traumatic brain injury toolkit traumatic brain injury education series april 25, 2005
TRANSCRIPT
Traumatic Brain Injury Toolkit
Traumatic Brain Injury Education Series
April 25, 2005
Overview
• Why the toolkit was developed
• How the toolkit is organized
• Who can use it
TBI Planning Grant
– Grant that looked at current systems for providing services to persons with TBI and their families. This included surveys of:
• Providers of services • People with TBI and their families
– As a result of statewide stakeholder input from persons with TBI and their families, as well as providers, it became clear that we needed to promote better awareness about brain injury, as well as information about how to access resources
Implementation Grant
– Three year grant awarded in 2003
– Goal is to improve access to healthcare and other services for people with TBI
– Multiple objectives in grant
Focus today is on the education and training objective:
Providing persons with TBI and their families with a product to assist them in learning about TBI and connecting to resources
Development of Toolkit• Directed by persons with TBI and their
families
• Input from providers
• Collaboration with volunteer work groups, focus groups, grant partners, with a cross section of people
• Conducted review of current materials and products for possible inclusion in kits. (e.g. components of CDC TBI toolkit developed for physicians)
Tool Kit Cover
FormatThe toolkit is divided into two sections:
I. Fact sheets for individuals with TBI and their
familieshttp://www.aasa.dshs.wa.gov/Library/tbitoolkit.pdf
II. Fact sheets for providers
http://www.aasa.dshs.wa.gov/Library/tbitoolkitpro.pdf
III. Each section has two components:• Children• Adults
Toolkit Contents and Organizing Principles
Fact Sheets for persons with TBI and their families
• At the time of injury, overload of information
• Stakeholders wanted a flexible product that would meet their needs at different times
• Tool kits were developed, with different information that can be provided at different times
Table of Contents
Audience Category Topic (Organizing Principles)
Person with TBI//Caregivers/Natural Supports
About TBI General guide on symptoms, mild vs. acute, different types of injuries
What do I do next?
Tests to evaluate your injury
TBI treatments
Glossary of terms
When your head has been hurt: facts for children and adults
Facts about comas
The recovery process
What to expect including:■ Stages of recovery• Range of symptoms • Signs of improvement• Rancho Los Amigos scale• Glasgow Coma Scale
Working with your health care team
How to cope with TBI and common reactions
After you leave the hospital
When to contact your provider (physician, clinician, case manager)
The role of rehab
Back to School with TBI
Person with TBI/Caregivers
Where to get help (resources)
Self-advocacy; how to navigate the system
Brain injury resources, organizations with phone numbers and web addresses
Where to go for support (mentors, support groups, hotlines, etc.)
About TBIGeneral guide on symptoms, mild vs. acute, different types of injuries
What do I do next?
Tests to evaluate your injury
TBI treatments
Glossary of terms
When your head has been hurt: facts for children and adults
Facts about comas
Sample Sources: Centers for Disease Control 2004/2003
The recovery processWhat to expect including:– Stages of recovery– Range of symptoms– Signs of improvement– Rancho Los Amigos scale– Glasgow Coma Scale
Working with your health care team
How to cope with TBI and common reactions
After you leave the hospital
When to contact your provider (physician, clinician, case manager)
The role of rehab
Back to School with TBI•
Where to get help (resources)
Self-advocacy; how to navigate the system
Brain injury resources, organizations with phone numbers and web addresses
Where to go for support (mentors, support groups, hotlines, etc.)
Provider Table of Contents
Audience Category Topic (Organizing Principles)
Provider Diagnosis TBI, signs and symptoms
Definition of MTBI
Tests
History taking
Treatment Management approaches
The role of rehab
Facilitatingrecovery
Communicating with families
Cultural diversity and the role it plays in treatment and recovery
Special needs for children with TBI including fact sheets: Tips for Parents,Tips for Teachers
Resources References for articles and links to information
Provider Fact Sheets
Designed:– For different levels of knowledge and
expertise about TBI– For people with a broader focus and other
expertise – As a tool to more effectively support
people with TBI and their families– For multiple uses in multiple settings
Diagnosis
TBI, signs and symptoms
Definition of MTBI
Tests
History taking
Treatment
Management approaches
The role of rehab
Facilitating recovery
Communicating with families
Cultural diversity and the role it plays in treatment and recovery
Special needs for children with TBI including fact sheets:
Tips for Parents, Tips for Teachers
Resources
References for articles and links to information
SUMMARY
The tool kits are designed:• to provide persons with TBI and their
families with useful, direct information, and additional resources they may need now or in the future, and
• To increase the knowledge of providers about TBI, and provide them with informational materials that they can give to persons with TBI and their families with whom they work