Strategies for Engaging with Patients/Populations

Annette Browne, PhD, RNProfessor, University of British Columbia

School of Nursing

2014 CPHA Workshop, Montreal, 9-May-2014

Partnership-Based Research

Examples from Multiple Research Programs

Public Health Nurses and ‘High Priority Families’(Macleod, Browne, Doane)

“EQUIP”:Intervention

Research to Equip Primary Health Care

for Equity(Browne, Varcoe, Ford-Gilboe.

Smye, Wathen et al)

Aboriginal Women’s Health

Intervention(Varcoe, Browne, Ford-Gilboe)

Supporting Patient-Oriented Research

(SPOR)(Wong, et al)

First Nations Women’s Health Care Experiences

(Browne)

Urban Aboriginal Health Centres

(UAHC)(Browne, Varcoe, Wong, Smye,

Lavoie, Krause, Godwin)

Emergency Use for “Non-Urgent”

Needs(Browne, Smye, Rodney)

Site Wave 1 Spring 2013

Wave 2Fall 2013

Retention Rate

Site A 134 124 92.5%

Site B 125 118 94.4%

Site C 156 134 85.9%

Site D 153 121 79.1%

TOTAL 568 499 87.9%

EQUIP Patient Cohort (n=568); Retention Rate (88%)

How to Help People Feel Valued in Research Processes?

Five Strategies: Applies to Any Research Methodology and Any Setting

All Levels of Staff Need to….

Actively Counteract Dismissal and Discrimination

Convey Respect and Unconditional Positive Regard

Be Explicit Re: Why Inviting Participation; What’s Bigger Purpose?

Reimburse People for Their Time and Effort

Regularly Presenting Initial Analyses and Preliminary Findings to

Patients/Population Groups

Thank you!Muchos Gracias!Mussi Cho!Kinana'skomitina'wa'w!