school participation guide | academic year 2014-2015healthymindsnetwork.org/system/resources... ·...

School Participation Guide | Academic Year 2014-2015

Web: www.healthymindsnetwork.org/hms Email: [email protected]

Dear colleague, Welcome to the Healthy Minds Study School Participation Guide! This carefully organized guide is intended to make your participation in the study as easy and rewarding as possible. The guide explains each step from enrollment to data collection, highlights specific tasks at each step, and provides a general timeline that we will follow together to ensure a smooth participation experience. By enrolling your institution in HMS, you are joining a group of colleges and universities dedicated to understanding and addressing issues related to students’ mental health through scientifically rigorous research. The ultimate goal is that HMS data can be used to inform policy and practice on college and university campuses. If you have not already done so, we hope you will join us in our efforts to achieve this goal by enrolling your campus in HMS. The HMS research team is deeply committed to strengthening the research-to-practice link. We are continuously refining our efforts to meet the needs of participating schools, and we truly value your input and suggestions. If you have questions or concerns that are not addressed in this guide, please feel free to contact us. Sincerely, Daniel Eisenberg, PhD Director, The Healthy Minds Network Co-Principal Investigator, The Healthy Minds Study Associate Professor, University of Michigan School of Public Health

The Healthy Minds Study


Table of Contents

Notes 1

Tasks 2

1. About the Healthy Minds Study 3-4

2. Overview of the Participation Process 5

3. Participation Contract 6

4. Customization 7-8

5. IRB Content Guide 9-16

6. HMS Email Address 17

7. Attaining a Sample 18

8. HMS Partnerships 19

9. Participation Fee 20-21

10. Frequently Asked Questions 22

11. HMS Research Team 23-24

12. Forms

Participation Contract 25-29

U-M IRB Approval Letter 30-31

U-M Letter of Non-Engagement 32

Consent Form 33-34

Recruitment and Reminder Emails 35-39

Survey Endings 40-41

The Healthy Minds Study School Participation Guide | Academic Year 2014-2015

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Notes: One person on your campus will serve as the HMS Campus Coordinator. This guide is written

primarily for the Campus Coordinator (“you”). The HMS research team (“we”) will communicate directly with you throughout the preparation, data collection, and data reporting phases.

Throughout this guide, several tasks are described that require emailing information to the

HMS research team. The email address to use for all HMS-related communication is [email protected]

The deadlines listed in each section (e.g., 2 months before HMS launch) refer to the timeframe for completing the task. For example, approval/exemption from your Institutional Review Board must be obtained 2 months before data collection begins. You should begin communication with your IRB as soon as possible to meet this deadline.

The deadlines are based on the dates you select for the survey launch. The survey launch

date is up to you and should be chosen based on your academic calendar and other campus events.

Acronyms:

HMS=Healthy Minds Study U-M=University of Michigan IRB=Institutional Review Board


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Tasks:

Task Timeframe Completed?

Sign, scan, and submit participation contract 3 months pre-launch

Select survey launch date; email selected date to HMS 3 months pre-launch

Submit participation fee 3 months pre-launch

Customize the survey by adding up to 10 items (OPTIONAL); email items to HMS

2 months pre-launch

Customize the online survey platform by adding your school’s logo; email logo to HMS

2 months pre-launch

Provide the HMS campus coordinator’s name, position/title, email address, phone number, and campus address for recruitment and reminder emails; email this information to HMS

2 months pre-launch

Provide contact information about one on-campus mental health resource (e.g., campus counseling center), which will be included on every page of the online survey; email the name of the provider and main phone number to HMS

2 months pre-launch

Provide name of 3 on-campus mental health providers. This information will be used as response categories for two survey items; please email this information to HMS

2 months pre-launch

Obtain IRB exemption or approval; email exemption or approval letter to HMS

2 months pre-launch

Create HMS email account at your school; set the forwarding address to [email protected] and email this information to HMS

1 month pre-launch

Obtain a sample of students for recruitment (through your campus Registrar’s Office); transfer this file to HMS

2 weeks pre-launch

Please inform the HMS research team when you have completed each

task. All information can be emailed to [email protected]

mailto:[email protected]�


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Section 1. About The Healthy Minds Study What is The Healthy Minds Study? The Healthy Minds Study (HMS) is an annual survey-based study examining mental health and related issues (depression, anxiety, substance use) and service utilization among college students. Since its national launch in 2007, HMS has been fielded at over 100 college and university campuses across the U.S., with over 100,000 survey respondents.

HMS is one of the only annual surveys of college/university populations that focuses exclusively on mental health and related issues, allowing for substantial detail in this area. The study has a special emphasis on understanding service utilization and help-seeking behavior, including factors such as stigma, knowledge, and the role of peers and other potential gatekeepers. The study also includes an option to examine how mental health symptoms predict academic outcomes (e.g., grade point average and retention), which can be translated into an economic case for mental health services and programs.

If one had to summarize HMS in a single sentence it would be as follows:

The Healthy Minds Study is a comprehensive, population-level online survey focused on issues related to mental health and service utilization among

undergraduate and graduate students. What measures are in the Healthy Minds Study? HMS includes several validated screening tools as well as other items of interest to administrators, clinicians, and researchers. Below is an outline of measures included in the HMS survey: Section A: Background characteristics (age, race/ethnicity, field of study, etc.) Section B: Mental health (depression, anxiety, disordered eating, suicidal ideation, self-

injury, etc.) Section C: Lifestyle (substance use, physical activity, sleep, etc.) Section D: Knowledge and attitudes about mental health services (stigma, beliefs about

treatment effectiveness, etc.) Section E: Experience with services (e.g., use of medication, use of therapy, satisfaction with

services, etc.) Section F: Social and academic environment (sense of belonging, social support, etc.)

HMS also includes a few open-ended questions, the data from which are provided to participating institutions.


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What are the benefits of participation? Participation in HMS brings numerous benefits for colleges and universities. Campus administrators can use the research/data in many ways, including: To assess need in the student population To raise awareness of mental health

problems and available campus resources To strengthen grant applications To advocate for mental health services and

programs on campus To evaluate existing programs (e.g.,

reductions in stigma following a major campaign)

To examine prevalence and correlates among sub-groups of students

To make comparisons with peer institutions How does the survey work? The HMS survey is hosted online and the instrument is maintained and customized by the HMS research team at U-M. Data are securely stored on the HMS servers. HMS is designed to protect the privacy of participants. Personal information is not attached to any survey data. Based on embedded skip logic, some of the measures above are assessed only for students with certain responses to survey items. The HMS survey takes approximately 20 minutes to complete and is conducted entirely online. Students may skip any questions that make them uncomfortable, or that they simply do not wish to answer. How are students recruited to participate? Students are recruited to participate in HMS via email. Recruitment begins with a brief “pre-notification” email. Survey methodologists have concluded that this initial notification can boost participation rates. Two to three days later, students receive their official recruitment email with a link to the online survey. We follow up with reminder emails to non-responders. In total, students may receive up to 5 emails about participating in HMS over the 3-week data collection period. Students who complete the survey, or indicate they do not wish to participate, do not receive any further invitations. We anticipate a total survey response rate of ~30%.


