self-management for life my condition, my life
DESCRIPTION
Explore how self management empowers people of all ages to live well with a long term condition. Improving how our systems, services and how communities connect can make a real difference to living well at all stages of life.TRANSCRIPT
Self Management for Life: My Condition, My LifeNHS Annual ConferenceAugust 2011
LTCAS and Self Management
Jen McColeGrants Development Officer
Overview
• LTCAS
• Self Management Fund
• Self Management good practice examples
• LTCAS new developments
What is LTCAS?
• Umbrella body for third sector organisations supporting those living with an LTC
• 40% of population live with one or more LTC
LTCAS: What do we do?
“Our vision is for a Scotland where people with long term conditions enjoy, not endure, full and positive lives, free from discrimination and supported by access to high quality services, information and support.”
LTCAS: What do we do?
• Represent views of members.
• Strategic partner of Scottish Government.
• Support and strengthen organisations that support people living with LTCs.
• Manage the Self Management Fund for Scotland.
What is Self Management?
• Specific to the individual
• Person centred approach leading to empowerment - person has control over life and condition management
• Not about “going it alone”
• Recognises that the medical aspects only forms part of life with a condition.
Self Management Fund
• Support ‘Good Practice’
• Support existing work
• Develop new ways of working
Self Management Fund
• 81 Projects
• £4 million
• Conditions
• Approaches
• Resources
Parkinson’s UK
• Support and research.
• Lived Experiences become inspiration for funding.
• Joint Working
• Outcomes
‘‘In the 25 years since Mel was diagnosed, I could count on one hand the nights I’d had a good’ sleep’’- Jean Ballantyne
‘I have learnt so much about the effects of lack of good sleep for people living with Parkinson’s and their families- it was invaluable to be there from the start’ – Consultant
Evaluation• Evaluation to demonstrate: -Value of cross sector partnerships
-Improved outcomes for statutory and voluntary sector and those living with LTCs.
• Final evaluation
• Special reports
Awareness Raising
• My Condition, My Terms, My Life, educating the public about Self management
• Current work: professionals
www.myconditionmylife.org
LTCAS: Current Work
• Development Fund and new SM Fund
• Life Changes Fund
• SMC project
• LTCAS events: Health and social care conference, Self Management Week
• Policy and Campaigns
Reshaping Care for Older People
Community Capacity Building& Co-production
Community Capacity Building (CCB)
• Community capacity building is one of the twin pillars of community development, the other pillar being community engagement. Community capacity building involves activities, resources and support that strengthen the skills, abilities and confidence of people and community groups to take effective action and leading roles in the development of communities.
Adapted from Scottish Community Development Centre
Coproduction (CP)
• “Delivering public services in an equal and reciprocal relationship between professionals, people using services, their families and their neighbours. Where activities are co-produced in this way, both services and neighbourhoods become far more effective agents of change.”
National Endowment for Science, Technology & the Arts (NESTA)& New Economics Foundation (NEF)
Reshaping Care for Older People ‘Change Fund’
• £70 million 2011/2012– expected circa £300 million over 4 years• Bridging finance to lever improvement across the entirety of older
people’s spend in health and social care across 32 health and social care partnerships
• Partnership planning process – Health, Local Government and now Third and Independent sectors too
• A Programme for Change – 10 year Delivery Plan www.scotland.gov.uk/Topics/Health/care/reshaping/programmeforchange
• Delivery Plan Volume 2 – funding and demographic projections for future years, Autumn 2011
• 2011/12 development of Joint Commissioning Strategies (to 2020)
Existing example: SHINE in Fife• “The project will intentionally design a micro-market for highly tailored care
packages for frail and vulnerable older people in their communities provided by independent micro-enterprises. It will provide “proof of concept” to convince staff that radically different models of community care can work.”
Existing example: Perth & Kinross Healthy Communities Collaborative
• “The Healthy Communities Collaborative is such a good idea. A small number of professionals working in
partnership with unlimited numbers of volunteers, so that older people can stay fitter and healthier for longer,
has to be good”
Contact Details• Andrew Jackson
• [email protected]• 0131 244 5424
• Gerry Power• [email protected]• 0131 244 2374
• www.jitscotland.org.uk/action-areas/reshaping-care-for-older-people/community-capacity-building
Information to support self management
• NHS Inform– quality assured health information
• ALISS – local resources, citizens informing and supporting each other. Promote mutuality by encouraging self supporting communities
Next steps• ALISS technical model tested and working
• Future management with LTCAS
• Build on synergies with others:– Information Partnership – Macmillan– NESTA, IRISS, Local Libraries, NHS Inform
• Local and national assets already being added to ALISS Engine
• GG&C eHealth project to develop tools
Deep End Reports
“ additional services could be made known to patients…., if primary care staff were better informed about what is available locally.”
Key intervention: An internet directory of community resources: if user friendly, locally relevant and kept up to date.
http://www.rcgp.org.uk/college_locations/rcgp_scotland/initiatives/health_inequalities.aspx
Links ProjectConnecting primary care and
communities
• Learn how pc teams find, understand and use local resources
• Is there a need to improve connections between pc and local communities?
• Are pc teams interested in accessing local support if available?
• Identify processes - training/time/skills required
• Report on key learning points• Link with ALISS
Aims of Links Project
Method
• Short time scale – 5 months to test idea
• 6 primary care practices in Glasgow – all in deprived areas
• 4 from Fife – mix of populations
• Data collection supported by LTCC
• Clinical lead for each group
38
Early findings
• Enthusiasm and interest
• Surprise at amount of community support, formal and informal
• Face to face connections, personal relationships important
• Role for ALISS obvious – staff need easy, quick way to find local support, eg during consultation
ALISSFurther information
web: http://www.aliss.org twitter: @ALISSproject