promoting science-based approaches: bridging research and practice by integrating research to...
Post on 22-Dec-2015
216 views
TRANSCRIPT
Promoting Science-based Approaches: Bridging Research
and Practice by Integrating Research to Practice Models and
Community-Centered Models (ISF)
Abraham [email protected]. Of Connecticut
April 2010
• Dr. von Eschenbach: I believe we are at what I call a strategic inflection in biology, which means we're at a point of unprecedented growth in three key areas related to cancer research: knowledge, technology, and resources. The integration of growth in these three sectors provides an opportunity for exponential progress. To achieve this progress, we must set a clear direction and focus our efforts into a cohesive strategy.
• The goal of eliminating suffering and death due to cancer provides this focus. It does not mean "curing" cancer but, rather, it means that we will eliminate many cancers and control the others, so that people can live with -- not die from -- cancer. We can do this by 2015, but we must reach for it. We owe it to cancer patients around the world -- and their families -- to meet this challenge.
May 16, 2003 BenchMarks
Healthy People 2010 Objectives
• Target: 1.0 new case per 100,000 persons.
• Baseline: 19.5 cases of AIDS per 100,000 persons aged 13 years and older in 1998. Data are estimated; adjusted for delays in reporting.
• Target setting method: Better than the best.
• Data source: HIV/AIDS Surveillance System, CDC, NCHSTP.
Persons Aged 13 Years and Older, 1998
New AIDS Cases
13-1. Both
Genders
Females* Males*
Rate per 100,000
TOTAL 19.5 8.8 30.8
Race and ethnicity
American Indian or Alaska Native 9.4 4.5 14.5
Asian or Pacific Islander 4.3 1.2 7.8
Asian DNC DNC DNC
Native Hawaiian and other Pacific Islander DNC DNC DNC
Black or African American DNC DNC DNC
White DNC DNC DNC
Hispanic or Latino 33.0 13.8 52.2
Not Hispanic or Latino DNC DNC DNC
Black or African American 82.9 48.5 122.9
White 8.5 2.2 15.2
Family income level
Poor DNC DNC DNC
Near poor DNC DNC DNC
Middle/high income DNC DNC DNC
Sexual orientation DNC DNC DNC
In 2007, there were 42,495 new cases of HIV/AIDS in adults, adolescents, (2500)
Expanding Research and Evaluation Designs…for QII
Carolyn M. Clancy, MDDirector, AHRQ
September 13, 2005
Publication
Bibliographic databases
Submission
Reviews, guidelines, textbook
Negative results
variable
0.3 year
6. 0 - 13.0 years50%
46%
18%
35%
0.6 year
0.5 year
9.3 years
It takes 17 years to turn 14 per cent of original research to the benefit of patient care
Dickersin, 1987
Koren, 1989
Balas, 1995
Poynard, 1985
Kumar, 1992
Kumar, 1992
Poyer, 1982
Antman, 1992
Negative results
Lack of numbers Expert
opinion
Inconsistentindexing
17:14
Original research
Acceptance
Implementation
Treatments Thought to Work but Shown Ineffective
• Sulphuric acid for scurvy• Leeches for almost anything• Insulin for schizophrenia• Vitamin K for myocardial infarction• HRT to prevent cardiovascular
disease• Flecainide for ventricular
tachycardia• Routine blood tests prior to surgery• ABMT for late stage Breast CA
BMJ February 28 2004; 324:474-5.
POSSIBLE SOLUTION
• VA MEDICAL SYSTEM HAS 67% RECOMMENDED CARE
SYSTEM HAS ELECTRONIC MEDICAL RECORDS, DECISION SUPPORT TOOLS, AUTOMATED ORDER ENTRY, ROUTINE MEASUREMENT AND REPORTING ON QUALITY, INCENTIVES FOR PERFORMANCE
As Yogi Berra supposedly said,
"In theory there is no difference between theory and practice, but in practice there is."
* What is the responsibility of the practitioner to deliver evidence-based interventions and what is their capacity to do so?
* What is the responsibility of funders to promote the science of evidence-based interventions and to promote the practice of effective interventions in our communities?
How can evaluation help providers, local CBOS and coalitions, health districts, and state agencies reach results-based accountability?