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Section 2. Overview of Campus Participation Process

Throughout the preparation phase, there are five simple steps to complete. You are encouraged to complete these steps as early as possible, particularly the IRB.

Steps Timeframe Completed? (1) Sign contracts and submit payment 3 months pre-launch (2) Customize the survey 2 months pre-launch (3) Attain IRB approval/exemption 2 months pre-launch (4) Establish HMS campus email address 1 month pre-launch (5) Attain a sample for survey recruitment 2 weeks pre-launch

We estimate that completing these steps will take you between 5 and 10 hours total.

Preparation Phase (begins at least 3

months prior to HMS launch)

Data Collection Phase

(3 weeks)

Data Reporting Phase

(approximately 1-4 months after

completing data collection)

Sign contracts and submit payment (30 minutes)

Customize the survey (10 minutes-1 hour)

Attain IRB approval/exemption (30 minutes-3 hours)

Establish a HMS campus email address (15 minutes)

Attain a sample for survey recruitment (15 minutes)


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Section 3. Participation Contract

Time expenditure by HMS Campus Coordinator: 10 minutes Deadline: 3 months before HMS launch

You will sign a contract that details the terms of your college/university’s participation in HMS. The contract includes the services and products associated with the participation fee. A copy of the contract is included at the end of this guide in the Forms section. When submitting your contract, you will also submit your participation fee (see Section 9). At the time of signing your participation contract, you will also select dates for data collection based on your campus calendar. HMS will be open for 3 weeks.


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Section 4. Customization

Time expenditure by HMS Campus Coordinator: 10 minutes-1 hour Deadline: 2 months before HMS launch

Custom Survey Items In addition to the standard HMS questionnaire, you have the option to add up to 10 custom items (for a small additional fee, to cover the extra staff time we will need to program the questions and return a data report). We are experienced in survey design methodology and can provide guidance and insight as needed as you create your custom items. General Tips Choose simple words Choose as few words as possible to pose the question Avoid conversational text—the survey is being read by respondents not to respondents Use complete sentences Develop response categories that are mutually exclusive Be sure each item is technically accurate

Grid style questions (with common response categories and multiple question stems) are common in online surveys. Each row equates to one item.

Logos Depending on your institution’s policy regarding logo use, we recommend including your school logo within the HMS survey. This will increase legitimacy for your students. Please check to see if your school logo or seal is available for use. If a school logo is not submitted, the standard HMS logo will be used in its place. Please submit your logo by email. Recruitment and Reminder Emails Students are contacted by email to participate in the study. The U-M IRB has approved the recruitment and reminder emails for use at participating institutions. The emails are included in the Forms section of this guide. Emails are sent by the HMS research team on behalf of the local contact (typically you, the Campus Coordinator). Please provide the contact information (name, position, email, phone number, campus address) for the local contact. This will increase your students’ understanding that the study is important for their local campus community. Local Counseling Resources


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We are required to display a campus counseling phone number on each page of the online survey. This is a precaution in case a student respondent is highly distressed and is in need of immediate resources. Please email us with the name us this provider/resource (e.g., counseling and psychological services, university health services) and the phone number. Within the HMS questionnaire, participants are asked about resources at your institution that they may have used such as the counseling center and health services center. Please provide us with a list of the three most common places that students may receive mental health counseling or therapy at your institution. This information will be inserted as response categories for the relevant survey items. In summary, please send us the following by email: Campus Coordinator contact information Local counseling phone number students can call Three most common places students would seek mental health care, counseling, and/or

therapy on your campus (if there are resources specific to eating disorders, please provide these)


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Section 5. IRB Content Guide

Time expenditure by HMS Campus Coordinator: 30 minutes-3 hours Deadline: 2 months before HMS launch

Participating colleges and universities are required to consult with their campus IRB. You must obtain proof of exemption or approval from your campus IRB. If you do not have an IRB on your campus, we will work with you to arrange an alternative approval process. It is best to start this process right away as approval can take several months to complete. Do you need IRB approval? The main IRB for HMS is maintained at U-M. By the federal definition of research engagement, other participating colleges and universities are “not engaged” in HMS. This does not limit your ability to work with the de-identified survey data or to use the research to inform practice on your campus. It simply means that you are not directly engaging with subjects and are not directly managing sensitive data. The policy is outlined here: www.hhs.gov/ohrp/policy/engage08.html. The U-M IRB has provided a letter (see Forms section), which clarifies why other campuses are not considered engaged in the research. We encourage you to show this letter to your campus IRB as soon as possible. We are hopeful that you will be “exempt” from a full IRB review. This will save time and energy for all involved. If your school determines that you are exempt, you will simply need to submit a letter to us from your local IRB stating that your institution does not consider itself engaged with the research and that IRB approval will not be necessary to administer HMS on your campus. Please address this letter to the faculty Principal Investigator (Daniel Eisenberg). We will help in any way we can throughout the IRB submission process and are happy to answer any questions you may have. Material Needed to Complete an IRB Application (if applicable) If your IRB would like to proceed with a full board review, we have provided information below that will allow you to easily complete the application. You may be eligible for an abridged or expedited IRB process because the U-M IRB has already approved HMS. This may involve submitting an abbreviated form for study approval. Ask your local IRB representative if you qualify for this method of submission or if you will need to complete the full form.


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Below are responses to the questions most commonly asked by IRBs. We encourage you to use this material to cut and paste text directly into your IRB forms. If you are able to give the HMS research team access to your IRB application, we can directly complete the forms for you. We are happy to help in any way we can. If you or your local IRB have any questions, please don’t hesitate to contact us. Much of the information you will need to complete a full application are included in the Forms section of this guide. These include the HMS U-M IRB approval letter, consent/assessment forms, and the recruitment/reminder emails. Project Title The Healthy Minds Study Overview The Healthy Minds Study (HMS) is run by researchers at University of Michigan. The principal investigator is Daniel Eisenberg. Objectives and Purpose of Research An annual web-based survey, HMS aims to assess mental health status, use of alcohol and other drugs, health service utilization, and the barriers to accessing health services within the student populations of universities and colleges around the country. The study also investigates how substance use, social support, and academic environment are related to mental health status, service utilization, and barriers to service utilization. Specifically, HMS seeks to understand the extent to which university students with mental health and substance use problems are receiving needed services, and to understand key determinants of whether students received needed services. The data can be used to answer several important questions, such as:

What percentage of students on campus screen positive for mental health issues? Which sub-populations are at greater risk? What is the rate of treatment utilization among students with apparent mental health disorders?

The HMS survey gathers data on the following broad domains related to mental disorders and mental health service utilization: emotional health (restraint/dieting, binging and purging behavior, weight loss), resources and support (knowledge of campus resources/programs, formal and informal help-seeking, barriers to care, satisfaction with therapy/counseling, diagnosed mental health conditions, medications, etc.), academic and social environment (obtaining support and emotional help, competitiveness, academic performance, etc.), overall well-being and lifestyle (symptoms of depression and anxiety, suicidality, substance use, physical, sexual, and emotional abuse, violence, etc.)


