the massachusetts early intervention systemvision: ei system supports each child and family’s...
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THE MASSACHUSETTS EARLY INTERVENTION SYSTEM
Department of Public Health
June 15, 2012
Ron Benham
Bureau of Family Health and Nutrition
Tracy Osbahr
Office of Specialty Services
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LEARNING OBJECTIVES
Participants will: identify at least three eligibility criteria for early
intervention services in MA
describe the scope of available early intervention
services, including those for children with autism
spectrum disorders
access resources that expand information about
treatment efficacy, recognition of early signs and
symptoms of ASD, and the MA Early Intervention
system
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WHAT IS EARLY INTERVENTION?
COMMUNITY BASED PROGRAM OF
DEVELOPMENTAL SERVICES FOR
CHILDREN BETWEEN BIRTH AND
THREE AND THEIR FAMILIES
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CORE VALUES
FAMILY CENTERED
INDIVIDUALIZED
IN NATURAL ENVIRONMENTS
CULTURALLY APPROPRIATE
COORDINATED
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THEMES OF PART C OF IDEA*
Comprehensive
Coordinated
Multidisciplined
Interagency
Family-centered
Community-based
Individualized plan
*Individuals with Disabilities Education Act
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SYSTEM OVERVIEW
31, 171 CHILDREN SERVED IN FY’11
$125 MILLION ANNUAL BUDGET MULTIPLE PAYER SOURCES
SERVICES PURCHASED FROM 61
CERTIFIED EI PROVIDERS
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DPH RESPONSIBILITIES
OPERATIONAL STANDARDS
PROGRAM CERTIFICATION
PERSONNEL CERTIFICATION
PROGRAM MONITORING
TECHNICAL ASSISTANCE
STAFF TRAINING
ENSURE COMPLIANCE WITH IDEA
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WHO IS ELIGIBLE?
CHILDREN AT ESTABLISHED RISK FOR
DEVELOPMENTAL DELAY 30% delay in any area of development as measured on
a standardized assessment tool
Established condition with known developmental impact
CHILDREN AT BIOLOGICAL RISK FOR
DEVELOPMENTAL DELAY examples: less than 1200 grams; less than 32 weeks
gestational age, apgar less than 5 at 5; high blood lead
levels, chronic feeding issues, multiple trauma or losses
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WHO IS ELIGIBLE? (cont’d)
CHILDREN AT ENVIRONMENTAL RISK FOR DEVELOPMENTAL DELAY (examples: parental chronic illness/disability affecting caretaking ability, DCF protective services case, substance abuse in home, domestic violence in home, mother’s age under 17)
CHILDREN WITH QUALITATIVE DEVELOPMENTAL DIFFERENCES BASED ON INFORMED CLINICAL JUDGEMENT OF MULTIDISIPLINARY TEAM
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REFERRAL PROCESS
Make referrals directly to community EI
program
Referrals accepted from all sources
with family authorization
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WHERE CAN I FIND EI PROGRAMS?
