DATEVENUE

TIME

Throughout the conference, activities for younger attendees will be available:

15:00 onwards

19:30 - 21:30

EVENT / ACTIVITY

Friday 17th August 2018Apex City Quay Hotel and Spa, 1 West Victoria Dock Road, Dundee

Our Cool Bones mini conference for children above the age of 10 will be available free of charge!

Activities will include:- Comic Book Workshop- Film Workshop- BBS Bloggers Workshop

Our Kids Club Creche for children aged10 and under will have fun activitiesgalore and a surprise special guest!

Registration for Conference. Information Desk Opens.

Welcome address and light refreshments:Ian Bothwick, Lord Provist of Dundee and other special guests for thewelcome reception evening event, and History Bones exhibition launch.

Celebrating yearsFAMILY CONFERENCE AND AGM

09:00 onwards Registration and Information Desk Open

09:30 - 09:35 Opening RemarksPatricia Osborne (CEO) and Elaine Healey (Chairman)

09:45 - 10:05

10:15 - 10:30

Research Update: Topaz and Asteroid clinical trialsDr Shane Clarke, Bristol Royal Infirmary

Assessing the balance of cost and experience of families in paediatric OIDr Meena Balasubramanian, Sheffield Children's Hospital

10:30 - 10:45 Physical Function and Soft-tissue HealthDr Alex Ireland, Manchester Metropolitan University

10:45 - 11:15 Coffee Break

11:15 - 11:45 Living with OI: Real life storiesLord Kevin Shinkwin and Penny Clapcott

11:45 - 12:15 Reaching Out and Joining InPatricia Osborne, Tracy Smith-Hart (OIF), and Ingunn Westerheim (OIFE)

14:00 - 15:15 AGM with Patricia Osborne, Elaine Healey (Chairman), and Robert Gordon (Treasurer)

15:15 - 19:00 Free time to network

12:45 - 14:00 Lunch

12:15 - 12:45 OI Update with Professor Francis Glorieux, Shriners Hospital for Children

19:00 - 21:30 Gala dinner, awards ceremony, table top prize draw, and entertainment

22:00 - late Disco

DATEVENUE

TIME EVENT / ACTIVITY

Saturday 18th August 2018Apex City Quay Hotel and Spa, 1 West Victoria Dock Road, Dundee

Celebrating yearsFAMILY CONFERENCE AND AGM

09:00 - 14:00 Registration and Information Desk Open

10:00 - 10:30 Research “What does the patient want?”Sheffield Children’s Hospital & Penny Clapcott (BBS Member)

10:30 - 10:45

10:45 - 11:00

Policy “The importance of public engagement”Christine Collins MBE

European Reference Network on bone disorders (ERN BOND)Professor Nick Bishop and Rebecca Skarsberg

11:00 - 11:30 Coffee Break

Breakout sessions "Looking forward with the Brittle Bone Society"BBS staff will be notetaking at breakout sessions to assist with strategic planning. Guest contributors Gem Turner, Abbi Brown, and Shani Dhanda will co-chair and facilitate sessions.

Breakout 1: Youth (16-30 years old) perspectives Dr Claire Hill, Sheffield Children's Hospital, Gem Turner, and Abbi Brown Breakout 2: Adult views Dr Richard Keen (RNOH), Penny Clapcott, and Shani Dhanda Breakout 3: Family life & children Professor Faisal Ahmed, Leanne Edney, and Joanna Cannon

11:30 - 12:15

12:15 - 12:20 Closing RemarksPatricia Osborne and Elaine Healey

12:30 - 14:00 Lunch

DATEVENUE

TIME EVENT / ACTIVITY

Sunday 19th August 2018Apex City Quay Hotel and Spa, 1 West Victoria Dock Road, Dundee

Celebrating yearsFAMILY CONFERENCE AND AGM