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James David Chapman @batteredoldbook Mar 4Compare responses @pam_das of @TheLancet "Write a letter if you're that aggrieved!" vs. @womenshealth "We sincerely apologize" #MEcfs

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8:10 AM - 4 Mar 2015 Details

Pam Das@pam_das

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@batteredoldbook @womenshealth what exactly would we be apologising for?? For having a view? Ridiculous. You're Bullies!

Islington, London

9:30 AM - 4 Mar 2015

Following

Reply to @pam_das @batteredoldbook @womenshealth

James David Chapman @batteredoldbook Mar 4.@pam_das @womenshealth If you wish for us to meet to discuss the issues then I am happy to arrange to do so. #MEcfs

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Bob Bob @bobbobme Mar 4@pam_das @batteredoldbook Dear Pam, I'm sure that u have best intentions. But from patient perspective, the Lancet is bullying a community.

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Pam Das on Twitter: "@batteredoldbook @womenshealth what exactly would we be apologising for?? For having a view? Ridiculous. You're Bullies!" 07/03/2015

le:///home/ace/Desktop/Lancet%20pam%20das%203.html 5 / 33

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Bob Bob @bobbobme Mar 4@pam_das @batteredoldbook Perhaps, as James suggests, a meeting with community members would help us all to understand our differences?

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James David Chapman @batteredoldbook Mar 4.@pam_das @TheLancet @womenshealth Please confirm whether your phrase:You're bullies! was personal one or made in your professional capacity

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James David Chapman @batteredoldbook Mar 4@bobbobme @pam_das Would strongly support a meeting of ME community members and @TheLancet.

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Debbie Burgess @debbiecmhb Mar 4@batteredoldbook @bobbobme is there a patient & carer group for ME? One that should be involved in meetings that impact on their care 1/2

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Debbie Burgess @debbiecmhb Mar 4@batteredoldbook @bobbobme they exist in lots of other illnesses.. 2/2

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Geoff Jones @geoffbiosci Mar 4@debbiecmhb @batteredoldbook Have I missed something or did the powerful & influential Lancet accuse ME sufferers of being bullies?

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2:40 PM - 4 Mar 2015 Details

Geoff Jones @geoffbiosci Mar 4@debbiecmhb @batteredoldbook @bobbobme As I'd say that description would be more accurately ascribed to the Lancet.

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James David Chapman @batteredoldbook Mar 4@geoffbiosci @debbiecmhb Looking this way. I'm gobsmacked (or "grubstaked" as auto-correct would have it).

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Paul @HylomantisL Mar 4@batteredoldbook @pam_das @TheLancet @womenshealth I hope I'm not included in this. I made a simple observation regarding an error by Pam.

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James David Chapman @batteredoldbook Mar 4.@HylomantisL @pam_das @TheLancet @womenshealth Absolutely & I myself was trying to make a comparison about tone.

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Chris Evans @Onlyfluffyone Mar 4@geoffbiosci @debbiecmhb @batteredoldbook wow... that's bad..


James David Chapman @batteredoldbook Mar 4.@Onlyfluffyone @geoffbiosci @debbiecmhb It's a remarkable thing & more than a little scary as far as I'm concerned.

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Chris Evans @Onlyfluffyone Mar 4@batteredoldbook @geoffbiosci @debbiecmhb I am truly shocked... I didn't think I could be...

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Paul @HylomantisL Mar 4@batteredoldbook @pam_das @TheLancet @womenshealth I'm sure we will get a professional and objective response.


Geoff Jones @geoffbiosci Mar 4@batteredoldbook Certainly unpleasant, they are bullies and always have been when it comes to the ME community @Onlyfluffyone @debbiecmhb

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Geoff Jones @geoffbiosci Mar 4@Onlyfluffyone @debbiecmhb @batteredoldbook On the defensive now that their psyche favoured viewpoint is unravelling, hence the abuse.

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Geoff Jones @geoffbiosci Mar 4@Onlyfluffyone @debbiecmhb @batteredoldbook Totally immoral to talk to a severely ill person in such a way but that's the Lancet for you.

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James David Chapman @batteredoldbook Mar 4@geoffbiosci @Onlyfluffyone @debbiecmhb I don't think it has to go this way. A more graceful solution to UK M.E is possible imo.


James David Chapman @batteredoldbook Mar 4@geoffbiosci @Onlyfluffyone @debbiecmhb It's tricky because the comment was plural, so could apply to whole community for all I know.


