the prostate net regional prostate cancer symposium series
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The Prostate Net Regional Prostate Cancer Symposium Series. An Educational Initiative for Patients and Healthcare Professionals May - October, 2010. National Healthcare Quality Report - 2007. “Preventive healthcare lags significantly behind other gains in healthcare.” - PowerPoint PPT PresentationTRANSCRIPT
The Prostate Net Regional Prostate Cancer
Symposium Series
The Prostate Net Regional Prostate Cancer
Symposium Series
An Educational Initiative for Patients and Healthcare Professionals
May - October, 2010
An Educational Initiative for Patients and Healthcare Professionals
May - October, 2010
National Healthcare Quality Report - 2007
National Healthcare Quality Report - 2007
•“Preventive healthcare lags significantly behind other gains in healthcare.”
•Access to care and information varied widely between racial/ethnic groups and by socio-economic status
• Source: www.ahrq.gov
•“Preventive healthcare lags significantly behind other gains in healthcare.”
•Access to care and information varied widely between racial/ethnic groups and by socio-economic status
• Source: www.ahrq.gov
Concept Concept
Provide access to information and thought leaders to promote best standards of care
dual-track format to maximize interaction
Provide a faculty of world-class clinicians and researchers who set the standards of care
Provide access to information and thought leaders to promote best standards of care
dual-track format to maximize interaction
Provide a faculty of world-class clinicians and researchers who set the standards of care
Meeting ObjectivesMeeting Objectives
Patients: understand role of biomarkers of diagnosis/progression describe current treatments and emerging drug protocols discuss the importance of effective patient/doctor
dialogues
Professionals: identify best standards of care Define the impact of treatment on co-morbid conditions Discuss the advances in therapeutic and drug protocols Describe the appropriate use of novel therapies Evaluate the information’s applicability to practice
management
Patients: understand role of biomarkers of diagnosis/progression describe current treatments and emerging drug protocols discuss the importance of effective patient/doctor
dialogues
Professionals: identify best standards of care Define the impact of treatment on co-morbid conditions Discuss the advances in therapeutic and drug protocols Describe the appropriate use of novel therapies Evaluate the information’s applicability to practice
management
Secondary Regional GoalsSecondary Regional Goals
Rutgers: Impact of Healthcare Reform on Public Health Policy
Georgetown: Support for Pca Research Funding Clark Atlanta: Minority Population
Epidemiological and Clinical Research University of Florida: Global Prostate Cancer
Impact on Black Men Northwestern: SPORE Research Expansion New York: Total Spectrum of Disease
Management
Rutgers: Impact of Healthcare Reform on Public Health Policy
Georgetown: Support for Pca Research Funding Clark Atlanta: Minority Population
Epidemiological and Clinical Research University of Florida: Global Prostate Cancer
Impact on Black Men Northwestern: SPORE Research Expansion New York: Total Spectrum of Disease
Management
Listening to the Audience:ARS initiative
Listening to the Audience:ARS initiative
In all Symposia an interactive individual computer polling device is
used to measure audience demographics and responses to key
“Need to Know” questions
