You are receiving this email because you have given the SBHANAconsent to send you electronic

communications. This is our very firstelectronic newsletter. We have moved away from the hard

copy newsletters to getwith the times in this very electronic age that we live in today. Below you

will find the SBHANA Spring 2017 Newsletter.Thanks, Danielle

Visit our website

SBHANA Spring 2017 Newsletter

http://www.sbhana.org/https://em-ui.constantcontact.com/em-ui/em/page/em-ui/email#http://www.sbhana.org/events/hope-classic/http://files.constantcontact.com/e785034a601/7875ce6e-229a-4b40-bfe2-dc94f424a5d2.pdf

Hello SBHANA Members,

Happy Spina Bifida and Hydrocephalus Awareness Month!!!The City of Edmonton Mayor, Don Iveson, has officiallyproclaimed June as Spina Bifida and HydrocephalusAwareness Month. On June 1st, we saw the High Level Bridgehere in Edmonton get lit "green" specifically for us. Fingerscrossed that next year it will be a more vibrant hue, though. Ihope that some of you were able to make it over to checkout the bridge. The Paint for the Skate event held on June12th was a huge success!! We raised just over $1,000 to go towards theSkate. A big thank you to everyone who came out, and to those whogenerously donated silent auction items.

Our next big awareness event features the Skate for Spina Bifida andHydrocephalus, which will be held at Castle Downs Skate Park on Sunday, June25th. Aaron "Wheelz" Fotheringham will be there to show us some tricks and doa meet and greet with those in attendance. We hope to see you there!

In honour of it being spina bifida and hydrocephalus awareness month, we aregoing to have a colouring contest and the winner's coloured picture will befeatured in our next Fall 2017 newsletter. All submissions need to besent back in to the SBHANA Office by August 1st to be considered. Have funcolouring everyone!!!

COLOURING CONTEST PICTURES:Teddy Bear with Daisy OR Daisy Flower Pot

Sincerely,

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Spina Bifida and Hydrocephalus Association of Northern Alberta

Skate for SB&HSunday, June 25th

Do you know who Aaron"Wheelz" Fotheringham is? Aaronis a Wheelchair Motocross athleteand will be coming out to theSkate this year to show off sometricks and do a meet and greetwith those in attendance.

The Skate for SB&H is askateboarding competition forbeginner, intermediate, advancedand female categories takingplace at Castle Downs SkatePark. This is our final JuneAwareness event and it would begreat to see lots of people comeout to this.

The Skate will kick off with themeet and greet with Aaron at11:30 am. His demo will be at12:30 pm.

Facebook event information

KMS Tools Smokie SaleFundraiserJuly 13, 14 & 15th

Volunteers NEEDED! Each month a lucky charityreceives the donations from thesmokie sale at KMS Tools. Howgenerous of them!!This year we will requirevolunteers on July 13th, 14th,and 15th to assist with thebarbecuing, serving, anddonation collection. ALL proceeds will go towards theSBHANA!!Email: info@sbhana.org if youwould be interested in thisopportunity. We will need4 volunteers for each day ofthe smokie sale.

https://www.facebook.com/events/1918181768507414/?acontext=%7B%22action_history%22:%22[%7B%5C%22surface%5C%22:%5C%22page%5C%22,%5C%22mechanism%5C%22:%5C%22page_upcoming_events_card%5C%22,%5C%22extra_data%5C%22:[]%7D]%22,%22has_source%22:true%7D

Camp Freedom July 27 - 30th

Are you interested in coming outto camp this summer? There isstill room!!

No one will be deniedattendanceat camp due to financialdifficulty. Please contact yourlocalSpina Bifida and HydrocephalusAssociation if you would liketoapply through their supportfund. If you are unable to receive money fromthem,please contact the SBHANAoffice.

It is a four day overnight campjust for teens aged 12 - 19 withspina bifida living in WesternCanada. We promote personalindependence, in a safe,social,teen-focused atmosphere.Dates for camp this year areThursday, July 27thto Sunday,July 30th at the accessiblelocation of Camp He Ho Ha, justan hour west of Edmonton.

