the effectiveness of occupational therapy for children with developmental coordination disorder

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The effectiveness of occupational therapy intervention for children with developmental coordination disorder : review of the qualitative literature Morgan, R and Long, T http://dx.doi.org/10.4276/03082212X13261082051337 Title The effectiveness of occupational therapy intervention for children with developmental coordination disorder : review of the qualitative literature Authors Morgan, R and Long, T Type Article URL This version is available at: http://usir.salford.ac.uk/22691/ Published Date 2012 USIR is a digital collection of the research output of the University of Salford. Where copyright permits, full text material held in the repository is made freely available online and can be read, downloaded and copied for non-commercial private study or research purposes. Please check the manuscript for any further copyright restrictions. For more information, including our policy and submission procedure, please contact the Repository Team at: [email protected] .

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The effectiveness of occupational therapy intervention for children with 

developmental coordination disorder : review of the qualitative literature

Morgan, R and Long, T

http://dx.doi.org/10.4276/03082212X13261082051337

Title The effectiveness of occupational therapy intervention for children with developmental coordination disorder : review of the qualitative literature

Authors Morgan, R and Long, T

Type Article

URL This version is available at: http://usir.salford.ac.uk/22691/

Published Date 2012

USIR is a digital collection of the research output of the University of Salford. Where copyright permits, full text material held in the repository is made freely available online and can be read, downloaded and copied for non­commercial private study or research purposes. Please check the manuscript for any further copyright restrictions.

For more information, including our policy and submission procedure, pleasecontact the Repository Team at: [email protected].

10 British Journal of Occupational Therapy January 2012 75(1)

Criticalreview

IntroductionThe aim of the review was to support evidence-based practice by identifyingand describing interventions that were perceived to be effective by childrenwith developmental coordination disorder (DCD) and their parents. DCDis a common diagnostic term used internationally to describe children whohave a motor skills disorder that interferes significantly with their successfulparticipation in everyday activities at home and school (American PsychiatricAssociation [APA] 1994). It is estimated that up to 6% of children aged 5-12years, mostly boys, are affected (Sutton Hamilton 2002). Children with DCDare a heterogeneous group, frequently presenting with symptoms that differin range and severity or coexist with other learning, emotional and behav-ioural disorders (Sutton Hamilton 2002). This multifactorial condition hasgained public recognition because longitudinal studies suggest that thelong-term prospects for adolescents and adults with a lack of coordinationare poor (Wilson 2005). There is growing evidence that motor deficits persistand are commonly associated with social and emotional problems, whichis contradictory to a common assumption that has been long held that overtime children outgrow their difficulties (Sutton Hamilton 2002).

The aim of reviewing the literature is to provide guidance for practitionersto ensure that interventions for this heterogeneous group are effective andevidence based, reflecting the needs of service users. It is important that

The effectiveness of occupational therapy forchildren with developmental coordinationdisorder: a review of the qualitative literatureRuth Morgan1 and Tony Long 2

Key words:Developmentalcoordination disorder,therapy, motor.

Introduction: This review investigates qualitative evidence regarding the effectivenessof motor interventions for children with developmental coordination disorder (DCD).

Method: Six databases were searched for qualitative studies conducted withschool-age children with DCD and their parents to understand better whichoccupational therapy interventions are most effective for decreasing core symptomsand improving occupational outcomes. The Model of Human Occupation was usedas a guide to structure the discussion and to illustrate how a model can be usedto guide the therapeutic reasoning process regarding future intervention decisions.

Findings: The findings suggest that, for many families, intervention that addressedeveryday occupations and the social consequences for children with DCD was ofthe utmost importance.Most parents’ greatest hope for intervention was to maximisetheir child’s social participation and motivation. Parents described successfulinterventions that enabled their child to participate regularly in his or her chosenmotor activities within the community and that created social participationopportunities. Although children reported similar concerns to parents, they alsovalued their ability to engage in self-care and play activities.

Conclusion: The qualitative evidence supports the need for practitioners toincorporate the priorities of parents and children in order to optimise the outcomesof intervention. Parental and teacher education was highly valued by parents tohelp manage their uncertainty and worry associated with raising a child with DCD.

©The College of Occupational Therapists Ltd.Submitted: 15 January 2010.Accepted: 1 September 2011.

1Therapy and Dietetic Service Manager(Medical Team) and Professional Lead forOccupational Therapy, Central ManchesterUniversity Hospitals NHS Foundation Trust,Royal Manchester Children’s Hospital,Manchester.

2Professor of Child and Family Health,School of Nursing, Midwifery and SocialWork, University of Salford, Salford.