In all Symposia an interactive individual computer polling device is
used to measure audience demographics and responses to key
“Need to Know” questions
Rutgers Symposium AgendaRutgers Symposium AgendaTime Patient Track Professional Track 8:00 Registration / Breakfast 8:30 Program Overview
Virgil Simons – Founder & President – The Prostate Net John Andrews
Judith Kichhoff, PhD – Rutgers School of Public Affairs and Administration 8:45 Welcome
Marc Holzer, PhD – Dean of the School of Public Affairs and Administration
9:00 The Impact of Prostate Cancer in New Jersey Daniel Rosenblum, PhD – Essex County Cancer Coalition
9:15 Prostate Cancer 101: Testing and Treatment
Stanley H. Weiss, MD Ihor Sawczuk, MD
Managing Treatment Side-effects/ Palliative Care
David Shin, MD Biren Saraiya, MD
10:00 Restoring Quality of Life: Managing Side-effects / Pain
Control David Shin, MD
Biren Saraiya, MD
Current and Emerging Biomarkers for Disease Management Michael Karellas, MD
10:30 Break
10:45 Advanced Stage Disease Management
Michael Karellas, MD
Managing Hormone Sensitive, Non-Metastatic Relapse / Castrate Resistant
Metastatic Prostate Cancer Biren Saraiya, MD
11:15 Emerging Treatment Protocols / Importance of Clinical Trials Virgil Simons
Biren Saraiya, MD 12:00 Keynote Luncheon
Critical Issues in Public Health Policy Clifton Leaf
1:00 Prevention Strategies Stanley H. Weiss, MD
1:30 Health Care Reform and Public Health Policy Frank Thompson, PhD
2:00 Patient Û Doctor Communications / The Spouse/Partner in Disease Management
Shlomo Mizrahi, PhD Diane Johnson – Editorial Director – The Prostate Net
2:30 Feedback Summary
Registered AttendanceRegistered Attendance Patients/spouses, Advocates, Caregivers
On-Site: 81 Patients - 64 Caregivers - 17
Follow-on distribution - 202: Through NJ OCCP Coordinator Training, Gilda’s Club, ACS - 129 Barbershop Initiative/NJCEED educational sessions - 73
Professionals Doctors: On-Site
Medoncs - 16 Radoncs - 8 Primary Care - 13 Urologists - 6
Public Health Agencies On-Site: Physicians and medical assistants - 9 Community outreach workers - 7
Follow-on distribution - 38: RadOncs - 3; NP/PAs - 8 Medical Centers/Public health agencies - 27
Patients/spouses, Advocates, Caregivers On-Site: 81
Patients - 64 Caregivers - 17
Follow-on distribution - 202: Through NJ OCCP Coordinator Training, Gilda’s Club, ACS - 129 Barbershop Initiative/NJCEED educational sessions - 73
Professionals Doctors: On-Site
Medoncs - 16 Radoncs - 8 Primary Care - 13 Urologists - 6
Public Health Agencies On-Site: Physicians and medical assistants - 9 Community outreach workers - 7
Follow-on distribution - 38: RadOncs - 3; NP/PAs - 8 Medical Centers/Public health agencies - 27
Lombardi/Congressional SymposiumLombardi/Congressional Symposium
Time The Prostate Net Congressional Awa reness Symposium
June 16, 2010 10:00 Meeting Set-up 12:00 Buffet Lunch
Rayburn House Office Building Room B-338
12:00 Program Overview Virgil Simons – Founder & President – The Prostate Net
12:10 Health Policy in the Era of Healthcare Reform Congressman Steven Rothman - Invited
12:20 Prostate Cancer 101: Problems and Resolutions Lucile Adams-Campbell, PhD – Georgetown / Lombardi Cancer Center
12:30 Genetic Causation for Mortality Disparity among Young A frican-American Men
Isaac Powell, MD – Karmanos Cancer Center 12:50 Research and Cost Reduction in Federal Health Programs
Howard Scher, MD – Memorial Sloan-Kettering Cancer Center 1:10 New Biomarkers for Disease Detection / Disease Progression
John Isaacs, PhD – Johns Hopkins Cancer Center 1:30 Men’s Health Initiative