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Date and Time of Administration HMS is administered online, affording students the luxury of taking the survey at any time or place that is convenient to them. This enables them to respond to the survey when they feel comfortable and secure. Respondents further enjoy the option of leaving the survey and resuming from where they left off at any point in the data collection period. HMS is administered over a 3-week period. The data collection period is selected to accommodate campus events, breaks, and the administration of other surveys. Study Design Survey Instrument. HMS is administered online. In order to identify the most important issues for examination in HMS, the study’s principal investigators (at University of Michigan) consulted with several other experts in the field of college student mental health and reviewed the existing literature on mental health disorders among university students. In developing the HMS survey, the principal investigators used previously validated and widely used instruments wherever possible. For example, the survey includes depression and anxiety scales from the well-known Patient Health Questionnaire-4 (PHQ-4). The principal investigators also created new items in order to address issues that have not been addressed in this type of study. Based on embedded skip logic, some of the measures are assessed only for students with certain responses to survey items. The HMS survey takes approximately 20 minutes to complete. Students may skip any questions that make them uncomfortable, or that they simply do not wish to answer. Eligibility. All individuals must be currently enrolled as undergraduate or graduate students. The only exclusion criterion is that individuals younger than 18 years old cannot participate in the study. Sample. The Registrar’s Office (or equivalent campus unit) performs a random sampling process to obtain the desired number of students for survey recruitment. For the randomly selected sample of students, the Registrar’s Office provides a file of student information. For all students in the random sample, the following information is collected for the purposes of recruitment, assessment of nonresponse bias, and analysis:

• First name • Last name • Email address • Date of birth • Student status (undergraduate/graduate student) • Race/ethnicity • Sex


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• GPA • Citizenship (international student versus U.S. citizen or permanent resident) • Field of Study • School/program year

These data are obtained before the recruitment of individual students. The principal investigators are permitted to obtain the administrative data listed above for all students recruited for the study under the guidelines of the Family Education Right and Privacy Act (FERPA). These guidelines allow schools to disclose those records, without consent, to the following parties or under conditions (34 CFR, 99.31) including organizations conducting certain studies for or on behalf of the school. In particular, these studies must help develop, administer, or validate predictive tests, administer student aid programs, or improve instruction. HMS is consistent with these specifications in multiple ways. Most notably, HMS is administering and validating mental health screening tests to see how well they predict academic outcomes. More generally, HMS aims to understand how the learning environment (i.e. academic instruction) can be improved through addressing mental health. The HMS principal investigators assign a unique survey link to each student in the randomly selected sample. This unique link is piped into the recruitment and reminder emails. The link has no significance outside of HMS. Recruitment. Dissemination of the online survey to students is conducted by email. Participating campuses create an institutional email address for HMS. This enhances the legitimacy of the study for students (because emails come from official school accounts—e.g., healthyminds@[school].edu). To send out emails to students on each of the participating campuses, the HMS principal investigators use Emma, a web-based marketing and communications company. Emma’s servers are hosted at the SunGard co-location facility located in Nashville, Tennessee. The facility is staffed 24/7 by certified engineers and only approved staff may gain physical access to Emma’s systems. Identification at this location is verified through a combination of official picture ID and an access code/fingerprint scan combination. Network traffic to and from the facility is routed through a dedicated firewall, and terminal access to the server environment is limited to SSH (secure shell). System administration activities are segregated from database management activities. All passwords on privileged accounts incorporate a high degree of character complexity and conform to internally-set standards. These passwords are also changed on a tri-annual basis. All web-accessible data stored by Emma are housed in a proprietary, closed architecture and 256-bit encrypted using SSL authentication from Digicert. Password access into Emma’s web application are never submitted in clear text. All communications between Emma’s corporate headquarters and SunGard are 3DES/IKE encrypted. As for list access, Emma’s privacy policy and terms of use clearly outline Emma’s policy; namely, that Emma will never, either during a client’s contract term or at any time thereafter, rent, sell, or otherwise share any client’s list with anyone. Emma does not engage in list rental or purchasing and does not allow rented or purchased lists to be used in conjunction with the Emma service. The full privacy policy is available here: http://myemma.com/permission-and-privacy-policy?/privacy. Recruitment begins with a brief “pre-notification” email. Survey methodologists have concluded that this initial notification can boost participation rates. Two to three days later, the HMS


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principal investigators send the recruitment email with a link to the online survey (i.e., data collection begins with the recruitment email), and then follows-up with reminder emails to non-responders (up to three reminder emails in total, separated by approximately 5-7 days each). In total, students may receive up to 5 emails about participating in HMS over the 3-week data collection period (see Table 1). Students who complete the survey, or indicate they do not wish to participate (by emailing the research team to indicate this or not consenting on the consent page of the online survey), do not receive any further invitations. Students voluntarily access the HMS survey via the unique survey link listed in the recruitment and reminder emails. The link takes students to the online survey, where they are presented with the HMS consent form. Students must give their consent in order to progress to the first question in the online survey. The anticipated response rate is approximately ~20%.

Table 1. Communication with students randomly selected to participate in HMS Email Purpose Recipients Timeframe 1 Pre-

notification All randomly selected students 2-3 days before data

collection begins 2 Recruitment All randomly selected students First day of data

collection 3 Reminder #1 Students who have not responded and have not

indicated that they do not want to participate 5-7 days after the recruitment email

4 Reminder #2 Students who have not responded and have not indicated that they do not want to participate

10-14 days after the recruitment email

5 Reminder #3 Students who have not responded and have not indicated that they do not want to participate

15-19 days after the recruitment email

Data. Survey data and respondents’ identifiable information (name, email address) are stored in separate files in separate folders. Survey data are gathered through Qualtrics, using Transport Layer Security (TLS), encryption (HTTPS), password protection, and HTTP referrer checking. Qualtrics has SAS 70 Certification and meets the rigorous privacy standards imposed on health care records by the Health Insurance Portability and Accountability Act (HIPAA). All Qualtrics accounts are hidden behind passwords and all data is protected with real-time data replication. Only the HMS research team has access to the data through Qualtrics, protected by a password. The HMS principal investigators may follow up with a sub-set of respondents within three years of the original survey administration in order to understand how mental health and service use change over time in the university setting. These issues can only be examined satisfactorily through individual-level longitudinal analysis. Individual-level longitudinal analysis allows the principal investigators to analyze how changes over time relate to specific individual characteristics at baseline as well as changes in individual characteristics over time. The principal investigators may also collect additional academic records such as retention status, which would be linked to the subject data and then stripped of identifiers. The following language is included in the consent form in order to inform participants of this possible collection:

Please note that the researchers might access academic records of students who agree to participate in the survey. We will do this only if [name of school] decides to conduct an


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analysis of how the measures from the survey correlate with academic outcomes. In this case, we will use the academic data, stripped of any identifying information, solely for the purpose of this research analysis. The aim of this analysis would be to gain knowledge about how to promote successful academic outcomes. We will protect the confidentiality of these records using the measures described throughout this consent/assent form.

