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Diabetes Advocacyand Legislation

Shereen ArentExecutive Vice PresidentGovernment Affairs and Advocacy

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Advocacy Goals• Increase federal and state funding for

diabetes prevention, treatment and research

• Prevent diabetes

• Improve the availability of accessible, adequate and affordable health care

• End the discrimination people with diabetes face at school, work, and elsewhere in their lives

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• NIH National Institute of Diabetes and Digestive and Kidney Diseases

• CDC Division of Diabetes Translation

• Special Diabetes Programs

• National Diabetes Prevention Program

Federal Funding for Diabetes Research and Programs

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Health Care Reform:What it Means for People with Diabetes

• Ends discrimination

• People with diabetes can't use up their insurance or have it taken away when they need it most

• Limits on out-of-pocket costs for all and an array of help for low and moderate income people with diabetes

• New focus on primary prevention

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Health Care Reform: Getting the Word Out

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Health Care Reform: Defense

• Congress

• States

• Courts

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•Coverage for kids and young adults

•Exchanges•Essential Health Benefits•Prevention

Health Care Reform: Implementation

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• Medicare• Medicaid• Diabetes Cost

Reduction Acts

Health Care: Offense and Defense

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• Screening– Medicare– United States Preventive

Services Task Force– Diabetes in Pregnancy

• National Diabetes Prevention Program

Primary Prevention: Those at High Risk for Diabetes

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• National focus on childhood obesity

• Healthy, Hunger-Free Kids Act• FIT Kids Act• State school nutrition and

physical education legislation

Primary Prevention: Looking Upstream

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• Eliminating Disparities in Diabetes Prevention, Access and Care Act

• The Gestational Diabetes Act of 2011• The Diabetes Screening and Medicaid Savings Act

Disparities and Diabetes

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• Funding• Stem Cell Research

– Expansion– Defense

Fostering Science: Prevention, Better Treatments, Cure

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Fighting Discrimination

• Schools and Day Care Centers• Employment• Correctional Institutions• Public Accommodations

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Discrimination on the Job

• Too sick but not sick enough:The Americans with DisabilitiesAct Amendments Act• Blanket bans:

no one with diabetes need apply• Reasonable accommodations

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Discrimination at School

•Letting kids who able to manage their diabetes•Someone who can help with daily care and in an emergency•Preventing segregation

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Discrimination at School

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Discrimination at School:The California Story

•One school nurse for every 2200 students

•Sick kids, kids on long-outdated treatment regimens, parents losing their jobs

•Diabetes experts, the United States Departments of Justice and Education, the California Department of Education, civil rights groups, California School Boards Association

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More InformationExperts, Resources and Other Information for Journalists:•Call 1-800-DIABETES and ask for the Communications Division•Email media@diabetes.org•Social media information:

• www.Facebook.com/AmericanDiabetesAssociation• @AmDiabetesAssn• www.diabetesstopshere.org

Information for the Public:•1-800-DIABETES•www.diabetes.org •www.stopdiabetes.com