the lighthouse, children and families: respite, care, and continuous · 2018. 11. 28. · in order...

17
The Lighthouse, Children and Families: respite, care, and continuous support 2014–2015 Annual Report

Upload: others

Post on 17-Sep-2020

1 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

The Lighthouse, Children and Families: respite, care, and continuous support

2014–2015 Annual Report

Page 2: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 2 3The Lighthouse, Children and Families

The Lighthouse, Children and Families

Our Mission

Created in 1999, The Lighthouse, Children and Families is a CHARITABLE organization that contributes to the wellbeing of children whose lives are threatened by illnesses that require complex treatment, and provides respite and support to their families.

Our Values

Our ServicesTo carry out its mission, The Lighthouse operates Maison André-Gratton, Quebec’s only pediatric palliative care home, which offers both respite stays and palliative care. It also offers in-home respite care and a family support program.

All services offered by The Lighthouse are free, thanks to financial support from Ministère de la Santé et des Services sociaux; the Montreal, Laval, and Montérégie area health and social services agencies; Centre hospitalier universitaire SainteJustine; the MUHC Montreal Children’s Hospital; and our many donors and partners.

Pediatric Palliative CarePediatric palliative care is active, comprehensive care encompassing the physical, psychological, social, and spiritual care dimensions. It helps provide children with the best possible quality of life and supports their families. This includes relieving children’s symptoms, providing a break for their families, and providing care up to death and through period of mourning.

– From Québec Standards of Practice for Pediatric Palliative Care— a reference in the Quebec community

The TeamIn order to care for the children and provide support for their families, The Lighthouse has a team of medical and psychosocial experts made up of doctors (on call 24/7), nurses (onsite 24/7), a care and services advisor, care attendants, a social worker, a special education worker, a family services coordinator, and a psychologist, as needed.

A second team organizes a variety of activities adapted to the age and physical and intellectual abilities of the children. This outstanding team also includes outside caregivers with complementary approaches (pet therapy, music therapy, massage therapy, and hospital clowns). Finally, The Lighthouse has management

teams for administration and fundraising, cooks who go to great lengths to respect the diets and tastes of each child, and housekeeping sta� who keep everything clean!

Because The Lighthouse also o�ers internships, internsfrom various academic disciplines occasionally join our team.

The Lighthouse has volunteers who help out on various levels: activities for the children, fundraising, administration, communications, cooking, and gardening. Those who work with the children receive 18 hours of training before they begin. These valuable volunteers, who give us their time, energy, talent, and dedication, support the Maison André-Gratton team and also o�er at-home respite for the parents. They bring games, songs, crafts, fun, a�ection, and understanding, brightening the lives of children and parents alike.

COMMITMENT RESPECT CHARITY SOLIDARITY

Maison André-Gratton

Page 3: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 4 5A Joint Word from our Chairman and our CEO

A Joint Word from our Chairman and our CEO

Looking back on the accomplishments—both big and small—of The Lighthouse, Children and Families over the past few years, one fundamental value emerges: continuity. It has come to permeate The Lighthouse’s decisions and direction.

Continuity in the very values of the organization. Charity, commitment, solidarity, and respect have guided us at The Lighthouse since its inception. These values have also helped make The Lighthouse a true beacon in our fi eld as we take the road less travelled of palliative pediatrics.

Continuity through each of the stages in a child’s illness, both for the child and the family. Providing continuity in our services while adapting to change is essential. It means we have to listen in earnest and be open to the changing needs of families at the di� erent stages of an illness—upon diagnosis, as the disease progresses, and at the end of a child’s life.

From the moment we fi rst contact a child and their family, The Lighthouse o� ers them a reassuring presence as well as support adapted to their specifi c needs, which can vary over time and as the child’s condition changes. The touching story of Marianne Brodeur and her family, which you’ll read in the following pages, is a testament to the kind of adaptive support that The Lighthouse o� ers each family.

The La face cachée des étoiles project, which we o� ered to families once again this year and discuss in our report, exemplifi es how The Lighthouse celebrates the vivid passion these children have for life and memorializes their short time on earth with respect and sensitivity, at every stage of their illness.

Clearly, The Lighthouse couldn’t meet this great challenge of providing continuity without the dedication and loyalty of its donors, partners, and volunteers who bring their wholehearted support to the organization and give us the strength to drive our fundraising e� orts forward and improve our services.

This focus on continuity also has us looking to the future and sharing The Lighthouse’s expertise in order to help more families throughout the province. A training program in pediatric palliative care implemented in 2014–2015 has already brought concrete results. So too has our collaboration with various community partners. And while staying true to The Lighthouse’s fundamental values, we have begun to make certain changes to ensure the continued advancement of our services, research, institutional excellence, and expertise. Our 2015–2020 Strategic Plan o� ers an overview of these changes and their projected implementation.

There are of course challenges to face in the coming years. We need to renew and expand our fundraising activities to keep The Lighthouse, Children and Families on solid fi nancial ground, consolidate our knowledge and expertise in the full spectrum of palliative pediatric care, strengthen The Lighthouse’s position within the health network, and build our reputation as a centre of expertise. The future is undoubtedly full of hope for The Lighthouse, its children, and their families.

Jean-Daniel BrissonChairman of the Board

Johanne DesrochersExecutive DirectorJohanne Desrochers

Page 4: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 6 7Nicole Marcil-Gratton’s Vision

Nicole Marcil-Gratton’s Vision

Without Nicole Marcil-Gratton, The Lighthouse’s Maison André-Gratton simply wouldn’t exist. This exceptional woman, mother, and Université de Montréal demographer, moved by the su�ering and exhaustion of parents with terminally ill children and the lack of available resources, saw her most personal values reflected in this daunting project and embraced it from the outset.

Invaluable partner of The Lighthouse, Children and Families founder Michèle Viau-Chagnon, Nicole spent countless hours working in the field, lobbying the government, and soliciting private donors to bring to life what had become a personal mission. Armed with unquestionable integrity and an unshakeable faith in the project, she put her formidable powers of persuasion to work, knocking on door after door and taking every opportunity to further the project. Patient and strategic, she acted as a bu�er between her passionate colleagues and the rest of the world, encouraging them to save their strength for the opportunities that would truly move the project forward and help them to reach their goal. Intelligent and disciplined, she prepared her public appearances with great care, convincing decision makers and company directors of the project’s credibility and viability with tact and grace. A passionate, petite, bright-eyed woman, she won over major government and industry players with her charisma and quiet strength.

When Nicole Marcil-Gratton received noncommittal, reluctant replies, she simply rolled up her sleeves. To her, such dismissals weren’t an a�ront—they were an opportunity to educate people about the cause, as well as a reminder to keep going. There were roadblocks over the years: finding a construction site for Maison André-Gratton, the change in government in 2003 at a time when the project was building steam and had already garnered numerous commitments, and the constant and ever-growing need for funding. But Nicole never gave up. Her tenacity heartened colleagues and partners when they grew discouraged at the sheer size of the task. Straightforward, discrete, and utterly humble, she tackled every challenge with a strength of character, vision, determination, and conviction that forged the very foundations of the organization.