The additional academic records and follow-up analysis described above are collected at institutions that request this additional research. Identifiers are destroyed after three years. Incentives. Students are informed in their recruitment email that they are eligible to win a prize in a sweepstakes to be administered by the HMS principal investigators. Incentives have been shown to improve response rates significantly in survey studies of college students. The prizes total $2,000 (2 $500 prizes, 10 $100 prizes). Every student in the initially drawn sample is eligible for the prizes, regardless of participation. Subjects are not required to offer something of value (i.e. their participation in research) in order to be entered into the drawing. This means everyone invited to participate in the research is entered into the drawing. Schools may choose to add additional incentives. If you choose to do so, please inform the HMS research team so we may include this information in the recruitment and reminder emails and gain approval from the U-M IRB. Informed Consent. Please see the Forms section for the full text of the informed consent. Obtaining Consent. Consent takes place online, as HMS is an online survey. Subjects who voluntarily visit their unique survey link view an initial screen with the informed consent/assent document. This form is programmed into the beginning of the survey and contains detailed information about the study, confidentiality procedures, the protection of human subjects, and clearly states that participation is voluntary. Consent is obtained by asking participants to click on one of the following options: Yes, I am at least 18 years old and I consent to participate in this study. No, I do not wish to participate in this study and I understand that there is no penalty for not participating. Students who are 18 but are located in states where the age of majority is over 18 are included in the study. These students are presented with an assent form rather than a consent form on the initial page of the survey. The assent for these participants is delivered in the same manner as the consent process described above. The following change is made to the assent: Yes, I am at least 18 years old and I assent to participate in this study.

The HMS principal investigator has a waiver of parental permission for those students that reside in states where the age of majority is greater than 18. The study does not pose more than minimal risk to these students, and no more risk than other students aged 18 in states where the age of majority is 18. The research involves no procedures for which written consent or assent is normally required outside of the research context. Benefits. There are a number of potential benefits of this research on the individual-, campus-, and societal-levels. For students, the survey may help to raise their awareness of their own and


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their peers’ relationships with mental health. Resources provided to students by HMS could help improve their well-being or the well-being of their peers. At the campus-level, if the study shows that there is a significant amount of unmet need for mental health programs and resources, then the participating institution can use the study results to help improve services and programs offered to students. Given that issues around mental health impact students' lives, this knowledge should be factored into other campus initiatives (e.g., advising, wellness, health efforts). At the societal-level, this research will result in peer-reviewed publications, which will contribute to the knowledge-base about undergraduate and graduate student mental health of which there has been only limited published work. The dissemination of this knowledge could help other colleges and universities utilize a more evidence-based approach in campus health services. Furthermore, improving the well-being of this population is of critical importance given that this is an important period of psychosocial development. Connecting students with mental health services as needed would have broad effects on future economic productivity, health care spending, and the well-being of young people. Upon completion of the survey, participants receive a list of helpful resources (local and national) that are programmed into the last page of the survey. Please see the survey endings for more details. Risks. The most significant risk posed by HMS is potential emotional distress to participants. Students may feel upset or anxious when answering questions about personal, sensitive issues. This situation is likely to be infrequent, and the level of discomfort is not greater than that produced by a routine psychological examination. The consent/assent form warns students that they may feel uncomfortable about some of the questions and that they may skip any question—or decline to participate altogether—with no consequences. It also explains that they will be provided with a list of local and national resources, in case they experience any distress during the survey administration. The other conceivable risk inherent to participation is breach of confidentiality; however, this is extremely unlikely due to the multiple precautions taken to protect both respondent data and personal information. Students are informed of this unlikely risk before they consent to participate. On a similar note, the study poses negligible legal risks: while students may reveal their participation in illegal behavior (such as underage drinking or illicit drug use), the stringent confidentiality precautions protect their privacy. Confidentiality. There are multiple precautions to protect the confidentiality of respondents, which include: Using password-protected, encrypted technology to receive, transmit and store data Maintaining separate files for data and respondent-identifying information Providing randomly assigned, dedicated, unique survey links to separate data and student

identifiers Destroying identifying information upon completion of the study or after three years,

whichever comes first Providing data to institutions without any information that may be traced to individual

respondents


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Enforcing a strict non-sharing policy for institutional data: schools have access to only their own data

Requiring that presentations generated from this research only provide data in aggregate, without reference to individual respondents

HMS is approved by the University of Michigan Health Sciences and Behavioral Sciences Institutional Review Board. Participants and researchers are further protected by a Certificate of Confidentiality from the National Institutes of Health.

Survey responses and respondents’ identifiable information (name, email address) are stored in separate files in separate folders. The two files (identifiable data and survey data) are linkable by the student’s unique survey link. Identifiable data are never merged with survey responses (i.e., this information is always stored in two separate files, the only linking piece of data being the survey links). While the study is in the field, it is necessary to retain all identifying information originally provided by the institution in order to contact non-responders. Once data collection has ended, the HMS principal investigators destroy the contact information of non-responders (name, email address) but retain their other information for the purposes of non-response analysis (date of birth, student status, race/ethnicity, sex, GPA, citizenship, field of study, and school/program year, etc.). The HMS principal investigators retain the full information provided for responders, again with the identifiable data and survey data in separate files in separate folders linkable only by their unique survey link. Students are not being asked to provide any information that would identify them. In terms of the sensitive questions (those about mental health, and alcohol/drug use), students are told very clearly that they can skip any question that they do not wish to answer. Not a single question on the survey has a forced response (with the exception of the consent/assent page).

We update this IRB guide to reflect any new questions that Campus Coordinators are asked. Please let us know if there are issues that your local IRB raises that are not otherwise included

above. We will improve our material to make the experience that much easier for future Campus Coordinators.


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Section 6. HMS Email Address

Time expenditure by HMS Campus Coordinator: 15 minutes Deadline: 1 month before HMS launch

Recruitment and reminder emails about HMS are conducted by email. To send these emails, we work with Emma, a web-based marketing and communications company (http://myemma.com/). You will create an institutional email address for HMS (e.g, [email protected]; [email protected]). This legitimizes the study for students while abiding by anti-spam/privacy laws. In creating this email account, you will set the forwarding address to [email protected]. Because setting up this account is a different process at each participating campus, we will work with you individually to accomplish this task.


