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Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles County Department of Public Health Maternal, Child and Adolescent Health Programs

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Page 1: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Translating Data into Action:Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality

Cynthia Harding, MPH

Giannina Donatoni, PhD

Los Angeles County Department of Public Health

Maternal, Child and Adolescent Health Programs

Page 2: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Special Thanks to:

Cathleen Bemis, MS

Shin Margaret Chao, PhD, MPH

Kevin Donovan, MPH

Sunching Glenn, MS

Angel Hopson, MSN, MPH, RN

Laurin Kasehagen, PhD, MA

McKinley Kemp, MBA

Grace Lubwama, MPH

Page 3: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Today’s PresentationData tools

Perinatal Periods of Risk (PPOR) Fetal and Infant Mortality Review (FIMR) Los Angeles Mommy and Baby (LAMB)

Project

Findings

Data to

Page 4: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Los Angeles, California

1

Page 5: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Antelope Valley (AV)

Relatively isolated

4,903 live births in 2002 Mother’s race/ethnicity:

17% African American 46% Hispanic 33% White

Income of 1 in 8 households less

than Federal Poverty Level (1 in 5 in LAC).

Page 6: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Increasing Infant Mortality in AV

1999-2002

4.95.4 5.5

5.4

5.0

6.2

9.4

10.6

0

2

4

6

8

10

12

1999 2000 2001 2002

per

1,00

0 L

ive

Bir

ths

LAC Overall Rate

AV Rate

Countywide IM rates were 4.9 to 5.5 from 1999-2002

AV IM rate more than doubled between 1999 and 2002

In 2002, there were 4903 live births and 53 infant deaths in AV*

* Small numbers cause large changes in rates

Page 7: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Highest Rates in African Americans

African American rate increased from 11.0 in 1999 to 32.7/1,000 live births in 2002

19.0

28.4

32.7

5.7 5.6

7.7

3.5

5.5

11.0

6.6

2.7 2.2

0.0

5.0

10.0

15.0

20.0

25.0

30.0

35.0

1999 2000 2001 2002

Per 1

,000 L

ive Bi

rths

African American Hispanic

White (Non-Hispanic) Antelope Valley Rate

Source: California Department of Health Services, Center for Health Statistics, Vital Statistics, 1999 to 2002

Page 8: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Response

Page 9: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

PPOR Focus AreaPotential

Community/PH Interventions

Maternal Health/Prematurity

Preconceptual HealthHealth BehaviorsPerinatal Care

Maternal CarePrenatal CareReferral SystemHigh Risk OB Care

Newborn CarePerinatal ManagementPerinatal SystemPediatric Surgery

Infant HealthSleep PositionBreast-FeedingInjury Prevention

Data Source: Birth Cohort data, California Department of Health Services, Center for Health Statistics, Vital Statistics, 2002.

Page 10: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Fetal Infant MortalityReview (FIMR) / PPOR

National FIMR forms to review 2002 AV infant deaths (N=53)

PHNs conducted home interviews, abstracted hospital and provider records.

PPOR framework to summarize findings by each infant’s birth weight and age at death.

Page 11: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Population-based, case control Resided in AV Factors linked with poor birth outcomes Events before, during, and shortly after pregnancy

Pre-interconception care Prenatal care Maternal medical conditions Psychosocial factors Risk taking behaviors

Los Angeles Mommy and Baby (LAMB) Project

Page 12: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

FIMR/PPOR Findings27 Neonatal Deaths (<1500 g, 0-28 days)

Mother:All had at least one risk factor for poor birth outcomes65% had psychosocial issues54% had an infection – mostly UTI and STD35% began prenatal care after 12th week

Infant:22% had documented infection15% had congenital birth defect

Page 13: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

FIMR/PPOR Findings (continued)13 Infant Deaths (> 1500 g, 29-365 days)Mother:85% had at least one risk factor for poor birth outcomes77% had psychosocial issues54% began prenatal care after 12th week

Infant:54% had issues related to safety 46% had a congenital birth defect

Page 14: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

LAMB Findings Moms with poor birth outcomes tend to have:

No insurance before pregnancy (OR=2.3; p = 0.004)

Previous low birth weight/preterm infant (OR=3.67; p = 0.0003)

High blood pressure during pregnancy (OR=3.44; p=0.06)

Inadequate prenatal care (OR=2.34; p= 0.01)

Early labor pain, water broke early (OR=2.54/10.93; p <0.001)

Felt less happy during pregnancy (OR=1.92; p= 0.02)

Smoked during pregnancy (OR=3.19; p= 0.005)

Unsafe neighborhood (OR=2.45; p= 0.02)

Page 15: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Data FrameworkPPOR, Infant Death Review and LAMB

PPORIdentify groups with excess mortality.