Corresponding author: Ruth Morgan,Therapy and Dietetic Service Manager(Medical Team) and Professional Lead forOccupational Therapy, Therapy and DieteticServices, Central Manchester UniversityHospitals NHS Foundation Trust, RoyalManchester Children’s Hospital, OxfordRoad, Manchester M13 9WL.Email: [email protected]

Reference: Morgan R, Long T (2012)The effectiveness of occupational therapyfor children with developmental coordinationdisorder: a review of the qualitative literature.British Journal of Occupational Therapy,75(1), 10-18.

DOI: 10.4276/030802212X13261082051337

11British Journal of Occupational Therapy January 2012 75(1)

Ruth Morgan and Tony Long

findings from qualitative literature are considered in orderthat therapists acquire a better understanding of how childrenand parents make sense of therapeutic experiences. Theirunique perspective on contextual and environmental issues,which support family-centred care and partnership working,is vital to a rounded understanding. Additionally, this paperfocuses on increasing awareness of the outcomes of occupa-tional therapy and illustrates an occupation-based approachto intervention, which achieves outcomes that are valued bychildren and parents. This guidance, considered in conjunc-tion with evidence from quantitative literature reviews, couldassist clinicians to meet the needs of children with DCD andtheir parents more comprehensively.

MethodThe Patient Intervention ComparisonOutcome (PICO)methodwas used to refine the search question for the literature reviewmore clearly and concisely: ‘In children diagnosed with DCD,what is the most effective occupational therapy for decreas-ing core symptoms of the condition and improving occu-pational outcomes?’ (University Library, University of Illinoisat Chicago 2011). Selected search terms, shown in Table 1,reflected the most commonly used terminology in studiespost-1994 (Stephenson 2004). Core symptoms of DCD weredefined as two inclusion criteria: criterion A, performancein daily activities that require motor coordination is sub-stantially below that expected given the person’s chrono-logical age and measured intelligence, and criterion B, thedisturbance in criterion A significantly interferes with academicachievement or activities of daily living (APA 1994).

Inclusion and exclusion criteriaPublished professional knowledge in journals was targeted.Studies outside the scope of ‘therapy’ were excluded, asdefined by the International Classification of Functioning,Disability and Health (World Health Organisation 2001).By employing this definition, interventions that decreasedactivity limitation, increased participation in occupationor were remedial in nature were included. An age range of

5-14 years (inclusive) was selected. Children with coexistingconditions were excluded to minimise confounding factors,such as poor attention. Terminology was limited to DCDcriteria in recognition of the historical change in the use ofterminology and to allow for comparison of samples (APA1994, Polatajko et al 1995). Studies after 1996 were reviewed,which coincided with the standardisation terminology forchildren with DCD. Articles in English were selectedbecause no translation service was available. Articles fromhealth and education disciplines focused on deliveringinterventions for children with DCD were included.

Sources of materialInitially, the Cochrane Collaboration was accessed. Aprofession-specific electronic database, OTseeker, was selectedbecause it contains abstracts of systematic reviews relevantto occupational therapy. The occupational therapy literaturesearch services, OTBASE and OT Search, were also used.Worldwide medical databases MEDLINE and EMBASE weresearched from a topic and intervention perspective. Twodatabases focusing specifically on allied health literature,AMED and the Cumulative Index to Nursing and AlliedHealth Literature (CINAHL), were included. PsycINFO andthe Education Resources Information Centre (ERIC) wereincluded to capture psychological and educational perspec-tives. DCD studies were identified via the National Researchregister. In an attempt to capture some ongoing, unpublishedor impending research, a search was executed through theCollege of Occupational Therapists and the British Library.Scanning reference lists and citation searching from existingreview articles supplemented electronic searching.

Search findingsInitial searching that used broad concepts yielded a highnumber of hits; therefore, concepts were combined to achievea balance between sensitivity and specificity (Brettle andGrant 2004). Applying limiting factors yielded a moremanageable number of six qualitative studies in total.

Appraisal methodInitially, two screening questions from the Critical Appraisal

Table 1. PICO: concepts, synonyms and related terms‘In children diagnosed with DCD, what is the most effective occupational therapy for decreasing core symptomsof the condition and improving occupational outcomes?’Patient Intervention Comparison Outcome1996 onwards Treatment No treatment Motor/functional measuresDevelopment$ Intervention Alternative treatmentCoordination Disorder$ TherapyDCD Motor/sensory/cognitiveClumsyDyspraxia

Local populationChild$Pa?diatric$PICO = Patient Intervention Comparison Outcome; DCD = Developmental coordination disorder.