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Section 7. Obtaining a Sample

Time expenditure by HMS Campus Coordinator: 15 minutes Deadline: 2 weeks before HMS launch

We will work with the appropriate campus unit (typically the Registrar) to obtain the sample file of students. You can either connect us with a contact person at the Registrar’s Office or communicate with the Registrar’s Office directly to obtain the sample. If you obtain the sample directly, we will provide further instructions for transferring the file to the HMS research team. The following variables are required for participation:

First name Last name Email address Date of birth Student status (undergraduate/graduate

student) Race/ethnicity Sex Citizenship (international student versus U.S.

citizen or permanent resident) School/program year

In addition to the variables listed above, your school may also want to elect to provide the following variables for further analyses:

GPA Field of Study


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Section 8. HMS Partnerships Participation in HMS and HBS HMS is part of the Healthy Minds Network. Another national mental health survey, the Healthy Bodies Study (HBS), is also part of the Network. Colleges and universities are encouraged to participate in both studies, which are highly complementary. HBS is an annual survey-based study examining individual and environmental factors that influence students’ relationships with eating, exercising, and body image, and how these relationships, in turn, fit into a larger picture of student well-being. HBS and HMS share the same research team at U-M. Campuses with 8,000 or more students can participate in HBS and HMS simultaneously (each survey will be sent 4,000 students). On campuses with fewer than 8,000 students, the research team has come up with several options to facilitate participation in both studies. We will be happy to speak with campuses about these options in more detail. To encourage participation in both studies, we offer a significant discount (see Section 9). For more information about HBS, visit: www.healthybodiesstudy.org


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Section 9. Participation Fee

Time expenditure by HMS Campus Coordinator: 10 Deadline: 3 months before HMS launch

How are the participation fees used? Participating in HMS is a short-term cost for a long-term gain, providing colleges and universities with the data needed to improve student well-being. Participation fees serve two purposes. Most participation fees feed back into the development of research, helping to expand and create enhancements within the Healthy Minds Network. This includes developing resources for schools and supporting the work of research study coordinators and web programmers. A small proportion of the participation fee goes towards the survey incentive. Submitting Payment Payment should be mail to the following address:

The University of Michigan Attn: Patrick Woods 3003 S. State St., 1st Floor Wolverine Tower Ann Arbor, MI 48109-1274

HMS: Participation Fee Structure The table below shows the breakdown of participation fees for HMS as a stand-alone survey. The fees are based on institutional size and type.

Type of institution Participation Fee Large colleges/universities (>15,000 students) $3,000 Medium-sized colleges/universities (5,000-14,999) $2,500 Small colleges/universities (<5,000) $2,000 Community colleges $500

HMS: Participation Fee Structure for Consortium Schools

Number of consortium schools Discount 5-9 colleges/universities 10% 10-14 colleges/universities 20% 15-19 colleges/universities 30% 20-24 colleges/universities 40% 25+ colleges/universities 50%

Pricing for Custom Items Up to 5 custom questions=$125.


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Adding 6 to 10 custom questions=$250. Custom items are available at no cost for community colleges. HMS and HBS: Participation Fee Structure Some schools may choose to participate in both HMS and HBS (the Healthy Bodies Study) (see Section 8). We strongly encourage colleges and universities to participate in both of national, survey-based studies. As such, we offer significant discounts to schools that enroll in both studies in the same academic year.

Type of institution Participation Fee for both studies Large colleges/universities (>15,000 students) $3,500 Medium-sized colleges/universities (5,000-14,999) $2,750 Small colleges/universities (<5,000) $2,250 Community colleges $600


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Section 10. Frequently Asked Questions Below are responses to several frequently asked questions. Q: Will the results from our school be made public? A: No, data specific to an individual school will not be published anywhere unless that school chooses to do so itself. Q: Can you re-survey students to look at changes over time? A: Yes, we plan on implementing this study annually so that we can track changes over time. In fact, we encourage you to pursue this option, as it will provide unique insights into your students, such as how transitory or lasting their mental health issues are. Q: Our students already receive so many surveys – won't this burden them further? A: Keep in mind that on most college campuses, only a subset of students will be sampled for HMS. The survey takes about 20 minutes for most respondents. Also, we hope you will agree with us that, of the many topics you could survey your students about, the topics covered in HMS are a top priority. Q: How will you maintain the confidentiality of individual students? A: Identifying information will only be used to recruit students to the survey. This information will then be stored securely and separately from the response data. Q: How will you handle cases where students respond that they are suicidal or have severe mental health issues? A: At the end of the survey, all respondents will receive a list of local mental health resources, which we will work with you to compile before we field the survey. Students who indicate suicidal thoughts in the recent past or screen positively for depression/anxiety will also receive a special note emphasizing the importance of getting in touch with one of the listed resources. Q: What is unique about this study? Are there others like it?

A: HMS is one of the only annual surveys of college/university populations that focuses exclusively on mental health and related issues, allowing for substantial detail in this area. The study has a special emphasis on understanding service utilization and help-seeking behavior, including factors such as stigma, knowledge, and the role of peers and other potential gatekeepers. The study also includes an option to examine how mental health symptoms predict academic outcomes (e.g., grade point average and retention), which can be translated into an economic case for mental health services and programs.


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Section 11. HMS Research Team

Daniel Eisenberg Co-Principal Investigator

Daniel is an Associate Professor of Health Management and Policy at University of Michigan and Director of the Healthy Minds Network. He completed a B.A. and Ph.D. in Economics at Stanford University and a postdoctoral traineeship in mental health services and policy research at University of California-Berkeley. His broad research goal is to improve understanding of how to invest effectively and efficiently in the mental health of young people. In recognition of his early career research, in 2010 he was awarded the Thompson Prize for Young Investigators by the Association of University Programs in Health Administration. He is the program director for his department’s Ph.D. program in Health Services Organization and Policy.

Sarah Ketchen Lipson Co- Investigator

Kathryn Beck Research Study Coordinator

Sarah is a joint degree doctoral candidate at University of Michigan, studying health management and policy at the School of Public Health and higher education at the School of Education. She is also Assistant Director of the Healthy Minds Network. Her research interests center around the mental health of adolescents and young adults, primarily among college student populations. She is particularly interested in epidemiological research and interventions to address eating disorders, depression, anxiety, and help-seeking. Sarah received her bachelor’s degree from Tufts University where she was awarded best honors thesis of the year and graduated with honors. She holds a master’s in higher education from Harvard University and received the School of Education’s Student Leadership Award. Sarah was also a Fulbright scholar before beginning her doctoral training. Kathryn Beck is a research study coordinator for the Healthy Minds Network. She is a MPH candidate at the University of Michigan School of Public Health focusing on Health Behavior and Health Education. Kathryn received her bachelor's degree from the University of Michigan, graduating with honors in Psychology. Kathryn has previously worked as a lab assistant in the Sleep and Chronophysiology Laboratory at the University of Michigan Comprehensive Depression Center and as an undergraduate research assistant at the Michigan Psychoneuroendocrinology Affective Laboratory under Dr. Nestor Lopez-Duran. Her research interests include young adult mental health, mental health service utilization, and motivational interviewing. As part of the Healthy Minds Network, she is the coordinator for the survey studies.


