pv presentation template - 1000 lives plus · patient voices: a short history 2003 patient voices...

Patient Voices Reflective Digital Storytelling in

Healthcare Quality Improvement

Pip Hardy Pilgrim Projects/Patient Voices/MMU

Patient Voices

1000 Lives WebEx

11th October, 2012

© Pilgrim Projects Ltd 2012

Becoming (a) patient

‘To the typical physician, my illness is a routine incident in his rounds, while for me it’s the crisis of my life.’

Anatole Broyard 1992


‘Patients care more about being treated with dignity and respect than they do about mortality rates.’

Ben Page 2004

What do patients value?


An interest in humanity

‘One of the essential qualities of the clinician is interest in humanity, for the secret of the care of the patient is in caring for the patient.’

Peabody 1927

The stories: Patient Voices


The rationale

Patient Voices are short (typically less than three minutes) digital stories combining video, audio, still images and music that reveal patients’ stories in a unique way.

They:

• can highlight gaps in the system

• can reveal near-misses and form 'free learning opportunities'

• promote healing and reconciliation

• can allow patients' and carers' (and professionals if appropriate) voices to be heard

• can carry forward stories that might otherwise be lost

• are created in a spirit of collaboration and partnership

• touch hearts, reinforcing the notion of patients at the heart of care.

UKHEP e-learning


Patient Voices: a short history

2003 Patient Voices Programme founded by Pip Hardy and Tony Sumner

2004 Dartmouth Hitchcock Clinical Microsystems Film Festival ‘Minimising unnecessary handoffs’ and ’People’s Choice’ (Paul Batalden award)

2005 First use of Patient Voices stories by UK National Audit Office VFM

2006 CDS workshops in California

2007 MSc research into digital storytelling in healthcare complete

2008 Creating an Inter-professional workforce Innovation award

2009 .5 million hits on Patient Voices website

2010 BMJ award for Excellence in Healthcare EducationShortlisted for BMJ Health Communicator of the Year andMJA Healthcare Champion of the Year

2010 Three papers published

PHD research into impact of digital storytelling on healthcare and reflective potential of technology

2011 Health Foundation award to improve complaints handling using digital storytelling


People before numbers

‘People must always come before numbers. It is the individual experiences that lie behind statistics and benchmarks and action plans that really matter, and that is what must never be forgotten when policies are being made and implemented.’

Robert Francis 2010

Transforming healthcare

‘Storytelling is the mode of description best suited to transformation in new situations of action.’

Schön, 1988


Why tell stories?

‘Stories promote empathy, which in turn prompts reflection and serves as the motivation for learning and acquiring new knowledge.’

Charon, 2002


The evidence of experience

‘Statistics tell us the system’s experience of the individual, whereas stories tell us the individual’s experience of the system…’

Tony Sumner 2009

How to get the patient experience

Using technology


Patient Voices digital stories

Patient Voices digital stories are:

carefully crafted (by the storyteller)

creative

personal

authentic

reflective

created in a facilitative group process

stories!


Patient Voices digital stories

Patient Voices digital stories are not:

reports

presentations

interviews

talking head videos

edited recordings

mechanistic or formulaic

created in isolation.


The heart of the story

Carefully facilitated workshops allow people to distil their stories and find their essence.


‘Stories work on many levels.’

Brian Clark, Storyteller

Dignity and the essence of medicine

- Attitude

- Behaviour

- Compassion

- Dialogue

The A, B, C, D of care

Chochinvov, 2007

The heart of care



A model for reflection:EAR

Good stories are

Effective

Affective

Reflective

Tony Sumner, 2008


Reflection in action

‘But now, with the digital storytelling, I understand for the first time what it really means, and how powerful reflection can be for me, and as a way of sharing my experiences with others.’

Matthew Critchfield, 2008


The Patient Voices Mandala


The role of stories

MarkersGuides

WarningComfort


Where are PV stories being used?

Patient Voices Reflective Digital Stories are being used to deliver a patient-centred approach in the following organisations:

• Royal College of Nursing: continence care in care homes

• Royal College of Nursing: Principles of Nursing Practice

• Guys and St Thomas’s: Clinical leadership

• University of Nottingham: Nurse preceptor training and pre-registration nursing

• University of Hertfordshire: social work training

• Saskatoon Health Authority: First Nations Live Well! Programme

• HK Northern Territories Hospital Cluster: better communication

• La Trobe University: Threshold concepts in mental health

• Manchester MH Trust: induction, staff training and recruitment


Reflection and professional development


Involving patients


Raising awareness and reducing stigma


Health promotion


Creating a culture of safety


Improving the patient experience


Sharing understanding across cultures


Promoting dignity and respect


Research, audit and evaluation


Illuminating threshold concepts


Transformation: changing the world


Transformation: the culture of the heart


Thank you

[email protected]

www.patientvoices.org.uk

Follow us on Twitter @patientvoicesuk

Distribution of the Patient Voices digital stories is funded by

www.pilgrimprojects.co.uk


mailto:[email protected]

http://www.patientvoices.org.uk/

http://www.pilgrimprojects.co.uk/


Keepers of the stories

‘…the ability to tell, hear and share stories of experience and aspiration is a prerequisite for the development of a learning organisation of reflective individuals.’

Sumner, 2009


Your stories?

What stories do you need to tell?

What stories do you need to hear?

What stories do you need to share?

pv presentation template - 1000 lives plus · patient voices: a short history 2003 patient voices...

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