Nicole Marcil-Gratton with Michèle Viau-Chagnon, founder of The Lighthouse, Children and Families, and Paul Desmarais Jr., Chairman and Co-Chief Executive Director of Power Corporation of Canada, during an evening to recognize donors in the campaign to build Maison André-Gratton – September 2008

Nicole Marcil-Gratton – September 2008

Nicole Marcil-Gratton with Dr. Philippe Couillard, then Minister of Health and Social Services, for the opening of Maison André-Gratton – September 2007

Michèle Viau-Chagnon and Nicole Marcil-Gratton with Jean Charest, then Premier of Quebec, being appointed Knights of the National Order of Quebec – June 2009

The Lighthouse, Children and Families will remain forever linked to this formidable woman, who this year was named honorary chair of the board. Maison André-Gratton owes not only its existence, but its soul and values, to the extraordinary vision of this exceptional woman. The big and small accom-plishments of The Lighthouse, Children and Families would not have been possible without her.

Page 5: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 8 9Marianne’s Mission

Guy Brodeur and Ginette Larose, a solid, caring couple, were already the proud parents of Guillaume, Élisabeth, and Xavier when little Marianne was born on October 21, 1994. A beautiful pink baby who was already smiling just an hour after being born, she nonetheless proved highly vulnerable to infection, gained little weight, and gradually displayed poor balance.

Marianne’s Mission

Between 2002 and 2007, life took on a certain normality for the Brodeur family. Marianne received monthly antibody injections and showed great strength in processing and grieving her successive losses. As the insidious disease progressed, Marianne gradually transitioned from a walker to a wheelchair—painful steps for Guy and Ginette, who also had to deal with the reactions of their three elder children and help them process the emotions that came with their little sister’s illness. But the family stayed united. Guillaume, Élisabeth, and Xavier each pitched in, in their own way, to see to Marianne’s well-being. With kindness and generosity, they helped with minding, homework, meals, bedtimes, and medication. Utterly devoted to their family, Guy and Ginette managed to provide a life as normal as possible for their children, with sports, trips, and social activities. As they put it, “Life goes on.”

At the beginning of 2007, Marianne’s lungs grew significantly worse. After several tests that provided little insight, her doctor decided to try an open lung biopsy—a risky surgery for someone in Marianne’s condition. She spent the next 11 days in intensive care with a breathing tube. With extraordinary patience and courage, she stayed positive as she fought for her life. The medical sta� were touched by her sweetness and the unspoken gratitude that she managed to convey every time she looked at them. Unfortunately, the diagnosis was devastating and definitive: Marianne had pulmonary fibrosis, a disease associated with ataxia-telangiectasia that a�ects only 25  % of su�erers. The prognosis was bad. And to make matters worse, the cortisone injections—her only hope for treatment—failed to have any e�ect.

It was a major blow for Ginette and Guy, who then knew that their daughter’s days were numbered. With her lungs in critical condition, Marianne spent the following months at the hospital. Life at home took a sharp turn as Ginette began a permanent watch by her daughter’s bedside. With speech growing increasingly tiring and di´cult, Marianne had a hard time communicating with hospital sta�. For both parents, leaving her alone was not an option. So Guy, a general contractor, had to run his business as well as his household of three teenagers—with all their schoolwork and extracurricular activities—between hospital visits. Looking back on those tumultuous months of strain, worry, and sleepless nights, today Guy has only these soft, tender words for his wife: “We were a really good team.”

Despite Marianne’s unstable condition, the doctors gave the Brodeur clan the green light to head to Walt Disney World, a trip made possible by the Children’s Wish Foundation. With an arsenal of medication, oxygen tanks, and a private nurse in tow, the whole family took o� for the magic kingdom. When they got back, Marianne asked to be able to sleep at home before returning to the hospital. She was in for a big surprise. Her room had been completely transformed and was now decked out in one of her favorite themes: butterflies. As she marveled at the walls, furniture, and accessories, Marianne felt as though she was wrapped in a warm, soft cocoon. But the special moment was cut short by her illness, which forced her back to the hospital.

Marianne’s development was atypical, to be sure, but doctors weren’t overly concerned and reminded her worried parents that some kids just take longer to get going. But Ginette’s maternal instincts told her otherwise—she felt as though a dark cloud was hovering over their frail princess. But the doctors assured her it was merely delayed development and a few motor skill problems. Still, her condition was deemed serious enough to warrant a referral to the preschool and kindergarten program at Marie-Enfant Hospital. With close supervision and constant stimulation, Marianne developed by leaps and bounds and, when it was time to start grade 1, she was deemed ready to move to the neighborhood elementary school. An endearing student who got good grades and loved going to school, Marianne made an impression on teachers and classmates, despite feeling that everything was moving too fast—a secret she confided only to her Mom.

Marianne, age 2

Marianne, age 6

Marianne, accompanied by her sister Élisabeth, on her last day at Victor-Doré School

Marianne was later struck by a series of pneumonias that left her weak and prompted a full battery of hospital tests. The verdict came in November 2001: at seven years old, this sweet child with angelic features and a candid smile was diagnosed with ataxia-telangiectasia, a degenerative disease so rare that her neurologist had only seen one other case in 30 years of practice. Very little was known about the condition, including its development, prognosis, and possible treatments. Guy and Ginette learned that each case is unique and that each patient has a di�erent experience. But the multiple e�ects on Marianne’s immune system were clear, and explained her repeated infections.

As Marianne’s need for physiotherapy, occupational therapy, and respiratory therapy grew, it became clear the little neighborhood school she loved so well was no longer suitable for her needs. With great dignity and surprising wisdom, Marianne explained to her whole class that she would be leaving the school because her body needed special care. She was transferred to Victor-Doré, a school for children with disabilities, and soon declared that she felt “right at home.” Guy and Ginette, on the other hand, were just starting to come to terms with their daughter’s diagnosis. Their emotions veered between overwhelming anger at the injustice of the situation and a profound desire to stand by Marianne and support her in her di�erence.

Page 6: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 10 11Marianne’s Mission

Despite Marianne’s unstable condition, the doctors gave the Brodeur clan the green light to head to Walt Disney World, a trip made possible by the Children’s Wish Foundation. With an arsenal of medication, oxygen tanks, and a private nurse in tow, the whole family took o� for the magic kingdom. When they got back, Marianne asked to be able to sleep at home before returning to the hospital. She was in for a big surprise. Her room had been completely transformed and was now decked out in one of her favorite themes: butterfl ies. As she marveled at the walls, furniture, and accessories, Marianne felt as though she was wrapped in a warm, soft cocoon. But the special moment was cut short by her illness, which forced her back to the hospital.

Exhausted, Guy and Ginette decided to hire a private nurse a few nights a week to help them catch their breath. Refl ecting on those days, Ginette can now say that “In life there are no coincidences, only meaningful encounters.” And so Heather came into their lives and told them that she also worked at Maison André-Gratton for The Lighthouse, Children and Families. The organization’s end-of-life care program was still in its infancy, but in Heather’s mind there was no doubt it would be the perfect place for Marianne and her family. They began administering morphine to the girl at home and, despite her fragile condition, The Lighthouse agreed to take her in for a weekend. In the middle of the night on Saturday, Marianne su� ered an acute respiratory attack that required immediate medical intervention. “Thank goodness Marianne was at The Lighthouse at the time,” Ginette later recalled. “If it weren’t for the medical sta� on hand, it could have been the end for Marianne, and the experience would have been so much more traumatizing for her and for us. From that moment on, we knew for sure that we were in the right place—that The Lighthouse was shining into our lives for a reason.”

Marianne stayed at The Lighthouse from February 16 to March 5, 2008. In a way she knew she was something of a pioneer, helping to forge what would become The Lighthouse’s palliative care department. Life at The Lighthouse was a warm bubble of humanity for Marianne and her family. They felt at home there and quickly realized it was a place where each of them could get the care, attention, and support they needed. From the medical personnel to regular sta� and volunteers, everyone kept a watchful eye, ever mindful of the needs of each member of the Brodeur family. They all did everything they could to give the family lasting memories together—special moments to add to their memory chest.