MEmilitant @MEMilitant1 Mar 4@pam_das @batteredoldbook You've not even been willing to explain your view. In what way do you think PACE paved the way to IOM report?

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Geoff Jones @geoffbiosci Mar 4@Onlyfluffyone @batteredoldbook @debbiecmhb I'm not shocked but I'm a cynical bugger, unprofessional, wd expect better from a Lancet editor

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James David Chapman @batteredoldbook Mar 4@MEMilitant1 @pam_das Tbh, I think we're past the point of discussion here; Need to restore order & respect all round.




MEmilitant @MEMilitant1 Mar 4@batteredoldbook @pam_das Given up on respect - not that bothered anymore. Would like answers and explanation though. Truth > manners.


Geoff Jones @geoffbiosci Mar 4@batteredoldbook I took it she meant the whole community, which means it includes me too, outrageous :) @Onlyfluffyone @debbiecmhb

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Geoff Jones @geoffbiosci Mar 4@batteredoldbook They committed to the psych paradigm, lack the courage to admit mistake and debate openly @Onlyfluffyone @debbiecmhb

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Noreen Murphy @Noirin08 Mar 4@pam_das @batteredoldbook @womenshealth WOW,did #Lancet Editor call #ME patients #bullies?! #Unprofessional & #Bias their forte #LancetShame

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Chris Evans @Onlyfluffyone Mar 4@geoffbiosci @debbiecmhb @batteredoldbook I'm a little confused.. brain fog.. the Lancet editor.. one would perhaps expect better form them.




C.S. Gillberg @DrCGillberg Mar 4@Noirin08 @pam_das Who does the Lancet editor include in 'you're bullies' and on what basis? @batteredoldbook

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Gus @augustine_ryan Mar 4@pam_das @batteredoldbook @womenshealth Rather unprofessional, somewhat ad hominem, exaggerated and moving away from real issues.

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Geoff Jones @geoffbiosci Mar 4@HylomantisL Not if previous communication is an example but we can hope @batteredoldbook @pam_das @TheLancet @womenshealth


Tamara Lucas @tamaralucas123 Mar 4@HylomantisL The standard forum for discussion is in Correspondence pages. Here is the submission link: h ttp ://ees.elsevier.com/thelancet/

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Henry Anderson @Macanders Mar 4@geoffbiosci @batteredoldbook @Onlyfluffyone @debbiecmhb Anyone who questions the psych view of M.E. is smeared as a fanatic or bully.

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Paul @HylomantisL Mar 4@tamaralucas123 Thankyou but it was just a response to a tweet!




Tamara Lucas @tamaralucas123 Mar 4@HylomantisL Sure, thanks! If you do want a response on behalf of the journal, though, Correspondence is the formal place to engage.


Geoff Jones @geoffbiosci Mar 4@Macanders A very constructive way of going about things, especially as psych view has nothing to support it @batteredoldbook @Onlyfluffyone

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Geoff Jones @geoffbiosci Mar 4@Macanders Obsessively clinging on to an outdated paradigm and abusing those who disagree is what's fanatical @batteredoldbook @debbiecmhb

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Debra Nice @Debranice28 Mar 4@pam_das @batteredoldbook @womenshealth so now us chronicle sick are bullies.@Lancet


Gabi Lewis @ActionNowGal Mar 4@batteredoldbook @bobbobme @pam_das @TheLancet am in agreement and would happily participate.


Gabi Lewis @ActionNowGal Mar 4@Macanders @geoffbiosci @batteredoldbook @Onlyfluffyone



@debbiecmhb which is why we need to promote all the current research out there.


Gabi Lewis @ActionNowGal Mar 4@Macanders @geoffbiosci @batteredoldbook @Onlyfluffyone @debbiecmhb in the end they are going to look like fools - rats on a sinking ship.

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James David Chapman @batteredoldbook Mar 4@Macanders @geoffbiosci @Onlyfluffyone @debbiecmhb I hope that another way forward for all concerned can be found.

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James David Chapman @batteredoldbook Mar 4.@Debranice28 @pam_das @womenshealth @lancet Issue needs to be addressed very quickly indeed. #MEcfs patients are. in experience, wonderful.

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James David Chapman @batteredoldbook Mar 4.@ActionNowGal @bobbobme @pam_das @TheLancet Thanks for this offer Gabi. Solution is: withdraw bully comment & talk to real #MEcfs patients.

