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The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

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Page 1: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

The role of decision-making in influencing outcomes

in long-term care

Findings from the Care Pathways and Outcomes Study

Page 2: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

What will be presented?

• Introduction to the CPO study

• Summary of the findings

• Implications for decision-making and practice

o Children’s placement profile o Education

o Regional variations o Parent/carer stress

o Placement stability o Contact with birth family

o Attachment o Family communication

o Self-esteem and happiness o Social services involvement

o Behaviour o Social support

Page 3: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

The Care Pathways and Outcomes Study

• Research team: Dominic McSherry, Montserrat Fargas Malet, Kerrylee

Weatherall and Greg Kelly

• Longitudinal study following a population of children (n=374) under 5

and in care in NI on 31/03/2000.

• 3 completed phases. All children’s placements profiled in 2000, 2002,

2004 and 2007.

• Phase 3: The Children’s Perspective (interviews with subgroups of 9-

14 year old children and their parents/carers – quantitative &

qualitative data)

Page 4: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Placement profile 2000-2007

2000 2002 2004 20070

10

20

30

40

50

60

70

Adopted

Birth parents

Foster care

Kinship care

Residence Order

Prospective Adop-tion

Page 5: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Regional variations

NorthernSouthern

South EasternWestern

BelfastTotal Population

63

69

39

25

32

45

18

15

36

14

23

209

6

15

43

23

207

2 5

14

11

9

38

54

10

6

Adoption

Birth Parent

Foster care

Kinship care

Residence Order

Page 6: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Placement stability

Adoption Foster care Kinship care Residence order

Birth parents

99

87

96 95 95

Placement stability achieved by 2007

Page 7: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Children’s attachment to their parents/carers

Adoption Foster care Kinship care Residence order

Birth parents

High

Medium

Low

Page 8: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Children’s behaviour

Adoption

Foster care

Kinship care

Residence Order

Birth parents

Gen. Pop.

28

44

25

14

50

10

% clinically high difficulties

Page 9: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Children’s health and behaviour

• Which children had serious health problems according to

parents/carers:

• A range of conditions

• Child’s behaviour stayed the same or improved

• Highlighted the strengths of children and positive behaviours

o 1/11 in kinship care (9%) o 5/12 with birth parents (42%)

o 5/15 in foster care (33%) o 11/18 adopted (61%)

o 6/15 on residence order (40%)

Page 10: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Children’s education

• Poor scores in the BPVS

• Receiving additional supports at school: majority of children adopted

by carers; nearly half of those in foster care; BUT only a few with birth

parents.

• Children coping very well/ “alright” at school (considering

limitations); a few - with problems (e.g. bullying and behavioural

problems).

• A few doing very well at school and passed the Eleven Plus test – BUT

low expectations from teachers and social services.

Adoption Foster care

Kinship care

Residence order

Birth parents

Gen. Pop.

3950 50

36

78

25

% low scores

Page 11: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Parent / carer stress

Adoption (n=18)

Foster care (n=16)

Kinship care

(n=12)

Residence order

(n=14)

Birth parents (n=12)

Gen. Pop.

22

44

33

21

50

15

% clinically high stress

Page 12: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Contact with birth families

• Majority had some sort of contact

• Regular face-to-face contact with parents/siblings common for foster,

kinship and RO children but adopted children – post-box contact.

• Contact arrangements changed over time, reducing or stopping altogether

• Many children, especially in foster or kinship care, used to have negative

reactions to contact in the past, but for the majority, the situation had

improved.

• Some children were happy with the level of contact, others longed for more

contact with birth family or even wished to live with them.

• The majority of parents/carers whose children had face-to-face contact had

no issues, but where tensions existed - in kinship care.

Page 13: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Family communication

• sharing info about birth family/past in care: (1) sharing all the

info; (2) concealing certain facts deemed potentially distressful

(adoptive); & (3) simplified or romanticised version of the

past/birth family (adoptive & kinship).

• (1) some children were asking questions / talking about birth

family though not often; (2) some were not doing that now but did

in the past; and (3) some never did, because already knew

everything, had forgotten, or were not interested.

