Taking Action In Your State

1

Cara Tenenbaum, Esq.Vice President for Policy and External Affairs

Ovarian Cancer National Alliance

Cara Tenenbaum, Esq.Vice President for Policy and External Affairs

Ovarian Cancer National Alliance

2

Why Take Action?To make changes in• Federal funding for research• Awareness of risks and symptoms• Health care coverage• Access to therapies

3

The Alliance’s Goals• Expand advocacy

• Maintain/increase research funding

• Improve health care practices

• Raise public and provider awareness

4

How the Alliance Takes Action• Federal appropriations• Federal regulations• Federal agencies• Educational programs

5

Federal Regulations• Food and Drug Administration• Social Security Administration• Centers for Medicare and Medicaid Services• Health Reform

Example: Health Reform• Preventive Services Amendment

included in bill• Submitted testimony to the Institute

of Medicine• Met with relevant federal agencies

6

7

Research Funding

Research FundingAppropriations Process• House Dear Colleague (out now)• Senate Dear Colleague• Testimony

8

9

Ways to Take Action• Political Advocate• Research Advocate• Partner Member Group• Survivors Teaching Students: Saving Women’s

Lives®

Advocacy Day on Capitol Hill

10

Partner Member Efforts• State legislation• Build congressional relationships• Awareness of risks and symptoms• Survivors Teaching Students: Saving

Women’s Lives®• Support• Educational programs• Research funding• Events• Attend Town Hall meetings

11

Panel• Bev Epps, Ovarian Cancer Alliance of

Ohio• Robin Jackson, Ovar’coming Together• Peggy Jennings, Minnesota Ovarian

Cancer Alliance• Michelle Shepherd, Michigan Ovarian

Cancer Alliance• Kelli Zembruski, Wisconsin Ovarian

Cancer Alliance

12