Scott Williams – Men’s Health Network 1:40 Feedback Summary
Registered AttendanceRegistered Attendance On-Site - 93:
U.S. Congressman - 1 Congressional Legislative Staff - 26 Patients/Advocates - 25 Healthcare Professionals:
Medical Oncologists - 4 Urologists - 3
Cancer Researchers - 23 Pharmaceutical Industry - 7
Follow-up plans: 14 meetings have been held to date with Congressional Members of:
Appropriations Committee Ways and Means Committee
Partnering with Dept. of Defense Research Grantees to present evidence for increased research funding and preventive education programs
On-Site - 93: U.S. Congressman - 1 Congressional Legislative Staff - 26 Patients/Advocates - 25 Healthcare Professionals:
Medical Oncologists - 4 Urologists - 3
Cancer Researchers - 23 Pharmaceutical Industry - 7
Follow-up plans: 14 meetings have been held to date with Congressional Members of:
Appropriations Committee Ways and Means Committee
Partnering with Dept. of Defense Research Grantees to present evidence for increased research funding and preventive education programs
Clark Atlanta SymposiumClark Atlanta SymposiumAGENDA
Time Clark Atlanta University
Center for Cancer Research and Therapeutic Development Prostate Cancer Symposium
July 17, 2010 8:00 Registration / Breakfast
8:30 Welcome and Program Overview Shafiq Khan, PhD Joseph Silver, PhD
Virgil Simons 8:45 PSA Testing : Making Sense of the Rhetoric /
Patient / Doctor Communications James Mohler, MD /
Mary Anderson 9:30 Prostate Cancer Treatment:
What’s Best for You Urologist TBD /
Radiation Oncologist - TBD 10:00 Restoring Quality of Life: Managing Side Effects
Ulka Vaishampayan, MD / Rudy Lombard, PhD
10:30 Break
10:45 Managing Hormone Sensitive, Non-Metastatic Relapse and Castrate-Resistant Metastatic Prostate Cancer
Ulka Vaishampayan, MD/ James Mohler, MD
11:30 Q/A & Community ARS Discussion Follow-up Presentation Questions / Impact Issues
12:00 Keynote Luncheon Jean Bonhomme, MD
1:00 The Research Paradigm: Scientific Agenda vs. Patient Needs CCRTD Researcher /
Virgil Simons 1:30 Prevention Strategies / Emerging Trends and Issues
MD - TBD/ Research Speaker - TBD
2:00 Closing Comments and Program Summary Shafiq Khan, PhD
Registered AttendanceRegistered Attendance Patients/spouses, Advocates, Caregivers
On-Site: 68 Patients - 54 Advocates - 14
Follow-on distribution - 107: Through Georgia Men’s Health Coalition Prostate Net Barbershop Initiative™
Doctors: On-Site: 17 Medoncs - 8 Radoncs - 1 Primary Care - 0 Urologists - 8
Public Health Agencies On-Site: 59 Nurses and medical assistants - 22 Community outreach workers - 37
Cancer Researchers On-Site: 22 Center for Cancer Research and Therapeutic Development - 17 Morehouse School of Medicine - 3 Centers for Disease Control and Prevention - 2
Follow-on distribution - 56: Urologists - 26 Medoncs - 3 RadOncs - 3 NP/PAs - 8 Medical Centers/Public health agencies - 16
Patients/spouses, Advocates, Caregivers On-Site: 68
Patients - 54 Advocates - 14
Follow-on distribution - 107: Through Georgia Men’s Health Coalition Prostate Net Barbershop Initiative™
Doctors: On-Site: 17 Medoncs - 8 Radoncs - 1 Primary Care - 0 Urologists - 8
Public Health Agencies On-Site: 59 Nurses and medical assistants - 22 Community outreach workers - 37
Cancer Researchers On-Site: 22 Center for Cancer Research and Therapeutic Development - 17 Morehouse School of Medicine - 3 Centers for Disease Control and Prevention - 2
Follow-on distribution - 56: Urologists - 26 Medoncs - 3 RadOncs - 3 NP/PAs - 8 Medical Centers/Public health agencies - 16
