raport forum dizabilitati eu 2010

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European Disability Forum | Annual Report 2010 -

Annual Report 2010

EUROPEAN

DISABILITYFORUM


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TABLE OF CONTENTSp 4 Who are we?p 6 Membersp 8 Structurep 10 Executive and Board Membersp 12 Secretariatp 14 Finances

p 15 EDFs workp 18 Nothing about us without us

p 20 United Nations Convention

p 22 Europe 2020

p 24 Disability strategy

p 26 Transport

p 28 Equal access to goods and services

p 30 Women

p 32 Youth

p 33 Easy to read

This publication is also available in alternative formatsupon request.

This publication is supported by the EuropeanUnion Programme for Employment and SocialSolidarity PROGRESS (2007-2013)

Editorial and publication coordination:Aurlien DaydGraphic design:Aurore de Boncourt


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6- European Disability Forum | Annual Report 2010

EDF MEMBERS: A WIDE NETWORK

54 FULL mEmBERS29 national councils Austria Austrian National Council of Disabled Persons (AR) Belgiu Belgian Disability Forum (BDF) BulgariaNational Council of People with Disabilities in Bulgaria (NCDPB) Cyprus Cyprus Confederation of Organizations of the Disabled (CCOD) Cech Republic Czech National Disability Council (CNDC) Denark Disabled Peoples Organisations Denmark (DH) Gerany German Disability Council (DBR) Estonia The Estonian Chamber of Disabled People (EPIK) Finland Finnish Disability Forum (FDF) France French Council of Disabled People for European Affairs (CFHE) Greece National Confederation of Disabled People (ESAEA) Hungary National Council of Federations of People with Disabilities (FESZT) Iceland The Organisation of Disabled in Iceland (BI) Ireland People with disabilities in Ireland Ltd (PWDI) Italy Italian Disability Forum (FID) Latia The Latvian Umbrella Body for Disability Organisations (SUSTENTO)

Lithuania Lithuanian National Forum of the Disabled (LNF) Luebourg Luxembourg National Disability Council (Info Handicap) malta Malta Federation of Organisations of Persons with Disability (MFOPD) Netherlands National Disability Council of the Netherlands (VGPN) Norway National Disability Council of Norway (FFO) Poland Polish Disability Forum (PDF) Portugal National Confederation of Organisations of Disabled People (CNOD) Roania National Disability Council (CNDR) Sloakia Slovak Disability Council (NROZP) Sloenia Nacionalni svet invalidskih organizacij Slovenije (NSIOS) SpainComit Espaol de Representantes de Personas con Discapacidad (CERMI)

Sweden The Swedish Disability Federation (HSO) United Kingdo and Northern Ireland UK Coalition for Disability Rights in Europe (UKCDRE)

25 European NGOS Action Europenne des Handicaps (AEH) Autism-Europe Brain Injured & Families - European Confederation (BIF-EC) Cerebral Palsy European Communities Association (CP-ECA) Disabled Peoples International Europe (DPI-Europe) DEBRA-International European Alliance of Muscular Dystrophy Association (EAMDA)

European Association of Cochlear Implant Users (EURO-CIU) European Blind Union (EBU/Union europenne des Aveugles (UEA) European Cooperation in Anthroposophical Curative Education and Social Therapy (ECCE) European Deafblind Network (EDbN) European Deafblind Union (EDBU) European Down Syndrome Association (EDSA) European Dyslexia Association (EDA) European Federation of Hard of Hearing (EFHOH)


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European Disability Forum | Annual Report 2010 - 7

European Federation of Parents of Hearing Impaired Children (FEPEDA) European Kidney Patients Association (CEAPIR) European League of Stuttering Associations (ELSA) European Network of (ex-) Users and Survivors of Psychiatry (ENUSP) European Network on Independent Living (ENIL) European Union of the Deaf (EUD) Inclusion Europe International Federation of Persons with Physical Disability (FIMITIC) International Federation for Spina Bida and Hydrocephalus (IF) Retina Europe

15 ORDINARY mEmBER NGOS Association Internationale Aphasie (AIA) Association de Recherche et de Formation sur lInsertion en Europe (ARFIE) Confederation of European Firms Initiatives and Cooperatives for Psychically Disabled People (CEFE Design for All Europe (EIDD)