Forced by her illness to leave school suddenly, Marianne had missed the chance to say goodbye to her much-loved friends at teachers at Victor-Doré. So the family piled into a van with a nurse and an oxygen tank and headed o� to school! Marianne knew she didn’t have much time left and made the most of her farewell visit, taking a solemn tour of the school, saying hello to friends and sta� , and touching everyone with this gesture full of meaning for both Marianne and the people at the school.

A few days later, the little group headed to the Botanical Garden for the Butterfl ies Go Free Exhibition. As her parents later recalled, “She was so beautiful, her face full of wonder—a mix of contemplation and serenity. She watched the little cocoons, hoping that one of them would open and a baby butterfl y would fl y out. Magic, unforgettable moments that The Lighthouse made possible.”

The Brodeur family’s daily routine, which was anything but routine, was punctuated by picnics, hospital clown visits, crafts—including a workshop where they took clay molds of Marianne’s little hands—and hours spent watching the fi sh in the huge aquarium in The Lighthouse dining room. It was a time of vivid emotions, but the family felt supported, cared for, and loved. There was humanity, respect, and dignity in the words and gestures of everyone who shared this intensely signifi cant time with the Brodeur family.

Guy, Ginette, and the children slept steps away from Marianne’s bed. One by one, they lay beside her, stroking her hair, singing her lullabies, and whispering their love. The days and nights passed, but time seemed to stand still. On March 5, 2008, at 2:22 p.m., the sky grey with clouds and a winter storm blanketing the city in snow, Marianne fl oated away in a soft fl uttering of wings to join her butterfl y friends, in peace and without pain, surrounded by her loved ones. At that same moment, a strong beam of sunlight cut through the clouds and fell on The Lighthouse; a sign, no doubt, that Marianne had accomplished her mission. The fi rst little girl to die at The Lighthouse, Marianne paved the way for those who would follow. She embodied the vivid passion for life and the intense beauty of the present moment that children and their families experience as the end approaches.

The Brodeur family hasn’t left The Lighthouse—not really. Two weeks after Marianne’s death, they were there for our big annual evening fundraiser. And every year since, they’ve lent a helping hand for various Lighthouse fundraising activities. The children, now grown, continue to contribute and recruit their friends to the cause. In 2011 Élisabeth told Marianne’s story in a remarkable speech delivered during a Lighthouse benefi t evening. The Lighthouse, she explained, was Marianne’s version of “heaven for sick children.” Far from paralyzing the family in su� ering and grief, getting actively involved is a way for them to continue Marianne’s mission—to keep the candle she lit shining brightly in their hearts.

Through her warm presence and infectious love of life, Marianne moved, touched, and transformed all those who crossed her path. Her dad says she taught them how important it is to live in the present, to appreciate the little things, to always give more, to let go, and to persevere. Her mom says that Marianne gave her parents, brothers, and sister the chance to become better human beings, to be open, to understand people’s di� erences, and to seek out honest, sincere human relationships. But Marianne’s light shines well beyond the borders of her little family. She’s in the very walls and foundations of Maison André-Gratton, where she gave meaning to The Lighthouse’s pediatric palliative care project, and put a face to the noble mission of treasuring —and enjoying—life until the very end.

Marianne, back from Walt Disney World

Marianne surrounded by her family

The holidays came and went and Marianne kept holding on. In a particularly touching moment—one that Ginette will never forget—Marianne turned to her mother as she was brushing the girl’s long brown hair. Puzzled, she asked, “Why am I not dead yet?” After a moment of thought, Ginette replied that Marianne had been born for a reason, that she had something important to do during her time on Earth and that it was up to her to discover that special mission.

Although Marianne still clung to life, her condition remained no less critical, and in the weeks following the holidays the family slipped into a permanent state of extreme anxiety. Medical equipment was able to keep Marianne alive, but her respiratory attacks grew more frequent and unpredictable. The family was perpetually on red alert and kept a constant watch over Marianne, ready to intervene at any moment. You could cut the air with a knife. Faced with the fragility of Marianne’s life, her family felt overwhelmed and utterly helpless.

Page 7: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 12 13Unique arts activities for children at The Lighthouse

Unique arts activities for children at The Lighthouse

La Face Cachée des ÉtoilesAmong the many services The Lighthouse o�ers families is Cultiver la mémoire, a program designed to create a lasting memory of the terminally ill child through a special experience shared with the whole family. La face cachée des étoiles is part of that program. It’s a way of o�ering The Lighthouse children and their families an amazing adventure—one that lets a sick child become someone else for a short while and live out their dreams and fantasies. Using a little photomontage magic, this unique project makes the impossible possible, allowing children to travel through a fantasy land without limits, su�ering, or sickness—a place where anything is possible. La face cachée des étoiles o�ers The Lighthouse children a spellbinding experience that taps into their passion and creativity to allow them to embark on an imaginative journey to live out their wildest dreams. It also leaves families with a timeless keepsake of their child and the things he or she loved.

This unique, unifying project was created in 2009 with a view to transforming the often negative perceptions people have of those who don’t meet social norms and are somewhat marginalized from society. The project provides a platform for children who, despite their illness, have never stopped dreaming. With La face cachée des étoiles, children can use their imagination to create funny, moving stories—to dream big dreams and explore untapped passions.

Thanks to the generosity of an anonymous donor, this year The Lighthouse was able to o�er this amazing adventure for the third time. The Lighthouse team, children, and families wish to express their deepest gratitude for this wonderful gift.

The children of The Lighthouse held a second art showOnce again this year, thanks to our special partnership with Studio Locomotion, The Lighthouse Children and Families presented the second edition of our art show where people could admire and purchase paintings by The Lighthouse children.

Our young artists gave shape to their feelings, and created ten wonderful group canvases that o�er lasting impressions of their time at The Lighthouse. The activities team was brimming with amazing ideas for special tools that would allow the children to make full use of their artistic abilities. Medical supplies became art supplies: syringes created thin streams of coloured paint, eyedroppers squirted ink. Long sticks were attached to the children’s arms and fitted with paint brushes or pieces of fabric. These new appendages allowed them to hold their tools with or without physical e�ort, extending their natural movements onto the canvas. Even children confined to a bed or wheelchair got the chance to express their inner artist. Small and big kids alike worked hard on their creations over the course of several months, and the results became a real source of pride and happiness. The smiles and fits of laughter emanating from the art room told us that this type of project is an overwhelmingly positive experience for the children. As for the project organizers, well, it was a bona fide “Mission accomplished!”

Page 8: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 14 15The Lighthouse and the dissemination of knowledge in palliative pediatric care

The Lighthouse and the dissemination of knowledge in palliative pediatric care

In addition to the support we provide, The Lighthouse, Children and Families has another mission: to share knowledge and transfer skills in palliative pediatric care. That’s why we develop tools to pass the expertise we have gained on to others, especially frontline caregivers, families, and natural caregivers. Quebec’s Ministère de la Santé et des Services sociaux has asked The Lighthouse to develop an online training program in palliative pediatric care. This Web-based training program is intended for CLSC caregivers and their colleagues within local community service networks. Although primarily designed for CLSCs, the 36 modules can also be used to train regular hospital and adult hospice attendants where there is a need to care for a terminally ill child. It’s a way of improving the access, quality, and continuity of support available to families of sick children in their area—a growing challenge for families of children whose lives are prolonged beyond previous expectations.