University of Florida SymposiumUniversity of Florida SymposiumSaturday, August 28, 2010 7:30-8:00am Continental breakfast 8:00 – 9:40am Opening Plenary Session – Grand Ballroom (A&E)
8:00 – Folakemi Odedina – Program Overview 8:05 – Virgil Simons – Founder & President, The Prostate Net
8:15 - Senator Anthony Hill Sr, Florida State Legislature 8:20 – Dr. Vickie L. Shavers, National Cancer Institute 8:25 – Mr. Charles Griggs, 100 Black Men of Jacksonville 8:30 - Dr. Paul Okunieff – Cancer Center Director, University of Florida Shands 8:40 – Dr. Rick Kittles – Introduction of Keynote Speaker - John Carpten, PhD
8:45 - Keynote: African American Hereditary Prostate Cancer Study Network: Where are we 9:15 – 9:30am - Transition to Symposium Rooms for Patient, Provider, or Researcher Symposium
Time Patient/Survivor Symposium Provider Symposium
Researcher Symposium
Adjourn to Room ____ Adjourn to Room ____ Adjourn to Room ____
9:30 – 10:00 Prevention and Diagnosis of Prostate Cancer Dr. Brian Stone
Current and Emerging Biomarkers for Disease
Management Dr. Elisabeth Heath
10:00 – 10:45 Prostate Cancer Treatment: What’s Best for You
Dr. Winston Tan Dr. Stephen Ko Dr. David Thiel
Oral Presentations Bio-behavioral Model of Prostate Cancer Etiology
Chairperson: Matt Freedman (US)
10:45 - 11:00 Break Transition to Plenary Session
11:00 – 12:00 Symposium Plenary Session Efficacy of PSA Screening for Prostate Cancer Among Elderly African
Americans: A Case-Control Study Dr. Paul Godley
12:00 – 1:00 Keynote Luncheon Emerging Trends, Issues & Treatment in Late-Stage Disease
Dr. Oliver Sartor 1:00 – 1:45 Treatment of Advanced Stage
Disease Virgil Simons
Dr. Elisabeth Heath
Managing Hormone Sensitive,
Non-Metastatic Relapse Prostate Cancer Dr. Stephen Ko Dr. David Thiel
1:45 – 2:30 Controlling Therapeutic Side Effects / Pain Management
Dr. Stephen Ko Dr. David Thiel
Managing Castrate-Resistant Metastatic
Prostate Cancer Dr. Winston Tan
Dr. Elisabeth Heath 2:30 – 3:15 J oint Provider-Patient Symposium
Future of Prostate Cancer Research / Addressing Clinical Trial Barriers
Virgil Simons Dr. Elisabeth Heath
Oral Presentations Prostate Cancer
Population-Based Research: Answers on
Prostate Cancer Disparities
Chairperson: Alan Patrick (Trinidad & Tobago)
3:15 – 3:30 Program Feedback / Summary
4:00 – 5:30 Community-Academic Town Hall Forum Mayor John Peyton, Jacksonville FL (Invited)
Research Agenda for Black Prostate Health: Issues, Challenges & Future Directions Facilitators: Camille Ragin (USA); and Angela Adams (USA)
Registered AttendanceRegistered Attendance
Patients/spouses, Advocates, Caregivers: 19 Patients - 4 Spouse/Partner/Caregiver/Family Member - 8 Patient Advocates - 7
Industry/Govt/Media: 13 Doctors: 27
Medoncs - 19 Radoncs - 2 Primary Care - 2 Urologists - 4
Public Health Workers: 97 Nurses and medical assistants - 60 Community outreach workers - 37
Cancer Researchers: 40 Students: 8
Patients/spouses, Advocates, Caregivers: 19 Patients - 4 Spouse/Partner/Caregiver/Family Member - 8 Patient Advocates - 7
Industry/Govt/Media: 13 Doctors: 27
Medoncs - 19 Radoncs - 2 Primary Care - 2 Urologists - 4
Public Health Workers: 97 Nurses and medical assistants - 60 Community outreach workers - 37
Cancer Researchers: 40 Students: 8
Northwestern SymposiumNorthwestern SymposiumAGENDA
Northwestern University
Lurie Comprehensive Cancer Center 303 East Superior Street
Time Patient Track Professional Track 8:00 Registration / Breakfast Registration / Breakfast
8:30 Welcome and Program Overview Steven Rosen, MD Chung Lee, PhD
Virgil Simons 9:00 PSA Testing: Is There An Answer?