Eucrea International (EUCREA) European Federation of Crohns and Ulcerative Colitis Associations (EFCCA) European Federation of Associations of Families of People with Mental Illness (EUFAMI) European Haemophilia Consortium (EHC) European Multiple Sclerosis Platform (EMSP) European Paralympic Committee (EPC) European Parkinson Disease Association (EPDA) European Union of Supported Employment (EUSE) Mental Health Europe-Sant Mentale Europe (MHE-SME) Rehabilitation International Europe (RI-Europe) Workability Europe (WE)

3 OBSERvER mEmBERS Albanian National Council of Disabled People (ANCDP) National Council of Disability Organisations of FYROM (NSIOM) National Organisation of Persons with Disabilities of Serbia (NOOIS)

38 ASSOCIATE mEmBERS Albanian Disability Rights Foundation (ADRF) Albanian Disabled People Association (ADPA) Alliance of Associations of thOrganisations of Macedonia (AION) Alliance of Organisations of Disabled People in Slovakia (AOZPO) Associazione FAudiolesi (AFA) Associazione Nazionale Mutilati ed Invalidi Civili (ANMIC) Associazione per il Tempo Libero dei Disabili ONLUS) CBM EU Liaison Ofce Confederation of Family Organisations in the European Union (COFACE) Croatian Union of PhDisabled Person Associations (CUPDPA) Disabled Persons Transport Advisory Committee (DPTAC) Ente Nazionale per la prot

lassistenza dei Sordi (ENS) Epilepsie Euroservices Equality and Human Rights Commission European Academy of Yuste Fou European Federation of Hereditary Ataxias (EURO-ATAXIA) European Ostomy Association (EOA) Euro Psy Rehabilitation ESpinal Cord Injury Federation (ESCIF) Fundacin ONCE Gelijke Rechten voor iedere Persoon met een handicap (GRIP) ThDog for the Blind Association (GDBA) Hilfsgemeinschaft der Blinden und Sehschwachen sterreichs (HBSO) Hungarian Asswith Persons with a Mental Handicap (EFOESZ) Hungarian Disability Forum (HDF) Inclusion Scotland International AssociaHandicapped Divers (IAHD) International Federation of Hard of Hearing Young People (IFHOHYP) Landmine Survivors InBosnia and Herzegovina (LSNBIH) Leonard Cheshire Disability Le Ricochet National Commission Persons with Disability (Nordic Federation for associations of Disabled/ Nordiska Handikapp Frbundet (NHF) Plain-Pied asbl Royal National InstitutePeople (RNIB) Royal National Institute for the Deaf and hard of hearing people (RNID) Swedish Thalidomide Society (FfdN) Associations of Persons with Disabilities in Croatia (SOIH) Union of Disabled People in Bulgaria (UDPB)


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AN INCLUSIVEORGANISATION

STRUCTURE


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OBSERVER MEMBERS ASSOCIATE MEMBERS

EDF SECRETARIAT ADVISORY BODIES

EUROPEAN DISABILITY MOVEMENT

FULL & ORDINARY MEMBERS

ANNUAL GENERAL ASSEMBLY

elects every 4 years

BOARD OF DIRECTORS

elects every 4 years

PRESIDENTEXECUTIVE COMMITTEE


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Carlotta Besozzizi| Director

Janina Arsenjeva| Policy and EuropeanParliamentary Ofcer

Muriel DaVi| Finance Of

Coralia Catana| Internal Communicationand Campaign Ofcer

SECRETARIAT

Maria NymanPolicy Ofcer

Ewa Pawlowska| InternalCommunicationOfcer

Gabor Petri| Social PolicyAssistant

Nadge Riche| Policy Ofcer

Ann Vervaec| Events Organ

35 square de Meeus1000 Brussels - BelgiumTel +32 2 282 46 00Fa+32 2 282 46 [email protected]

New address !

EDFappointedJavierGuemesasActingDirectorfor2011!