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Thomas Stones @TommyStones1 Mar 4@batteredoldbook @Debranice28 @pam_das @womenshealth @lancet I'm just waiting for the day that anti-terrorist laws are used against us #ME



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Chris Evans @Onlyfluffyone Mar 4@batteredoldbook @Macanders @geoffbiosci @debbiecmhb this does nothing to restore my faith in mankind... It's wrong on so many levels..

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Debra Nice @Debranice28 Mar 4@batteredoldbook @pam_das @womenshealth @lancet ME people are the ones being bullied & abuse

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Debra Nice @Debranice28 Mar 4@batteredoldbook @pam_das @womenshealth @lancet there is just so many lies being thrown around about ME

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Debra Nice @Debranice28 Mar 4@batteredoldbook @pam_das @womenshealth @lancet all coming from the people who are meant to care for ME

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Paul @HylomantisL Mar 4@tamaralucas123 Thanks :)




Geoff Jones @geoffbiosci Mar 4@batteredoldbook Still surprised at the aggressive response, no one less bullying than James C @ActionNowGal @bobbobme @pam_das @TheLancet


Henry Anderson @Macanders Mar 4@geoffbiosci @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet James said nothing that was in any way bullying.

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Geoff Jones @geoffbiosci Mar 4@Macanders They're programmed to respond like that as ME people are so scary @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet


Geoff Jones @geoffbiosci Mar 4@Macanders They'll be debating J's 'bullying' on the Today prog tomorrow :) @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet


C.S. Gillberg @DrCGillberg Mar 4@Macanders You couldn't find a less offensive man on Twitter. @geoffbiosci @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet

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Geoff Jones @geoffbiosci Mar 4@DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme It seems @pam_das is blocking anyone with ME, must be



allergic @TheLancet

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C.S. Gillberg @DrCGillberg Mar 4@Macanders By the way, I am also blocked. Why? @geoffbiosci @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet

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Geoff Jones @geoffbiosci Mar 4@DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet You have ME = scary nutter in @pam_das's world


C.S. Gillberg @DrCGillberg Mar 4@TheLancet That is unacceptable behaviour. Wld you pls explain? @geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das

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John Peters @johnthejack Mar 4@geoffbiosci @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das Yes, I see I am after my comment re Lipkin


Gus @augustine_ryan Mar 4@geoffbiosci @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet Lack of listening is costing public money.



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Geoff Jones @geoffbiosci Mar 4@DrGillberg @TheLancet @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das I blame James :)


Geoff Jones @geoffbiosci Mar 4@johnthejack Wow, they're a tolerant lot John @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das


Chris Evans @Onlyfluffyone Mar 4@DrGillberg @TheLancet @geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das very poor show...

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Get Well From ME @GetWellFromME Mar 4.@pam_das @batteredoldbook @womenshealth Those who promote the idea PACE was valid, or that #MEcfs sufferers must exercise, are the bullies.

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C.S. Gillberg @DrCGillberg Mar 4@johnthejack @geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme Would @TheLancet explain who @pam_das is? Why block ppl?

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C.S. Gillberg @DrCGillberg Mar 4@Onlyfluffyone It is shocking! @TheLancet @geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das

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Geoff Jones @geoffbiosci Mar 4@Onlyfluffyone A form of abuse imo, they're good at that @DrGillberg @TheLancet @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das

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John Peters @johnthejack Mar 4@DrGillberg @geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das h ttp ://w w w .journals.elsevier.com/the-lancet/edito ria l-b o a rd /

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C.S. Gillberg @DrCGillberg Mar 4@geoffbiosci I shall make an official complaint. @Onlyfluffyone @TheLancet @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das

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Geoff Jones @geoffbiosci Mar 4@DrGillberg Serious issues, I recommend CBT @johnthejack @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das




John Peters @johnthejack Mar 4@geoffbiosci @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das We're the ME lobby cranks, though.


John Peters @johnthejack Mar 4@geoffbiosci @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das We're not saying issues are not real, tho


Geoff Jones @geoffbiosci Mar 4@johnthejack I think they're over-editored @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @TheLancet @pam_das


Tamara Lucas @tamaralucas123 Mar 4@Onlyfluffyone @DrGillberg @geoffbiosci @Macanders @ActionNowGal Standard discussion forum = Correspondence, link h ttp ://ees.elsevier.com/thelancet

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C.S. Gillberg @DrCGillberg Mar 4@tamaralucas123 Thank you. I shall write tomorrow. What a waste of my time though. @Onlyfluffyone @geoffbiosci @Macanders @ActionNowGal

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Geoff Jones @geoffbiosci Mar 4@tamaralucas123 Thanks for the link Tamara @Onlyfluffyone @DrGillberg



@Macanders @ActionNowGal


James David Chapman @batteredoldbook Mar 4@geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet Thank you so much Geoff; That's lovely. Today is so hard. Am tired.


