Teens with inhibitors

Making things a little easier

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It’s all part of the plan, man!

With family, friends, college, school, and the summer job search, you are feeling a little

burned out. Now, add in the hemophilia. And the inhibitor on top of that! Every once in a

while you might want to scream. Better yet, why not ask for some help? Help begins with

knowing where you need to look for some answers.

Become more independent. Real life is just around the corner. Soon, you will be handling

a lot of things on your own. Things like:

• Managing your condition

• Setting goals for your career, relationships, and success, and making them work with hemophilia

• Keeping healthy

Then there is finding good health insurance and treating your own bleeds. How cool would

it be to tackle those things on your own with total self-confidence?

This brochure will help you plan for success in education, relationships, and managing your

inhibitor. It is filled with tips and resources that can help you develop plans you can start

putting into action today. You will also be introduced to a dynamic and growing community

that can help lead you toward your goals. Many in the community have been where you are

now just a few years ago.

Teens who are just like you

As a teen with a bleeding disorder, sometimes you may feel like an outsider. Having an

inhibitor can make it even harder. But did you know there is a community of teens with

inhibitors who know what you are going through? They have had a lot of the same

experiences and can help you plan for the future. Go to ChangingPossibilities-US.com

to read the stories of teens who are just like you.

Build your social network with The Coalition on Facebook®. It is a great way to

get advice from people who have been where you are going.

Meet the Millards

Adam and Alex are twin brothers with inhibitors. They have some great stories and advice

on family, pushing boundaries, how to handle bullying, and more.

You are going through a lot. Talk about it with family and friends.

Your situation is unique. Hemophilia is rare, and having inhibitors is even less common. So,

help family and friends understand what you are going through. Be sure to talk about your

condition and how it affects you. You may be surprised how interested they are in what you

have to say. Your talks may help you prepare for the future.

Want to know what other teens are going through? Find out with these resources:

• Inhibitor Summits offer a great way to meet new people you can really connect with.

Visit nhfinhibitorsummits.org to learn more

• The National Hemophilia Foundation (NHF) provides a directory of hemophilia camps

across the country. Take part in these exciting opportunities by visiting hemophilia.org

Keep building your own support network. Your family and friends, old and new, can help

make your future plans a reality.

For access to their full story, visit ChangingPossibilities-US.com. You will get the

chance to tell your own story to the community or even be featured on the Web site!

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Talk about hemophilia, and make it part of your game

If you are not sure how to talk about your condition, we’ve got some answers.

Q: When do I tell the person I am dating about my hemophilia?

A: Intimacy is built slowly through trust and communication. But only you will know the best

time to tell the person you are dating about your hemophilia.

Q: What do I tell the person I am dating?

A: People may have preconceived notions about hemophilia. Reassure them by saying

hemophilia is not contagious. The person you are dating may be concerned for your well-

being. Educating people may help ease their fears. Visit ChangingPossibilities-US.com

together for some great resources that help explain hemophilia.

Q: What else is important to tell the person I am dating?

A: Because you have a chronic condition, it would be good to tell him or her that you may

sometimes have medical emergencies. This will help him or her be more understanding if

you have to cancel a date at the last minute.

Graduation is just the beginning

Have you thought about life after high school? What colleges are you interested in? What

about vocational or trade school? How will you earn a living? Maybe you have asked

yourself these questions. If so, that is a great start. Having a plan and community support

can help even more.

Get some cash for class

Getting a good education comes at a price, but it is worth every penny. To help with this

expense, scholarship money may be available to you through SevenSECURE®—as much

as $7000! You can sign up for FREE and download your scholarship application form at

ChangingPossibilities-US.com/SupportPrograms/Education.aspx.

Models are used for illustrative purposes only.

Support to help you achieve your goals independently

Joining Uninhibited U is a great way to get started on your future plans for

education. Uninhibited U was created with the help of real students with

inhibitors. When you join, you will receive a FREE backpack filled with useful

materials, including a brochure to help you make a smooth transition into

college. Uninhibited U is a free program, so enroll by visiting the Support

Programs section of ChangingPossibilities-US.com today.

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Getting ready for your first college road trip?

Going to college usually means living on campus. Use these tips from Coalition members to

help you plan for smart travel.

• Take a copy of all prescriptions and labels that identify the medicine

• Know the names and locations of the nearest hemophilia treatment centers (HTCs)

• Check your health insurance for travel restrictions

• Bring medical ID in case of an emergency

• Take medicine with you. Keep it with you so it is not hard to get to

– Your doctor or HTC can provide letters that explain your need for medical supplies

• Do not forget ice packs and other nonprescription items that you need

• There may be special rules for air travel. Call the US Transportation Security Administration at 1-866-289-9673 or visit www.tsa.gov for more information

• Going places? Get a handy checklist of important travel tips in the Resources section of ChangingPossibilities-US.com

Take control of your condition

Information just for people with inhibitors can be hard to find. But with the help of The

Coalition, ChangingPossibilities-US.com has made a wealth of information available to you.

There is a lot of great information to help you fully understand hemophilia with inhibitors.

You will also be able to take a more active role in managing your condition. There is also a

chance for you to be active in the community.

SevenSECURE® is a FREE program that may help you pay for travel to educational

meetings and conferences. Talk to one of our trained experts by calling 1-877-668-6777.

GR8 4 U

Remember, there is a community dedicated to changing what

is possible for people with inhibitors. Join The Changing

Possibilities Coalition at ChangingPossibilities-US.com.

Remove the mystery from health insurance

When you turn 18, you may be responsible for your own insurance. Do you know the

difference between a PPO and an HMO? In-network versus out-of-pocket? Lifetime caps?

These are all terms people assume you are familiar with. If you don’t know what these mean,

talking with your parents or guardians may help.

Plan smart. Live healthy.

Get on your way to a healthier life. Practice these steps to get started.

• Learn to self-infuse. Being able to administer your own treatment means you can take

care of bleeds yourself and be independent

• Be part of treatment decisions. Get more involved with your doctors and nurses at

hospitals and HTCs. The more you understand your condition, the more you will

understand treatment

• Treat bleeds early. Do not hide bleeds or wait to treat them. Over time, delayed

treatment can damage your joints and restrict your mobility. Always treat right away

• Eat right and exercise. Commit yourself to physical fitness. Strong muscles may mean

fewer bleeds. And maintaining a healthy weight will help you find veins

• Brush and floss regularly. A healthy mouth is less likely to have bleeding problems

• Get more tips and advice by visiting ChangingPossibilities-US.com/LifeWithInhibitors

/KeepingJointsHealthy.aspx

Have you tried SevenSECURE® for premium assistance? SevenSECURE® can help you

understand your insurance. Trained experts can help answer your questions and track

your caps. So, get a handle on your insurance by enrolling in SevenSECURE® today.

It is easy and FREE. Just check the box on the business reply card on the back of this

brochure or visit ChangingPossibilities-US.com to receive your welcome kit.

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Facebook is a registered trademark of Facebook, Inc.Changing Possibilities in Hemophilia® is a registered trademark owned by Novo Nordisk Health Care AG.SevenSECURE® is a registered trademark of Novo Nordisk Health Care AG.© 2010 Novo Nordisk 0710-00000858-2 August 2010

The most important plan of all: Be Yourself

Always be yourself. Inhibitors are not your entire life, only a part of it.

While you are up for the challenge that inhibitors present, good planning helps ensure your

successes. And remember, there is a community of people just like you who want to hear

how you are doing every step of the way.

ChangingPossibilities-US.com

Together, we can change what is possible in

hemophilia. Visit ChangingPossibilities-US.com

and get involved in the community today.