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Aurlien Dayd| Communicationand media ofcer

Simona Giarratano| Policy Ofcer

Delphine Le Mairee| Policy Assistant

Deirdre Lennon| CommunicationAssistant

Virginie Niyo| Assistantto the Directo

Simona GiarratanoDelphine Le MaireDeirdre LennonVirginie NiyonzimaEwa Pawlowska

WelcomeAsk AndersonCoralia CatanaGabor Petri

Good bye


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FINANCES

INCOME

Running costs European Comission Funding 950 000

Members Contribution 300 000

Funding Related to Special Projects 400 000

TOTAL 1 650 000

OUTCOME

Running costs 1 250 000

Speaking with one voice: Deciding Together 300 000

Working in Brussels at the Secretariat 750 000

Policy work expertise all over Europe 110 000

Disability awareness everywhere 50 000

Special projects 400 000

TOTAL 1 650 000


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2010EDFs WORK less talk, more action


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A WORD FROM THE PRESIDENT

In 2010, the European disability movement made great achieeents:First, the UN Convention has nally been concluded by the EU under the Belgian Presidency:this is a landark ictoryfor the whole disability movement. Such an achievement isa collectie successand will clearly have a positie ipacton our lives as Europeancitizens.Then, we presented the Disability Pactto all key decision makers, and made sure theEuropean Commission answered with a strong disability strategy2010 - 2020. Followingthe framework of the Disability Pact is the best way for the EU Institutions to implementthe UN Convention in Europe. However, the successand effectiveness of these will greatlydepend on how the aftermath of the late economic crises is dealt with.

For years we have been ghtingfor a better accessibility in transport. After the adoptionof the regulation on air passengers back in 2006, we are proud to announce the adoptionof the new bus and boat passengers regulation. This nal step will signicantly iproethe liesof most of persons with disabilities travelling through the EU.We still have to make sure disability is also a priority in the Europe 2020 strategy. And thatthe EU institutions will include usin all the relevant decision-making processes, especiallywhen it comes to the implementation of the UN Convention.

Read on and nd out more about how the disability movement challenges the status quoand ghts for a society that includes us, a society that includes eeryone.

Yannis vardakastanis


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NOTHING ABOUT US WITHOUT US p 18 UNITED NATIONS CONVENTION p 20

EUROPE 2020 p 22DISABILITY STRATEGY p 24TRANSPORT p 26

EQUAL EQUAL ACCESS TO GOODS AND SERVICES p 28WOMEN p 30YOUTH p 32


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NOTHING ABOUT USWITHOUT USOur meetings in 2010 helped to keep disability rights at the topof the European agenda.

IN 2010, WE MET FACE TO FACE WITH KEY DECISION MAKERS

TO MAKE SURE DISABILITY IS ONE OF THEIR TOP PRIORITIES.

WE WANTdisability to be included in all policies.

WE STILL WANT THE EU TO SET UP The State of the Union on Disability The European Parliament of persons with disabilities

2010 EDFS WORK


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WE WORKED WITH KEY INSTITUTIONS

European Commission - European Parliament - European Economic and Social Committee - Council ofthe EU - European Council - Council of Europe - United Nations - International Labour Organisation Fundamental Rights Agency

WE MET WITH

HERmAN vAN ROmPUYPresident of the European Council JERzY BUzEKPresident of the European Parliament vIvIANE REDINGVice-President of the European Commission; Commissioner for Justice,Fundamental Rights and Citizenship LSzL ANDORCommissioner for Employment, Social Affairs and Inclusion ANDRIS PIEBALGSCommissioner for Development

NIKIFOROS DIAmANDOUROSEuropean Ombudsman EmIL BOCPrime Minister of Romania HER mAJESTY QUEEN SOFA OF SPAIN TRINIDAD JImNEzMinister of Foreign Affairs and Cooperation mIHAIL SEITANRomanian Minister of Social Protection


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UNITED NATIONSCONVENTIONon the rights of persons with disabilities

The rst international treaty specically aimed at improving the lives

of 650 million persons with disabilities worldwide.

THIS IS THE FIRST TIME THAT THE EU HAS JOINED

AN INTERNATIONAL HUMAN RIGHTS CONVENTION.

Since the adoption of the Convention by the United Nations in 2006,

our main goal has been to ensure that the EU fulls its obligations.This accession happened at the end of 2010, making the protectionof the human rights of persons with disabilities part of EU law.