James David Chapman @batteredoldbook Mar 4@Macanders @geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet Thank you Henry. I can't see anything either. It's really odd situation.


Geoff Jones @geoffbiosci Mar 4@batteredoldbook You're welcome James :) @ActionNowGal @bobbobme @pam_das @TheLancet


Geoff Jones @geoffbiosci Mar 4@batteredoldbook Think my chances of getting research published in the Lancet have nosedived :) @ActionNowGal @bobbobme @pam_das @TheLancet

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Anne LiConti @AnneSpaceCoast Mar 4@geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet Are you afraid of ME people Geoff?




Chris Evans @Onlyfluffyone Mar 4@DrGillberg @tamaralucas123 @geoffbiosci @Macanders @ActionNowGal I've wasted enough valuable energy on this.... I am appalled by it all...

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Anne LiConti @AnneSpaceCoast Mar 4@geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet Geoff, we have your number-> h ttp s ://w w w .youtube.com/watch?v=-bYAQ-Z Z tE U

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Astroturf and manipulation of media messages | Sharyl Attkisson |...




Geoff Jones @geoffbiosci Mar 4@batteredoldbook It illustrates how brainwashed they are regarding ME sufferers as nutters @Macanders @ActionNowGal @bobbobme @TheLancet


Geoff Jones @geoffbiosci Mar 4@batteredoldbook Only way to explain such a response @Macanders @ActionNowGal @bobbobme @pam_das @TheLancet


Geoff Jones @geoffbiosci Mar 4@AnneSpaceCoast I hope not as I am one :) @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet


James David Chapman @batteredoldbook Mar 4@DrGillberg @Macanders @geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet Thank you Claudia; I'd consider myself "Mostly Harmless".


Anne LiConti @AnneSpaceCoast Mar 4@geoffbiosci @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet I apologize Geoff, im trying to follow this convo


Anne LiConti @AnneSpaceCoast Mar 4@batteredoldbook @DrGillberg @Macanders @geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet James is a good guy, wouldnt hurt a fly




Geoff Jones @geoffbiosci Mar 4@AnneSpaceCoast I was joking re us being scary, I have ME. No problem Anne, Twitter gets very confusing :)


James David Chapman @batteredoldbook Mar 4@AnneSpaceCoast @DrGillberg @Macanders @geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet Now, I'm thinking I'm too inoffensive! lol


maxwhd @maxwhd Mar 4@Onlyfluffyone @DrGillberg @tamaralucas123 @geoffbiosci @Macanders @ActionNowGal Standard method of denying/avoiding issues = Correspondence


Geoff Jones @geoffbiosci Mar 4@batteredoldbook Far too inoffensive imo & look where it's got you :) @AnneSpaceCoast @DrGillberg @Macanders @ActionNowGal @bobbobme


Anne LiConti @AnneSpaceCoast Mar 4@batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet The aggressive bullies are on the payroll & they r showing up everywhere!


Anne LiConti @AnneSpaceCoast Mar 4@batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet I wonder how much they are getting paid as no one works for free!?!?!?!




Anne LiConti @AnneSpaceCoast Mar 4@geoffbiosci @batteredoldbook @DrGillberg @Macanders @ActionNowGal @bobbobme James is a gentlemen, bullies r not gentlemen or even real men!


Sophie Sleep @rognsoph Mar 4@batteredoldbook @Onlyfluffyone @geoffbiosci @debbiecmhb Blimey James what an earth is going on, "bullies" for asking a question what is all

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Sophie Sleep @rognsoph Mar 4@batteredoldbook @Onlyfluffyone @geoffbiosci @debbiecmhb that about?


Geoff Jones @geoffbiosci Mar 4@rognsoph Clearly they don't want any debate, Lancet's word is law. @batteredoldbook @Onlyfluffyone @debbiecmhb


James David Chapman @batteredoldbook Mar 4@geoffbiosci @Macanders @ActionNowGal @bobbobme @TheLancet If this were in any way the case, I hope they will meet us and talk it out.