Table 2. Limits applied to the searchLimitsRemove duplicates

English language

Human

Peer reviewed journals 1996-2009

Treatment and prevention 5-14 years

Remove review articles

Relevance from title

Relevance from abstract

Exclusion criteria

12 British Journal of Occupational Therapy January 2012 75(1)

The effectiveness of occupational therapy for children with developmental coordination disorder: a review of the qualitative literature

Skills Programme were applied to the six qualitative studies(Public Health Resource Unit 2006). A judgement wasmade regarding the clarity of the research aims and theirrelevance to the review topic and the appropriateness ofthe methodology used. The papers were then reviewedusing an occupational therapy-specific critical appraisaltool for qualitative studies to ensure that adequate rigourwas applied to the process (Law et al 1998). Table 3 shows,in chronological order, a summary of the six qualitativeresearch studies included in the review.

ResultsThe phenomenon of interest was the intervention experiencesof children with DCD and their parents. Their thoughts,feelings and perceptions were considered to provide impor-tant information that complemented the conclusions drawnfrom quantitative evidence regarding treatment effectiveness.The qualitative information provides a human context withinwhich the established empirical research findings could beinterpreted, adding depth and understanding to knowledgein this area. The review results demonstrated that most ofthe qualitative research on this topic has been carried outwithin the last decade, perhaps reflecting a growing concern

of the importance of capturing children’s and parents’ expe-riences. Although research in this area is sparse, studies havebeen carried out on an international basis.

Most studies aimed to explore issues from the parents’perspective, a stance that may assume that parents are ableto provide this perspective of the child’s experience objec-tively but which risks obscuring the child’s first-hand accountwith the proxy version (Green et al 2009). One study soughtopinions directly from children with DCD and compared theirconcerns with those of their parents and teachers (Dunfordet al 2005). Reliance on parental reports may reflect challengesassociated with using children as key informants, such asdevelopmental readiness and different communication styles(Curtin 2000). However, it could be argued that only childrencan report accurately on the lived experience of DCD. Moststudies focused on exploring parents’ perceptions of DCDsymptoms, the effects of these on their child’s participationin everyday activities, and the experiences of parents whentrying to access services for their child.

Quality of the literature

Research approachesIn one study (Missiuna et al 2006), researchers used a phe-nomenological approach, which was an appropriate choice

Table 3. Overview of studies included in the reviewAuthor Country Profession Approach Method Aim SampleMissiuna et al Canada Occupational therapy Phenomenology In-depth interviews Parents’ insights and Thirteen parents of children(2006) and questionnaires. early experiences of 6-14 years, with DCD

their child with DCD. diagnosis.

Iversen et al Norway Physiotherapy Combined Structured thematic Parents’ perspectives Two groups of 15 parents(2005) quantitative and interview guide. of child’s performance (children 7-12 years, with

qualitative study in different contexts. DCD diagnosis, differentRetrospective evaluation treatment levels,1-4 yearsof treatment. post-intervention).

Dunford et al United Occupational therapy Child-focused Validated pictorial Children’s perceptions Thirty-five children(2005) Kingdom scale. Parent/teacher of the impact of DCD 5-10 years, with DCD

questionnaire. on everyday activities. diagnosis.

Mandich et al Canada Occupational therapy Grounded theory In-depth interviews. Parents’ perception of Twelve parents of children(2003) the impact of DCD on 7-12 years, with DCD

child and the value diagnosis, attendingof participation in Cognitive Orientation tochildhood activities. daily Occupational

Performance (CO-OP) clinic.

Segal et al Canada Occupational therapy Grounded theory Interviews. Parents’ perceptions of Eight parents of six children,(2002) the social consequences 9-11 years, with DCD

of DCD. diagnosis, who had receivedoccupational therapy.

Pless et al Sweden Physiotherapy Combined Semi-structured Parents’ observations, Thirty-seven parents(2001) quantitative and interviews. Open feelings and actions. (two groups) of DCD

qualitative study questions. Comparisons between children 5-6 years.different severity levels.

DCD = Developmental coordination disorder.

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because the focus was on parents’ subjective experiencesand their interpretations of their child’s experience of DCD.Two studies reported grounded theory as their researchapproach, with a justification that their findings potentiallyrelated to theory construction and verification (Segal et al2002, Mandich et al 2003). Two studies, both by physio-therapy researchers, used a mixed methods approach,where qualitative methods were used to supplementquantitative findings (Pless et al 2001, Iversen et al 2005).Dunford et al (2005) described their design type as child-focused research, using theory underpinning this approachas a framework for analysis.