* A landmark achievement

2010 EDFS WORK


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WHAT WE ACHIEVED IN 2010

EDF MADE SURETHAT THE EU KEPT DISABILITY HIGH ON ITS AGENDA: at the public hearing on the accession of the EU to the Conventionwith the European Parliaent at the Subcoittee on Huan Rights at the Informal meeting of EU Ministers on disability in Zaragoza, Spainwith the mebers States at the Disability Action Plan Co-ordination Forum (CAHPAH)with the Council of Europe

EDF ORGANISED the symposium on reasonable accommodation at the workplacewith European Foundation Centre the conference: the UN Convention A European perspectivewith the Uniersity of maastricht the work forum on the mechanisms that need to be established to makethe rights protected by the Convention a reality for allwith the Belgian Presidency and the European Coission

EDF IS BUILDING A WORLD WIDE NETWORKTHE INTERNATIONAL DISABILITY ALLIANCE (IDA) a network of global and regional organisations of persons with disabilities to promote the effective implementation of the UN Convention

www.internationaldisabilityalliance.org

WHAT WE WANT

FROM THE EU

a strongfocal pointinthe EuropeanCommission

the existingHigh Level Groupto evolve intoa Disability

Coitteeincluding personswith disabilities

an independentEuropeanonitoringechanisto oversee theimplementation ofthe Convention

the conclusionof the OptionalProtocol


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EUROPE 2020Disability is a cross cutting issue

In 2010, the European institutions laid out the steps needed towards smartsustainable and inclusive, economic growth for the next 10 yearscalled theEurope 2020 strategy. EDF has been working hard to ensure that disabilityis mainstreamed amongst the policies proposed by this new strategy.

WE BELIEVEthat the strategys objectives of

reducing poertyby at least 20 million reaching an eployent ratetarget of 75% reducing the share of early school leaersto less than 10%

can only be reached if persons with disabilities who representapproximately 16% of the population in Europe, are considered accordingly

In other words, Member States must recognise the economic potential ofworkers with disabilities.

In 2010 Member States agreed upon common employment targetsto achieve the overall goal of 75% yet failing to integrate a disabilityperspective.

WE PRODUCEDa road map containing advice and offering to supportthe Europe 2020 strategy: THE DISABILITY PACT.

2010 EDFS WORK


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EDUCATIONTHE RIGHT TO LEARN

18%of allEuropeans go toUniversity

9%of Europeanswith disabilities go toUniversity

We have two tiesless chance of

studying

We want education tobe inclusie to ensureequal opportunities.

EMPLOYMENTTHE RIGHT TO WORK

69%of allEuropeans have a job

29 %ofEuropeans withdisabilities have a job

We are ore thantwice as less likelyto nd a job.

POVERTYFIGHTING EXCLUSION

62%of Europeanswith disabilities areamong the poorestpersons in Europe:our income issignicantly lower.

We want adequatesocial protectionto be proided

to persons withdisabilitieswho are,on average, at muchhigher risk of beingsocially excluded andliving in poverty.

TECHNOLOGYACCESS TO INFORMAT

95%of publicwebsites are notaccessible.

The Digital Agendafor Europe sets outthe framework for thedevelopment of ourinformation society for

the next decade.We have put our effortinto incorporating theaccessibility requiremeof persons with disabilifor a future Europeanlegislation regarding thaccessibility of websi

Did you know that...?

EDF AND RESEARCH

Research and innovation benets all groups in society, including personswith disabilities. The disability movement and specialised academics areworking together towards an agenda for disability research in Europe.www.eurade.eu

The European Commission has promised to implement seven agshipsinitiatives in the framework of the Europe 2020 strategy.

EDF WANTSdisability to be included in all relevant agships; education,employment, poverty, acces to information and research.


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DISABILITY STRATEGYfor the next 10 years

We have proposed the necessary initiatives to have the maximum impactfor 80 million persons with disabilities in Europe:

THE DISABILITY PACT:A COMPREHENSIVE FRAMEWORK

FOR AN EFFECTIVE EUROPEAN DISABILITY POLICY

FOR THE FORTHCOMING DECADE.

WE BELIEVE that the mainstreaming of disability in general policy

frameworks is the most cost-effective way to create an inclusive society.

