the global action plan on the public response to dementia ... · response to dementia 2017-2025:...
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The Global Action Plan on the Public
Response to Dementia 2017-2025:Why we need to do
more
Paola BarbarinoChief Executive OfficerAlzheimer’s Disease International (ADI)
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Source: World Alzheimer Report 2018
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About Alzheimer’s Disease International (ADI)
• Established in 1984• The umbrella organisation of Alzheimer associations
around the world• 100 member associations & federations (Deutsche
Alzheimer Gesellshaft in Germany)• 16 associations on the Membership Development
Programme (MDP)• Official Relations with WHO
Our vision is prevention, care and inclusion today, and cure tomorrow.
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ADI’s objectives
• Raise global awareness about dementia• Build and strengthen Alzheimer associations
throughout the world • Support associations so they are better able to
meet the needs of people with dementia and their carers
• Advocate for people with dementia and their carers on a global level
• Stimulate research, especially in lower and middle-income countries
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What we do
• Global and national advocacy• World Alzheimer’s Month/Day• World Alzheimer Reports• Publications• Alzheimer Universities• International conferences• Regional meetings• Twinning programme• Involving people with dementia• Research
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WHO Global action plan on dementia
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National Dementia Plans
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National Dementia Plans
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Case study: Germany
• January 2019: Work on development of national dementia plan commenced
• 4 fields of action: strengthening social participation of people with dementia; supporting people with dementia and their carers; further development of medical provision and care; and supporting excellent research
• Good stakeholder engagement Pictured: the announcement event of Germany’s national plan. Photographer: Herber Jennerich/BMFSF
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Action area 2 – Awareness and friendliness
www.worldalzmonth.org
• World Alzheimer’s Month held around the world since 2012
• World Alzheimer’s Day, 21 September
• Global importance of World Alzheimer’s Month following adoption of Global Plan on Dementia in May 2017
• 2018: Activities held in over 80 countries - and growing
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Action area 2 – Awareness and friendliness
www.paho.org/lets-talk-dementia
• 2019: ADI-PAHO awareness campaign for region of the Americas
• ‘Let’s talk about dementia’ theme
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World Alzheimer Report 2019
• World’s largest survey on attitudes to dementia
• Commissioned London School of Economics (LSE) with analysis
• Almost 70,000 respondents from 155 countries
• Essays and case studies in addition to survey analysis
www.alz.co.uk/worldreport
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World Alzheimer Report 2019
A taster of the findings:• 2 in 3 people think that dementia is
caused by normal ageing• 1 in 4 people think that there is
nothing we can do to prevent dementia
• 1 in 5 people attribute dementia to bad luck, almost 10% to God’s will and 2% to witchcraft
www.alz.co.uk/worldreport
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34th International Conference of ADI
www.adi2020.org
Abstract topics
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New directions: Awareness through formal education
Argentina –Amigabuela by María Eugenia Gentile
Israel – The Power of Joy Nurit Schonman
South Korea’s Dementia awareness education
programme
Elementary & middle school
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Action area 3 – Dementia risk reduction
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Action area 3 – Dementia risk reduction
Lifestyle & behaviour interventionsPhysical activity, smoking cessation, healthy diet
Interventions for health conditionsObesity, raised blood pressure, diabetes, etc
Cognitive training
Recommends:
1
2
3
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Going forward:
All governments should do more to inform their population of the
strong links between certain lifestyle factors and dementia
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• Target: diagnostic rate of 50% of those affected in both LMIC and HIC
• Health system must be prepared for diagnostic breakthrough
• OECD primary care doctors correctly identify only around 50-75% of dementia cases
• Only 2 OECD countries (Denmark & UK) have set targets to improve diagnostic rate
• Dementia registries e.g. South Korea
Action area 4 – Diagnosis, care, treatment, support
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Action Area 4 and 5: Post-diagnostic support
• A critical and neglected area
Scottish National Dementia Carers Action Network
NDCAN: An advocacy group in Scotland, alongside the Scottish Dementia Working Group
1 year + post diagnostic support
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Action area 5 – Support for carers
WHO iSupport
Carer advocacy groups
Dementia Care Skills training in Indonesia
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Action area 5 – Support for carers
• 24-hour caring can have a negative impact on employment, finances, family, psychological and physical health, and leisure time.
• Dementia care is particularly stressful - changes in the person with dementia’s cognition and abilities, behavioural and emotional changes can challenge and strain relationships.
• The carer may experience loss due to changes in the relationship between the carer and person with dementia.
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New directions: support through Labour legislation• In 2015 informal carers provided 82
billion hours of care for people living with dementia
• This is the equivalent of more than 40 million full time workers – and will increase to 65 million full time workers by 2030
What’s the answer?
• Employment laws - ILO
Source: https://www.alz.co.uk/adi/pdf/global-estimates-of-informal-care.pdf
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• Global Dementia Observatory launched • 35 indicators aligned to 7 Action Areas• Data from only 21 countries – 80
countries now engaged but no data published yet
Action area 6 –Information systems
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Action area 7 – Dementia research and innovation
• For every 12 cancer studies there is only 1 on cognitive disorders
• Calls for all governments to devote 1% of the societal cost of the disease to research
www.alz.co.uk/worldreport
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Action area 7 – Dementia research and innovation• Innovation showcase at ADI Conferences• Collaborations focusing on technology
and entrepreneurship
ADI & Global Coalition on Aging Dementia Innovation Readiness Index
IKEA workshop on range of dementia friendly products, Chicago 2018
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Global partnerships
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World Alzheimer’s Month 2019
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Follow ADI on Twitter @AlzDisInt
Like us on Facebook/alzheimersdiseaseinternational
Visit our websitewww.alz.co.uk
Thank you!