ukrdc_ukrr_22052014n.ppx. uk renal data collaboration (ukrdc) ukrr birmingham 22 may 2014 keith...
TRANSCRIPT
![Page 1: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/1.jpg)
UKRDC_UKRR_22052014n.ppx
![Page 2: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/2.jpg)
UK Renal Data Collaboration(UKRDC)
UKRR Birmingham22 May 2014
Keith Simpson
medical advisor to the UK Renal Registry
![Page 3: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/3.jpg)
UK Renal Registry UKRR
Scottish Renal Registry SRR
Renal Patient View RPV Renal PatientView
UK Registry for Rare Kidney Diseases RaDaR
British Association for Paediatric Nephrology BAPN
NHS Blood & Transplant
Northern Ireland Nephrology Forum
Welsh Renal Clinical Network
UK Renal Data Collaboration(UKRDC)
![Page 4: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/4.jpg)
UKRDCWebsite
Board
Members IT suppliers
Terminology & coding
Infrastructure
Projects
UKRDC – draft structure
![Page 5: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/5.jpg)
Supports its members to improve use of data to:
1) Care for patients
2) Research
3) Teach & learn
4) Run the services
5) Quality & safety improvement
UK Renal Data Collaboration
![Page 6: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/6.jpg)
RPV
.
Labs
RenalUnits
UKRR
SRR
RaDaR
NHSBT
OtherNational data
BAPN
UK Renal Data
![Page 7: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/7.jpg)
RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
![Page 8: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/8.jpg)
RPV
.
UK Renal Data Collaboration
UKRR
SRR
RaDaR10-20 gps
BAPN
Regular meeting with the UKRDC members
Data sets collected
![Page 9: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/9.jpg)
UKRDC Data Model – bigger picture
![Page 10: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/10.jpg)
.
UK Renal Data Collaboration
Warehouse
Secure server within N3
InterSystems software
FastPowerfulFlexibleExpandableTrainingSupported
Translation engine – middle wareSupports SQL
![Page 11: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/11.jpg)
.
UK Renal Data CollaborationRenalUnits
Presentations at RA Meetings Bournemouth & GlasgowBAPN annual Meeting – BirminghamSRR Meeting AyrClinical Directors Meeting – ManchesterWritten to all CDsarticles on RA website and UKRR newsletters
Renal IT companiesPlenary session BristolIndividual meetings at their offices
![Page 12: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/12.jpg)
Communications:What2 wayDiscussions with HSCIC – Leeds – SNOMED CT for diagnoses & proceduresRCP Health Info Unit – Clinical Document ArchitectureRoyal Col path – Lab results – NLMCWill include ability to send free textmeta data (when what how, ref range, assay used -possible
HowEncryptedLoggedHL7 – possibly ‘FHIR’
![Page 13: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/13.jpg)
Request for a new lab test
JM – Data set group of UK Renal Terminology Committee:Check it is new, get NLMC code, confirm meta data, publish on UKRDC websiteReply to request
Send to Dr James Medcalf
Send to Dr Jamie Traynor
JT – Lead UKRDC Data groupConfigure storage, reporting, use in derived resultsAdd to UKRDC database in collaboration with IT experts & InterSystems
![Page 14: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/14.jpg)
National Laboratory Medicine Catalogue(cross referenced to SNOMED CT)
![Page 15: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/15.jpg)
Request for a new Diagnosis or Procedure
AC – Diagnosis & Procedures groupUK Renal Terminology Committee:Check it is new, get SNOMED CT code, confirm semantic relationshipsPublish on UKRDC websiteReply to request
Send to Dr Afzal Chaudhry
Send to Dr Jamie Traynor
JT – Lead UKRDC Data groupConfigure storage, reporting, use in derived resultsAdd to UKRDC database in collaboration with IT experts & InterSystems
![Page 16: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/16.jpg)
RPV
.
UK Renal Data Collaboration
Labs
RenalUnits
UKRR
SRR
RaDaR10-20 gps
NHSBT
OtherNational data
Warehouse
BAPN
![Page 17: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/17.jpg)
An early project• D4D Grant
Enabling patients to initiate medicine reconciliation via RPV
![Page 18: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/18.jpg)
Summary• A new collaboration for managing data in UK
Renal Medicine• Using industry standard tools• Enabling patients to see and contribute to their
medical record• Enabling our 5 functions
• Support from Patients, Renal units, Renal IT Industry, NHS, Colleges
![Page 19: UKRDC_UKRR_22052014n.ppx. UK Renal Data Collaboration (UKRDC) UKRR Birmingham 22 May 2014 Keith Simpson medical advisor to the UK Renal Registry keith.simpson@nhs.net](https://reader035.vdocuments.net/reader035/viewer/2022062620/551b5a31550346ae7a8b575d/html5/thumbnails/19.jpg)