uk transitions task force - presentation for the scottish transitions forum
DESCRIPTION
David was speaking about the UK Transitions Taskforce, which the STF currently stands as the Scottish representative of. David talked about why the Transitions Taskforce was needed and the on-going work and vision. Their aim or vision “is that all young people with life limiting or life threatening conditions will make the transition to adult services and live their lives as independently as possible according to their wishes, while receiving the care and support they and their families/carers need.” David then went on to discuss what the Transitions Taskforce has managed to achieve so far and invited people to become involved in Scotland. Scott suggested that he allows those who were down to attend the day as an email list to sign them up to the Network and those in attendance seemed in agreement to this. David then discussed with delegates the earnest work that was needed and other obstacles and future directions they hope to move in to enable the network to succeed. This included funding to continue the work. David also introduced everyone to Richard Whateley development worker for the UK Transitions Taskforce.TRANSCRIPT
The UK Transition Taskforce
Scottish Transitions Forum18th June 2014
Transition Taskforce Vision
Our vision is that all young people with life limiting or life threatening conditions will make the transition to adult services and live their lives as independently as possible according to their wishes, while receiving the care and support they and their families/carers need.
Transition Taskforce Aims
For young people with life limiting or life threatening conditions
Build a UK-wide forum to drive the development and implementation of a strategy to improve transition.
Raise awareness and influence the policy and commissioning agenda and develop a strong and united voice on transition.
Stimulate new service development and partnerships between adult and children’s service providers at national, regional and local levels as appropriate.Develop a UK-wide hub of information, training, research and good practice in relation to transition, producing new resources as appropriate.
UK TRANSITION TASKFORCE STRUCTURE
1.
SERVICE DEVELOPMENT
2.
RESEARCH & RESOURCES
3.
INVOLVEMENT
4.
INFO
& AWARENESS
5.
INFLUENCING
6.
FUNDING
UK TTF Stakeholder Group
National, Regional and Local Action Groups
Workstreams
National Special Interest Groups
Together for Short Lives Trustee Board
The UK Transition Taskforce
Progress since we began in April 2013?
Service Development
Nat Forums in Scot, Wales, & NI.
RAGs in Midlands, NE, & NW
Dev in Lon, Yorks, South Cen
Quarterly RAG Forums
RAGsOp principles
MappingFirst Inter agency
WGs
Research & Professional ResourcesSTEPP Project completed.
TfSL funded research project by Bangor University by Feb14: models of transition & key worker role.
Taskforce sponsored programme of Transition Study Days.
Planning to republish the Transition Care Pathway & audit tools.
Guidance for professionals on End of Life Conversations.
Collaborative research project with OU to develop a ‘Sexuality Pathway’ for professionals.
Involvement
A Young Avenger’s Group. Plan to expand group and members to support Taskforce work, e.g.NL, website, etc.
Parents on the Strategy Group; building a small group of parents with experience of transition to carry the flag.
Established links with key organisations that link with service users and their families, e.g. Marie Curie, NCPC, Scope, LCD & Mencap and NHF.
New Health Handover document, developed in Wales.
Young Person’s Companion to the Transition Care Pathway planned for 2015-16.
Information, Resources and Awareness
MappingOnline
information hub.
Bi-monthly Transition Taskforce
newsletter.
UK-wide awareness
campaign on transition.
Influencing
Established virtual
sub-group for
external affairs.
Influenced the Care Bill
and the Children and Families Act.
Working with the
SEND Pathfinders and PfA.
Guidance for
commissioners
Member of the CQC Advisory
Panel reviewing transition.
Funding
A 3-year DH grant to fund Taskforce core
costs.
3-year Taskforce Framework Document.
EHC, PBs PHBs
Pump priming the RAGs
Transition Taskforce
The UK Transition Taskforce0117 989 7820
www.togetherforshortlives.org.uk
4th Floor | Bridge House | 48-52 Baldwin Street | Bristol | BS1 [email protected]@acorns.org.uk