the future of health informatics -nov 12 -five nations

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    The Future of Health Informatics

    Peter L. LevinSenior Advisor to the Secretary & Chief Technology Officer

    U.S. Department of Veterans Affairs@pllevin

    November 2012

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    is open, deep, and blue

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    Its been exactly two years

    And today I can announce that for the first time ever Veterans will be able to

    go to the VA website, click a simple Blue button, and download or print your

    personal health records so you have that when you need them and can share

    that with your doctors outside of the VA. Thats happening this fall [2010].

    - President Barack Obama

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    A framework of health record modernization at VA

    4

    GUI

    CSB/ESB

    DATA

    Clinical Applications and Services

    JANUS, the jointly developed

    user interface, now in four

    locations (one with DoD)

    The core of the iEHR program;

    OSEHRA as the custodial

    repository and front-line

    certification agent

    The core of the VLER program,with Blue Button emerging as a

    very good way to structure,

    view, download, and transmit

    data; now part of ONCs

    meaningful use requirements

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    5

    Lets focus on the data

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    Today clinicians have many patients

    and patients have many clinicians

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    Almost all medical information is exchanged with paper

    7Photo taken by Peter Levin at a VBA regional office

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    Which is dangerous and drives up costs

    8

    1.5 million

    adverse reactions

    or Rx errors200,000 deaths

    per year from

    medical errors

    I went through eight years of training to become a surgeon, and yet I still see mistakes every

    week. So we worked with Boeing to learn [how to make] a two-minute checklist for operating

    rooms. And when we implemented it in eight hospitals, ranging from rural Tanzania to Seattle

    and London, the average reduction in deaths was 46%.

    - Atul Gawande

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    Blue Button is a good way to (at least) get

    data to the patient, now

    In March OPM required all federal carriers

    to Blue Button-enable their PHRs

    1.25 million users

    VA

    DoD CMS

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    In the near future, it will be the way that

    we view, download, and transmit data

    PHRs that are tagged, labeled and coded

    will be even more clinically useful

    #ABBI for your

    primary care physician specialty care provider

    in-home caregiver

    pharmacist

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    Blue Button downloads self-entered and

    clinically valid medical record data

    Blue Button file is easily

    readable and shareable

    Downloads in text and PDF:

    read, store, print on anycomputer no special software

    Patients can share with anyone

    they trust to improve or

    maintain their health

    11My HealtheVet page and sample Blue Button output

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    Why an ASCII file?

    Its machine readable

    Its human readable

    Supports electronic dataexchange (not ideal, but good)

    We could create it very quickly

    12

    Sample Blue Button immunization record output

    released in October 2012

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    The future of personal health data

    individual data

    elements

    today tomorrow

    day after

    tomorrow

    proteomic

    description

    (~2 million)

    lumped

    parameters

    (~220)

    genetic

    blueprint(~22,000)

    102

    104

    106

    13

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    Scope of data

    Size of one proteomic snapshot for a single patient: 0.04 terabytes

    Amount of (non-image) data contained in the entire

    AHLTA electronic health record at DoD for 9.7 million

    patients today:

    113 terabytes

    Storage space required for a single proteomic snapshot

    data for those 9.7 million AHLTA patients:390 thousand terabytes

    If every patient who had an office visit last year had a

    single proteomic snapshot taken, it would equal:10 million terabytes

    Amount of data passed over the internet globally in 2010: 250 million terabytes

    If everyone in the United States had a proteomic

    snapshot taken every day for one year, it would equal:4600 million terabytes

    14

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    15

    Veterans

    are about

    half of all

    users

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    There are plenty of commercial EHRs,

    but they dont communicate well

    Interoperability has been historically neglected

    Were making progress on standardization

    but progress is really slow

    Blue Button starts with an ordinary ascii file

    this has proven to be surprisingly well adopted

    VAs platform was already in the public domain now weve closed the loop with OSEHRA

    16

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    VAs recent health IT innovations

    NewPersonal Health Record (PHR)

    NewImplementation Roadmap

    NewElectronic Health Record (EHR)

    Blue Button

    OSEHRA

    VistA, AHLTA, and the

    Joint Common Platform

    17

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    Why open source?

