Presented inRI WORLD CONGRESS • 25–27 October 2O16

Edinburgh International Conference Centre, Scotland

• Indonesia, an archipelago country that extends from Sabang at the tip of northern Sumatra Island to Merauke in Papua, with 17,504 islands, where only about 6,000 are inhabited.

• Culturally diverse: more than 300 ethnic groups • A large populated country: 234 million people• It lies geographically on the crossroad between the Pacific and the Indian oceans, and

bridges two continents, Asia and Australia. • There are five main islands: Sumatra; Java; Kalimantan, two thirds of Borneo; Sulawesi; and

Papua

INTRODUCTION

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Constitution 1945Act No 39/199 to protect the entire

Indonesian nation/to secure the human rights

of all Indonesian citizens (nation)

same rights to obtain an education

Those who have any kind of disabilities are eligible for special education

everyone has the right to obtain safe, quality & affordable

health services.

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Disabilities/non disabilities

Act No. 20 of 2003 on National Education System Act No. 36 of 2009 on Health

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INTRODUCTION

Act No.8 of 2016 on PwDs

General for the rights of PwDs

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Autism children Complex

developmental

disorder

CommunicationSocial

interactionbehavior

independent

Accurate

diagnosis

Appr

opria

te e

duca

tion

trea

tmen

t

Stro

ng su

ppor

tAutism SchoolAutism ClinicFamily and community

inclusiveness

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STEP OF APPROPRIATE EDUCATION

Individualtreatment

One On One

Early Intervention

Transitionschool

Special school

Inclusion School

• Ajusted curricula• With or without shadow

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Early Intervention Continously, Gradually & in accordance with the child's

developmentA wide range of governance treatment• Medical therapy• Biomedical Intervention• Applied Behaviour Analysis / ABA• Sensory Integration Therapy• Occupational Therapy• Speech Therapy• Physiotherapy

Principles of treatment

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Medical Therapy To suppress certain symptoms: hyperactivity & aggressiveness, improve communication, to respond to the environment, Eliminating the strange behavior and repeated. Biomedical TherapyTo improve metabolism of children ; to clean the child's body from materials; to interfere with the metabolism and the nervous system workThere are 3 parts biomedical therapy• CFGF diet (casein free and gluten free)• Make a food diary accompanied by laboratory

examination• Reconstruction with the aim of a child to consume the

food as normal as possible with supplementation is recommended based on the results of laboratory tests.

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BEHAVIOR THERAPYThe aims of behavior therapy is to reduce behavior of the child that is unacceptable and replace it with behavior which is acceptable by communityBehavior therapy is made by using applied behavior analysis (ABA) that investigated by Ivar Lovaas and the result published in 1987; that is:• early intervention for 40 hours/week before children reaching age 4 years• goal of ABA system is for readiness of children in learning with the concept of understanding consequential, heed, comply with instructions and copying

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Increasimg of autism

Prevalence

Availability of

education & health services

The rise autism clinic & school

the implementations are different in

wide range. in accordance with the perception &

availability of their resources, including funds

Public demand

no policy governing education & the health care for autism specifically.

Mitra Anan

da

Many request to YPAC

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Rumah Autis

Anak Mandiri

Mitra AnandaWith limited funds, 2005

It has gradually developed towards an Education and Health Care Center for children with autism so they can live

independently and productively.

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• We aspire that Mitra Ananda will be able to contribute to help the government in formulating policies that are specific to the education and care of children with autism, to provide an opportunity for researchers to do important research which is needed and is a reference for Autism schools and clinics that exist in Indonesia.

2015

VISION To be an Autism Education and Health Service Center by the Year 2020

MISION1. To improve Mitra Anda Capability to be an Autism Education Center

2. To improve Mitra Anda Capability to be an Autism Health Care Center3. To improve Mitra Anda Capability to be a Research

and Develoment Autism Center

1. Financial Management Improvement Strategy : Goal: Implementation of the one gate financial management system 2. Structure Organizational Improvement Strategy Goal : Establishment of the organizational structure in accordance with the expansion plan3. Strategy of Management personnel fulfillment, Early stage Goal: available manpower who have the ability according to

criteria 4. Strategy of Meeting the Needs of Education and health personnel, Early stage Goal: Availability of education and health personnel according to the standard, Early stage

Strategy plan Short-Term 2016

5. Recruitment of prospective students & prospective users of health care Srategy

Goal : increasing the number of students and users of health care to 50%

6. Strategy Improvement Quality of Education and Health Care, Early stage

Goal: Implementation of Education and Health Care SOP7. Fulfillment Strategy in amount, type and quality of

Education and Health Equipment, early stage8. Monitoring and evaluation Goal : the existence of Monitoring and Evaluation Tool

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Medium-term

1. Fulfillment of work force management strategy, Advanced stage Goal : Being filled all the positions in the organizational structure

according to the criteria2. Strategy Meeting the Needs of Education personnel and health

personnel Sustainable Goal: Availability of education and health personnel sustainable3. Recruitment of prospective students and prospective users of

health services Srategy Goal : an increasing number of students and users of health

services to 200%4. Quality improvement of Education and health services, Early

stages Goal: The application of SOP Education and Health services

5. Partnership and Networking Strategy Goal : MOU of cooperation with educational

institutions and Research institutions and businesses inside and outside the country

6. Monitoring and evaluation Strategy Goal : All activities monitored7. Guidance and supervision Strategy - Supervision of administration order - Financial Supervision

Long-term1. Maintenance of existing services 2. Development

• No matter how excellent the education & health care facilities of the institution, an individual with autism will not show a positive development, if their family does not support and provide an appropriate education for the their special family member.

• This statement is proved by the case studies of Zaky and Abhy, where the whole family, both parents and siblings support all education efforts, at all time for independence

Support from Abhy family • Applying the rules at home that should be followed by all

members of the family, so Abhy understand norms & regulations

• Giving Abhy daily tasks that become obligations• Help find a way if he finds difficulty in performing tasks of

social, academic by giving an example or divert to things that are visual

• The provision of support also gives a challenge to acquire the skills preferred

• Focus on his strengths and do not exaggerate on shortcomings

• Involving in any family event and other social activities to learn to deal with sensitivity to the crowd and encouraging him to find ways to cope with their own business

• Support for Zaki will be presented by his mother and his sibling

Thank You