Sophie Sleep @rognsoph Mar 4@geoffbiosci @batteredoldbook @Onlyfluffyone @debbiecmhb Well I think all people with ME, including their parents/carers have every right




Sophie Sleep @rognsoph Mar 4@geoffbiosci @batteredoldbook @Onlyfluffyone @debbiecmhb to have a debate, after all it is about US! Thanks Geoff what an awful thing to be


Sophie Sleep @rognsoph Mar 4@geoffbiosci @batteredoldbook @Onlyfluffyone @debbiecmhb called very hurtful and disrespectful.


Debbie Burgess @debbiecmhb Mar 4@rognsoph bail? :)

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Sophie Sleep @rognsoph Mar 4@debbiecmhb Ha ha Deb not just yet :) xx


James David Chapman @batteredoldbook Mar 4@AnneSpaceCoast @ActionNowGal @bobbobme @pam_das @TheLancet I dunno about this; All I know is that #MEcfs patients treated v harshly.

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Debbie Burgess @debbiecmhb Mar 4@rognsoph give it time... :)


Sophie Sleep @rognsoph Mar 4



@debbiecmhb Now then? xx


Jennifer Brea @jenbrea Mar 4.@pam_das @batteredoldbook @womenshealth We are not bullies. We are severely ill people fighting for the only life we've got. #mecfs

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Debbie Burgess @debbiecmhb Mar 4@rognsoph haha!

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Litsa Dremousis @LitsaDremousis Mar 4Debating the reality of #mecfs is like debating climate change. Thank you,@jenbrea. @pam_das @batteredoldbook @womenshealth

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Bob Bob @bobbobme Mar 4@DrGillberg @maxwhd @Macanders @geoffbiosci @batteredoldbook Just had a thought - perhaps the account is now private. So we're not blocked.


James David Chapman @batteredoldbook Mar 4@bobbobme @DrGillberg @maxwhd @Macanders @geoffbiosci Great fact checking - Always important before running off on one.


Gus @augustine_ryan Mar 4



@geoffbiosci @maxwhd @debbiecmhb @batteredoldbook It's a way of stopping their views being challenged. Let readers judge if it's bullying.

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spanglemcqueen @spanglemcqueen Mar 4@batteredoldbook @geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet James look after yourself! X


James David Chapman @batteredoldbook Mar 4@spanglemcqueen @geoffbiosci @ActionNowGal @bobbobme @pam_das @TheLancet Thank you. Will try.


Geoff Jones @geoffbiosci Mar 4@batteredoldbook Similar thing if she changed the setting to avoid us though @bobbobme @DrGillberg @maxwhd @Macanders


Sophie Sleep @rognsoph Mar 4@jenbrea @batteredoldbook @pam_das @womenshealth What a really hurtful thing to say to any ME sufferer no way bullies disrespectful :(


Sophie Sleep @rognsoph Mar 4@jenbrea @batteredoldbook @pam_das @womenshealth James I hope you are okay, I know that would have upset you? xx

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James David Chapman @batteredoldbook Mar 4@rognsoph @jenbrea @pam_das @womenshealth I'm okay. But I am really really worried for us all.

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Sophie Sleep @rognsoph Mar 4@batteredoldbook @jenbrea @pam_das @womenshealth I know same James :( x


Jennifer Brea @jenbrea Mar 4.@batteredoldbook I was just now blocked for a single, completely unoffensive tweet. I don't think she understands the medium #mecfs

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James David Chapman @batteredoldbook Mar 4@jenbrea I understand there may be a technical difficulty but don't understand where the words are coming from.


Liz Britton @lizziebee3 Mar 4Completely unacceptable for an editor of @TheLancet to call a group of seriously ill patients bullies. @pam_das @batteredoldbook #MEcfs

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MYRA B. @Gooische_Vrouw Mar 4@geoffbiosci @batteredoldbook @Onlyfluffyone @debbiecmhb yep the whole community- i am shocked....




