united states health information knowledgebase (ushik) metadata registry project glenn m. sperle...
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United States Health Information Knowledgebase (USHIK)Metadata Registry Project
Glenn M. SperleHealth Care Financing Administration410 786-4610
25 May 2000
Health Level Seven
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Purpose of BriefingProvide Status of Metadata Registry Project
– United States Health Information Knowledge
Review– Goal
– Today’s Situation
– Approach
– Metadata Registry Overview
– Some Examples
– Point of Contact
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Metadata Registry Project Goal
Build, populate, demonstrate, and make available for general use a metadata registry to assist in cataloging and harmonizing data elements across multi-organizations.
Utilize selected Health Insurance Portability and Accountability Act (HIPAA) data elements for demonstration.
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Today’s Situation (i)HCFA and DoD have developed the USHIK
to demonstrate the use of a metadata registry that:– Focuses on Health Insurance Portability and
Accountability Act (HIPAA) data.– Contains data definitions from X12, HL7, and NCPDP.– Functions based on ISO/IEC 11179 metadata standard– Utilizes the Australian National Health Information Model
(NHIM) high level information model to facilitate grouping of data definitions.
USHIK is available for review at:http://hmrha.hirs.osd.mil/registry/
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Today’s Situation (ii)HCFA has offered to support operation of the
USHIK by Health Informatics Standards Board (HISB) for one year in order for HISB and Standards Development Organizations to utilize and evaluate metadata registry benefits.
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HISB and seven SDOs have accepted HCFA’s offer to utilize the USHIK metadata registry to evaluate metadata registry capabilities
– Accredited Standards Committee - Healthcare (X12N)
– American Dental Association (ADA)
– American Society for Testing and Materials Committee E31 on Healthcare Informatics (ASTM E31)
– Health Industry Business Communications Council (HIBCC)
– Health Level (HL7)
– Medical Device Communications Industry Group (IEEE 1073)
– National Council for Prescription Drug Programs (NCPDP)
Today’s Situation (iii)
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Five additional organizations are interested in providing input or observing – Center for Disease Control (CDC)– Department of Defense, Health Affairs (DoD HA)– National Committee on Vital and Health Statistics
(NCVHS)– Government Computer-Based Patient Record (G-CPR -
Joint Department of Defense, Health Affairs (DoD HA), Department of Veteran Affairs (VA), and Indian Health Service (IHS) Project)
– Health Care Financing Administration, End Stage Renal Disease Program (HCFA ESRD)
Today’s Situation (iv)
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ApproachTwo phase approach
– Initial startup to provide access to current SDO data dictionary content and basic metadata registry operations
• Load “As-Is” information
• Minimize impact on SDO
• Map data elements to Australian National Health Information Model (NHIM)
– Establish procedures for achieving metadata registry content consistency
• Incorporating into SDO operations
• Versioning of data elements
• Required metadata and quality metrics
• Enhance capabilities of metadata registry
Methods of Finding Data Elements
Metadata Registry Overview
…Birth DateHair ColorEye ColorSex...
Data Elements
ABCDEFGH..
Initiatives
Health Insurance Portability and Accountability Act...
Data Collections
HCFA Long Term CareBRFSS
Data Agreements
X12NCVHS Core DataNCPDP
Organizations
CDCAHCPRNCVHS
Models
HL7-RIMDoD HA FAM-DAIHW
What data elements are used?
Data elements are described in common format.
References to Authoritative Sources
NCPDP (National Council for Prescription Drug Program)
Data Element
X12 (American Standards Committee)
Transaction Set
-Data Element
-Composite Data Element
HL7 (Health Level Seven)
Reference Information Model
-Subject Area
-Class
-Attributes
NHIM (Australian National Health Information Model )
Model -Model Subtype -Information Model
Subtype
-Data Element
-Data Concept
-Composite Data
Element
-Derived Data
Element
…Person_SexGenderSex_Category Code...
Where are data elements defined?
Codes can be downloaded for use in applications.
•A metadata registry is a place to keep facts about characteristics of data that are necessary to clearly describe, inventory, analyze, and classify data.
•A metadata registry supports data sharing with cross-system and cross-organization descriptions of common units of data.
•A metadata registry assists users of shared data to have a common understanding of a unit of data’s meaning, representation, and identification.
Identifying and Definitional Attributes: Data Element ID : 07-329-4837.00000692.v1
Name : Gender Code Context : X12 Data Dictionary Definition : Code indicating the sex of the individual Status : Received as of 01/19/1999 Example : Synonyms/Keywords : Comment :Data Collection Methods :Relational and Representational Attributes: Data Type : ID Representational Form : Representational Layout : Minimum Size : 1 Maximum Size : 1 Unit Of Measure : Precision : Minimum Range : Maximum Range :Data Domain: Permissible value Domain Meaning Name Domain Meaning Definition Text A Not Provided B Not Applicable F Female M Male N Non-sexed U Unknown X UnsexableRelated Data References: Object Relationship Related Item Type Gender Code is composite part of X12 Data Dictionary Standards Alternate Names and Contexts: Name Context Gender Code X12 Data Dictionary 1068 X12 Data Element Number
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Data Elements are Linked to Model Views
Australian Institute o f Health and W elfare
B e lie f A ttitude ...
P e rson V iew
Lega l C haracte ris tic
D a te o f B irthS ex C odeG ender C odeC itizensh ip S ta tus C odeR ace o r E thn ic ity C ode
D em ograph ic C haracte ris tic ...
P e rson C haracte ris tic S ta te o f Hea lth and W e llbe ing ...
N a tional H ea lth In fo rm a tion M ode l - Ve rs ion 2
Model Views
Data Elements
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Data Elements Linked by Different Organizations Appear Together
NCPDP Data Element(0060-02-166-0014 Registration Authority)
X12 Data Element(0060-07-329-4837 Registration Authority)
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Future
HISB will manage the release of the new USHIK
HCFA will utilize an internalized version of USHIK for managing End Stage Renal Disease and Peer Review Program metadata
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Point of Contacts and Example Metadata Registry Sites Health Care Financing Administration
– Bob MayesDirector, Information Systems Group
Office of Clinical Standards and Quality
Health Care Financing Administration
7500 Security Blvd., Bldg S3-02-01
Baltimore, MD 21244-1850
410.786.6872 / 410.786.8532 Fax
Department of Defense - Health Affairs– Marco Johnson
Chief, Operational Architecture
Information Management
Information Management, Technology & Reengineering
TRICARE Management Activity
Office of Assistant Secretary of Defense ‑ Health Affairs
5111 Leesburg Pike, Suite 810
Falls Church, VA 22041-3206
703.681.5611 / 703.681.8845 Fax
http://www.hirs.osd.mil/hdp/index.html
National Health Information Knowledgebase (NHIK) from Australian Institute of Health and Welfare (AIHW)– http://www.aihw.gov.au
Environmental Data Registry (EDR) from the U.S. Environmental Protection Agency (EPA)– http://www.epa.gov/edr
United States Health Information Knowledgebase (USHIK) on DoD Health Information Service (HIRS)– http://hmrha.hirs.osd.mil/registry/