www.massfamilyties.org For listing of all programs
1-800-905-TIES (8437) Connects to Family Ties staff who will refer
families to programs in their area
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SCOPE OF SERVICES
Based on results of multidisiciplinary team
evaluation and supplemental assessments
Services necessary to enhance the
development of an eligible child and capacity
of the family to meet the child’s needs
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INDIVIDUALIZED FAMILY SERVICE PLAN (IFSP)
Statement of child’s level of development in
cognition, fine and gross motor, receptive and
expressive communication, social and emotional,
and self-help/adaptive areas
Statement of child’s strengths and needs
Statement of family’s strengths and needs
Statement of family’s strengths, concerns, priorities
and resources related to enhancing development of
the child
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INDIVIDUALIZED FAMILY SERVICE PLAN (IFSP) (cont’d)
Functional outcomes identified by family expected to be achieved for child and family
Early intervention services necessary to meet the unique needs of the child and family to achieve the functional outcomes
Plan for coordination and implementation of the IFSP
Transition plan
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TYPES OF SERVICES
Home visits, center based individual visits,
community child groups, EI only child groups,
parent groups, specialty services
Provided by ~Developmental Specialists ~Nurses
~Occupational Therapists ~Physical Therapists
~Social Workers ~Mental Health Specialists
~Speech/Language Pathologists
~Specialty Service Providers
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COLLABORATION WITH FAMILIES
Identification of family needs
Parent support groups, parent to parent connections
Parent training /education
Special circumstances (caregivers with mental illness/disabilities, grandparent/other family involvement, attachment issues)
Parent leadership project
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PARENT LEADERSHIP PROJECT
Supports parent participation at all levels as
partners and advisors
Parent contacts
Seed money for special projects
Parent representatives on the Interagency
Coordinating Council
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COLLABORATION WITH SCHOOL SYSTEMS
Transition requirements for both Part C and
Part B programs
Transition planning built into IFSP
Joint training of staff
Educational opportunities for families
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COLLABORATION WITH OTHER PROVIDERS
Informed parental consent required
Use Service Coordinator as EI contact
Considerable coordination with childcare
providers, specialty service providers, other
community providers
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SPECIALTY SERVICES FOR CHILDREN WITH AUTISM SPECTRUM DISORDERS (ASD)
9 DPH APPROVED PROVIDER AGENCIES PROVIDE INTENSIVE BEHAVIORAL INTERVENTION
BEACON ABA SERVICES
CHILDREN MAKING STRIDES
COMMUNITY HEALTHLINK – LEAP PROGRAM
HMEA
MAY INSTITUTE
NEW ENGLAND CENTER FOR CHILDREN
NORTH EAST ARC- BUILDING BLOCKS
PEDIATRIC DEVELOPMENT CENTER
SERVICENET- REACH PROGRAM
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SPECIALTY SERVICES FOR CHILDREN WITH AUTISM SPECTRUM DISORDERS (ASD) (cont’d)
ASD DIAGNOSIS IS REQUIRED FOR ENTRY INTO SPECIALTY SERVICES
SPECIALTY SERVICE PROVIDERS WORK IN COLLABORATION WITH EI PROGRAMS
CURRICULUM FOCUSES ON CORE FEATURES OF THE SPECTRUM
IDENTIFICATION OF TODDLERS WITH ASD CONTINUES TO GROW
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EVIDENCED-BASED TREATMENTS FOR ASD
ASD: ABA-based (Lovass/UCLA, ESDM)
Response to parental requests for emerging
practices
Developmentally appropriate practice for
toddlers
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READ ALL ABOUT IT
Agency for Healthcare Research and Quality
2011: Comparative Effectiveness of
Therapies for Children with Autism Spectrum
Disorders
National Autism Center’s National Standards
Report
Autism Spectrum Disorders Services Final
Report on Environmental Scan - IMPAQ
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DEVELOPMENTAL MILESTONES
www.cdc.gov/actearly
www.maactearly.org
www.firstsigns.org
www.autismspeaks.org
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DEVELOPMENTAL CONCERNS
Social emotional well-being: current area of emphasis
Vision: EI system supports each child and family’s social emotional well being and assists in achieving positive development in all children by recognizing and promoting children’s earliest relationships and learning within the context of their family, community, and culture
System requires consistent , universal approach to screen and support children and families (ASQ-SE; Greenspan Social Emotional Growth Chart)
Training, special sessions, mentorships for EI staff
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WHAT HAPPENS AFTER EI
Transition to Local Educational Authority
(LEA)
Transition to community programs
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TO FIND OUT MORE….
www.mass.gov/dph/earlyintervention
www.eitrainingcenter.org
www.massfamilyties.org
www.eiplp.org
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QUESTIONS?
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NEED MORE INFORMATION?
Ron Benham
617-624-5901
Tracy Osbahr
413-586-7525 x3156