SamplingOne study reported that sampling continued until redundancyin data was reached (Missiuna et al 2006), a concept similar

to data saturation which, while difficult to define con-vincingly, is commonly recommended. Some researchersdiscussed potential bias where representation was geo-graphically unequal or participants were predominantlywhite, middle-income, educated families (Mandich et al2003, Missiuna et al 2006). Only one paper reported thatparticipants came from a wide range of socioeconomicbackgrounds (Dunford et al 2005).

Data collectionDetails of specific interventions are highlighted in Table 4.All researchers used in-depth interviewing, open question-ing and follow-up probes to generate rich information fromparents. Mothers were the most common respondents inmost studies. In one study, the child was present while theparent was being interviewed, which might have restricted

Table 4. Approach taken and inclusion of familiesAuthor Intensity and context Activities Approach Inclusion of child and parentsMissiuna et al Individual. Once weekly. Individual physical activities: Family-centred service. Focus Child leads session and is encouraged(2006) Parent-led. Outside home. karate and swimming. on functional self-care tasks to select own goals based on his or her

Alternative roles in team and physical activities chosen activity preference. Professional-parentsport not dependent on by child. Structured motor partnership. Parent/professional educationproficiency – score keeper. activities and environment regarding expectations of therapy and

to challenge child. identifying strategies that maximisemovement opportunities for child.

Iversen et al Individual/group. Several Frequent practice of Increase child’s activity and Choices of activities given that were(2005) activities practised daily motor skills: cycling and participation. Targeted meaningful to child. High degree of

for one school year. Indoor swimming. motor skills. Goal-directed. parental advice and information.and outdoor, similar to Motivating activities. Extensive support during intervention.real life settings. Optimum: Challenging, structured Promotion of a healthy lifestyle andseveral times a week. environment. frequent use of new motor skills.

Dunford et al Not specified. Specific self-care, Child-focused assessment Child’s view gathered by pictorial tool.(2005) productivity and approach. Goal orientated. Child selected and prioritised his or her

leisure activities. goals for therapy. Child’s perceptions ofhis or her competence performing everydayactivities gathered. Parents’/teachers’concerns gathered by questionnaire.

Mandich et al Group. Therapy clinic Mastery of everyday Cognitive Orientation to daily Focused on child identifying own(2003) and natural environments functional activities of Occupational Performance functional goals and choosing physical

with friends. childhood with friends. (CO-OP) approach. Enabled activities. Supports child to develop aactivity and participation. Skill positive attitude towards physical activity.based, achieving mastery ofnew skills/social participation.

Segal et al Individual/group. Use of activities relevant Child sets own goals. Child-centred occupations/activities.(2002) Safe contexts: therapy to child’s life: cycling, ball Child takes advantage of Interventions that enhance child’s social

clinic and natural skills and fire pole. opportunities of therapy inclusion in peer groups and buildenvironments with sessions. Special enabling self-confidence. Parent supported child tosupportive peers. conditions. ensure challenge is at just right level.

Pless et al Individual/group. Low Activities: swimming, Training designed to Parent important as ‘expert’ on child.(2001) intensity, parent-led. cycling and skating. encourage motor learning. High level of parental education/support

Naturally occurring Structured environment that if child unwilling to participate. Parentsituations. challenged child. Motor skill observed organised training sessions so

training groups. could act as co-therapist.

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The effectiveness of occupational therapy for children with developmental coordination disorder: a review of the qualitative literature

the parent’s level of openness (Pless et al 2001), althoughEggenberger and Nelms (2007) offered a contrary view,suggesting that interviewing family members togetheradded value by demonstrating how family members inter-acted with each other and articulated shared concerns.Several parents had children who were actively receivingtreatment during the study by Mandich et al (2003), andthis may have influenced their responses in relation totreatment effects, as suggested by Seale and Barnard(1999). One study sought children’s perspectives of DCDin the presence of their parents (Dunford et al 2005).Other authors discussed how questions had been formu-lated and considered their potential personal bias in theirrole as therapist and parent (Missiuna et al 2006). Childrenwere able to share perceptions of their strengths and weak-nesses using a pictorial tool (Dunford et al 2005). They werealso able to prioritise these, in terms of goal setting.

Data analysisNumerous methods for organising and managing the rawdata were used. Some studies attempted to determine gen-eralisable themes or categories, a dubious endeavour in aqualitative study, whereas others focused on recordingin-depth descriptions. Decision trails evidencing the devel-opment of categories or patterns were clearly reported insome instances, which gave confidence to the reader thatthe findings were grounded validly in the data (Pless et al2001, Segal et al 2002, Mandich et al 2003, Missiuna et al2006). With the exception of Iversen et al (2005), all studiesused verbatim data extracts from participants in the researchpapers to support their findings.