The training program focuses on updating the attitudes, knowledge, and organization of services as observed in eight partner regions during a volunteer home respite program that ran for The Lighthouse from 2011 to 2014. One of the key contributors on the project is Carole Tétreault, a healthcare e-learning specialist, who is optimizing the program for online distribution through various learning activities. Reviewing the clinical content we have Marie-Claude Proulx, a management-level consultant in pediatric palliative nursing at the Montreal Children’s Hospital.

The online program is designed to be interactive, dynamic, and visual. The goal is to o� er a reliable and enjoyable course that can be adapted according to the learner’s prior experience and the caregiving situation. Since pediatric palliative care can be a highly emotional topic, awareness and interpersonal skills are an important focus of the program.

Promising experiences in the Quebec City, Lanaudiere, Laurentians, and Saguenay regions have provided specifi c solutions for critically ill children. These cases are presented along with the tools developed in the regions. Other modules o� er examples taken from The Lighthouse’s end-of-life care and long-term family support (respite services). One module suggests ways of moving support services closer to the family’s home town, regardless of where the child is being treated. Dedication and kindness—central values of The Lighthouse—are reinforced throughout the training program. The goal is to establish quality, timely regional services, with The Lighthouse guiding and supporting caregivers, organizations, and families from afar.

The training program has fi ve sections:

1 Pediatric palliative care in Quebec: particularities and practices

2 New ideas on the organization of pediatric services in Quebec

3 An itemized care guide for children dying at home

4 Modules to be shared with outside professionals who may have little experience with end-of-life pediatric care (pharmacists, doctors, spiritual caregivers, etc.), as a primer for working with CLSC caregivers

5 Long-term family support

Page 9: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 16 172014–2015 at a glance

3,657 90185%

12 7.7

1,436

732

63

9200

68 4

418

nights o�ered to children

MAISON ANDRÉ-GRATTON

IN-HOME RESPITE SERVICES

THE LIGHTHOUSE TEAMTRAINING

RESPITE AT HÔTEL MONFORT AND LA PERSILLÈRE

occupancy rate

rooms

hours of activities o�ered daily to each child by the activities team and volunteers (artistic, cognitive, fun, motor skill, therapeutic, sensory, relaxation, and Cultiver la mémoire program activities)

psychosocial interventions for families by the social worker and special education team (during stays, prevention, transition, adaptation, complex decision making, symptom management, end-of-life care, bereavement, and the Cultiver la mémoire program)

hours of training for employees

hours of training for volunteers

families (93 adults and 20 children) benefited from a respite stay at Hôtel Monfort de Nicolet (thanks to a partnership agreement with the organization Aid to Children of the World) and at the La Persillère vacation retreat (thanks to the generosity of Gestion Les Ensembliers).

physicians

active volunteers (13,300 hours volunteered)

employees

days (average length of stays)

families supported,23 of which are through partnership agreements with local organizations(Albatros Québec, Palli-Aide, and Pallia-Vie)

regions served,4 of which are through the same partnership agreements(Capitale-Nationale, Chaudière-Appalaches, Lanaudière, Laurentides, Laval, Montérégie, Montreal, and Saguenay-Lac Saint-Jean)

FAMILY SUPPORT CLIENTELE PROFILE

BY AGE GROUP

Age 0–2: 11%

Age 3–5: 27.5%

Age 6–12: 41%

Age 13–18: 20%

Age 19–21: 0.5%

BY SOURCE OF REFERRAL

Hospitals: 83%

The Lighthouse, Children and Families: 13%

Other health organizations: 3%

For- and not-for-profit organizations: 1%

BY REGION

Montreal: 37%

Monteregie: 26%

Lanaudiere: 12%

Laval: 8%

Eastern Townships: 5%

Quebec City area: 3%

Laurentides: 2%

Saguenay–Lac-Saint-Jean: 2%

Mauricie: 1�%

Abitibi-Temiscamingue Centre-du-Québec Chaudiere-Appalaches Côte-Nord Nord-du-Québec Outaouais: 4%

2014–2015 AT A GLANCE

Pour les parents et la fratrie des enfants malades

Page 10: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 18 19The boards and committees that help us keep getting better

The boards and committees that help us keep getting better

We would like to recognize the members of our many committees for their commitment and dedication, and for generously sharing their in-depth expertise with our organization. With the help of our volunteers and partners from every walk of life, we are able to maintain the highest quality standards. Thank you for your dedicated support of The Lighthouse.

BOARD OF DIRECTORS

ChairJean-Daniel BrissonSenior Manager, Strategy ConsultingRaymond Chabot Grant Thornton

Deputy ChairNicole Marcil-Gratton

Vice ChairIsabelle CantinFinancial Security Advisor and Mutual Fund RepresentativeFinancial Services, Investors Group Inc.

TreasurerMarcel MartinRegional Vice-PresidentGold Key Advisor Practices, Quebec/Eastern OntarioGreat-West Life Assurance Company

SecretaryFrédéric PérodeauSenior Director of Inspection and InvestigationAutorité des marchés Financiers

AdministratorsDr. Aurore CôtéDirector, Partnership Program, Respiratory Medicine SpecialistMontreal Children’s Hospital

François GrattonTELUS Executive Vice-President, Business Solutions for Eastern Canada President of TELUS Quebec

Hélène LévesqueClinical Administrative Manager, Specialized Pediatric ProgramCHU Sainte-Justine

Nicole MagnanManagement Consultant

Alain MiquelonPresident and CEOMontréal Exchange

Paul TriheyExecutive Vice President, Global Sales and Marketing Fusion BPO Services

Maxime VandalPresident Les Ensembliers

Michèle Viau-ChagnonFounderThe Lighthouse, Children and Families

BOARD OF GOVERNORS

Co-chairsNicole Marcil-GrattonDeputy Chair, The Lighthouse, Children and Families

Michèle Viau-ChagnonFounder, The Lighthouse, Children and Families

Paul Desmarais Jr.Chairman and Co-CEOPower Corporation of Canada

Ginette GodinChair, 2010–2015 The Lighthouse, Children and Families Fundraising Campaign

Serge GodinFounder and Executive Chair of the BoardCGI

Bernard LamarreChair of the BoardGroupe Bellechasse Santé

Eddie LeschiuttaPartnerSamson Bélair/Deloitte & Touche

L. Jacques MénardPresidentBMO Financial Group QuebecChair of the BoardBMO Nesbitt Burns

Andrew T. MolsonChair of the BoardRES PUBLICA Consulting Group

Stéphane QuintalDirector of Player SafetyNational Hockey League

Pierre ShedleurSpecial AdvisorBDO Canada

Robert TessierChair of the BoardCaisse de dépôt et placement du Québec

FINANCIAL DEVELOPMENT COMMITTEE

ChairPaul TriheyExecutive Vice President, Global Sales and MarketingFusion BPO Services

Michel BenoîtPartnerOsler, Hoskin & Harcourt

Martin CaronFinancial Services Marketing DirectorInvestors Group

Guillaume LetiProject Manager

Nicole MagnanManagement Consultant

Jeannot MartelSenior Advisor, Business Solutions, RDITELUS Québec

Marcel MartinRegional Vice-PresidentGold Key Advisor Practices, Quebec/Eastern OntarioGreat-West Life Assurance Company

Marie-Josée RivardDevelopment DirectorTELUS Ventures

Maxime VandalPresidentLes Ensembliers

The Lighthouse, Children and Families Representatives

Manon DurocherDirector of Financial Development and Communications

Céline LabergeMain Financial Development Advisor

FAMILY CONSULTING COMMITTEE

ChairIsabelle CantinFinancial Security Advisor and Mutual Fund RepresentativeInvestors Group Financial Services Inc.

