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The AACVPR Pulmonary and Cardiac Rehabilitation Registries Gerene Bauldoff, PhD, RN, FAACVPR AACVPR Pulmonary Registry Comm The Ohio State University

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Disclosures None

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Objectives Benefits of registry participation Current status Data elements, interface and reporting features How to subscribe and FAQs

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AACVPR Registry Committee Chris Garvey, Bonnie Sanderson, Chairs Todd Brown, MD, Director Bonnie Anderson Gerene Bauldoff Pat Barnes Eileen Collins DorAnne Donesky Joan Dugan Kent Eichenauer Anne Gavic Steve Lichtman Mike McNamara Keri Ohren Connie Paladenech Diana Rohloff Chris Schumann Charlotte Teneback Randy Thomas Mark Vitcenda Stacy Wolf

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AACVPR Registry Sponsors

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Registry Developer

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Research tells us what we can do. Guidelines tell us what we should do. Registries tell us what were actually doing.

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What is a registry? Naturalistic collection of data Designed to fulfill a specific purpose Data derived from patients clinical status or processes of care patient undergoes Specific and consistent data definitions Uniform collection of data from patient to patient

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Provide evidence to patients, physicians, administrators, healthcare payers, and regulators that cardiac and pulmonary rehabilitation produce improvements in patients health outcomes beyond what can be expected or achieved through usual care. Mission

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Why should we participate?

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Participation Benefits Strengthen the understanding and awareness of the impact of CR and PR Supports AACVPR recommendations of outcome tracking and quality improvement Linking registry data with Program Certification application

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Participation Benefits Easy and convenient way of organizing outcomes and utilization data Immediate feedback regarding performance Demonstrates your commitment to improving patient care Raises status of your services in healthcare system

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75yrs COPD 1650 ft 83.4 kg females

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Current Status: PR Registry June, 2013 launch 156 programs actively participating Over 7,500 patient records entered to date

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PR Registry Data Elements Demographics Admitting diagnoses and comorbidities Anthropometric values, smoking status Pulmonary function values Functional capacity (6MWD) Dyspnea/Psychosocial/HRQoL assessments O 2 use, prescription, system type Healthcare utilization/events/mortality Programmatic outcomes

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Supported Assessment Tools Modified MRC UCSD SOBQ CES-D PHQ-9 PSRF Survey HADS GDS 15 and 30 CRQ St. George Respiratory Questionnaire SF-36 Ferrans & Powers QLI Dartmouth COOP COPD Assessment Test

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See the Data Elements document on the Registry web site for more information about registry variables

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Coming in 2015 Get ready for a new and improved AACVPR Pulmonary Rehabilitation Registry experience. Enhancements are coming for the AACVPR Pulmonary Rehabilitation Registry: New Performance Report displaying your programs patient outcomes in a number of key areas compared to state and national benchmarks Updates to data sets in the following areas: pulmonary function, dyspnea, psychosocial outcomes, hospitalization and physical activity Improved user interface to provide helpful field tips and definitions Addition of more choices to several fields for more precise data entry 2.0

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75yrs 414.01 1650 ft 83.4 kg females

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CR Registry Data Elements Demographics Admitting diagnoses and comorbidities Anthropometric, lipid, glucose values Functional capacity (6MWD, peak METs, ETT METs) Psychosocial/HRQoL assessments Healthcare utilization/events Programmatic outcomes

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Supported Assessment Tools CES-D PHQ-9 PSRF Survey MacNew BDI-2 Duke Activity Status Index SF-36/SF-12 Ferrans & Powers QLI Dartmouth COOP

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Supported Dietary Assessment Tools Diet Habit Survey Rate Your Plate-Heart MEDFICTS (from ATP-3) Block Dietary Fat Screener Resources for all tools available on AACVPR Registry Resources site

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Current Status: CR Registry 390 active programs 89,000+ patient records entered

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Real Value

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Getting Started

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! www.aacvpr.org/Resources/OutpatientDataRegistries www.aacvpr.org/PRRegistry www.aacvpr.org/CRRegistry

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Application Steps Designate Principal User through Application form (follow directions on registry page) Log in and go to My Programs Principal User updates program information (used for both Registry and Certification apps) Principal User designates secondary users Check subscription process on Process dashboard

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Test Pulmonary Program Review Facility and Program information for accuracy Update information as necessary Complete program roster

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Add secondary users (required)

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Subscription Steps Read, sign and return Participation Agreement Pay subscription fees View training webcast Complete data entry test

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Important Documents Frequently Asked Questions (FAQs) Everything about everything Data Elements list List of all fields in Registry Definitions and Comments Description of selected elements and definitions Registry User Guide How to get around the Registry interface Data sheets Tool for capturing outcomes data

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? registry@aacvpr.org

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Registry Tour

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Reporting features Individual Patient Outcomes summary Program Outcomes Summary Report Program Comparison Report (like-size, state, national benchmarks) Performance Report (CR only) Data Extraction utilities

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Frequently Asked Questions (or Answers to FAQs)

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Participation Agreement and Legal IRB not required per HIPAA regulations; however, local institution may require review Patient consent not required AACVPR Participation Agreement document required as basis for agreement; some language can be modified/added if needed Program does NOT need to be AACVPR-certified in order to participate

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Training Principal User responsible for seeing that secondary users trained and following protocols ALL users must view Registry webcast and enter test data before being given access rights Review documents, review documents, review documents

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Data entry Enter as much data as needed to track patient health and outcomes Very few required data points, and a handful of highly recommended ones

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Registry Patient Assessment Tools No required tools Mix of free tools and tools requiring a license Supported tools not providedprograms must secure required licenses and scoring algorithms.

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Telemetry/Registry solutions Working with partners on methods for uploads Vendors will be contacting customers with information

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registry@aacvpr.org or 312.321.5146 Questions? Subscription Legal Technical Clinical

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www.aacvpr.org/PRegistry www.aacvpr.org/CRegistry !

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registry@aacvpr.org 312.321.5146 ?

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Thank You!