rare disease day 2017 - eurordis.org
TRANSCRIPT
eurordis.orgeurordis.org
Lara Chappell, Communications Director
Rare Disease Day 2017
106/06/2016
eurordis.org
Rare Disease Day and the CNA
06/06/2016 2
• Recap of 2016
What worked? What can be improved?
• Theme for 2017
• Process of decision for 2017 and timeline
• Feedback
Webinar subjects?
Fundraising, corporate partners
Other questions?
eurordis.org
Rare Disease Day – global and growing!
06/06/2016 3
Events in over 80 countries – 10 new countries
Video translated in 34 languages
Over 300.000 video views
on social media
Website visits increased by
15%
Over 7 million people reached on social media
Springboard to advocate to
policy makers
Thank you for your participation!
RARE
DISEASE
DAY IN 85
COUNTRIES!
Collectively over 300,000 views (youtube and
facebook)
Over 4,500 shares on facebook!
eurordis.org
Recap of 2016
06/06/2016 9
• Marked by Publicis LifeBrands International
New way of organising campaign
« Creative concept » based around the video
Stronger visual identity
Communications materials linked – visuals taken to a new
level
Website user experience – web marketing improvement
• Result = more unified message!
Lithuania
South Carolina
Mauritius
ArabicGerman
y
Tanzania
eurordis.org
Process of decision and timeline
06/06/2016 12
• CNA decides year by year the slogan of Rare
Disease Day
A message which resonates on every continent
• Steering committee – currently 8 members
proposes the theme
adapts script
validates visuals
eurordis.org
2016-2019 – Themes for Rare Disease Day
06/06/2016 13
Patient Involvement
2016 Patient Voice
2017
2018?
2019?
eurordis.org
2016-2019 – Themes for Rare Disease Day
06/06/2016 14
Patient Involvement
2016 Patient Voice
2017 Research
2018?
2019?
eurordis.org
Timeline – year round preparation
06/06/2016 15
• March-April –your
participation!
• May – Theme
announced
• June – Creative
concept voted via email
• July –August – Script,
visuals, video
production
• September – video
translations, finalize
different versions
• November 20 –
Website launched
100 days of campaign
- video launched
• 22-23 February –
Multistakeholder
symposium, Brussels
• 28 February – Rare
Disease Day
eurordis.org
Changes this year
06/06/2016 16
• CNA voting a full concept
Publicis LifeBrands will propose slogans to steering
committee once the concept is voted
• Earlier timeline
Video teaser, visuals ready with website launch
• Let’s reach a wider public, but not lose our grass
roots patient-driven feeling
• Theme Ideas for 2018?
eurordis.org
Feedback
06/06/2016 17
• Questions?
• Webinar subjects?
• Private company funding events?