Rigour and utility of findingsSome authors prefer to use alternative terms in consideringthe rigour of qualitative research, but Long and Johnson(2000) argued that these relate directly to the traditionalconcepts of validity and reliability. A number of studiesused triangulation techniques (theory, source, researcheror method triangulation) to confirm preliminary findingsand explore emerging areas of tension (Pless et al 2001,Missiuna et al 2006). Although care is needed to avoidconfusion of the question effectively being posed in trian-gulated studies, in these instances the data were enhancedby this strategy. Some studies took measures to enhancethe validity of data by keeping a field journal or record-ing reflective or analytical memos (Mandich et al 2003,Iversen et al 2005, Missiuna et al 2006). This helped toreduce researcher impact or, at least, to distinguish it fromoriginal data.

The usefulness of findings for other situations wasenhanced in some studies by the researcher providing afull description of the research context, the participantsinvolved and the philosophy underpinning the study(Pless et al 2001, Mandich et al 2003, Dunford et al 2005,Iversen et al 2005, Missiuna et al 2006). This allowed thereader to make an informed decision as to whether theresults were relevant and applicable to their setting.

Findings in the literatureThe strengths and weaknesses of individual study designsare shown in Table 5, alongside a summary of main outcomesand implications for practice declared by the researchers.In general, parents’ descriptions of intervention focused onthe outcomes of intervention rather than the specific contentof the support that their child had received. Parental expe-riences of intervention varied, suggesting that interventionwas tailored to their child’s unique needs. The findings fromall six studies confirmed that parents valued child-centredand parent-centred interventions highly.

Parents’ perceptionsAcross the qualitative studies, common themes emergedregarding parents’ and children’s perceptions of DCD andinterventions. The findings addressed five main areas:experience, participation, motivation, environment andeffective treatment.

ExperienceMany parents described past, present and future worries anduncertainties for their child with DCD (Pless et al 2001,Mandich et al 2003, Dunford et al 2005, Iversen et al2005, Missiuna et al 2006). Most parents reported thattheir child with DCD experienced various degrees of dis-tress as a result of motor difficulties. There were descrip-tions of peers rejecting, excluding or teasing children withDCD on the basis of their physical impairments (Segalet al 2002, Mandich et al 2003, Missiuna et al 2006).Parental reports of reduced self-worth or embarrassmentin children with DCD were recurring themes when thechild’s motor difficulties interfered with a group activity(Segal et al 2002, Dunford et al 2005, Iversen et al 2005).

ParticipationParents reported that limited social participation and engage-ment in everyday activities were recurring problems forchildren with DCD (Segal et al 2002, Mandich et al 2003,Dunford et al 2005, Iversen et al 2005). Parents in allsix studies emphasised the negative impact of DCD onchildren’s physical abilities. The consequences of whatappeared to be minor difficulties had major implicationsfor many children in their everyday lives, in particularduring their school years (Segal et al 2002, Mandich et al2003, Dunford et al 2005, Missiuna et al 2006). Parents’descriptions of their children’s difficulties that causedmost concern related primarily to gross motor movements(Pless et al 2001, Segal et al 2002, Mandich et al 2003,Dunford et al 2005, Missiuna et al 2006). Larger movements,such as balance and ball skills, were essential prerequisitesfor children’s free play activities and team games, whichoften determined whether a child was accepted or rejectedby peers (Segal et al 2002, Mandich et al 2003, Iversenet al 2005, Missiuna et al 2006). Parents also detailed howtheir children struggled to keep up with peers academically(Dunford et al 2005).

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MotivationParents recounted their children’s coping strategies; inparticular, the use of avoidance of tasks requiring motorabilities, both at school and in free-time activities (Pless et al2001, Segal et al 2002, Mandich et al 2003, Missiuna et al2006). Where possible, children with DCD avoided situ-ations where their deficits were noticed by peers becausethis could result in rejection. Some children managed their

social relationships with peers through either choosing oraccepting roles within group activities that did not impactdirectly on others or expose their lack of motor competence(Segal et al 2002, Missiuna et al 2006). Parents valuedtherapy that improved their child’s self-confidence andcompetence over those that addressed motor abilities (Segalet al 2002, Mandich et al 2003, Missiuna et al 2006). Somechildren needed a higher level of parental support in order

Table 5. Strengths and weaknesses of study designs, conclusions and implications for practiceAuthor Strengths Weaknesses Conclusions Practice implicationsMissiuna et al Sample obtained from Limited cultural and Parental challenge of understanding Importance of education of parents/teachers(2006) different services. socioeconomic groups DCD and obtaining help. Social and maintaining focus on occupational

represented. participation and self-worth of more performance. Outcome measures need toconcern than motor difficulties. relate to child’s/parents’ priorities. Need

for early intervention.

