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South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria, South Africa April 2, 2009

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Page 1: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

South Africa: Lessons Learned from Private Sector Initiatives

Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in

AfricaPretoria, South Africa

April 2, 2009

Page 2: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Country Context and Status

Source: www.unaids.org

Page 3: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Country Context and StatusHIV prevalence amongst public antenatal clinic attendees

(DOH)2000 2001 2002 2003 2004 2005 2006

2007

Eastern Cape 20.2 21.7 23.6 27.1 28.0 29.5 28.6

26.0

Free State 27.9 30.1 28.8 30.1 29.5 30.3 31.1

33.5

Gauteng 29.4 29.8 31.6 29.6 33.1 32.4 30.8

30.3

KwaZulu Natal 36.2 33.5 36.5 37.5 40.7 39.1 39.1

37.4

Limpopo 13.2 14.5 15.6 17.5 19.3 21.5 20.6

18.5

Mpumalanga 29.7 29.2 28.6 32.6 30.8 34.8 32.1

32.0

Northern Cape 11.2 15.9 15.1 16.7 17.6 18.5 15.6

16.1

North West 22.9 25.2 26.2 29.9 26.7 31.8 29.0

29.0

Western Cape 8.7 8.6 12.4 13.1 15.4 15.7 15.1

12.6

RSA 24.5 24.8 26.5 27.9 29.5 30.2 29.1 28.0

Current national prevalence: 18.8%

Source: NATIONAL HIV AND SYPHILIS PREVALENCE SURVEY SOUTH AFRICA 2007 © National Department of Health 2008

Page 4: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Country Context and Status April 1994

1st democratic elections held in South Africa. October 1998

Deputy President Thabo Mbeki makes the Declaration of Partnership Against AIDS, in which he calls for an end to discrimination against people living with HIV.

Less than 2 months later Gugu Dlamini, an AIDS activist in Durban, is beaten

to death by her neighbors after declaring that she is HIV-positive on World AIDS Day.

From: http://www.avert.org/aidssouthafrica.htm

Page 5: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Country Context and Status

2002 A study reveals that only one third of

respondents who had revealed their HIV-positive status were met with a positive response in their communities. One in ten say that they had been met with outright hostility and rejection.

2005 "Let us give publicity to HIV/AIDS and not hide it,

because [that is] the only way to make it appear like a normal illness.“ Nelson Mandela after the death of his son due to AIDS.

Page 6: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Policy Framework for Responding to Stigma and Discrimination

Legislation Labour Relations Act (No.66 of 1995)

The Labour Relations Act protects employees against unfair dismissal.

Employment Equity Act (No.55 of 1998) This Act ensures that all employees are treated

equally and that there is no discrimination in the workplace. 

Basic Conditions of Employment Act (No.75 of 1997) This Act sets standards for employers on how many

hours an employee may work in a week and how much leave they are allowed to have. 

Page 7: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Policy Framework for Responding to Stigma and Discrimination

Promotion of Equality and Prevention of Unfair Discrimination (No.4 of 2000)

The Promotion of Equality and Prevention of Unfair Discrimination Act also sees to it that there is no unfair discrimination in the workplace.

Occupational Health and Safety Act (No. 85 of 1993)

An employer is obliged to ensure that the risk of occupational exposure to HIV is minimized as far as is possible.

Compensation for Occupational Injuries and Disease Act (No.130 of 1993)

Page 8: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Policy Framework for Responding to Stigma and Discrimination

Department of Health: Comprehensive HIV and AIDS Care,

Management and TreatmentPlan for South Africa

Training manual - Operational plan for comprehensive HIV and AIDS care, management and treatment for South Africa

HIV and AIDS and STI Strategic Plan for South Africa, 2007-2011

Operational Plan for Comprehensive HIV and AIDS Care, Management and Treatment for South Africa

National Antiretroviral Treatment Guidelines Monitoring and Evaluation Framework

Page 9: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Policy Framework for Responding to Stigma and Discrimination

