The role of the patient in improving quality

Paul Wicks, PhD.

Engines

Aerodynamicist

Performance

Strategists

Testing

Tyres

Management

Systems

Dynamicist

So how have you

been in the last 6

months?

Lewis Trevor

Electronic Sensors Multiple, continuous,

sophisticated

Intermittent,

cumbersome, outdated

Iteration Continuous Glacial

Systems modeling Experts Absent

Purpose of the system Make an advertising

billboard move around

Live a meaningful life

Rewards for a

measured incremental

improvement

Keep your job Money, glory

Rewards for winning Money, glory Keep your job

Two Approaches to Quality Improvement

PROMs / Outcomes

Social Networking

& conversations

Provider Ratings

Case Management

PatientsLikeMe

PatientsKnowBest HealthUnlocked

GP Ratings App

I Want Great Care

Patient Opinion

HealthTalk

Online

CPRD / GPRD

Database

“Where Can I Get The Best Care?”

“How Do I Find a Patient Like Me?”

What does good care look like?

Wicks & Fountain (2012) Patient assessment of physician performance of epilepsy quality of care measures. Neurology Clinical Practice 2:335

23% - I have had fewer visits to the ER

28% - PatientsLikeMe gave me more and better control over my condition

59% -the site has given me a better understanding of my seizures

49% - recording my seizures helps me manage my condition

50% - PatientsLikeMe helped me understand side effects

2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life

30% - PatientsLikeMe helped me be more adherent

One-third of respondents had no one in “the real world” with whom to discuss their epilepsy. After joining PatientsLikeMe, two-thirds reported a connection to at least one other person with epilepsy.

2010 Epilepsy User Survey: Those who connect with others on PatientsLikeMe report a wider range of perceived benefits to their epilepsy management and quality of life

Genetics

EEG Telemetry

Cognition

Quality of Care

Treatments

Safety

Carer Support

Co-morbidities

Strategy

Systems

Dynamicist

“Technology makes things possible, people make things happen”

The role of the patient in improving quality

Paul Wicks, PhD.