Alain CoudéChairFondation des Jumelles Coudé

Monica DuschênesViolinistMetropolitan Orchestra

Suzanne FernandezVolunteerThe Lighthouse, Children and Families

Zelina FriganProject ManagerAd Hoc Research

Danielle GuénetteVolunteerThe Lighthouse, Children and Families

Jasmine LambertVolunteerThe Lighthouse, Children and Families

Carole ParadisPsychologistCégep du Vieux Montréal

The Lighthouse, Children and Families Representatives

Dr. Micheline Ste-MarieMedical Director

Annick GervaisFamily Services Coordinator

ETHICS AND RESEARCH COMMITTEE

Franco A. CarnevaleEthicist, Psychologist, and NurseMcGill University, Montreal Children’s Hospital

Manon ChampagneAssociate ProfessorHealth Sciences DepartmentUniversité du Québec en Abitibi-Témiscamingue

COMMUNICATIONS AND MARKETING COMMITTEE

Mathieu BédardPresidentDéfi marketing

Guillaume BrunetVice President and PartnerSubstance Strategies and Radiance Media

Kim FullerPhilanthropic Communications SpecialistPhil Communications

Michèle LeducPresident and Creative DirectorZip Communication

The Lighthouse, Children and Families Representatives

Manon DurocherDirector of Financial Development and Communications

Justine Jaran-DuquetteCommunications Coordinator

APPOINTMENT COMMITTEE

ChairFrédéric PérodeauSenior Director of Inspection and InvestigationsAutorité des marchés Financiers

Jean-Daniel BrissonSenior Manager, Strategy ConsultingRaymond Chabot Grant Thornton

Isabelle CantinFinancial Security Advisor and Mutual Fund RepresentativeFinancial Services, Investors Group Inc.

Marcel MartinRegional Vice-President,Gold Key Advisor Practices, Quebec/Eastern OntarioGreat-West Life Assurance Company

HUMAN RESOURCES COMMITTEE

ChairNicole MagnanManagement Consultant

Jean-Daniel BrissonSenior Manager, Strategy ConsultingRaymond Chabot Grant Thornton

Ève-Marie Maletto, CRHASenior Advisor, HR and OD Consulting ServicesCHU Sainte-Justine

Marcel MartinRegional Vice-President,Gold Key Advisor Practices, Quebec/Eastern OntarioGreat-West Life Assurance Company

Linda YoungHR CoordinatorSwagelok Quebec Group

The Lighthouse, Children and Families Representatives

Johanne DesrochersExecutive Director

Nathalie NoëlDirector of Finances, Administration, and HR

AUDIT AND RISK MANAGEMENT COMMITTEE

ChairMarcel MartinRegional Vice-President,Gold Key Advisor Practices, Quebec/Eastern OntarioGreat-West Life Assurance Company

Jean-Daniel BrissonSenior Manager, Strategy ConsultingRaymond Chabot Grant Thornton

Viviane CrouxVice President and Quebec Region HeadTD Wealth Management

Pierre VallerandPartnerRaymond Chabot Grant Thornton

Page 11: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 20 21Dedicated Supporters and a Wide Range of Fundraising Initiatives

www.unispourlephare.com

Throughout 2014–2015, many of our dedicated supporters donated to The Lighthouse, Children and Families to help brighten the lives of seriously ill children. We would like to thank these supporters for their great generosity and for joining our cause to help hundreds of children in palliative care get the most out of life.

Dedicated Supporters and a Wide Range of Fundraising Initiatives

2015 Cocktail Reception: An Unforgettable Night The Lighthouse, Children and Families raised $601,000 this year at its 14th annual cocktail reception held on March 17 at the Centre CDP Capital Parquet. Led by honorary president Sophie Desmarais, the reception was a boisterous and unique interactive experience. In keeping with The Lighthouse’s mission to help children get the most out of life, guests got the most out of their evening by jumping back into the festive swing of the Roaring Twenties. Silent and live auctions, photo booths, fortune tellers, and touch-screen games of skill all helped make the evening a resounding success. In addition to hors d’oeuvres whipped up by Maître et chef Traiteurs, guests could stop by the many food counters to sample a variety of treats ranging from whiskey to ice cream, cotton candy, popcorn, candy, and cupcakes.

We would like to thank our partners Diamond Power Corporation, Platine, the Montréal Exchange, Caisse de dépôt et placement du Québec, Les Ensembliers, Gaz Métro, TD Wealth Management, Investors Group, Oxygène, TELUS, and all our other partners for their help in making this evening a success.

We would also like to thank Sophie Desmarais and our 18 other honorary patrons:

Isabelle Cantin, Investors Group – Martine Coulombe, National Bank – Viviane Croux, TD Wealth Management – Julie-Martine Loranger, McCarthy Tétreault – Marcel Martin, The Great-West – Richard Ouellette, Les Ensembliers – Danny Serraglio, TELUS Québec – Martin Caron, Investors Group – Danie Deschênes, Oxygène – Geneviève Dubé and Sébastien Rhéaume, Alphafixe Capital – Marie-Josée Rivard, TELUS Venture – Anouk Robillard, Aimia – Grant Hamilton, Anglocom – Nicole Marcil-Gratton, Louiselle Paquin, Paul Trihey, and Michèle Viau-Chagnon, The Lighthouse Children and Families.

Together they sold over 640 tickets for the event to make the evening a financial success and, above all, to bring a lot of happiness to The Lighthouse children.

Dansons toute la nuit Dance-A-Thon Événements Prima Danse held the Dansons toute la nuit dance-a-thon on January 31, 2015, inviting dance schools and the general public to take up the double challenge of dancing all night long and raising a lot of money. Dancers of all ages came out to strut their stu� to their favorite hits, from disco to hip-hop and country. With surprises, special guests, mini challenges, and more, dancers young and old had a great time all night long! This fundraiser waltzed in an impressive $25,927.

Bowling Night, Psychic Café, and Spaghetti DinnerThe Perrault, Loyer, and Bourgeois families organized a number of activities to support sick children and their families. In 2014 they put together a bowling night, a psychic café, and a spaghetti dinner for The Lighthouse, Children and Families. With help from coworkers, employers, and sponsors such as La Belle Époque, Déco Tendance, Adam & Frère, and Bella Pasta, they raised a total of $3,628. Spurred on by their initial success, the families now plan to host these events again in the coming years.

Actor François Gadbois of the series L’Auberge du chien noir showed o� his comedic talent and charm as the evening’s emcee.

UNITED FOR THE LIGHTHOUSE: ORIGINAL AND INSPIRING INITIATIVESUNITED for The Lighthouse brings together individuals, businesses, and organizations to coordinate fundraising activities for The Lighthouse, Children and Families. It’s a big campaign that aims to raise funds and promote awareness and support for seriously ill children and their families.

Here some examples of the kind of highly original and impactful fundraising activities that have helped us support numerous families and extend our reach across Quebec.

Page 12: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 22 23Dedicated Supporters and a Wide Range of Fundraising Initiatives

Haut en couleur Dance ShowcasePureGlam Production and Zoom Academy hosted Haut en couleur, a dance showcase featuring traditional Caribbean, Asian, and Latin dancing. Members of the dance troupe delighted the audience with a colorful lineup of light-hearted and festive performances. Through the ra½e, photo booth, and bake sale, the troupe raised $344 for The Lighthouse.