Department of Labour: Code of Good Practice on Aspects of

HIV/AIDS Employment HIV/AIDS Technical Assistance

Guidelines Private Sector:

Global Business Coalition on HIV/AIDS, Tuberculosis and Malaria  

South African Business Coalition on HIV/AIDS

Sector initiatives

Page 10: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Intro to CareWorks

The CareWorks Group: HIV Management

Workplace programs (private sector) Focus predominantly on mobile males (construction, transport, mining)

Treatment programs PEPFAR partner Focus

CareWorks Training Change management specialists Diversity

CareWorks Africa 15 countries’ industrialization funds (EFP) as partners Objective: Deliver all CareWorks solutions into Africa

Page 11: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Enrol HIV +

ARV adherence“Keep the positives healthy and productive”

“Keep the negatives negative”

Page 12: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Objectives Of HIV Management in the Private Sector

Reduce Stigma & Discrimination

Prevent Transmission (Prevention strategy)

Prolong Productivity (Treatment strategy)

Page 13: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

What makes our approach work? Passion Plan Objectives driven and aligned Measured (good data) Involvement of HIV Positive People Multi-disciplinary approach Business experience … BUT… CARE WORKS!

Page 14: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Can it be achieved in the Private Sector?

% HIV Prevalence 15.5% 8.5%

% Staff trained in HIV 100% 100%

% staff tested 91% 88%

% of HIV+ on Treatment Program

99% 90%

% of those on ARVs that are adherent

90% 80%

% disclosed to company 100% +80%

Change in prevalence over 4 years

.08% Data NA

Page 15: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Programs and Interventions to address Stigma and Discrimination

Key approaches/strategies used to implement program/intervention?

Broad strategy (long term)

Create reasonable, deliverable expectations – align objectives

Leadership active commitment (CEO, Unions, managers) Policy (formulation, promotion and implementation /

adherence management) KAPB surveys (baseline and focus) Good knowledge and understanding for all (combat

myths and ignorance) Process vs. events Ongoing focus… (WPEs / steer com / reporting /

communications / support and involvement of HIV+ (PLWHAs) etc.)

Page 16: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Programs and Interventions to address Stigma and Discrimination

Episodes (short term) Focus groups Organizational culture Counseling Diversity (racism / gender…) Disciplinary action

Page 17: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Programs and Interventions to address Stigma and Discrimination

Who are the target groups? All employees Communities

Who are the key partners? Senior management Unions Line management WPEs PLWHAs

Page 18: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Programs and Interventions to address Stigma and Discrimination

Response from a client?“We embarked on an intensive HIV/AIDS program

nine years ago with the assistance of CareWorks. It definitely was not an easy task, but today we are very thankful that we went that route. Our employees share our dream: stopping new infections, encouraging all staff members to know their status and to encourage infected employees to receive the treatment offered.”

Marlene Cronje, Human Resources Director, Power Construction

Page 19: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Challenges and Gaps

Challenges and gaps Syndromic – finding the problem through

WPEs KAP Results!

Understanding Change Management process

Page 20: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Lessons learnt in the private sector

Remain focused on program objectives Management’s active commitment is imperative Always include Trade Unions (where represented) HIV/AIDS should be a strategic priority Education and focus must be ongoing. This provides the

platform to address stigma and discrimination within the content of the intervention

Involve a PLWHA (not at the beginning of the program, rather towards the Testing phase)

Aim for disclosure in a secure environment

Page 21: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

Lessons learnt in the private sector

Establish an effective Steering Committee to manage and oversee the program

Ensure senior management and union representation Train the Steering Committee members in policy

matters and how to deal with stigma and discrimination issues

Address any form of stigma and discrimination immediately and seriously. If not, it could lead to failure of program and even labor unrest

Page 22: South Africa: Lessons Learned from Private Sector Initiatives Regional Videoconference: Addressing Stigma and Discrimination of HIV/AIDS in Africa Pretoria,

The Way Forward Develop standard measurement

criteria and tools Continue learning, recording and

sharingThank you!

[email protected]

+27 21 673-5300