Register for Camp Freedom

10th Annual HOPECLASSICSaturday, August 19th

The 10th annual Hope ClassicRun, Walk, Wheel is a family-friendly,non-competitive, Canada-wide event. Participants of allabilities are welcometo walk, run,or wheel through a 5 km or 8 kmpaved course in Rundle Park(113Ave and 29 St). Afterfinishing the run, the SBHANAhosts a summer BBQ forallparticipants and members tocome and enjoy food, friends,and sunshine. We hopeto have avariety of activities this year formembers of all ages to enjoy!Wewill also be providing SWAGfor all participants and a varietyof prizes to bewon from ourgenerous sponsors! Visit theevent page online for moredetails—wehope to see youthere!Register for the Hope Classic

Fall Adult RetreatSaturday, September30th

Attention:SBHANA AdultMembers

Come on outfor a Dinner Party on Saturday,September 30th at theParkdale/Cromdale CommunityLeague Hall for our Fall AdultRetreat.

Annual FamilyChristmas PartySaturday, December2nd

Mark yourcalendars!!Saturday,December 2nd willbe the AnnualSBHANA FamilyChristmas Party.

Theevent will include a dinner,winter crafts, face painting, a

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Food & Fun... cannot go wrongwith either of those two things!

More details will be provided inthe coming months. We hope tosee you there.

family dance, doorprizes, a smallsilent auction and a visit fromSanta!

It will be held at the KensingtonCommunity League Hall (12130–134 St NW Edmonton, AB) from5:00 pm to 9:00 pm.

President's Message byCindy Smith

I had the great pleasure oftakingNathan, Daniel, and Evan to

“Dream Night at the Zoo” on Friday,June 2nd. Thiswas Edmonton’s 10thtime hosting this event for chronically

ill and disabledchildren and theirfamilies. What a wonderful event! Wehad so much funtogether, enjoying

special displays, animal encounters -watching Lucy eat herelephant popsiclewas a highlight, rides, complimentary

treats and smallstuffed animals,character greetings, and more. DreamNight began over twenty yearsago atthe Rotterdam Zoo with the goal of

providing a free, enjoyableexperiencefor children affected by chronic illnessor disability. There arenow over 300

zoos around the world who participatein a similar DreamNight.

Click here to read more.

SBHANA Annual Report2016-2017

On February 9th, 2017 we held ourAGM at the Glenrose RehabilitationHospital. Please check out the link

below to see this past year's AnnualReport.

We also had an advisor from the CIBCbank and a member, Gaylene Belsek,come out to do an information session

on RDSP's (Registered DisabilitySavings Plan). This was a great

topic to learn some more informationon.

SBHANA Annual Report 2016-2017

Office Update

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Program Manager -Danielle Schmidt

We have had some big changes inthe office this past month.Recently,I have transitioned into a full-timeposition with the SBHANA and it hasbeen absolutely great so far. A bitof a learning curve, but that was tobe expected. Also, we just hiredour Summer Student, so I havesome company in the office again.Julianne has been a great additionand I am superexcited to see whatshe has planned for our 10thAnnual Hope Classic5/8 kmRun/Walk/Wheel event in RundlePark this summer.During the Fall and Winter, I coach ajunior sledge hockeyteam calledthe Blades for the ParalympicSports Association. It has beensuch arewarding experience forme. This year I had my biggestteam yet, 19 players! When I firststarted we onlyhad 9 players onthe team. I absolutely love seeingjust how much eachplayerprogresses throughout theseason. For some players, this isthe first time theyhave been out onthe ice in a sledge and playing ateam sport no less, but theytransition into it without difficulty.We went to Calgary back in Marchfor the Westerns SledgeHockeyTournament, and theyplayed their best hockey of theseason! We ended upfinishing in3rd place and I couldn’t be prouderCoach even if I tried!! Go BladesGo!

