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1 SUBMISSION TO THE INQUIRY INTO PERINATAL SERVICES IN VICTORIA NAME WITHHELD Thank you for the opportunity to make a submission to the Inquiry into Perinatal Services in Victoria. In July I become a first‐time mother, having my child in a private hospital in Melbourne. As the cliché goes – nothing could have prepared me for the impact of having a baby. While it has been wonderful, it has also had a substantial, sometimes challenging impact on other facets of my life ‐ my physical and mental health, my sleep, lifestyle and relationships. This change left me, particularly in the first few weeks, raw and vulnerable. I lacked confidence, I was exhausted, and I was terrified about whether I was doing the right thing. I sought information everywhere, and was heavily reliant on the advice and assistance I received – whether face to face, over the phone, or on trusted government websites. It was the quality of the services and advice that has led me to make this submission. QUALITY OF ADVICE I received a lot of well meaning, and sometimes useful, advice from nurses, midwives, and lactation consultants, immediately after the birth of my child. However, much of the advice was also contradictory, opinion‐based and sometimes paternalistic. This included advice about every aspect of looking after the baby (feeding, sleeping, caring etc). My experience was particularly disappointing in that: the conflicting advice was provided by staff in the same institution, so there was clearly no internal guidelines about key questions that a new mother was likely to ask – or if there were, they were not enforced; the advice was often provided in a dogmatic way ‐ as if any other approach would be catastrophic. It also appeared to me that some of the midwives and lactation specialists providing this advice lacked empathy or the ability to listen. I witnessed other women crying as a result of the antagonistic treatment by one particular lactation specialist in a devoted breastfeeding room in the hospital (in the context of a woman trying to get her baby to latch, the specialist yelled “don’t you EVER put your hand on the back of a baby’s head….. why do women INSIST on doing this?”); Much of the advice was based on opinion rather than fact, was rooted in fear (if you do this, then expect this terrible outcome), was based on anecdotal experience, rather than evidence‐based approaches. Mothers were not given fact‐based information that would enable them to make their own decision (based on their personal circumstances, risk tolerance etc.) but were rather told what to do. Some of this felt highly

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Page 1: SUBMISSION TO THE INQUIRY INTO PERINATAL SERVICES IN ... › images › stories › ... · SUBMISSION TO THE INQUIRY INTO PERINATAL SERVICES IN VICTORIA ‐ NAME WITHHELD ‐ Thank

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SUBMISSIONTOTHEINQUIRYINTOPERINATALSERVICESINVICTORIA‐NAMEWITHHELD‐ThankyoufortheopportunitytomakeasubmissiontotheInquiryintoPerinatalServicesinVictoria.InJulyIbecomeafirst‐timemother,havingmychildinaprivatehospitalinMelbourne.Astheclichégoes–nothingcouldhavepreparedmefortheimpactofhavingababy.Whileithasbeenwonderful,ithasalsohadasubstantial,sometimeschallengingimpactonotherfacetsofmylife‐myphysicalandmentalhealth,mysleep,lifestyleandrelationships.Thischangeleftme,particularlyinthefirstfewweeks,rawandvulnerable.Ilackedconfidence,Iwasexhausted,andIwasterrifiedaboutwhetherIwasdoingtherightthing.Isoughtinformationeverywhere,andwasheavilyreliantontheadviceandassistanceIreceived–whetherfacetoface,overthephone,orontrustedgovernmentwebsites.Itwasthequalityoftheservicesandadvicethathasledmetomakethissubmission.QUALITYOFADVICEIreceivedalotofwellmeaning,andsometimesuseful,advicefromnurses,midwives,andlactationconsultants,immediatelyafterthebirthofmychild.However,muchoftheadvicewasalsocontradictory,opinion‐basedandsometimespaternalistic.Thisincludedadviceabouteveryaspectoflookingafterthebaby(feeding,sleeping,caringetc).Myexperiencewasparticularlydisappointinginthat:

theconflictingadvicewasprovidedbystaffinthesameinstitution,sotherewasclearlynointernalguidelinesaboutkeyquestionsthatanewmotherwaslikelytoask–oriftherewere,theywerenotenforced;

theadvicewasoftenprovidedinadogmaticway‐asifanyotherapproachwouldbecatastrophic.Italsoappearedtomethatsomeofthemidwivesandlactationspecialistsprovidingthisadvicelackedempathyortheabilitytolisten.Iwitnessedotherwomencryingasaresultoftheantagonistictreatmentbyoneparticularlactationspecialistinadevotedbreastfeedingroominthehospital(inthecontextofawomantryingtogetherbabytolatch,thespecialistyelled“don’tyouEVERputyourhandonthebackofababy’shead…..whydowomenINSISTondoingthis?”);

Muchoftheadvicewasbasedonopinionratherthanfact,wasrootedinfear(ifyoudothis,thenexpectthisterribleoutcome),wasbasedonanecdotalexperience,ratherthanevidence‐basedapproaches.

Motherswerenotgivenfact‐basedinformationthatwouldenablethemtomaketheirowndecision(basedontheirpersonalcircumstances,risktoleranceetc.)butwererathertoldwhattodo.Someofthisfelthighly

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Submission S085 Received 16/09/2017 Family and Community Development Committee
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paternalistic,asifmothersarenotcapableof,orcannotbetrustedwith,makingadecision.