Scratch-A-ThonAs part of their class on organizing recreational projects, students from Cégep du Vieux-Montréal had the clever idea to organize a Scratch-A-Thon in support of The Lighthouse. Each scratch card made by the students had scratch-o� boxes with donation amounts hidden underneath ranging from ten cents to three dollars, which the player then had to donate to The Lighthouse. This brilliant initiative raised $1,200.

The same group of students also helped find sponsors for the art show at Studio Locomotion.

MY BIRTHDAY AS A GIFT: A GROWING CAMPAIGN THAT’S EXPANDING ITS REACHMy Birthday as a Gift is The Lighthouse’s fundraising campaign for the general public.

The idea? Instead of traditional gifts or a birthday dinner, the birthday boy or girl asks his or her friends and family to donate to The Lighthouse in their honor. This simple campaign for people of all ages is a unique concept in Quebec.

In 2014 and 2015, 792 people participated by giving their birthday as a gift, raising an impressive $188,650 for The Lighthouse..

Video Testimonials LaunchIn September 2014, The Lighthouse posted online videos of inspiring birthday girls and boys who participated in My Birthday as a Gift. The videos were produced and directed by Blue Storm Media.

The video testimonials campaign, which was promoted in The Lighthouse newsletter and on social media, included 11 short videos (in French or English) that talk about the participants’ experiences, explain the campaign, and encourage the public to take part.

An Unforgettable Kilimanjaro AdventureFrom December 28, 2014, to January 10, 2015, Carole, Estelle, Marie-Josée, and Julie set out on a once-in-a-lifetime adventure to the peak of Mount Kilimanjaro.

In addition to tackling a personal challenge to push their limits, the women wanted their adventure to benefit The Lighthouse Children and Families—a cause near and dear to their hearts. In the months of intense physical training leading up to the climb, the women asked family and friends to pledge donations to The Lighthouse as a way of supporting them on their adventure. We would like to extend special thanks to Passion Adventure Voyages, which also helped make this Kilimanjaro expedition possible. At 5,985 meters, Kilimanjaro is the highest summit in Africa. Thanks also to Liliane and Pascale who, though unable to join in on the climb, were integral to the fundraising process. The women raised $19,499 in support of The Lighthouse.

The Lighthouse’s Santa ClausFor the third year running, we captured the spirit of Christmas with our Santa Claus activity, organized by UNITED for The Lighthouse. The 2014 edition was brought to life by a new batch of Santa Clauses played by theater students at Cégep Lionel-Groulx. These future actors put their training to good use to delight and amaze the children by giving each child an actual personalized phone call from Santa. Using the information provided by parents on the children’s registration forms, the Santas made sure each call was a magical moment for every child, whether big or small, chatty or shy, believer or skeptic.

Studio Locomotion Art Show In the 2014 Locomotion art show, ten marine-themed paintings by The Lighthouse children were exhibited at Studio Locomotion. The paintings were auctioned o� at a happy hour event in April and brought in $8,528. We would like to thank Studio Locomotion owners Julie Bernard and Yan Caron for their initiative and unparalleled dedication in organizing this fundraiser.

The personal meeting with Nicolas Noël, proud spokesman for The Lighthouse’s Santa Claus campaign, was particularly moving this year. As in previous years, people could buy VIP passes to meet Santa at The Lighthouse, listen to a story by him and another lovable character, and enjoy many other surprises donated by our generous sponsors. It was an unforgettable, magical morning!

My Birthday as a Gift Awarded a Flèche d’OrThe Lighthouse, Children and Families won the 2014 Flèche d’Or in the multichannel relationship marketing category for the My Birthday as a Gift campaign. Presented by AMR, these awards go to the best relationship marketing projects and campaigns each year.

Page 13: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

252014–2015 Annual Report 24 Dedicated Supporters and a Wide Range of Fundraising Initiatives

Tapeo transforms its 10th anniversary celebration into a gift In April 2014, the restaurant Tapeo celebrated its 10th anniversary in style by gifing it to the children of Lighthouse as part of the My Birthday as a Gift fundraising campaign. By the end of the night—during which a delicious meal was prepared by head chef Marie-Fleur Saint-Pierre and her guest—owners Victor Afonso and Sébastien Muniz had raised an astonishing $15,000 for The Lighthouse.

“The evening was a great success thanks to honorary sponsor Jean-François Ouellet, Inferno chef Ashley Thorton’s contribution as guest chef, and the generosity of donors like Alexandre Despatie, Maripier Morin and Brandon Prust.”

– Voir Montréal

FoliFola, a festive partnerWe are fortunate to count FoliFola among our supporters. Since the start of 2015, FoliFola has emailed a personalized song to each My Birthday as a Gift celebrant on their birthday. Founders Pascale Séguin and Guy Porlier composed a custom song to celebrate fundraising campaign participants’ birthdays and to thank them for supporting The Lighthouse.

Stars share their light Since 2014, numerous public figures have stepped up to help Lighthouse children by promoting My Birthday as a Gift. By sponsoring their birthday month and giving their own birthdays as a gift, these celebrities lend their voices to the campaign. Through their contributions, they foster awareness and encourage more and more people to get involved in the public fundraising campaign each year.

“Every year, I’m lucky enough to have my two wonderful, healthy children and loved ones to celebrate with, which is why the idea of inviting them to donate to the Lighthouse was so appealing. It’s easy to inspire other people to also give their birthday. It’s a step in the right direction for all of us!”

– Pascale Wilhelmy, television/radio host and author

“What an experience! Every time someone donated, it was like getting a present. My friends and family were thrilled by the idea. Health and respite aren’t something money can buy, but the Lighthouse is there to help families get through a di�cult experience.”

– Catherine Perrin, musician and author

“I gave my birthday as a gift last June because it felt like the right thing to do. My family and friends have a big heart, and I knew they would give generously to the children and families of the Lighthouse. We can all make a di�erence, sometimes it just takes some birthday candles and a campaign like this one to prove that together we can make a di erence.”

– Josée Boudreault, television/radio host and keynote speaker

“Giving my birthday as a gift! Wow! Helping people whose everyday life is a struggle, helping them breathe a little makes everyone feel good.”

– Jorane, musician and singer

“It was a privilege for me to be chosen as the spokesperson for the month of July. No one can disregard children’s su�ering and each gesture counts. I felt really useful on my birthday for the first time in my life and I know what my loved ones felt the same way.”

– Maripier Morin, television host

“Some causes are very easy to support, because they bring humanity to the unbearable. By donating my birthday, I gave my loved ones the chance to make a di erence in the life of Lighthouse children and families. It’s a win-win-win situation for everyone!”

– Michèle Sirois, comedian, author and Dr. Clown

“The Lighthouse does everything it can to help sick children have fun right until the very end. By giving my birthday as a gift, I also had the chance to bring some happiness to their lives. Each donation brings a little magic in a place where music plays such an important role.”

– Chuck Comeau, Simple Plan drummer

“By giving my birthday as a gift, I got something huge in return: pride knowing that I helped seriously ill children spend some wonderful moments at the Lighthouse, even in their fragile condition. Donating your birthday is easy AND very gratifying.

– Sylvie Bernier, Olympic medalist and keynote speaker

“My wife and I lost a little girl to a degenerative illness. If she had survived, we would’ve come to the Lighthouse and its devoted sta� for help. Life gave us another little girl, who is fully healthy, so what else could a guy ask for? I asked my loved ones to donate for my birthday—it’s the best gift I could’ve imagined!”