Fundraising Events Coordinator -Julianne de Gara

My name is Julianne deGara and Iam honoured to be SBHANA’s newsummer student! I am enteringmythird year of undergraduatestudies at the University of Torontoin September2017, where I ammajoring in English, and minoring inanthropology andsociology. ThoughI study in Toronto, I have lived inEdmonton my entire life, aswell asattending boarding school onVancouver Island for three years.When Iam not studying, I am also amember of the sorority AlphaGamma Delta, where Iam VicePresident of Philanthropy—meaningI plan a lot of events like theHopeClassic! I am passionate aboutservice and volunteering, and spent5 weeks inChina in 2015 teachingEnglish to orphans, many of whomhad spina bifida andhydrocephalus. Even though I’ve onlybeen in theoffice for a few weeks now, Ialready feel very welcome at theSBHANA. I knowthis will be anamazing experience to build uponthe planning skills I alreadyhave. Iam incredibly excited to be planningthe 10th annual HopeClassic, andlook forward to seeing thecommunity come together forthisamazing event! Hopefully, wecan make this event extra special,as we celebrateits 10-yearanniversary. As always, there willthe 5/8km Run/Walk/Wheel, aswellas the family barbeque. We hopeto have face painters, a bouncycastle andthe Trucksicle return foreveryone to enjoy! I look forwardto meeting membersandvolunteers, and making this year

the best Hope Classic yet!

Donors & Sponsors

Thank you to the Royal AlexandraHospital Employees' CharitableDonations Fund who made a donationtowards our amazing Support Fund.

The SBHANA Support Fund isdesigned to assist persons with spinabifida and/or hydrocephalus withthecost of specialized leisure andrecreational equipment, medicalequipment, services suchasspecialized lessons or camps andemergency personal expensesdirectly resulting fromthe fact that theperson has spina bifida and/orhydrocephalus.

To learn more about the SBHANASupport Fund Click Here.

A big thank you to the City ofEdmonton for awarding the SBHANAwith the Community InvestmentOperating Grant for 2017! This

The Union 52 Benevolent Societyawarded the SBHANA with a donationtowards our 2017 Annual FamilyChristmas Party which will be held onSaturday, December 2nd at theKensington Community League Hall.Thank you so much for this generousdonation!

The Christmas Party is such a funannual get together for SBHANAmembers. It allows everyone to catchup, enjoy some activities, eat adelicious meal, have a visit fromSanta, and get into the Christmasspirit!

A Big Shout Out To:

Skate for Spina Bifida &Hydrocephalus Sponsors/

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operating grant will help the SBHANAdeliver ongoing programs andservices to our membership and helpkeep our organization in operation.

Thank you to the TELUS PaydayLottery for donating money towardsour upcoming Fall Adult Retreat!Pictured above is Program Manager,Danielle Schmidt, and TELUSrepresentative, Fran Papworth.

The Fall Adult Retreat will be heldon Saturday, September 30th at theParkdale/Cromdale Community Hall, soput this date into your calendars!!!

We are planning on having a DinnerParty where we will do a cookingsession, sit down and eat dinner,catch up, and have some games andactivities for everyone to enjoy.

Hopefully several of our adultmembers will be able to make it out tothis fun event!!

SBHANA JuneAwareness Raffle

Tickets are 1 for $5.00 or 5 for$20.00. Draw date is Sunday, June

25th.

1st Prize: WestJet Gift of FlightVoucher for Two (anywhere WestJet

flies; some restrictions apply)

2nd Prize: Sleepover at FantasylandHotel in a theme room, dinner at Earls

and a movie for two

Donors:

Ironworkers Local 720The City of Edmonton Citizen Access

and InclusionKent & Janice Coulter

June Awareness Raffle PrizeDonors:

WestJetFantasyland Hotel

Melody Hilman PhotographyCindy Smith & Katherine Bateman

Paint for the Skate SilentAuction Item Donors:

Local Public EateryEasy as Pie

Susan WilsonIxlaox

GoodlifeFamous Toys

HQ Salon & SpaVerve

Foxy KickboxingAlyson Rodger

Janice & Kent CoulterJennifer Burgsma

Jennifer TomcRhonda Altmiks

Spinal Cord Injury AlbertaThe de Gara Family

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3rd Prize: Photography Package(lifestyle session) donated by Melody

Hilman Photography

Contact the Office if you areinterested in purchasing some tickets:

info@sbhana.orgor call 780-451-6921

Updates & Opportunities

City of EdmontonLeisure Access Card

Do you have one of these yet???