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    Problem StatementFederal software acquisition is notoriously slow and error prone

    Encyclopedic requirements

    Choose once/choose wisely procurement

    Near-zero visibility into development

    Epic program slips and cost overruns

    19

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    Solution StatementTheres a much better way to do this

    Incremental requirements

    Interoperable apps (like a smart phone)

    Regular customer-facing deliverables

    Negotiate features, not time

    20

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    Use model for open source

    21

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    In July 2012 we installed the first vendor-

    contributed OSEHRA component

    22Dr James Kahn, VA Medical Center Palo Alto

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    October 2012 JANUS pilot performance metrics

    More than 600 clinical users James Lovell Federal Health Care Center (Chicago)

    Tripler medical center (Honolulu)

    Over 20,000 patient records retrieved

    Economic benefits

    First OSEHRA installation cost approximately $100,000

    Recently completed a second one for approximately $50,000

    Takes about an hour to learn

    Cost savings scale to $10-$50k per clinical user, per year

    86% of users agreed that JANUS saves

    time and resources, leads to better care

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    24

    Whats on, and whats next

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    What is our vision for Blue Button?

    To extend the simple, efficient data format in a

    way that enables industry-wide data exchange.

    Blue Button is becoming a broadly deployed,

    easily adopted (inter?)national PHR.

    25

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    26

    Keep data current

    We need Blue Button apps

    that make it easier to patients

    to see whats going on

    Enrich the

    patient experience

    We need Blue Button apps

    that always have latest update

    of patient records

    To be fully successful, we have to

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    Our purpose is to give patients better access to

    and use of their Personal Health Information based

    on Blue Button.

    Improved readability and organization

    Increased data portability

    Easier mobile development Patient-Mediated Information Exchange

    Blue Button for America

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    For example, better presentation makes

    the data even more meaningful

    28Created by Thomas Goetz, used by permission

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    Selected Blue Button partnersover 400 commitments on the ONC website

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    VA Blue Button Additions (targeted for December 2012) VA Demographics VA Problem List VA Admissions and Discharges (including Discharge Summaries)

    VA Notes (progress notes) VA Laboratory Results: (adds Microbiology) VA Vitals and Readings VA Pathology Reports: (Surgical Pathology, Cytology, Electron Microscopy) VA Radiology Reports

    VA Electrocardiogram (EKG) Reports Self Entered Food and Activity Journals VA Continuity of Care Document (VA CCD)

    30

    Coming soon: the complete medical record

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    Follow Blue Button:

    http://www.healthit.gov/bluebutton

    http://www.healthit.gov/pledge/

    http://wiki.siframework.org/Automate+Blue+Button+Initiative

    http://presidential-innovation-fellows.github.com/bluebutton

    Twitter: @ProjectBlueBtn

    Follow development:

    http://www.osehra.org

    How to get engaged.

    http://www.healthit.gov/bluebuttonhttp://www.healthit.gov/pledge/http://wiki.siframework.org/Automate+Blue+Button+Initiativehttp://wiki.siframework.org/Automate+Blue+Button+Initiativehttp://presidential-innovation-fellows.github.com/bluebuttonhttp://presidential-innovation-fellows.github.com/bluebuttonhttp://www.osehra.org/http://www.osehra.org/http://presidential-innovation-fellows.github.com/bluebuttonhttp://presidential-innovation-fellows.github.com/bluebuttonhttp://presidential-innovation-fellows.github.com/bluebuttonhttp://presidential-innovation-fellows.github.com/bluebuttonhttp://presidential-innovation-fellows.github.com/bluebuttonhttp://wiki.siframework.org/Automate+Blue+Button+Initiativehttp://wiki.siframework.org/Automate+Blue+Button+Initiativehttp://www.healthit.gov/pledge/http://www.healthit.gov/pledge/http://www.healthit.gov/bluebutton
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    The future of health informatics is

    open, deep, and blue

    Open: we're moving from a world of proprietary, closed,and monolithic systems to a better one based on openarchitectures, standards and modular components

    Deep: distinguishes the kind of data we have from "big";the progression to 2 million proteins and what thatmeans in terms of infrastructure, outcome, and scale

    Blue Button: is it becoming the national platform for

    personal health records, and is on the vanguard of theworldwide open data initiative

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