Angela Kennedy @AcademicAnge Mar 5@augustine_ryan @DrGillberg @pam_das @batteredoldbook @womenshealth Sadly The Lancet has form for ad hominem attack on ME community... (1/2)

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Angela Kennedy @AcademicAnge Mar 5@augustine_ryan @DrGillberg @pam_das @batteredoldbook @womenshealth ... and form on ignoring complaints: h ttp s ://independent.academia.edu/AngelaKennedy1 /P a p e rs ? s = n a v # a d d /c lo s e

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Dr Speedy @DrSpeedyandME Mar 5Prof Keller: "it is intellectually embarrassing to suggest that ME is a psychological illness." h ttp ://niceguidelines.blogspot.com/2015/01/exercis e -p h y s io lo g is t-p ro f-k e lle rit-is .h tml @pam_das #cfs #MEcfs

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Carolyn Thomas @HeartSisters 11hDid I read this right? @TheLancet editor @pam_das calls ME pts. "bullies"? Is that a personal view or official Lancet one? @batteredoldbook

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James David Chapman @batteredoldbook 10h@HeartSisters If you find out - pls let me know. Unbelievably, Lancet has not acted to reassure myself or #MEcfs folk.




FunkisHen @FunkisHen 10h@HeartSisters Hmm, @DrCGillberg did they respond to your email yet?

@batteredoldbook


James David Chapman @batteredoldbook 10h@FunkisHen @HeartSisters @DrCGillberg I think Claudia unwell now; Possibly @geoffbiosci will know.


Debra Nice @Debranice28 10h@geoffbiosci @DrGillberg @Macanders @batteredoldbook @ActionNowGal @bobbobme @pam_das @TheLancet Respect ME not disrespect ME

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Geoff Jones @geoffbiosci 9h@batteredoldbook @FunkisHen Claudia will post on our blog when they do, she wrote an official letter of complaint @HeartSisters @DrCGillberg


Geoff Jones @geoffbiosci 9h@batteredoldbook @FunkisHen as Dr Gillberg so they will have to respond @HeartSisters @DrCGillberg


Geoff Jones @geoffbiosci 9h@HeartSisters That was a question posed in the letter of complaint Dr Gillberg wrote to The Lancet @TheLancet @batteredoldbook




James David Chapman @batteredoldbook 9h@geoffbiosci @FunkisHen @HeartSisters @DrCGillberg Obviously I feel honour bound to add: I'm an #MEcfs patient, so they'll have to respond.


Geoff Jones @geoffbiosci 9h@batteredoldbook They never seem very keen to reply to me as an #MEcfs patient :) @FunkisHen @HeartSisters @DrCGillberg


Chris Evans @Onlyfluffyone 9h@geoffbiosci @batteredoldbook @FunkisHen @HeartSisters @DrCGillberg any news yet ?


James David Chapman @batteredoldbook 9h@geoffbiosci @FunkisHen @HeartSisters @DrCGillberg I thought I was having a conversation with them at one point.


Geoff Jones @geoffbiosci 8h@batteredoldbook I still think you should write an official letter of complaint, far more likely to respond to that @FunkisHen @HeartSisters


Geoff Jones @geoffbiosci 8h@Onlyfluffyone Nothing yet Chris, any reply will be published on the blog as soon as it's received @batteredoldbook @FunkisHen @HeartSisters




Chris Evans @Onlyfluffyone 8h@geoffbiosci @batteredoldbook @FunkisHen @HeartSisters thanks Geoff... give me a nudge will please x


James David Chapman @batteredoldbook 8h@geoffbiosci @FunkisHen @HeartSisters As @bengoldacre says, Twitter is Universal Hansard.The Lancet must respond -It's just too serious now.

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Geoff Jones @geoffbiosci 8h@batteredoldbook I don't think they'll reply on here. Would be hard to do so comprehensively @FunkisHen @HeartSisters @bengoldacre


Geoff Jones @geoffbiosci 8h@Onlyfluffyone Will do Chris :) @batteredoldbook @FunkisHen @HeartSisters


James David Chapman @batteredoldbook 8h@geoffbiosci @FunkisHen @HeartSisters @bengoldacre Asked for Lancet reassurance myself & #MEcfs Pts not "Bullies". They can do this here&now


Geoff Jones @geoffbiosci 8h@batteredoldbook They certainly could but I don't think they will @FunkisHen @HeartSisters @bengoldacre



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FunkisHen @FunkisHen 8h@batteredoldbook @HeartSisters @DrCGillberg @geoffbiosci Hope she feels better soon.


Geoff Jones @geoffbiosci 8h@FunkisHen Thanks for that :) @batteredoldbook @HeartSisters @DrCGillberg


James David Chapman @batteredoldbook 8h@geoffbiosci @FunkisHen @HeartSisters @bengoldacre :(


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