What is Included?Unlimited, free admissionto participating facilities

Who Qualifies?You may qualify if you are an Edmontonresident and one ofthe following applies:

You are on AISHYou are below the low income cut-offline

The Leisure Access card is valid for oneyear from the issue date. There is a $5fee to replace lost cards.

Click this link for more informationand to find the application form.

City of Edmonton311 App

311 has made reporting concerns to thecity more convenient through the use ofyour mobile device.

You can now report people who aremisusing accessible parking stalls throughthis app!!

Go to this link toinstall the 311 app (it isFREE to download). Android and Appleversions areavailable.

Member Spotlight:Mirella Sacco

I have spina bifida and useforearm crutches. Throughoutmy50 years, I have had many

careers, and I have always had aninterest in sharinginformation withothers which has brought me to

my writing. I would considermyself an advocate that

getsresults.Do you have a favourite saying

that youlike to live by?Engage, Enlighten, Empower.

Mirella is in the process of writingher second ebook which will be

for parents of children withdisabilities.

Click this link to learn more:Mirella Sacco Member

Spotlight Article

You Can Ride 2

https://www.edmonton.ca/programs_services/leisure_access/leisure-access-program-participating-facilities.aspxhttps://www.edmonton.ca/programs_services/leisure-access-program.aspxhttps://www.edmonton.ca/programs_services/edmonton-311-app.aspxhttp://files.constantcontact.com/e785034a601/fc476618-ba77-4361-98de-82b861003b06.pdf

Voice of Albertans with Disabilities

Disability Tax CreditSupport and ReferralApply for the Education for LifeBursary(deadline for this bursary is July 15th forthe 2017-2018 schoolyear)

Coloplast: Self-Cath CoudéCatheters(Now fully covered under AADL)

Intermittent catheter designed forthe male anatomy. This link has moreinformation about the catheter.

Coloplast Website and spina bifida.

SBHANA Scholarship

Two $1,000 scholarships areawardedannually to an undergraduatestudent attending a recognized post-secondaryinstitution.

Applicants must provide confirmation ofspina bifida and/orhydrocephalus by amedical professional, be a Canadian citizenfor at least twoyears, have a homeaddress in Red Deer, the NWT, or north ofRed Deer, and beregistered in a post-secondary institution.

Scholarship Application Deadline isAugust 31, 2017

Their vision is ALL children will beable to experience the joy and

freedom of riding abike. YouCanRide2

You Can Ride 2 recently helpedMatthew (pictured above) find a

bike that works for hisabilities. Matthew is enjoying his

bike so much and nowthat the cityis fixing curbs around in the areawhere his family lives, it will be

even better.

"Thank youagain for opening thedoor to this wonderful

opportunity!" ~Shannon

Shunt Failure:Know the SignsInformation taken from Current: The Magazine of the

Spina Bifida and Hydrocephalus Association of Ontario

(Spring/Summer 2017)

A shunt that stops working causesthe same symptoms as untreatedhydrocephalus. Individuals andfamilies must be alert for signsand symptoms resulting fromshunt complications. Earlydetection prevents emergencysituations.

Article link.

SBHANA Buy & Sell If you have any adapted

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Theparallel bars base is 10 feetlong 3 1/2 feet wide. The bars

go wide as18 inches to 21inches. The bars go height of 2feet 3 inches to 3feet 8 inches.We are going to ask $500.00 or

obo. Thank you.

If you are interested, thenplease contact Dwight McKenzie

at: 780-721-3382

items that you are looking topurchase or would like tosell/donate, then you cansend in the information andwe can help get the wordout there!!

SBHANA MembershipRenewal

Membership Fee: $10.00Memberships are for a period ofone year, from February 1st to

January 31st.

If you haven't already renewedyour membership for the 2017-2018 year, then please fill outthe membership form andsend it back in to the SBHANA

with your payment.

Our mailing address is: P.O. Box35025 - 10818 Jasper Avenue

Edmonton AlbertaT5J 0B7

Spina Bifida & Hydrocephalus Association ofNorthern Alberta

Box 35025—10818 Jasper AvenueEdmonton, Alberta

T5J 0B7

Donate Now!

Contact Us

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