• A few children were curious about their birth family but their

parents/carers appeared unaware of this.

Page 14: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Social services’ involvement

• Birth parents most critical of support provided by social services

(marginalised, undermined and distrusted).

• Some adoptive parents advocated for a continued role of social services;

others and some RO carers felt a sense of ‘abandonment’ by ss post-

adoption/post-residence order.

• A few kinship carers experienced a sense of disregard and lack of

support, and felt less valued/supported by ss precisely because they

were relatives.

• Some RO carers happy that ss were no longer there, leading ‘normal’

family lives; others advocated a continued role for ss, in terms of the

provision of financial support.

Page 15: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Social support

• The most important source of support provided for the parents

and carers was their family.

• Birth parents had the least extensive network of support, in

relation to both family and friends.

• Foster carers and residence order carers had access to the most

extensive family support networks. Their extended family were

closely involved in the lives of their children.

• Support from extended family also provided on an extensive basis

for the majority of adoptive parents who also fostered the child.

Page 16: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Implications for decision-making

• Imp of finding stable placements – early decision-making

• Post-code lottery

• Need to acknowledge high level of health needs for

children in adoption, living with birth parents & in foster

care + high level of parent/carer stress – Post-adoption

support plans; support packages for birth families??

• Informing residence order carers

• Getting the child’s perspective

Page 17: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Thank You

Montserrat Fargas Malet

[email protected]

For more info: McSherry, D., Fargas Malet, M., Weatherall, K. (2013). Comparing long-term placements for young children in care. The Care Pathways and Outcomes Study – Northern Ireland. London: BAAF

Page 18: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

I had to fight with social services to get him to do the Eleven Plus… They

weren’t going to let him do it… and I felt he should do it … The

Education Board wasn’t going to let him do it. … At the end, they allowed him to do it but he had to sit in a room on his own… in case he would disrupt the class… he got a B1. I

was all delighted.

(Martin’s foster mum)

Page 19: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

But things seem to be going well this last year or so,

better than it had been, so I mean the kids come back and

I don’t have any problems now. Whereas at the

beginning there were lots of problems with behaviour and different things, but that has

all settled down now and things have been going well this past year because they

have been doing more family orientated things. Whereas before they were in a Family Centre and the kids would be

bored …

(Pol’s foster mum)

[In the future] I might go and live

with my birth parents …

Because I’ve never seen them

before and I don’t know anything

about them.

(Bridget – adopted by carers)

Page 20: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

Just she didn’t grow up in mummy’s

tummy, she grew in somebody else’s

tummy and then we picked her specially.

So that is really as far as she understands.

So far. You say that to her and she will repeat it, you know, that is it.

(Ciara’s adoptive mother)

We would have done (talk about birth family) right up until after the court there last year, whenever his mother took us back to court over access… Now we wouldn’t really talk

about her because he just doesn’t want to…

he just doesn’t want to know anything about

her.

(Ryan’s residence order carer)

Page 21: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

I don’t know what to say there [at the LAC

reviews]… I think they’re a bit sore on

me at times… They put it down as neglect… Does she look like somebody who’s

neglected? I’m sitting crying usually.

(Alexandra’s birth mum)

We sort of felt that once we took over the role

nobody else wanted to know … It just seemed to me you could bluff your way through the whole

thing … There have been no checks whatsoever

since, a small concern of mine.

(Ciara’s adoptive mother)

No other option. The children were dumped on us… and the social worker says you have to take them, didn’t

ask will you take them… just take them.

(Nathan’s grandmother – kinship carer)

Page 22: The role of decision-making in influencing outcomes in long-term care Findings from the Care Pathways and Outcomes Study

As for my brothers and

sisters, as I said, I never see them so they weren’t

suportive at all… so we were doing it by ourselves…

(Bronagh’s birth parents)

Especially my son and daughter-in-law are very, very

supportive … would babysit at

the drop of a hat… and even my older

daughter… it’s very good

(Ryan’s residence order carer)