2. With an emphasis on risk and protective factors, review relevant infor-mation—both from fields outside prevention and from existing preventive intervention research programs
3. Design, conduct, and analyze pilot studies and confirmatory and replication trials of the preventive intervention program
4. Design, conduct, and analyze large-scale trails of the preventive intervention program
5. Facilitate large-scale implementation and ongoing evaluation of the preventive intervention program in the community
1. Identity problem or disorder(s) and review information to determine its extent
Feedback Loop
FIGURE 1.1 The preventive intervention research cycle. Preventive intervention research is represented in boxes three and four. Notre that although information from many different fields in health research, represented in the first and second boxes, is necessary to the cycle depicted here, it is the review of this information, rather than the original studies, that is considered to be part of the preventive intervention research cycle. Likewise, for the fifth box, it is the facilitation by the investigator of the shift from research project to community service program with ongoing evaluation, rather than the service program itself, that is part of the preventive intervention research cycle. Although only one feedback loop is represented here, the exchange of knowledge among researchers and between researchers and community practitioners occurs throughout the cycle.
Gates Foundation
Preventive Intervention
Vaccine/Drug
Mechanism
Syringes
Physician
Health System
Support System
Medical Schools
Government Funding
Emergency Departments, Hospitals, and Clinics
HOMES
Childcare Centers and Schools
Community Centers
Clinics and Pharmacies
Media
Care Coordination by Health Department
Nurse and Environmental Case Management
Community Education
Surveillance and Evaluation
Surveillance and Evaluation
Family Education
Parent and Neighborhood Organizing
Clinical Quality Improvement
Public Communications
Visual Description of Alianza’s Community Action Plan*
Family obtains medications/equipment
Recruitment at Asthma Community Center
Community Health Worker home visiting
& social referrals program (1, 2, 3, 4)
Community-Based, Educational and
Promotional Programs (5, 6)
School-based ALA Asthma Programs:
Open Airways, A is for Asthma (8)
Parent Organization (7)
EMPOWERED & EDUCATED
FAMILIES
Alianza Steering Committee & Workgroups
Recruitment at Local Clinic
Nurse Coordinator performs initial
evaluation & enters into registry (9,10)
Primary Doctor evaluates and
prescribes medications/ equipment
Refer to specialist
Financial Incentives & Quality
Improvement (14)
Expanded Medications/ Equipment
Coverage (15)
Child takes medication
IMPROVED SYMPTOMS CONTROL
& QUALITY OF LIFE
1:1 or Group Asthma
Education (11,12)
PACE (Physician Asthma Care
Education) (13)
Expanded Specialty Referrals
Legend:
COMMUNITY ACTIVITIES
CLINICAL ACTIVITIES
POLICY CHANGES
EDUCATIONAL ACTIVITIES
*Activities numbered 1-15 are cross-referenced with the Program Update summaries
From Research to “Best Practices” in Other Settings and Populations
Larry GreenAmerican Journal of Health Behavior, 2001
1) Process
2) Control
3) Self-Evaluation
4) Tailoring Process and New Technology
5) Synthesizing Research
Getting to Outcomes
1) Needs/Resources 2) Goals 3) Best Practice 4) Fit 5) Capacities 6) Plan 7) Process Evaluation 8) Outcome Evaluation 9) CQI 10) Sustain
“Prevention Science” Intervention
Basic research
Efficacy
Effectiveness
Services Research
Practice
Community
Organizational Systems
1) Schools
2) Health Agencies
3) Community Coalitions
Prevention Support System
(Funders)
Training
Technical Assistance
Funding
Green Characteristics
1) Process
2) Control
3) Self-Evaluation
4) Tailoring Process and new Technology
5) Synthesizing Research
io
Distilling the Information—Prevention Synthesis & Translation System
Supporting the Work—Prevention Support System
Putting It Into Practice—Prevention Delivery System
Synthesis
General Capacity Building
Innovation-Specific Capacity Building
General Capacity Use
Innovation-Specific Capacity Use
Macro Policy
Climate
Funding
Existing Research and Theory
Translation
Forms
ComprehensiveCommunity Plan
Chairpersons ConsolidateWork of Individual
Committees
ReligionEducationBusiness Parents Youth HealthMediaGrassroots/ Neighborhood
Criminal Justice
Conduct Needs Assessment
Lead Agency
Ad Hoc Committee Of Community Leaders
Forms Committees
Resulting In
Resulting In
Plan Implementation
Impact on Community Health Indicators
Resulting In
Implementation
COALITION
FORMATION
MAINTENANCE
OUTCOMES
Figure 2. Overview of the development of a community coalition.