2010 EDFS WORK


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PERSONS WITH DISABILITIES WELCOMES THE LIST OF ACTIONS

ACCESSIBILITY, PARTICIPATION,

EQUALITY, EmPLOYmENT,

EDUCATION AND TRAINING,SOCIAL PROTECTION,

HEALTH, DEINSTITUTIONALISATION

AND ExTERNAL ACTION.

THE EU NEEDS TO IMPROVE

the revision of European legislation; ensuring it complies with the UNConvention the social inclusionof persons with disabilities at European and Nationallevel cooperationbetween the EU institutions: the European Parliament andthe Council of the EU should react to the strategy and support a decisionallocating responsibility to all EU institutions and Member States the use of its funds to promote community living.

THE RESULTSThe European Commission presentedthe European Disability Strategy2010-2020.


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TRANSPORTshould be accessible to all

The Treaty of the European Union ensures freedom of movement for allcitizens. Yet, plenty of barriers still prevent persons with disabilities fromusing transport networks.

WE ARE WORKING TO IMPROVE OUR PLANE, BUS, TRAIN

BOAT, TAXI AND CAR JOURNEYS.

2010 EDFS WORK


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WHAT WE ACHIEVED IN 2010

RAILEDF worked together with the International Union of Railways and theEuropean Commission on the implementation of the regulation on railpassenger rights in order to ensure equal opportunities for rail passengerswith disabilities.

AIR PASSENGERSDiscrimination towards passengers with disabilities still occurs despite

strong legislation. EDF addressed the main difculties through itscontribution to the consultation of the European Commission on theimplementation of the regulation on the rights of air passengers. Wecontributed to all meetings with key stakeholders at European level.Most importantly, we provided ongoing support to members who werevictims of discrimination.

BOAT AND BUS PASSENGERSWe actively lobbied the European Commission to make sure the new busand boat passengers regulations fully includes a disability perspective.

A positive maritime passenger law has been adopted.A proposal for a regulation on the rights on bus and coach passenger hasbeen proposed.

TAXIEDF teamed up with the International road Union to initiate a campaign totrain taxi drivers awareness of disability to accomodate customers withspecial needs.

CAREDF worked on increasing the use of the disability parking card across theEU.


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EQUAL ACCESSTO GOODS AND SERVICESin the European Union

The Internal Market must be accessible to disabled people. By taking into

consideration the needs of users with disabilities, legislation supported bystandardisationencourages equal access and avoids exclusion.

Standards impact on the daily lives of persons with disabilities, in access tourban environments, information and communication technologies and inimproving the design of consumer products.

A STRONG EUROPEAN ACCESSIBILITY ACTPLANNED

FOR 2012 WILL SET STANDARDS. IT IS ONE OF THE KEY

SOLUTIONS TO EQUAL ACCESS.

WE ALSO FOCUSED on access to information technologies.

2010 EDFS WORK


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KEY PARTNERS

ANECthe European Consumer Voice in Standardisation

AGEAGE Platform Europe is a European network representingpeople aged 50+ within the EU

ACCESS CITY AWARD

Based on EDF members idea, the European Commissionrewarded those cities which made the most efforts onaccessibility. The Spanish city of Avila won the EuropeanAward for Accessible Cities 2010.

FREEDOM OF MOVEMENT

Are you free enough?The disability movement decided to focus onfreedo of oeent in 2011.We urge the EU to adopt:

a strong European Accessibility Act the European Mobility Card


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WOMENWe work to preent iolence against woen and girls with disabilities.

With the Council of Europe Convention on preventing and combatingviolence against women and domestic violence: EDF worked together withthe European Womens Lobby to submit a series of amendments.The priority was to include forced abortion and forced sterilization as actsof violence.

For a stronger EU Strategy: 21 September 2010: the EuropeanCommission releases the Strategy towards equality between womenand men 2010-2015.

KEY PARTNERSHIPSEDF is member of EWL.

2010 EDFS WORK


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FORCED STERILISATION

When I realised that my uteruswas removed at the age of 15I felt like less of a woman

Many testimonies of women with disabilities,primarily women with intellectual impairmentsor psychosocial disabilities show a hidden reality

for many girls and young women across Europe.They are still being deprived of their right tofound a family and to their bodily integrity.

Did you know that...?

