Partnership working4PI: standards of involvement

Sarah Yiannoullou07778 659 390

Partners:

• NSUN: the National Survivor User Network• Afiya Trust• Social Perspectives Network• Mental Health Foundation

Project Summary This service user-carer-led project will develop national standards and an infrastructure for involvement, securing their adoption. It will promote user-carer leadership - targeting marginalised groups - and will promote resilience, empowerment, innovation, transformation and improvement, realising the vision “nothing about us without us”. This will lead to more responsive and cost effective services.It will ‘hard wire’ the user-carer direct voice and experience into health and care services. The project will develop the evaluated NIP work, share good practice, centralise resources, strengthen existing networks and build an infrastructure that connects and coordinates. It will benefit service users, carers and professionals. Theme & Priority Theme 1: Personalisation and Choice of Care and Support. Priority 1.

Priority 1: The involvement of service users, patients, carers and the public in decision making is at the heart of the modernisation of the NHS, and is now a central theme of national and local policy. The National Involvement Partnership (NIP) aims to bring together experience, expertise and evidence to provide a structured approach to influencing health and care service improvement that is service user and carer led, taking forward the vision of 'no decision about me without me'.

PrinciplesPurposePresenceProcessImpact

4PI

Our Vision

Our vision is of a future where there is ‘nothing about us without us’:

• where effective and meaningful involvement in all aspects of our lives builds resilience and changes people’s lives;

• where there is genuine partnership working between mental health services, professionals, service users and carers, based on agreed and shared outcomes; and

• where this partnership of expertise works towards common goals of respect, recovery, choice and control for each and every individual who comes to use mental health services.

Historical References, Resources and Experiences

• Previous work for Dept of Health, NIMHE, CSIP, NMHDU• Two Literature reviews: of involvement and of involvement

tools and guidelines• Reports:

– ‘Dancing to Our Own Tunes’ – Jayasree Kalathil 2008 (reprint 2013)– ‘A Review of Values-based Commissioning in Mental Health’ –

Emma Perry, Jo Barber & Elizabeth England, 2013– ‘On Our Own Terms’ – Jan Wallcraft and others, 2003– ‘Unlocking Service User Involvement in Forensic Settings’ – WISH

2011

• Consultations (by NSUN in 2012/13)• Pilot site events and Leadership programmes

Special Mentions…

• Making a Real Difference (MARD) materials (NIMHE/CSIP)

• ‘On Our Own Terms - Users and survivors of mental health services working together for support and change’ – Jan Wallcraft with Jim Read and Angela Sweeney, 2003. London: Centre for Mental Health.

• Dancing to Our Own Tunes: Reassessing black and minority ethnic mental health service user involvement – Jayasree Kalathil, 2008 (reviewed & reprinted 2013)

Involvement for Influence

Principles

Purpose

PresenceProcess

Impact

4PI Standards for Involvement

4PI: Involvement for InfluencePrinciples:

– Meaningful and inclusive involvement starts with a commitment to shared principles and values; start by sharing your principles and values.

Purpose:– The purpose of involvement needs to be clearly stated and communicated with

everyone involved.

Presence:– A diversity of service users and carers should be involved at all levels and at all stages;

the people who are involved need to reflect the nature and purpose of the involvement.

Process:– The involvement process needs to be carefully planned to make sure that service users

and carers can make the best possible contribution

Impact– Any involvement needs to make a difference to the lives or the experiences of service

users and carers.– We recommend a cycle of learning and development

A Cycle of Learning and Influence

PLAN

DO

STUDY

ACT

Overarching themes

• Power• Diversity and equality• Principles and values• Commitment to change• Barriers and challenges

Next Steps…What does implementation look like?

• Sign-up • Online resources• Self-evaluation tool• An implementation guide, route-map or

pathway ?• Evaluation of the project• A continuation bid