Iversen et al Addressed length of Limited information Parents whose children received Collaborative, intense intervention is(2005) treatment effects. regarding analysis of targeted, intensive intervention perceived favourably at long-term follow-up

Compared intensity of information from reported increased participation by parents. Some skills acquired weretreatments, context interviews. Parental and activity levels for their children. maintained after 1-4 years but motorand degree of verbatim data extracts Parents judged positive outcomes difficulties persisted. Importance ofparental inclusion. not included. of treatment for children as increased establishing physical activity within

skills, self-esteem and inclusion in children’s routines. Functional outcomesactivities with peers and education/ need to be captured in different contexts.support for themselves. Increasedchild’s coping strategies. Childrenwere confident and competentwith activities 1-4 years later,except for ball skills.

Dunford et al Included child, Parents present. Children, parents and teachers share Child, parent and teacher perception of(2005) parent and teacher Questionnaire for common concerns relating to concern varies in important areas. Outcome

perceptions. Identified parents and teachers physical and academic activities. measures useful to inform DSM-IV DCDtool to establish did not match the Children identified self-care and diagnostic criterion B (APA 1994), importantchild-centred goals. children’s scale. leisure activities as concerns. for early diagnosis.

Mandich et al ICF framework useful Some children Incompetence in everyday activities Intervention that increases activity and(2003) tool to inform theory receiving treatment. had negative effects for children participation has a positive impact on

and practice for with DCD. Main themes of small quality of life. Stresses importance of childchildren with DCD. difficulties causing large consequences choosing his or her own functional goals

and strategies leading to mastery and building social networks.of skills. Achieving mastery promotesactivity participation, social inclusionand increased self-esteem.

Segal et al Stigmatisation needs Parents believed that DCD primarily Importance of occupational therapists using(2002) to be considered in restricted their child’s social activities relevant to a child’s life in order to

theory and practice. participation and led to avoidance enhance his or her social participation. Motortechniques. Parents commented that activities plus special enabling conditionstheir children selected physical activities resulted in skill enhancement.as goals with therapy support.

Pless et al Large sample. Children present Parents of children with severe DCD Highlights gathering information on how(2001) during interviews had multiple concerns and physically child performs in comparison to others to

with parents. supported their child. identify parental concerns. Importance ofproviding information for carer and teachingco-therapist facilitation skills.

ICF = International Classification of Functioning, Disability and Health; DCD = Developmental coordination disorder.

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The effectiveness of occupational therapy for children with developmental coordination disorder: a review of the qualitative literature

to sustain their motivation and help to establish patternsof interests that promoted their participation in physicalactivities (Pless et al 2001, Iversen et al 2005, Missiuna et al2006). Achieving competence and participating success-fully in motor activities motivated children and helpedthem to interpret their experience more positively, whichinfluenced their future activity choices (Segal et al 2002,Mandich et al 2003).

EnvironmentResources available to children with DCD were perceivedby parents as being limited (Pless et al 2001, Segal et al2002, Mandich et al 2003, Missiuna et al 2006). Difficultyaccessing health and education services was a problemcommonly reported, and this contributed to parental self-doubt, frustration and increased stress levels (Pless et al2001, Segal et al 2002, Mandich et al 2003, Missiuna et al2006). Parents attributed the difficulty in accessing servicesto the often subtle effects of motor in-coordination andits less obvious impact on everyday life and function (Plesset al 2001, Mandich et al 2003, Missiuna et al 2006).Most studies confirmed that difficulties experienced bychildren with DCD were exacerbated within the schoolcontext (Segal et al 2002, Mandich et al 2003, Dunford et al2005, Missiuna et al 2006). Several parents suggested aneed for further teacher education, which supports anissue raised by Dunford and Richards (2003) that DCDcontinues to be widely unrecognised or misunderstood byprofessionals (Missiuna et al 2006). Parents often neededto structure the child’s natural physical and social environ-ment to ensure that their child chose activities that weresufficiently challenging (Pless et al 2001, Iversen et al 2005,Missiuna et al 2006).