Table 1. Evaluation of MPA by Developmental Phases, Ecological Levels, and Stages of Readiness
Ecological Levels
Developmental phases and measures
Intra-personal
Inter-personal
Organizational Community PublicPolicy
Stages of readiness
Phase 1: Coalition formation
Forecast X Initial mobilization andestablishing organizational structure
Meeting Effectiveness Inventory X X X
Project Insight Form X X X
Committee survey X X X
Needs Assessment Checklist X X
Plan Quality Index X X X
Phase 2: Plan implementation
Tracking of Actions X X X Building capacity for action and implementing
Prevention Plus III X X X X X
Policy Analysis Case Study X X
Phase 3: Impact
Key Leader survey X X X Refining and institutionalizing
Community survey X X
Trend data X X
Level of Institutionalization Scale
X X X
Empowerment Evaluation: An evaluation approach that aims to increase the probability of achieving program success by:
a)Providing program stakeholders with tools for assessing the planning, implementation, and self-evaluation of their program, and
EE PrinciplesCore Principles of Empowerment Evaluation
Principle 1: Improvement
Principle 2: Social Justice
Principle 3: Inclusion
Principle 4: Democratic participation
Principle 5: Capacity building
Principle 6: Organizational learning
Principle 7: Community ownership
Principle 8: Community knowledge
Principle 9: Evidence-based strategies
Principle 10: Accountability
Accountability Questions Relevant Literatures
1. What are the underlying needs and conditions that must be addressed? (NEEDS/RESOURCES)
1. Needs/Resource Assessment
2. What are the goals, target population, and objectives? (i.e., desired outcomes)? (GOALS)
2. Goal Setting
3. What science (evidence) based models and best practice programs can be used in reaching the goals (BEST PRACTICE)?
3. Consult Literature on Science Based and Best Practice Programs
4. What actions need to be taken so the selected program “fits” the community context? (FIT)
4. Feedback on Comprehensiveness and Fit of Program
5. What organizational capacities are needed to implement the program? (CAPACITIES)
5. Assessment of Organizational Capacities
6. What is the plan for this program (PLAN) 6. Planning
7. Is the program being implemented with quality (PROCESS)
7. Process evaluation
8. How well is the program working? (OUTCOME EVALUATION)
8. Outcome and Impact Evaluation
9. How will continuous quality improvement strategies be included? (IMPROVE)
9. Total Quality Management; Continuous Quality Improvement
10. If the program is successful, how will it be sustained? (SUSTAIN)
10. Sustainability and Institutionalization
What Is Getting To Outcomes?• By Matthew Chinman, Pamela Imm & Abraham
Wandersman
• A system based on ten empowerment evaluation and accountability questions that contain elements of successful programming
• Published by the RAND Corporation (quality review)
• Available at no cost at: http://www.rand.org/publications/TR/TR101/
• “Best Practice Process” - CSAP
The Getting To Outcomes Process
#1Needs/
Resources
#2Goals
#3Best
Practices
#4Fit
#5Capacities
#6Plan
#7Process
#8Outcome
Evaluation
#9Improve
#10Sustain
Uses of GTO• Individual Program Level (e.g., WINNERS)
– Still a guide to planning, implementation, evaluation– Use data to continually improve – Determine effectiveness in one program
• Coalition Level (e.g., CDC grant)– Each committee monitors own programs– Direct TA for program improvement– Fulfill the whole coalition’s accountability requirements
• State/Federal Level (e.g., S.C. SIG grant)– Monitor several similar programs at once across large area– Aggregate program data for state-wide reporting and within
state comparisons– Highlight specific technical assistance needs across the state
GTO®
2009