Link births with deaths.

Mortality ReviewMaternal interviews

& chart reviews

Share findings with stakeholdersat local community meetings

LAMBPopulation-based case control study

Calculate prevalenceof problems

Identify factors assocwith LBW/PT births

Community consensus onrecommended actions

Page 16: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Where do we intervene?

Page 17: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Maternal Health/

Prematurity

1. Preconception care

2. Interconception care

3. Prenatal care

4. High risk Ob care

Infant Health

1. Safety issues

(sleep position, injury

prevention, etc)

2. Breast-feeding

3. Family and parenting

issues

?

?

Areas for Strategic Intervention

Page 18: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Maternal Health/

Prematurity

1. Preconception care

2. Interconception care

3. Prenatal care

4. High risk Ob care

Infant Health

1. Safety issues

(sleep position, injury

prevention, etc)

2. Breast-feeding

3. Family and parenting

issues

12 Short-term Interventions 1.Increase access to high-risk Ob care and

related ancillary services, such as labs; access is particularly difficult for Medi-Cal recipients.

2.Arrange faith-based youth services to provide health services.

3.Promote “100 Acts Kindness” for pregnant women.

4.Increase access to transportation for pregnant moms and advocate politically for trans. improvement.

5.Arrange male support groups to address the ”Role of Men”.

6.Present this data to local Ob and pediatric providers and staff to increase awareness.

7.Provide comprehensive assessment for newborns, especially for high risk ones.

8.Provide immediate information and planned follow-up for high-risk infants/moms.

9.Provide newborn infant care classes to new moms before they are discharged from the hospital.

10.Establish a 24-hour lactation team.11.Provide education for breastfeeding and

infant care during prenatal care.12.Bring providers and volunteers together to

identify best practices.

Page 19: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Translating Data to Action

Service Expansion and Linkages Antelope Valley Best Babies Collaborative Faith-Based Efforts Better hospital discharge planning Better linkage to MCAH Programs

Nurse Family Partnership Black Infant Health CPSP

Page 20: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Preconception Health Efforts Perinatal Summit Preconception Health Collaborative

Community Engagement Training for Providers Integration with existing public health practice

Maternal Health/

Prematurity

Page 21: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Community Engagement Brochures on the Web

Pregnancy & Family Friendly Workplace Policies Brief

Breastfeeding-Friendly Workplace Policies Brief

How healthy are you? Reproductive Life Plan toolkit

Your Health, Your Life Plan: A Reproductive Health Life Planner for all Ages

Page 22: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Community Engagement Palm cards, posters, and DVDs

I Want my 9 Months Don’t U Dare Are You Ready for a Makeover? Nine Questions to ask Before Becoming Pregnant Folic Acid is Good for Me / Folic Acid is Good for

Us Community grants and awards Advocacy network

Page 23: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Infant Death Rate by Race/Ethnicity Antelope Valley, 1996-2005

15.1

17.619.1

11.0

19.0

28.4

32.7

16.5

14.3

9.5

0.0

5.0

10.0

15.0

20.0

25.0

30.0

35.0

1996 1997 1998 1999 2000 2001 2002 2003 2004 2005

Year

Infa

nt

Death

s p

er

1,0

00 L

ive B

irth

s

African American Asian/Pacific Islander Hispanic White Total

Page 24: Translating Data into Action: Using PPOR, FIMR, and the LAMB Project to Reduce Infant Mortality Cynthia Harding, MPH Giannina Donatoni, PhD Los Angeles

Contact Us:Los Angeles County Department of Public Health

Maternal, Child, and Adolescent Health Programs

Cynthia A. Harding, MPH , Director

[email protected]

Giannina Donatoni

[email protected]