Russ Gould: the Patient’s Perspective Otis Brawley, MD
William Catalona, MD 10:15 Patient / Doctor Communications
Terry Mason/ Thomas Kirk – Us Too
10:45 Break
Remain in Hughes / Baldwin Adjourn to Searle Room
11:00 Prostate Cancer Treatment: What’s Best for You
Terry Mason, MD/ John Kalapurakal, MD/ Charles Brendler, MD
Controlling Therapeutic Side Effects / Pain Management
Daniel Shevrin, MD/ Judith Paice, PhD
11:45 Restoring Quality of Life: Managing Side Effects / Pain Control
Judith Paice, PhD/ Daniel Shevrin, MD
Current and Emerging Biomarkers for Disease Management
Rick Kittles, PhD/ Charles Brendler, MD
12:15 Keynote Luncheon William Catalona, MD
1:00 Advanced Stage Disease Mgmt. Terry Mason/
John Kalapurakal, MD/ Daniel Shevrin, MD
Managing Hormone Sensitive, Non-Metastatic Relapse and Castrate-Resistant Metastatic Prostate Cancer
Gary MacVicar, MD/ Terry Mason, MD
1:45 Prevention Strategies: Emerging Trends and Issues
Daniel Shevrin, MD 2:15 Feedback Summary / Q&A
Registered AttendanceRegistered Attendance Patients/spouses, Advocates, Caregivers: 149
Patients - 105 Spouse/Partner/Caregiver/Family Member - 37 Patient Advocates - 7
Industry: 5 Doctors: 8
Medoncs - 2 Radoncs - 1 Primary Care - 2 Urologists - 2 Other - 1
Public Health Workers: 7 Nurses and medical assistants - 3 Health Service workers - 4
Cancer Researchers: 3 Plus: “Walk-ins” - not registered: 42
Patients - 24 Spouses/Caregivers - 16 Doctor (Urologist) - 1 Students: 1
Patients/spouses, Advocates, Caregivers: 149 Patients - 105 Spouse/Partner/Caregiver/Family Member - 37 Patient Advocates - 7
Industry: 5 Doctors: 8
Medoncs - 2 Radoncs - 1 Primary Care - 2 Urologists - 2 Other - 1
Public Health Workers: 7 Nurses and medical assistants - 3 Health Service workers - 4
Cancer Researchers: 3 Plus: “Walk-ins” - not registered: 42
Patients - 24 Spouses/Caregivers - 16 Doctor (Urologist) - 1 Students: 1
The Prostate Net SymposiumOctober 2, 2010
The Prostate Net SymposiumOctober 2, 2010
AGENDA
Time New York University
Kimmel Center for University Life Prostate Cancer Symposium
October 2, 2010 8:00 Registration / Breakfast
8:30 Welcome and Program Overview Allen McFarlane John Andrews Virgil Simons
9:15 Patient / Doctor Communications: The Trust Equation Mark Litwin, MD / Darryl Mitteldorf
9:45 Prevention Strategie s: Environment, Diet and Lifestyle Stanley Weiss, MD
10:15 Break
10:30 Understanding New Drug Protocols: Managing Hormone S ens itive, Non-Metastatic Relapse /
Castrate-Resistant Metastatic Prostate Cancer Daniel Petrylak, MD/
Susan Slovin, MD, PhD 11:30 Finding Affordable Health Care: U.S. vs. Overseas
Arnon Krongrad, MD
12:00 Benediction Rev. Alfonso Wyatt
12:10 Keynote Luncheon “Invasion of the Prostate Snatchers” –
Managing Primary Therapy Mark Scholz, MD
1:15 Restoring Quality of Life: Managing Side Effects / Palliative Care
Susan Slovin, MD, PhD Arnon Krongrad, MD
2:00 Prostate Net Health Scholar Poster Winners Presentations
Mark Litwin, MD 2:30 Feedback Summary /
Q&A
Registered AttendanceRegistered Attendance
Patients/spouses, Advocates, Caregivers: 96 Patients - 74 Spouse/Partner/Caregiver/Family Member - 18 Patient Advocates - 4
Industry: 2 Doctors: 3
Medoncs - 1 Urologists - 1 Other - 1
Public Health Workers: 3 Nurses and medical assistants - 1 Health Service workers - 2
Cancer Researchers: 3 Plus: “Walk-ins” - not registered: 6
Patients - 2 Spouses/Caregivers - 1 Students: 3
Patients/spouses, Advocates, Caregivers: 96 Patients - 74 Spouse/Partner/Caregiver/Family Member - 18 Patient Advocates - 4
Industry: 2 Doctors: 3
Medoncs - 1 Urologists - 1 Other - 1
Public Health Workers: 3 Nurses and medical assistants - 1 Health Service workers - 2
Cancer Researchers: 3 Plus: “Walk-ins” - not registered: 6
Patients - 2 Spouses/Caregivers - 1 Students: 3
On-Going Educational Reinforcement
On-Going Educational Reinforcement
Archives of all Symposium Presentations are accessible through an Information Portal at: http://prostatenet.com/page/
More than 3800 individual viewer accesses to date
Data capture of viewer demographics for future targeting
Opportunity to poll database for response on key disease issues
Archives of all Symposium Presentations are accessible through an Information Portal at: http://prostatenet.com/page/
More than 3800 individual viewer accesses to date
Data capture of viewer demographics for future targeting
Opportunity to poll database for response on key disease issues
Thank You!Thank You!
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