– Alex Sereno, motivational speaker

“I gave my birthday as a gift, because I have everything I need to be happy—especially my health. By donating my birthday, I helped children who won’t have the opportunity to blow out as many candles as I did.”

– Marie-Annick Boisvert, PR agent

“Sponsoring My Birthday as a Gift brought great joy and happiness to my birthday. I was deeply moved by the generosity of my loved ones, and far more grateful for this than a pair of shoes! I made a contribution for a friend’s birthday two years ago without knowing that a little while later, I would be asking the Lighthouse to help my family. Thank you for everything, because you never know where life can take you.”

– Marie-Josée Gauvin, radio host

Natalie Choquette and her daughter Éléonore Lagacé brought a little magic to the Lighthouse during the Holidays by giving their Christmas as a gift.

– Natalie Choquette and Éléonore Lagacé, mother and daughter singerswww.mafeteencadeau.com

Page 14: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 26 27Les résultats financiers

Total Revenues: $5.6 millionThanks to our generous donors, partners and volunteers, and to the amazing work of the Lighthouse, Children and Families team, our total revenues exceeded $5 million for the second year in a row.

The task of diversifying our income continues, and remains a daily challenge. This year, as expected, the winding down of two major campaigns reduced self-financing from major, regular donations by 5% over last year. However, donated goods and services increased 10%, largely due to advertising for the public fundraising campaign My Birthday as a Gift.

Total revenues stood at $5.6 million, thanks to a $2 million grant from Ministère de la Santé et des Services sociaux; Montreal, Laval, and Montérégie area health and social services agencies; Centre hospitalier universitaire Sainte-Justine, and the MUHC Montreal Children’s Hospital, as well as an additional one-time donation of $91,000 from the same organizations.

Financial Results

Helping children and familiesOur expenditures for child and family services totaled $2.7 million, accounting for 64% of our total expenditures. We continuously streamline our operations to ensure we can provide quality services with the limited resources we have. For the 2014-2015 year, we maintained our expenditures at the same level as the previous year, notably by reducing our administrative costs.

Expense Breakdown 2014-2015

Child and family services

Financial development and communications

Administration

Building-related expenses (Maison André-Gratton)

Real estate amortization

Note: audited financial statements are available upon request.

Funding Breakdown 2014-2015

Funding Breakdown

Fundraising events and goods and services donations

Major campaigns

General donations and foundations

Other products

47%

64%

2%8%

20%

23%

14%

11%

8%3%

Page 15: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 28 29Invaluable partners who increase the Lighthouse’s visibility

Invaluable partners who increase the Lighthouse’s visibility

Thanks to the hard work and dedication of our loyal partners, The Lighthouse’s visibility continued to increase this year, ensuring us a strong media presence. This year, the monetary value of the visibility generously provided by our partners is estimated at $901,775.

The My Birthday as a Gift ad campaign was the main beneficiary of partner contributions, generating $861,196 worth of donated goods and services, primarily in the form of advertising on major TV channels, in print and online newspapers, in movie theatres, on major indoor and outdoor ad networks and more recently, on leading radio stations.

The Lighthouse would like to thank BCP, Bell Media, TVA Group, Pattison Outdoor, Société Radio-Canada, RDS, Canal D, Cogeco Inc., Communications Voir Inc., Corus Entertainment, Groupe Serdy, Le Devoir, Le Journal de Montréal, Newad, Télé-Québec, AOL Canada, ARTV, Cinema Beaubien, Cinema du Parc, Groupe Lettra, Panache Magazine, Mediative, MétéoMédia, Mixte Média, MusiquePlus/MusiMax, Vision Globale, and V Montreal for disseminating these ads.

Thanks to Zip Communication, Michèle Sirous and Audio Z for creating and producing the radio ad.

Thanks also to Blue Storm Media for creating the web videos of My Birthday as a Gift participants. An expert in corporate video, Blue Storm has produced The Lighthouse, Children and Families corporate video for several years. They o�ered their expertise again this year to help terminally ill children and their families.

“Major corporations are no longer the only ones who can support a cause. It’s only a question of knowing how to ask the right questions to invite people to donate within their means,” says Alain Girard, President and Executive Producer at Blue Storm Media.

We’d also like to thank Défi Marketing, DoubleV, and Vortex who created the Lighthouse’s many websites and continue to maintain them.

Finally, thank you to all our other partners who help us in whatever way they can to improve Lighthouse communications and promote the cause of Lighthouse children and families across Quebec.

Page 16: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

2014–2015 Annual Report 30 31Our Donors

OUR DONORS

We would like to thank our donors for their commitment to the cause and their e� orts to raise awareness within their community of what children who require palliative care really go through. Their donations allow us to o� er free services to families touched by illness so sick children can live out their lives to the fullest.

$100,000 and up

Bell Media Gratton, RobertGreat West Life Insurance CompanyMirella & Lino Saputo FoundationTELUS QuebecTVA Group

$50,000 to $99,999

Desmarais, SophieFondation Jeunesse VieFondation MolsonGroupe InvestorsLes Soeurs des Saints Noms de Jésus et MariePattison A ́ chage Poirier, MichelRDSSociété Radio-CanadaSOJECCI II ltée

$10,000 to $49,999

BlackRock Asset Management Canada LimitedBlue Storm Media Inc.BMO Bank of MontrealBorden Ladner Gervais LLP.Brien, AndréeCaisse de Dépôt et Placement du QuébecCanadian Broadcast Sales – Corus EntertainmentCanal D CNCogeco Inc.Communications Voir Inc.Costco Wholesale Canada Ltd Défi marketing Desmarais, JacquelineDoubleV Fonds de Bienfaisance des Employés de BombardierGaz MetroGroupe GaudetGroupe RDVIE Groupe SerdyHydro-QuébecIntact Foundation

J. Armand Bombardier Foundation J.-Louis Lévesque Foundationl’Aubainerie Foundation LC Entrepreneurs Généraux (2000) Ltd.Le DevoirLe Journal de MontréalLes Ensembliers ManagementMarcil-Gratton, NicoleMike and Valeria Rosenbloom FoundationMontréal ExchangeNational Bank of CanadaNewad Oxygène EventsPower Corporation of CanadaR. Howard Webster FoundationRené Malo FoundationSAQSimple Plan FoundationSt-Hubert FoundationTapeo Tapas BarTD BankTélé-QuébecThe J.W. McConnell Family FoundationThe Trottier Family FoundationTransCanada PipeLinesYunik Foundation

$1,000 to $9,999

Air CanadaAir Canada FoundationAlberti, EstelleAlfred Dallaire MemoriaAlphafi xe Capital Inc Amgen Canada Inc. AnglocomAnjinnov Construction Inc.AOL Canada Aquarium ArtARTVAtelier Stone AgeAtrium InnovationsAubin, DenisBAB CorporationBaillargeon, DenisBannerman Family FoundationBatimatBaxter CorporationBCF Business Law