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Brandie Semma Research Study Coordinator

Mira Dalal Research Study Coordinator

Brandie Semma is a research study coordinator for the Healthy Minds Network. She is a graduate of the University of Michigan – Dearborn with a BA in Psychology. Brandie has previously worked as a Research Assistant at the University of Michigan Health System and as a Research Technician at the Inter-university Consortium for Political and Social Research. Her research interests include how to better model and explain latent variables, particularly in mental health and education. Brandie’s primary role is to coordinate the survey studies. Mira is a junior undergraduate student studying political science at the University of Michigan. She is interested in understanding how to design and implement effective governmental policies to ensure positive health outcomes, particularly in the developing world. She plans to attend a joint Masters of Public Health and Masters of Business Administration program after graduation. In the Healthy Minds Network, Mira primarily focuses on the community college surveys.


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Section 12. Forms Participation Contract When you are ready to sign the participation contract, we will email you a Microsoft Word version that you can easily print, sign, scan, and email to us. If your institution is participating in HMS under one of the partnership options, we will provide a slightly modified version of the contract shown here.

SERVICE AGREEMENT

This Service Agreement ("SA") is for use when The Regents of the University of Michigan ("UM") is providing any of the services, including but not limited to, consulting or testing services, as set forth in the Schedule(s) of Services a copy (or copies, as applicable) of which is attached hereto as Exhibit A for the party signing this SA (hereinafter "Customer"). It will become effective between UM and Customer on the date that Customer executes this unmodified SA. By its authorized signature below, Customer hereby agrees to the following terms and conditions: 1. The Customer may transfer to UM tangible research material for use under this SA ("Research Material"). 2. Any Research Material provided by Customer will be used by UM under the direction of Daniel Eisenberg solely to perform the services designated in Exhibit A to this SA (“Services”) the contents of which are expressly incorporated herein. All services performed hereunder shall utilize only methodologies, which are published or otherwise in the public domain. 3. Research Material furnished by Customer under this SA is and shall remain the sole and exclusive property of Customer. This SA and supply of such Research Material by Customer shall not be deemed to grant UM any rights, expressed or implied, in such Research Material. 4. The Customer certifies and represents that it has collected the Research Material and is making it available to UM in compliance with any applicable institutional review process and relevant laws and regulations. UM certifies it will use the Research Material only in conjunction with the Statement of Work designated in Exhibit A. 5. The Services designated in Exhibit A shall be provided in exchange for consideration of the amount listed in each Purchase Order or other written request issued by Customer in accordance with the rates established in Exhibit A and any subsequent updates of Exhibit A and payable by Customer to the Regents of the University of Michigan. Customer acknowledges that money paid


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under this Agreement will be comingled in a general fund and UM will not provide an accounting to Customer. PLEASE NOTE: Customer must provide a valid Purchase Order or other written authorization to commence performance of Services requested hereunder. The amount specified in the Purchase Order or written authorization must be sufficient to cover the total cost of the Services requested, as set forth in Exhibit B. Purchase Orders shall be sent to: The University of Michigan Attn: Patrick Woods 3003 S. State St., 1st Floor Wolverine Tower Ann Arbor, MI 48109-1274 734-764-8566 [email protected] Purchase Orders shall Reference: 13-PAF06577 Notwithstanding any terms and conditions to the contrary contained on any such Purchase Order or other written request, this Service Agreement constitutes the entire agreement of the parties and all terms and conditions contained on any such Purchase Order form or other written request issued pursuant to this SA are null and void. 6. Customer acknowledges that the Services are not performed under Good Laboratory Practices as that term is defined by federal regulations. Customer hereby assumes all risk associated with (i) the provision of Research Material(s), if any, to UM, (ii) performance of Services by UM and (iii) use of results of said Services by Customer and those obtaining such results from Customer. The parties hereby agree that with respect to any Service performed under this Agreement, the liability of UM under this SA is limited to the value of such Service performed as set forth in Exhibit A. 7. Customer shall comply with all applicable laws, rules and regulations applicable to the jurisdiction where the Research Materials and results of Services are in use, including all export and import laws and regulations and shall do nothing to cause UM to violate any such laws, rules and/or regulations. 8. The SA constitutes the entire agreement among the parties as relates to the terms and conditions applicable to the carrying out of the Services to be rendered by UM. 9. Research Materials will be used only for the purpose of the study as stated in this SA. UM assures Customer that the study will be conducted in a manner that does not permit personal identification of parents or students by individuals other than UM employees or contractors with a need to know for the purposes of conducting the Services under this SA. UM shall destroy personally identifiable information disclosed by Customer when that information is no longer needed for study purposes or after three years, whichever comes first, and shall provide Customer with written confirmation when destruction has taken place. Customer will provide UM with the following personally identifiable data points: first name, last name, email address, date of birth, race/ethnicity, sex, undergraduate or graduate student, international student or U.S. citizen/permanent resident, grade point average, in-State vs. out-of-State resident, field of study or degree, and year in school program.


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10. Customer shall not use the information contained in the dataset referred to in Exhibit A to identify the individuals whose information is contained in the Research Materials, nor to contact them under any circumstances. 11. This SA shall be effective at the last date of signature, and shall remain effective for a period of one (1) year or until the results are provided to Customer, whichever comes last. The SA may only be amended or extended by a written amendment signed by both parties. AGREED: Company/Organization/Institution/Customer Legal Name: _______________________ Date: _________ __________________________________________ Customer's Authorized Official's Name, Title and Signature Customer's Mailing Address (MUST be provided): ___________________________ ___________________________ ___________________________ ___________________________ Regents of the University of Michigan Date: _________ _______________________________________


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EXHIBIT A [Description of Services] The following services will be provided by the study team headed by Daniel Eisenberg at UM. 1. The study team will provide administrative assistance and support to the Customer throughout

the administration and implementation of the survey. Assistance and support includes answering questions about the survey and survey process, as well as advising and providing help with completing and submitting study materials. Study materials include signed contract, student sample file, study approval (i.e. IRB, Ethics Board, etc.), and survey customizations.

2. The Customer is to provide the study team with proof of study approval from their Institutional Review Board (IRB) or Ethics Board, or proof of exemption before any data collection can occur.

3. The Customer has the opportunity to add no more than ten custom questions to the survey for an extra fee.

4. The Customer is to provide the study team with a data collection sample file in the format

requested by the study team no later than two weeks prior to any data collection.

5. The study team will then administer the Healthy Minds Study, a web-based survey, if all study materials have been submitted by the Customer. The survey will be administered between the months of September 2014 and May 2015, starting on a date decided upon by the study team and the Customer.

6. The study team will provide technological support for the survey during data collection.

7. Upon completion of the survey, the Customer will receive a dataset of all de-identified survey responses. The Customer will also receive an electronic report of the findings from both school participants at the Customer’s school and the aggregate findings for all participating schools, as well as five professionally printed, color reports.

8. The Customer will have access to the Interactive Data Interface, operated by the study team, to further explore their data.