Effective interventions

(i) Child-focused interventionsParents prioritised occupation-based interventions thatenabled their child in terms of mastering skills and increas-ing their activity choices and participation levels (Segal et al2002, Mandich et al 2003, Dunford et al 2005, Missiuna et al2006). Parental expectation of effective intervention wasfocused not on the remediation of motor impairments, butrather on the broader issue of developing their child’s self-worth and social participation. Parents, however, reportedthat by achieving motor competency through mastering skills,many children acquired a more positive attitude towardsparticipation, with increased levels of motivation, perse-verance and self-confidence (Mandich et al 2003). Theimportance of children with DCD being able to participatein organised, physical activity groups as part of their schoolor leisure time was noted by parents. Success depended onmultiple factors, such as carers providing the appropriatelevel of support to the child, the goal being challengingbut also achievable and meaningful to the child, and theintervention being delivered within an environment inwhich the child felt secure (Segal et al 2002).

Many parents recounted positive effects on their child’squality of life as they acquired new skills, such as develop-ing friendships, taking pride in their achievements andincreased motivation to build on their successes (Segal et al2002, Mandich et al 2003, Missiuna et al 2006). For example,learning to ride a bicycle opened up multiple social oppor-tunities for many children (Segal et al 2002, Mandich et al2003, Iversen et al 2005, Missiuna et al 2006).

Parents’ feedback indicated that within a therapeuticcontext the goals that children chose often related to theareas that challenged them the most physically. Thissuggested that many children with DCD had a desire forpeer acceptance and to participate in a normal repertoireof childhood activities (Segal et al 2002, Mandich et al2003). Within supportive contexts, children with DCDwere often motivated to develop strategies and skills toenhance their occupational performance.

(ii) Parent-focused interventionsMany parents stressed the provision of DCD informationor strategy training as being crucially important in helpingthem to readjust their expectations of their child, theirparent role and the intervention (Pless et al 2001, Iversenet al 2005, Missiuna et al 2006). Parent education in manycases helped to shift expectations from wanting their child’smotor problems to be cured to better management ofsymptoms associated with DCD. Some parents perceived thateffective intervention had empowered them to employmore successful parenting techniques, thereby minimisingthe impact of DCD symptoms on their child’s life (Pless et al2001, Iversen et al 2005, Missiuna et al 2006). Knowingwhat action to take to help their child also helped parentsto reduce the anxiety and stress associated with their child’scondition, and this was emphasised as being an importantlandmark for many parents (Pless et al 2001, Mandich et al2003, Iversen et al 2005, Missiuna et al 2006).

Children’s perceptionsChildren reported similar concerns to their parents andteachers regarding the impact of DCD on their physicalcapabilities and school performance. However, they alsoidentified the negative impact of DCD on their ability toengage in self-care and play activities, and considered theseareas to be important to them. Children were specific intheir descriptions regarding sports that they found chal-lenging, whereas parents spoke in more general termsabout gross motor skills. Parents, teachers and childrentended to agree on the severity of the motor problems, butnot necessarily on treatment goals or priorities (Mandichet al 2003, Dunford et al 2005).

DiscussionEnabling occupational therapists to integrate research evi-dence with practice techniques through considering prac-tice models that complement one another is important

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Ruth Morgan and Tony Long

(Nixon and Creek 2006). Many of the findings emergingfrom the studies aligned with Model of Human Occupation(MOHO) concepts, recognising the importance of client-centredness, occupation, volition (motivation for occupation),habits and underlying motor ability (Kielhofner 2008). MOHOconcepts are, therefore, incorporated within this discussionto help to interpret the findings of the literature review and toillustrate how models can be used to guide the therapeuticreasoning process regarding intervention decisions.

Occupational adaptationFrom a MOHO perspective, the development of positiveself-perception of motor ability and control is importantfor children with DCD and this is dependent on theirsuccessful participation in a range of motor activities andeveryday functional tasks. Parents’ descriptions of suc-cessful factors regarding the nature of the intervention thattheir child had received echoed these themes (Segal et al2002, Mandich et al 2003). Children rely on competentmotor skills to fulfil their main occupational roles at homeand school as they carry out play, self-care and educationalactivities. In order for children with DCD to achieve apositive self-identity regarding their motor abilities andmastery of motor skills, intervention must be meaningfuland related directly to their individual roles and personalvalues. The choices of activities that a child makes, andhow the child engages in these, reflects his or her values,interests and personal capacity. Parents spoke positivelyabout their experiences of interventions that adopted suchprinciples (Segal et al 2002, Mandich et al 2003, Dunfordet al 2005). It is important within practice, then, to ensurethat goals are set by the child and that these define themotor skills that he or she wishes to accomplish.

