealth Starla Ledbetter, M.H.S.A., R.H.I.A

California Office of Statewide Health Planning and Development

Denise LoveNational Association of Health Data Organizations

Janet MarchibrodaeHealth Initiative

Dr. Gerald MassonJohns Hopkins University

Beverly Meadows, M.S., R.N.National Institutes of HealthNational Cancer Institute

Anna OrlovaPublic Health Data Standards Consortium

Committee Members Derek Pate

Oklahoma Department of Health Barbara Rudolph, Ph.D.

The LeapFrog Group Anne Ryan, R.N.

National Institutes of HealthNational Cancer Institute

Carol Stocks, R.N., M.H.S.A.Agency for Healthcare Research and Quality (AHRQ)

Walter Suarez, M.D., M.P.H.Midwest Center for HIPAA Education

Jonathan TeagueCalifornia Office of Statewide Health Planning and Development

Jessica Townsend, M.P.H.Health Resources & Services Administration

Socrates TuchOhio Department of Health

Committee Members Dorothy Webman, D.S.W.

Workgroup for the Computerization of Behavioral Health & Human Services Records

Michelle Williamson, B.S., B.S.N., R.N.CDC/NCHS