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Shared Decision Making An Overview of Knowledge, Policy and Quality Measurement Michael J. Barry, MD President March 2, 2011 Medical Directors Meeting

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Shared Decision MakingAn Overview of Knowledge,

Policy and Quality Measurement

Michael J. Barry, MDPresident

March 2, 2011

Medical Directors Meeting

ABOUT US

We Believe Patients Should Be

State of our knowledge: the problem

State of our knowledge: the problem

Variation PictureEssentially Unchanged

Medical Practice Variation40 Years of Research

Documenting Inconsistent Care

The DECISIONS Study

A Portrait of How Americans Make Common Medical

Decisions

Mick Couper & ColleaguesInstitute for Social ResearchUniversity of Michigan

The DECISIONS StudyTelephone survey of a national, representative sample of 3,010 Americans age 40+

Surgery– Back surgery– knee/hip replacement– cataract extraction

Cancer screening– Prostate– Colorectal– Breast

Medications– Hypertension– Hyperlipidemia– Depression

What Have We Learned?

• Lack of balanced representation of risk (cons)• Patient opinion often unacknowledged• Physician recommendation trumps decision

process• Knowledge scores quite concerning

Poor Decision QualityPoor Decision Quality

Patients: Making Decisions in

the Face of Avoidable

Ignorance

Clinicians: Poorly “Diagnosing” Patients’ Preferences

State of our knowledge: the solution

State of our knowledge: the solution

The Evidence Strengthens

SDM supported by patient decision aids improves decision quality

Both patients and physicians support SDM

Implementation models are demonstrating that SDM can work “in the trenches”

O’Connor et al. Cochrane Database of

Systematic Reviews, 2009

Funded Demonstration Sites Primary Care Specialty Care

Massachusetts General Hospital X

University of North Carolina X

Maine Health X

Mercy Clinics Inc. X

Stillwater Medical Group X

Oregon Rural Practice Based Research Network X

Palo Alto Medical Research Foundation X

Group Health Cooperative X X

University of Washington X X

Allegheny General Hospital - Breast Center X

University of California San Francisco - Breast Center X

Dartmouth Hitchcock Medical Center (DHMC) - Breast Center X

DHMC - Urology X

DHMC - Orthopedics X

DHMC - Spine Center X

DHMC - Cardiology X

Policy TrendsPolicy Trends

Shared Decision Making Policy Adoption TrendsShared Decision Making Policy Adoption Trends

“As we have more and more evidence about how complex health and health care are, the need is growing exponentially for thoughtful, careful assessment by patients, working with their doctors and with access to evidence through shared decision making tools.”

Alliance for Health Reform Capitol Hill Briefing on Shared Decision MakingFebruary 14, 2011

Helen Darling

Patient Protection and Affordable Care Act

HR3590 Section 936Program to Facilitate Shared Decision Making To facilitate collaborative process between patients and

providers .. and to incorporate patient preferences and values into medical plan

Authorized not AppropriatedAuthorized not Appropriated

Key Aspects of PPACA Section 936

1. Produce patient decision aids2. Set quality standards and certify decision aids3. Create Shared Decision Making Resource Centers4. Grant funds to providers for development, use and

assessment of SDM techniques using certified decision aids

Quality MeasurementQuality Measurement

Decision QualityKey Constructs:• Patient knows there is a decision to be made• Patient knows the reasonable options• Patient learns about pros and cons of each

option• Patient goals and concerns are part of the

decision process

Policy to Support Quality Standards

• Patient Centered Medical Home• Medical “neighborhoods”/ACOs• NQF Eight Priority Areas• CAHPS• Patient Decision Aid Certification• Meaningful Use and HIT• Leapfrog Group

The Role of Health PlansThe Role of Health Plans

For Consideration

• Support use of certified patient decision support tools

• Collaborate on quality measurement• Create innovative benefit design to include

shared decision making

Thank You!

[email protected]

www.informedmedicaldecisions.org