Occupational participationIn most of the qualitative studies, the importance washighlighted of the relationship between interventions thattaught motor skills and a child’s perceived self-confidenceand motivation to participate in physical activities (Segalet al 2002, Mandich et al 2003, Dunford et al 2005, Iversenet al 2005). This aligns with MOHO theory that a child’soccupational roles, volition and perceived self-competenceare important considerations in addition to his or her actualmotor capacity. Therefore, outcome measures used withinresearch studies may need to incorporate tools that measurechanges in self-efficacy and perceived competence foractivities. The implication for practice is that occupationaltherapists should use a broad range of occupation-basedassessment and intervention tools, which address a child’smotivation for occupation and optimise participation inmeaningful motor activities.

In the mixed methods study, parents described how theirchildren, following intense intervention and with enhancedparental involvement, participated more frequently and ina broader range of activities in comparison to peers whohad received less intense motor treatment with minimalparental support (Iversen et al 2005). However, it was noted

that motor difficulties persisted for both groups of children.Other studies have recommended that the timing and dura-tion of intervention for children with DCD requires consid-eration to account for the differing perceptions of familymembers and professionals (Green and Wilson 2008).

Parents expect intervention to facilitate their child’s partici-pation in everyday activities in addition to improving theirmotor skills (Segal et al 2002, Mandich et al 2003). Occupa-tional therapists, therefore, need to consider the impact of thechild’s motor difficulties on participation at home and school,and to use this information to guide their practice.

Some studies illustrate how children are more motivatedto achieve their own goals, rather than those set by others(Segal et al 2002, Mandich et al 2003, Dunford et al 2005).Parents and children confirmed that self-directed goalsfacilitated engagement in motor activities and social par-ticipation with peers (Segal et al 2002, Mandich et al 2003,Dunford et al 2005). Dunford et al (2005) reported that,although there were some shared areas of concerns betweenthe child, parent and teacher, children also place great valueon self-care and play activities. These additional factorsmay be overlooked if the child’s perspective is not sought.

Over the last decade, a range of assessment tools forchildren with an occupational focus has been developed,which could be incorporated into clinical practice to sup-plement motor assessments by demonstrating the impact ofmotor difficulties on the child’s participation in everydayactivities (Missiuna et al 2004, Bowyer et al 2005, Keller et al2005). Dunford et al (2005) identified the importance ofusing instruments that specifically measure DCD diagnosticcriterion B with respect to activities of daily living to assistwith diagnosis and management of preschool children (APA1994). Several researchers concluded that the measurementof motor ability should be extended to include functionaloutcomes and measures of occupational performance (Plesset al 2001, Dunford et al 2005, Iversen et al 2005).

ConclusionQualitative research evidence suggests that, for many families,intervention that addresses the everyday occupations andsocial consequences for children with DCD is more impor-tant than the remediation of motor disabilities. Therefore,assessment and intervention pathways that actively involvechildren and parents in partnership with professionals arerecommended. Occupational therapists should work collab-oratively with the child and his or her parents to agree goalsand to monitor intervention outcomes.

Education of parents and professionals is an importantaspect of care. Education could be extended to includechildren where developmentally appropriate, so that thechild learns better coping strategies for participation incommunity-based leisure and social activities (Stephenson2004). This means that future study designs need to measurethe success of education programmes provided to familiesand professionals.

18 British Journal of Occupational Therapy January 2012 75(1)

The effectiveness of occupational therapy for children with developmental coordination disorder: a review of the qualitative literature

Parents perceived successful interventions as being thosethat focused on enabling their child to participate in mean-ingful occupations in everyday contexts and which createdsocial participation opportunities in addition to developingtheir motor skills. Generating a better understanding of thechild and the occupational goals that are most important tohim or her is a vital aspect of child-centred practice. Occu-pational therapists should be familiar with using paediatric,occupation-based assessment tools and outcome measuresthat facilitate this process. Children with DCD need to besupported by occupational therapists in developing a positiveattitude towards an active lifestyle to maximise their generalhealth and social wellbeing in the long term.

Conflict of interest: None declared.

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with developmental coordination disorder. Canadian Journal of Occupational

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Key findings� Both child-centred and parent-centred interventions for DCD were

valued by families, but allowing children to be active in goal settingwas vital to this.

� Parents tended to aspire to intervention that would maximise thechild’s social participation whereas children were more concernedabout their ability to engage in self-care and play activities.

What the study has addedThis review of qualitative evidence will help practitioners to understandbetter how children with DCD and parents make sense of therapeuticexperiences, and will promote harmonisation of therapist and familypriorities. The focus on outcomes of therapy through an occupation-basedapproach lends support to the adoption of this approach by practitioners.

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