16%of women have a disability in Europe.DISCRIMINATION

Women withdisabilitiesface multipleforms ofdiscrimination;

they are at the

intersection of genderand disability, whichcauses even moredisadvantages anddiscrimination.


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YOUTHActivists 2.0

IN 2010, EDF FOCUSED ON IMPROVING THE PARTICIPATION OF

YOUNG PEOPLE WITH DISABILITIES WITHIN THE MOVEMENT.

WE WANT TO IMPROVE THE PARTICIPATION of the newgeneration in the European disability movement to continue the ghtagainst discrimination on the basis of disability.

EDF YOUTH COMMITTEE LEAD A EUROPEAN SURVEY, producedexpert analysis and issued its recommendations on how to engage youngpersons with disabilities and build their capacities in order to better involvethem in the activities of EDF and its member organisations.

WE ENCOURAGE YOUNG PEOPLEto get involved in the Europeandisability movement and become the next generation to take on the ghtagainst discrimination.

KEY-DATEOctober 2010:EDF Board adopts the EDF Youth Committee Recommendations in order

to increase the participation of young persons with disabilities in DisabledPeople Organisations

2010 EDFS WORK


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easy to readEasy-to-read is one of the accessible information formats along with large print,Braille and audio recordings. It is mostly used by people with intellectual disabilities,as well as other groups like older people and speakers of other languages.Sentences are short and simple, using words which are easy to understand.The design is clear and avoids complicated page settings.


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p 14FINANCES

In 2010, EDF spent as much money as it received.The money came from the European Commission and the members.EDF also received some money for special projects.

The money was spent on meetings and many other activities organised by EDF.

p 162010In 2010 EDF focused on some topics.

Here is what E h important people and told them thisEDF also worked with other international organisations .


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easy to read

p 20/21THE UNITED NATIONS CONvENTION

The United Nations is a big, international organisation.It suggests laws for countries across the world.United Nations wrote a law for persons with disabilitiesIt is called the UN Convention on the Rights of Persons with Disabilities.

In 2010, the countries of the European Union agreed to use this law.This is an important step.EDF wants to make sure that they keep this promise.

In 2010 EDF organised many meetings

To deliver and remind people of this new law,And help people understand the new law.

The International Disability Alliance, in short IDA,Is like the EDF but for all the countries across the globeThe IDA watches if each country in the world follows the Convention.EDF helped to create this organisation.


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p 22/23EUROPE 2020

For the European strategy in the next 10 years.The EU has a new guide for laws called Europe 2020.it sets out new goals for the year 2020.These new ideas must include persons with disabilities.

This is why EDF wrote a textSuggesting how to add a disability perspectiveto this new guide.It is called The Disability Pact.

Here are some facts:Persons with disabilities do not have the same chances as other people.Often, they cant go to universityor they dont have a job.Because of this, often they do not have a lot of money.

Access to information:Nowadays a lot of the information is on the internet.It is hard to get this informationbecause the internet is difcult to understand and use.

The EDF wants laws to make it easier.

p 24/25THE DISABILITY STRATEGYAs mentioned before the EDF gave law makerssome ideas on how to be more disability friendly in the future.The EDF wants all other laws to be more disability friendly too.

The main law-maker in the EU is the European Commission.They made a new strategy just for disability.They called it The European Disability Strategy 2010-2020.There are a lot of good ideas in this plan.But the EDF wants all EU and national organisations to follow it.


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easy to read

p 26/27TRANSPORT

People can travel across country boarders.Disabled people should be able to do this too.For this, transport in all countries must be easy to use.

There are different kinds of transport:Planes, buses, boats, taxis and private cars.

In 2010 the EDF helped to write the rules that are made from lawsso that travelling becomes easier.We are particularly pleased with the new boat and bus rules.

p 28/29EQUAL ACCESS TO GOODS AND SERvICESThe EU has lots of shops, this is the internal market.

Being able to buy things and having access to this big marketWill help us do a lot of things.And it will help include us.

In 2010, The European Commission awardedThe accessible cities in Europe.That was an idea from EDF.

Because being able to move is important,access to transport is important andin 2011 the EDF deals with freedom of movement.


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EUROPEAN DISABILITY FORUM35 square de Meeus1000 Brussels - Belgium

Tel +32 2 282 46 00Fa+32 2 282 46 [email protected]

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