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EXHIBIT B [Budget and Payment Schedule] The participation fee is due by __________

Type of institution Participation Fee Large colleges/universities (>15,000 students) $3,000 Medium-sized colleges/universities (5,000-14,999) $2,500 Small colleges/universities (<5,000) $2,000 Community colleges $500

Pricing for Custom Items Up to 5 custom questions=$125. Adding 6 to 10 custom questions=$250. Custom items are available at no cost for community colleges.


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U-M IRB Approval Letter


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[Letter of Non-Engagement from U-M IRB]


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Consent Form You have been randomly selected to participate in this online survey from a list of all current undergraduate and graduate students at [name of school]. Participation is completely voluntary and responses are strictly confidential.

• Who is doing this study?

This study is a partnership between [name of school] and the Healthy Minds research team, headed by PI Daniel Eisenberg, PhD, Associate Professor at the University of Michigan School of Public Health.

• Why are you doing this research?

We are trying to better understand issues related to undergraduate and graduate students’ well-being, sources of support, use of alcohol and other drugs, and mental and emotional health. This study is important to furthering knowledge about how students are handling the stresses of university life and how well their mental and emotional health needs are being met. We will provide the results (without any individually identifiable information) to school administrators and other campus community members to help them think about how to improve student life. Results will help to inform administrators on what these issues look like at your school, as well as undergraduate and graduate student populations nationwide.

• What will taking this survey be like?

The survey takes 15-20 minutes for most students to complete, though it may take less or more time for some students. You must be 18 or older to take this survey. You will be asked questions about your moods and emotions, mental health and emotional issues you have experienced, use of alcohol and other drugs, support you may or may not have received, and your academic life. While in the survey, you will be able to stop at any time by closing your browser. You may then return to the questionnaire later. All responses you had entered and submitted will be saved.

• Who will benefit from my participation in this research?

We expect this research to be used to improve student life, so students at your school and nationwide may ultimately benefit from the knowledge obtained in this study.

• How does the cash sweepstakes work?

Regardless of your participation in the survey, you will be entered into a sweepstakes to be conducted for cash prizes (you have the opportunity to win one of ten $100 prizes and two $500 prizes). The drawing will be conducted in June 2015 by the Healthy Minds Study research team at the University of Michigan School of Public Health in Ann Arbor, MI. The chance of winning a prize is approximately 1 in 20,000. Winners will be notified by email.

• What are the risks associated with my participation?

Some of the questions will ask you about sensitive or personal information such as your emotional health or use of alcohol and other drugs. These questions might make you feel uncomfortable or anxious. To mitigate this risk of discomfort, you can skip any questions you do not want to answer. Also, at the conclusion of the survey you will receive a list of resources on campus that can provide you with help and support. Two of these resources can also be found in the corner of each page of the survey. If responding to any questions makes you feel worried or unhappy, we urge you to call any of the resources listed. Your participation is voluntary – your refusal to participate will involve no penalty of any sort. You may discontinue participation at any time.

• How will my privacy and confidentiality be protected?


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This survey was designed to protect your privacy and confidentiality. For all randomly selected students at your institution, the [name of school] Registrar’s Office provided basic information necessary to administer the study (name, email address) and to conduct non-response analyses (date of birth, gender, race/ethnicity, citizenship, degree program, year in program, and grade point average). Your name or other identifiable information (e.g. email) will not be attached to any survey data. Any information that you provide in the survey will be stored in a file that is separate from your name, email address, or any other identifiable information. The data from this study, without any identifiable information, will be retained in a secure repository by the Healthy Minds Study research team for future research purposes. Any reports or articles written about this survey will describe the data in the aggregate (as a whole) and will contain no information that could allow someone to identify you. Participating institutions will not be given access to individually identifiable survey data. Records will be kept confidential to the extent provided by federal, state, and local law. However, the Institutional Review Board or university officials responsible for monitoring this study may inspect these records.

To provide additional protections to your privacy, we have obtained a Certificate of Confidentiality from the National Institutes of Health. With this Certificate, the researchers cannot be forced to disclose information that may identify you, even by a court subpoena, in any federal, state, or local civil, criminal, administrative, legislative, or other proceedings. The researchers will use the Certificate to resist any demands for information that would identify you. You should understand that a Certificate of Confidentiality does not prevent you or a member of your family from voluntarily releasing information about yourself or your involvement in this research. If an insurer, employer, or other person obtains your written consent to receive research information, then the researchers may not use the Certificate to withhold that information.

• Other notes about this study

Please note that we might access academic records of students who agree to participate in the survey. We will do this only if your institution decides to conduct an analysis of how the measures from the survey correlate with academic outcomes. In this case, we will use the academic data, stripped of any identifying information, solely for the purpose of this research analysis. The aim of this analysis would be to gain knowledge about how to promote successful academic outcomes. We will protect the confidentiality of these records using the measures described in this document.

Consistent with the Family Educational Rights and Privacy Act, we have collected from your school the following information: first name, last name, email address, date of birth, race/ethnicity, sex, undergraduate or graduate student, international student/U.S. citizen or permanent resident, GPA, in-state vs. out-of-state resident, field of study or degree, and year in school or program. This information will be used to calculate nonresponse bias in cases where a student decides to not participate in the study as well as allow the study team to contact you for future research. If you participate in the Healthy Minds Study, you may be contacted again within three years for one or more follow-up surveys on similar topics. Participating in the current survey does not obligate you in any way to participate in the future. After three years, all identifiable information will be destroyed.

• What if I have questions about the survey?

If you have questions about this research, the survey questions, or this consent process, you can contact the research team at [email protected] or (734) 936-1321. You may also contact the PI of this study, Daniel Eisenberg at [email protected] or (734) 615-7764, or the local PI, [local contact name, email address, phone].

If you have questions about your rights as a research participant, or wish to obtain information, ask questions or discuss any concerns about this study with someone other than the researcher(s), please contact the University of Michigan Health Sciences and Behavioral Sciences Institutional Review Board, 540 E. Liberty St., Suite 202, Ann Arbor, MI 48104-2210, (734) 936-0933 [or toll free, (866) 936-0933], [email protected].

By clicking “CONTINUE”, you are agreeing to participate.




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Yes, I am at least 18 years old and I consent to participate in this study.

No, I do not wish to participate in this study and understand that there is no penalty for not participating.


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Recruitment/Reminder Emails Email #1: Pre-notification FROM: healthyminds@[school].edu REPLY TO: [email protected] SUBJECT: Announcing The Healthy Minds Study at [name of school] Hello [name], [name of school] is conducting a campus-wide survey about mental health and wellness, called The Healthy Minds Study. You have been randomly selected to participate in this confidential online study. The Healthy Minds Study was designed specifically for colleges and universities, and its success depends on gathering the diverse perspectives of students across campus – therefore your participation is key. By participating, you will be providing [name of school] with valuable information that will improve student life. You will receive more information in the coming days including a link to the online survey. Thank you for considering this important study! [local contact person’s name, affiliation, email address] The Healthy Minds Study Team University of Michigan [email protected] Email #2: Recruitment FROM: healthyminds@[school].edu REPLY TO: [email protected] SUBJECT: Participate in The Healthy Minds Study Hello [name], [name of school] is conducting a campus-wide survey about mental health and wellness, called The Healthy Minds Study. You have been randomly selected to participate and we’re excited to hear from you. The purpose of this confidential study is to understand the student perspective on handling the stresses of university life, their use of alcohol and other drugs, and how well mental and emotional health needs are being met. By participating, you will be providing [name of school] with valuable information that will improve student life.