Using Getting to Outcomes to improve communities' capacity to conduct high quality prevention programming: A Center for Disease Control & Prevention Empirical Example
Chinman et al (2008) American Journal of Community Psychology
GTO Demonstration & Evaluation
• Purpose: Evaluate a 2-yr GTO intervention to improve prevention capacity and program performance
• CDC-funded participatory research grant
• Sample: 2 prevention coalitions (SC, CA) involving 10 programs & 268 coalition staff
• Design: Quasi-experimental; mixed methods
• Within each coalition, assign by program• (GTO: 2 SC+ 4 CA v. Comparison: 2 SC+2 CA)
• intervention: participate in GTO• comparison: usual practice
Getting To Outcomes Evaluation: Conclusions
GTO improved practitioner capacity & performance of tasks associated with high quality prevention (planning, evaluation, etc.) and programs that used GTO showed greater outcomes Those with greater exposure to GTO demonstrated more gains in
capacity TA hours show that practitioners mostly want & got help with
evaluation activities GTO can be difficult to absorb without ongoing TA Organizational issues a major factor
Conversion to “learning organization” not complete Resources are significant barrier to adoption, implementation, and
sustainability Incentive structure within which coalitions operate not aligned with
CQI
GTO Evaluation: Conclusions
Technical assistance to use the steps is critical to the success of GTO
Organizational issues can be a major factor Lack of resources pose significant barriers to
adoption, implementation, and sustainability
“Prevention Science” Intervention
Basic research
Efficacy
Effectiveness
Services Research
Practice
Community
Organizational Systems
1) Schools
2) Health Agencies
3) Community Coalitions
Prevention Support System
(Funders)
Training
Technical Assistance
Funding
Green Characteristics
1) Process
2) Control
3) Self-Evaluation
4) Tailoring Process and new Technology
5) Synthesizing Research
io
Distilling the Information—Prevention Synthesis & Translation System
Supporting the Work—Prevention Support System
Putting It Into Practice—Prevention Delivery System
Synthesis
General Capacity Building
Innovation-Specific Capacity Building
General Capacity Use
Innovation-Specific Capacity Use
Macro Policy
Climate
Funding
Existing Research and Theory
Translation
GTO®
2009
Teen Pregnancy PreventionThe Promoting Science Based Approaches Project
CDC Adolescent Reproductive Health Team
The Barriers to Use of Science-Based Approaches (SBA)
• Funding for training and materials• Implementation funding• Fear of controversy• Lack of motivation (why use SBA?)• Suitability for own community• Ease of implementation• Loyalty to current strategies
Philliber, Nolte & Schauer, in prep
The Challenge
• Teen pregnancy field has growing number of effective prevention programs
• However, programs are not being implemented as widely nor as effectively as needed to combat rising teen pregnancy
io
Distilling the Information—Prevention Synthesis & Translation System
Supporting the Work—Prevention Support System
Putting It Into Practice—Prevention Delivery System
Synthesis
General Capacity Building
Innovation-Specific Capacity Building
General Capacity Use
Innovation-Specific Capacity Use
Macro Policy
Climate
Funding
Existing Research and Theory
Translation
PSBA Activities: National Grantees
• Develop trainings & other tools to build capacity to use SBA
• Use tools to build capacity of state & regional grantee organizations
• Disseminate information about SBA to a broad audience
GTO
PSBA Activities: State Coalitions and RTCs
• More intensive– Provide targeted technical assistance to small
number of local organizations (5-10) to increase their capacity to use SBA locally
• Less intensive– Provide information and resources re: SBA to
broad audiences within state/region through newsletters, websites, etc.