BCPBeausoleil, CathyBellini FoundationBessette, SylvainBibeau, SylvieBilodeau, AndréBirks Family FoundationBlain, BernadetteBolduc SolutionBombardier, J.R. André Boudreau, Louis M.Bunny Williams Buonanotte RestaurantBusiness Development Bank of CanadaCadorette, SylvieCAECantin, Isabelle and François MorinCantin, OdetteCégep du Vieux Montréal CélébrationsCellfi sh Inc.Champagne, ManonChapellier, BenoîtCharbonneau Baillargeon, LouiseCharpentier, AndréChâteau d’Ivoire Cinélande and Associates Inc.Cinéma BeaubienCirque du Soleil GroupClassic WoodworkCofely ServicesCole FoundationCossetteCrescendo Papiers Peints & Tissus Inc.CrudessenceCST FoundationCultural & Association of Pignataro Interamna D.L.G.L. Deloitte Canada FoundationDemers Beaulne, LLPDenise and Guy St-Germain FoundationDeschênes, Jean-HuguesDesjardinsDevelocan ManagementDirty Nasty BoysDubé, PaulineDuguay, Marie-FranceDurocher, ManonE.B.M. O ́ ce Equipement Encadrement Marcel

Environnement Électronique ErgogripExxel Polymers Inc. F. Lapointe and Son Fayolle Canada Inc.FCT Charitable FoundationFiducie Jacqueline Lallemand Fiducie Jean-Guy LarinFinancière Mazarin Fondation Étoile de MartinFondation François Bourgeois Ltd.Fonds de Bienfaisance des Pompiers de MontréalFortin Roch, ClaudetteFortin, AndréeFrançoise Issaly Visual Arts French Chamber of Commerce in CanadaGagnon, NathalieGalerie de Bellefeuille Inc.Gannon, StevenGarderie éducative l’Alpha à l’OmégaGénératrice DrummondGeorges Hogg Family FoundationGestion A. FrancoGestion MT Gratton, FrançoisGroupe Evensport Groupe LettraGroupe Ressource des Moulins Groupe Robert Groupe Sapergy Consultation Inc.Groupe Sutton Humania Gustav Levinschi FoundationH. Lalonde & FrèreHay FoundationiA Financial Group Ingénia Technologies Inc.Irving Mitchell KalichmanJ & J Concept intérieurJ. Gagnon ConstructionJacques Francoeur FoundationJardin de Ville Jean Cameron Palliative Care FoundationJewish Community Foundation of MontrealJTI MacDonald CorpKatharine Pearson Memorial Fund of the Foundation of Greater Montreal

KebecsonKeurig Canada KravetLa Culotte à L’Envers Inc. Labatt Brewing CompanyLafl eur Ayotte, MathieuLallemand Inc.Lamarre, BernardLambert et Fils Luminaires Lasik MDLatitude Nord Latulippe, MartinLaurentian Bank of CanadaLe Caius du livre inc.Legault, PaulLeroux, MartinLes Entreprises PEP 2000Les Installations Décoratives Les Pavages ChénailLeschiutta, EddieLeti, GuillaumeLG Electronics Canada Inc. Limousines Montréal Worldwide Louise Benoit CommunicationLS RefridgerationMaçonnerie Martin BouchardMagnan, NicoleMaître et Chef TraiteursMartel, LouiseMartine Simard Dance MBI Electronic SystemsMcCarthy Tétrault FoundationMcKesson CanadaMcKinsey & CompanyMécanique R.H.Mediative Meritek ConseilMétéoMédiaMetro Inc.Michel Bernard FoundationMixte MediaMontreal Academy of Dance

Montreal AlouettesMorgoce, WayneMorin, LouiseMQ WindowsMusiquePlus\MusiMaxNguyen, Dr. Le Thi Nichio, Linda Norman Fortier FoundationOpération Enfant SoleilOsler Hoskin & Harcourt LLPPacart Québec Inc.Panache MagazinePanasonic Canada Paquin, LouiselleParadis, CarolePaul A. Fournier FoundationPeinture et Pièces d’Auto D.R.Pepin ShopPérodeau, FrédéricPerreault Loyer & Bourgeois Families Perreault, DianePerreault, PierrePierres Technoprofi lPixoCreationPlomberie Daniel CôtéPoggione, TaniaPorter AirlinesPratt & Whitney Canada Corp.Prends Ton Bord Inc.Profession AirProtection Incendie IdéalRanger, AnnickRatelle, Manon and RéjeanRBC Royal BankRed Carpet & Rug Co.Rénovation MeyaRobillard, AnoukRoy, GenevièveRunning Room Canada Inc.Sandoz Sanpalo Investments Corporation

SAS CanadaSastri, CaterinaScotiaBank Scott, GabrielSéguin, FrançoisSereno, AlexService de police de LavalSGB Sibylla Hesse FoundationSIICUSM SimonsSMS EquipmentSNC-Lavalin inc.Société de Développement AngusSouth Hill HomeSPSICR-CUSMStikeman, ElliottStudio Locomotion GymSunlife FinancialSylvain, PierreSymfolium 2000 Taillefer, Alexandre Takeda CanadaTélé-Génik Productions Telio Foundation Thermofi nToile sur rendez-vousTradewood Windows & DoorsTransat Tour Canada / Air TransatTransforce Income FundTrempe, IsabelleV MontréalValero Energy Foundation of CanadaVéronikah Via RAIL Viau-Chagnon, MichèleViking Fire Protection Inc.Vision GlobaleVsysW.C. Hanna Medicine Professional CorporationWestgroveZeller Family FoundationZip Communication

In Memoriam Donation

Thank you to those who chose to honor the memory of a loved one by donating to The Lighthouse, Children and Families. In memory of:Aryelle Aitken Bébé Kpakpo Christopher Roy Collin Meunier Cyrille Tremblay Dorila Dumas Édouard St-Louis Enrica Arduini Estelle Trachy Fiora Gareau Francine Lalande François Michaud Georgette Mongrain Gilles Cochennec Guillermo Ponce Ida Sala Isabelle Veillette Jean-Kristophe Massignani Jean-Marc Ebacher Jonathan Chayer Laurence Tremblay Lise Roy Lois Rae Louise Duquette Marc Morin Marcel Belleville Marcelle Germain Gilbert Mariette Michaud-Morin Marthe Girard Meziane Ouïza Aït-Ameur Michel Métras Olivier Denizon Olivier Dion Olivier Legault Pierre Daigle Rachel Desbien Roland Paré Sheila Orr Sophie Charbonneau Suzanne Ostiguy Vincent Charpentier Vincent St-Pierre Xavier Poirier Xavier Rott-Tremblay Yvette Fortin Note

This list includes the 2014-2015 payments for donations spread over several years. The Lighthouse also has a recognition program for cumulative donations over the years. See our website at www.phare-lighthouse.com.

All e� orts were made to ensure the accuracy of this list. However, if your name or company name was omitted or misspelled, please accept our apologies and let us know so we can make the necessary corrections to our records.

Page 17: The Lighthouse, Children and Families: respite, care, and continuous · 2018. 11. 28. · In order to care for the children and provide support for their families, The Lighthouse

CREDITSDesign – CopywritingCourtesy of Mélanie Dugré, The Lighthouse, Children and Families

RevisionMadeleine Arsenault, Andrée Fortin, Danielle Guénette and Madeleine Thuot,

Volunteers, The Lighthouse, Children and Families

TranslationCourtesy of Anglocom

Artistic DirectionGraphic DesignCourtesy of Défi marketing

PhotosCourtesy of Photograph-i.com, Karine LaRocque, Gordon Campey, Maître & Chef traiteurs and François Nadeau, ONQ

Pat Pinotti Studio 55

The Lighthouse, Children and Families

2725 Avenue du Mont-Royal EstMontreal, Quebec H1Y 0A1514 954-4848Toll free: 1 866 [email protected]

phare-lighthouse.com

Facebook.com/PhareEnfantsFamilles

Twitter.com/LePharORG