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The online survey takes about 20 minutes to complete – a perfect study break! Plus you will be entered into a sweepstakes for cash prizes totaling $2,000. To participate now, follow the link below: [unique survey link] The Healthy Minds Study was designed specifically for colleges and universities, and its success depends on gathering the diverse perspectives of students across campus – therefore your participation is key. Please take the time to complete this important survey. Thanks in advance for your participation! [local contact person’s name, affiliation, email address] The Healthy Minds Study Team University of Michigan [email protected] Is this survey confidential? The Healthy Minds Study was designed to protect your privacy and confidentiality. Your name and personal information will not be attached to any data. Further information is provided at the survey link above. What if I have questions about the survey? If you have any questions, comments or concerns, you can contact the researchers at [email protected]. You may also contact the principal investigator of this study, Daniel Eisenberg, at [email protected] or 734-615-7764, or [local contact name, title, email, and phone number]. If you do not wish to participate in or receive future reminder emails related to this survey, please follow the link above, and click “No” on the first page or email us at [email protected]

www.healthymindsnetwork.org

Email #3a: Reminder #1 Subject: [name], share your perspective about mental health and wellness at [name of school]! Hello [name], As you know, [name of school] is conducting a campus-wide survey about mental health and wellness, called The Healthy Minds Study. You have been randomly selected to participate and we hope you’ll consider sharing your perspective by taking 20 minutes to complete the confidential online survey. You will be entered into a sweepstakes for cash prizes totaling $2,000! To participate now, follow the link below:


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[unique survey link] By participating in this survey, you will be providing [name of school] with valuable information that will improve student life. Thanks in advance for your participation! [local contact person’s name, affiliation, email address] The Healthy Minds Study Team University of Michigan [email protected] Is this survey confidential? The Healthy Minds Study was designed to protect your privacy and confidentiality. Your name and personal information will not be attached to any data. Further information is provided at the survey link above. What if I have questions about the survey? If you have any questions, comments or concerns, you can contact the researchers at [email protected]. You may also contact the principal investigator of this study, Daniel Eisenberg, at [email protected] or 734-615-7764, or [local contact name, title, email, and phone number]. If you do not wish to participate in or receive future reminder emails related to this survey, please follow the link above, and click “No” on the first page or email us at [email protected]

www.healthymindsnetwork.org Email #4a: Reminder #2 Subject: [name], your participation is needed in The Healthy Minds Study! Hello [name], There’s just 1 week left to participate in The Healthy Minds Study, the campus-wide survey of mental health and wellness at [name of school]. We have had a great response thus far from your fellow students bringing us just short of our participation goal! We need your perspective and hope that you will take 20 minutes to complete the confidential online survey! By doing so you will be providing [name of school] with valuable information that will improve student life. Plus you will be entered into a sweepstakes for cash prizes totaling $2,000! To participate now, follow the link below:


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[unique survey link] Thank you, [name]! [local contact person’s name, affiliation, email address] The Healthy Minds Study Team University of Michigan [email protected] Is this survey confidential? The Healthy Minds Study was designed to protect your privacy and confidentiality. Your name and personal information will not be attached to any data. Further information is provided at the survey link above. What if I have questions about the survey? If you have any questions, comments or concerns, you can contact the researchers at [email protected]. You may also contact the principal investigator of this study, Daniel Eisenberg, at [email protected] or 734-615-7764, or [local contact name, title, email, and phone number]. If you do not wish to participate in or receive future reminder emails related to this survey, please follow the link above, and click “No” on the first page or email us at [email protected]


Email #5a: Final reminder Subject: [name], just 1 day left to participate in The Healthy Minds Study! Hello [name], There’s just ONE DAY left to participate in The Healthy Minds Study. We have had a great response thus far from your fellow students and with your participation we know we can reach our participation goal! We need your perspective to get a more representative picture of the student population, so that we can improve services and programs. We hope that you will take 20 minutes to complete the confidential online survey! Plus you will be entered into a sweepstakes for cash prizes totaling $2,000! To participate now, follow the link below: [unique survey link]


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The survey will be open through [time] on [day of the week], [month, day, year]. This is the final reminder email. We hope you will take the time to participate in this important study. By doing so you will be providing [name of school] with valuable information that will improve student life. Thanks in advance for your participation! [local contact person’s name, affiliation, email address] The Healthy Minds Study Team University of Michigan [email protected] Is this survey confidential? The Healthy Minds Study was designed to protect your privacy and confidentiality. Your name and personal information will not be attached to any data. Further information is provided at the survey link above. What if I have questions about the survey? If you have any questions, comments or concerns, you can contact the researchers at [email protected]. You may also contact the principal investigator of this study, Daniel Eisenberg, at [email protected] or 734-615-7764, or [local contact name, title, email, and phone number]. If you do not wish to participate in or receive future reminder emails related to this survey, please follow the link above, and click “No” on the first page or email us at [email protected]




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Survey Endings [SURVEY ENDING #1: CONSENT/ASSENT NOT GRANTED] Because you have not [consented/assented] to complete the survey you may now close your browser. [name of school] Counseling Center [Counseling Center Address] [Counseling Center Phone] [Counseling Center Website]

If you would like to learn more about the Healthy Minds Study, you can visit www.healthymindsnetwork.org/hms.

[SURVEY ENDING #2: NEGATIVE SCREEN FOR A MENTEAL ILLNESS]

Thank you for completing the Healthy Minds Study! Your participation in this survey will help inform programs and resources for [name of school] students. We also hope that taking this survey has been a valuable experience for you. As stated before you began the survey, all of your responses will remain confidential. To provide feedback about this survey, please email the researchers at [email protected] or [local contact information]. [name of school] Counseling Center [Counseling Center Address] [Counseling Center Phone] [Counseling Center Website]


[SURVEY ENDING #3: SUICIDAL IDEATION INDICATED]

Thank you for completing the Healthy Minds Study! Your participation in this survey will help inform programs and resources for [name of school] students. As stated before you began the survey, all of your responses will remain confidential. Because you indicated that you have had suicidal thoughts or attempts in the past year, we are especially concerned about whether you are receiving support you may need. We strongly urge you to contact one of the resources shown below if you are not already receiving help. If you address your concerns now, rather than waiting, this can make a big difference for your health and well-being in the long run. National Suicide Prevention Lifeline


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Phone: 1-800-273-TALK Website: http://www.suicidepreventionlifeline.org/ [name of school] Counseling Center [Counseling Center Address] [Counseling Center Phone] [Counseling Center Website] To provide feedback about this survey, please email the researchers at [email protected] or [local contact information].



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