GTO
io
Distilling the Information—Prevention Synthesis & Translation System
Supporting the Work—Prevention Support System
Putting It Into Practice—Prevention Delivery System
Synthesis
General Capacity Building
Innovation-Specific Capacity Building
General Capacity Use
Innovation-Specific Capacity Use
Macro Policy
Climate
Funding
Existing Research and Theory
Translation
GTO System Model
To AchieveDesired
Outcomes
Training +
QI/QA +
Tools +
TA +
=Current Level of Capacity
+
GTO Steps: (1) Needs & Resources; (2) Goals & Desired Outcomes; (3) Science-based practices; (4) Fit; (5) Capacity ; (6) Plan; (7) Implementation & Process Evaluation; (8) Outcome evaluation; (9) Continuous Quality Improvement; and (10) Sustainability
Actual Outcome
s Achieved
Levels & AIDS TreatmentCountry State Health District FQHC Provider
Accountability Question
1. NEEDS/ RESOURCES
2. GOALS
3. EVIDENCE-BASED PRACTICES
4. FIT
5. CAPACITY
6. PLAN
7. IMPLEMENTATION
8. OUTCOME EVALUATION
9. CQI
10. SUSTAINABILITY
GTO Steps
1. Needs and Resources2. Goals and Objectives3. Best Practices4. Fit5. Capacities6. Plan7. Process Evaluation8. Outcome Evaluation9. CQI10. Sustainability
GTO Steps
GTO Content
1. Needs and Resources2. Goals and Objectives3. Best Practices4. Fit5. Capacities6. Plan7. Process Evaluation8. Outcome Evaluation9. CQI10. Sustainability
Substance Abuse Specific
Content
GTO Steps
GTO Content Domains
1. Needs and Resources
2. Goals and Objectives
3. Best Practices
4. Fit
5. Capacities
6. Plan
7. Process Evaluation
8. Outcome Evaluation
9. CQI
10. Sustainability
Substance Abuse Specific
Content
GTO Steps
Systems of Care
Performance Contracting
Emergency Preparedness
Specific ContentUnderage
Drinking Specific ContentYouth
Development Specific ContentPatient
Centered Care Specific ContentTeen
Pregnancy Specific Content
GTO Content Library
GTO Levels
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
INDIVIDUAL
Substance
Abuse Specific Content
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
ORGANIZATIONAL
Substance
Abuse Specific Content
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
COUNTY
Substance
Abuse Specific Content
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
STATE
Substance
Abuse Specific Content
1. Needs and Resources
2. Goals and Objectives
3. Best Practices
4. Fit
5. Capacities
6. Plan
7. Process Evaluation
8. Outcome Evaluation
9. CQI
10. Sustainability
Substance Abuse Specific
Content
GTO Steps
NATIONAL
Systems of Care
Performance Contracting
Emergency Preparedness
Specific ContentUnderage
Drinking Specific ContentYouth
Development Specific ContentPatient
Centered Care Specific ContentTeen
Pregnancy Specific Content
GTO Content Library
GTO Support System
Training
Technical AssistanceQI/QA
Tools
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
INDIVIDUAL
Substance
Abuse Specific Conten
t
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
ORGANIZATIONAL
Substance
Abuse Specific Conten
t
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
COUNTY
Substance
Abuse Specific Conten
t
1 Fit
1 Best Practices
1 Needs and Resources
1 Goals and Objectives
1 Capacities
1 Plan
1 Process Evaluation
1 Outcome Evaluation
1 CQI
1 Sustainability
GTO Steps
STATE
Substance
Abuse Specific Conten
t
1. Needs and Resources
2. Goals and Objectives
3. Best Practices
4. Fit
5. Capacities
6. Plan
7. Process Evaluation
8. Outcome Evaluation
9. CQI
10. Sustainability
Substance Abuse Specific
Content
GTO StepsNATIONAL
Systems of Care
Performance Contracting
Emergency Preparednes
s Specific Content
Underage Drinking Specific ContentYouth
Development Specific ContentPatient
Centered Care Specific ContentTeen
Pregnancy Specific Content
GTO Content Library
* What is the responsibility of the practitioner to deliver evidence-based interventions and what is their capacity to do so?
* What is the responsibility of funders to promote the science of evidence-based interventions and to promote the practice of effective interventions in our communities?
How can evaluation help providers, local CBOs and coalitions, health districts, and state agencies reach results-based accountability?
References
• Chinman, M., Hunter, S. B., Ebener, P., Paddock, S. M., Stillman, L., Imm, P., Wandersman, A. (2008). The Getting To Outcomes Demonstration and Evaluation: An Illustration of the Prevention Support System. American Journal of Community Psychology, 206-224.
* Wandersman, A. (2003) Community science: Bridging the gap between science and practice with community-centered models. American Journal of Community Psychology, 31, 3/4, 227-242.
• Wandersman, A., Duffy, J., Flaspohler, P., Noonan, R., Lubell, K., Stillman, L., et al. (2008). Bridging the gap between prevention research and practice: The Interactive Systems Framework for Dissemination and Implementation. American Journal of Community Psychology, 41, 171-181.
• Lesesne et al (2008) Promoting Science Based Approaches to teen pregnancy prevention. American Journal of Community Psychology, 379-392.
• Wandersman, A. (2009) Four keys to success (theory, implementation, evaluation, resource/system support): High hopes and challenges in participation. American Journal of Community Psychology. 43 (1/2), 3-21.