Ihadasimilarexperienceafterleavinghospitalandcontactingtwoprivatelactationspecialists.Thesechargedapproximately$150‐$200forthefirstconsultation,andvariedconsiderablyinquality.Whilethepost‐nataladviceindustryisfullofpassionatepeoplewhocareaboutwomenandchildren,itseemsthatitisalsoadhoc,withdifferenttypesofservicesandvaryinglevelsofprofessionalism.Itisstillnotcleartomewhatlevelsofqualificationsoraccreditationsarerequiredbythosewhopracticeinthepostnataladviceindustry.Whiletheseconcernsmightseemminor,inatimewhenanewmotherneedsstrongsupportandassistance,thisadviceis,atbest,counter‐productiveandatworst,couldthreatenanewmother’smentalhealthandabilitytocopewithhernewcircumstances.BREASTFEEDINGDOGMATISMIamsurprisedanddisappointedthatthereissolittlenuanceintheinformationprovidedaboutbreastfeeding.Instead,itseemsthatmanyhospitalsandwebsites(includingGovernmentones),reflecttheAustralianBreastfeedingAssociation’sstrongmessagingaboutbreastfeedingi.e.thatbreastfeedingshouldbeundertakentotheexclusionofallelse.Iambreastfeeding,andampleasedandgratefultobeabletodoit,butamangryatthelackofalternativeinformationoutthereforthosewhocannotbreastfeedorbreastfeedexclusively.Whileweallunderstandthatbreastmilkisbest,thisdoesnotmeanthatexpressing,orsupplementingisproblematic.Nordoesitmeanthatexclusiveformulaisahighlyproblematiceither.Infact,theactualscientificbasisformanyofthebreastfeedingclaimsarefairlyloosecorrelations,andsomeclaimsarejustnotsupportedbytheevidence1.Forexample,itisclearthatthereisaconsistentpositivecorrelationbetweenbreastfeedingandlowerratesofearandgastrointestinalinfectionsintheearlymonths.Manyotherclaimsarebasedonobservationaldata,whichisunabletocontrolforallfactors.Whileitisfairtosaythatbreastfeedingisthehealthiestchoiceforsomereasons,itseemsthe(low)risksofthealternativesmightbeinsomecasesoutweighedbythebenefitstoamum(lesspainandstruggle,bettersleep,bettermentalhealth).

1HaelleT.,WillinghamE.,“TheInformedParent,AScience‐BasedResourceforYourChild’sFirstFourYears”,2016;Callahan,A.,“TheScienceofMom:AResearch‐BasedGuidetoYourBaby’sFirstYear”2015,seealso,https://scienceofmom.com/2012/06/08/why‐care‐about‐breastfeeding‐research/#more‐1603;https://scienceofmom.com/2012/05/25/bottle‐feeding‐and‐obesity‐risk/

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HoweverthisisnotanarrativethatisencouragedinmostoftheAustralianliteratureonthesubject.Thebestonegetsisathrowawaylineaboutalternatives,afterpagesofinformationonthebenefitsofbreastfeeding.Thelackofcomprehensive,impartial,evidence‐basedinformationaboutalternativeapproaches(forexample,mixedfeeding)is–atbest–patronisingtowomen,andatworst,dangerous.Manywomenstrugglewithbreastfeeding,duetosupplyorlatchingdifficulties,strongbreastpain,sleepdeprivationorpastemotionaltrauma.Theimmensepressuretobreastfeedsuccessfully,andguiltifitfailsorisdifficult,canbetheworstpartofthefirstfewmonthsofababieslife.Womenshouldbeprovidedwithimpartialinformation–includingkeyinformationabouttheevidencethatisavailableonparticularquestions,thelimitationsofthatevidence,aswellasevidencethatsuggeststhatotherapproachesareOK.Womenshouldbetrustedtomaketheirowndecisions,basedontheirrisktoleranceandpersonalcircumstances.Spectressuchas“nippleconfusion”;“breastrejection”;poorhealthoutcomesforbabiesshouldnotbeusedtopushawomanintoexclusivebreastfeeding–unlesstheseissuescanbesupportedbyevidence.Itappearstomethatthesupportofbreastfeedingseemstotakepriorityaboveeverotherconsideration,includingamother’s–andsometimesachild’s–physicalandmentalhealthandhappiness.RECOMMENDATIONS

‐ Peoplewhoprovidepostnataladvice,particularviaourhospitalsshouldbesubjecttoconsistentaccreditationandprofessionalstandards;

‐ Hospitalsshoulddevelopclearinternalpoliciesabouttheadvicethatshouldbegivenonkeytopics.Thisadviceshouldbebasedinscience,notopinion.Wherethereisnoclearevidenceavailableinrelationtoparticularquestions,amothershouldbetoldthis,andallowedtoherformherownviewonbeststeps.

‐ Ideologyandopinionshouldberemovedasmuchaspossiblefromtheinformationprovidedtowomenaboutbreastfeeding.

‐ Morecomprehensiveinformationshouldbeprovidedtowomenwhochoose,forwhateverreason,tomixfeed,ortoformulafeed.Womenshouldbeempoweredandencouragedtomakethechoicethatisthebestforthemandtheirbaby,takingintoaccountallfactors.

Thankyoufortheopportunitytoexpressmyviews.